20090703 prestentation how endorse and improve v1.0


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How online trends and tools can endorse healthcare and improve quality of life. Presentation in Paris july 2009.

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  • Why changed: because we all now what social media are and most of us use them
  • HYPERLINK "http://www.about.com/health/"
  • internet penetratie in België : 63% of belgian population surfs the internet (not much)
    2,9 miljoen internet aansluitingen

    > belgium was once number one, and now we are the last.
    Wy - because in belgium its a lot more expensive (dominance telenet and)
    cfr freebox in France
  • some are not online
    some are online but can ‘t use it the silver surfer

    - not everybody has access to internet our knows how to use it
    - wich keyword to search for
  • they not onlin
  • 10% more then Google
  • 2link was number 6 in the result list refering to a page talking about making money, spoil yourself, loosing weight, beauty, wellness, ...
    The number of boxes taking about diabetes are a minority and are mostly below the fold.

  • how does google work - top results
    - "PageRank relies on the uniquely democratic nature of the web"

  • rate your doctor
  • http://diabetescontrolforlife.com/tools/
  • (hell, what isn’t available on the iPhone)
  • Because diabetes is more than just a disease, it’s also a way of life.

    So you want too share what you’ve learned and what you’ve experienced.

  • http://pope2you.net
    An allusion on P2P?
  • http://delicious.com/search?p=diabetes&u=&chk=&context=main&fr=del_icio_us&lc=0

    Join our community is NOT “Subscribe to our Newsletter”
  • Search patterns are dependent from stage of disease.
    Social Engagement is dependent on the disease itself.

    See Diabetes...
  • 20090630: http://digg.com/search?s=diabetes&sort=digg
    > Checkdiabetes.org show a blog post titled “facts on type 1 diabetes and type 2 diabetes” with a GoogleAdd toward the eShop from Danlab Finland where I can by the BeneCheck Glu. (http://www.checkdiabetes.org/2009/06/facts-on-type-2-diabetes-and-type-2.html)
    > NY Times features an article on a bicycle exploit by Type I diabetici (http://www.nytimes.com/2009/06/30/health/30well.html?_r=1&partner=rss)
  • http://www.reddit.com/search?q=diabetes&sort=top&t=month
    > Guardian: new insights (‘invalshoeken’) on diabetes and, here, drugs.
    (http://www.guardian.co.uk/business/feedarticle/8560642 - article data 16/06/09)
    > MSNBC “Dogs being trained to sniff out diabetes” - A canine's hyper-sensitive nose can detect tiny changes in blood sugarı

  • FB: blanken tegen blanken, zwarten tegen zwarten, vrouwen met vrouwen, dikke auto met dikke autos

  • Compare this profile to a facebook profile: holidays, books, ...
  • We start to share all kinds of preferences.
    (we influence each other in buying preference)

    > co-creation kan enkel onder gelijkgezinden (onze tuin is nog niet klaar)
  • stylisch accessories for the modern diabetic
    (fashion for diabetics)

  • art share

  • http://www.health.org.uk/current_work/case_studies/cocreation_in.html
    patient and physician setup together the best treatment and life condition
    (one with experiences, the other with knowledge)

    testing a new model of care that hopes to change the patient-clinician relationship to one of partnership and co-creation. The initiative works across the system to embed self-management support for people with long-term conditions.

    > samen werken aan een document
    > kan enkel indien men dezelfde waarden heeft

    Vergelijk MS met Google
    > een computer, een document en rondmailen
    > een platform online waarop iedereen werkt en waarvan we makkelijk kunnen delen

    tot slot ervan uitgaan dat er daar mensen ‘out there’ die dingen weten, kunnen die ik niet weet

    => straks op terug komen bij
  • Just like the search results
  • (at least i can do that)

  • At least in Europe it can take a while before all the data are completed.

    Also Microsoft is working on something: Health Vaulth.
  • http://e-patients.net/about-e-patientsnet
  • http://www.medicalfacts.nl/2008/10/06/online-sociale-netwerken-zijn-ook-voor-de-e-patient-de-populairste-nieuwe-webtechnologie/
  • DIEP is today a mainly one way communication instrument

  • http://www.businessweek.com/technology/content/jul2009/tc2009071_442911.htm?link_position=link1
    Survey conducted on 1th of July

    Speaking is said Dr. James S. Marks, senior vice-president of the Robert Wood Johnson Foundation.

  • http://spectrum.diabetesjournals.org/content/21/2/91.full
  • http://spectrum.diabetesjournals.org/content/21/2/91.full
  • Developing co-created services will necessarily be dependent on a set
    of key processes that support and enable the distribution of resources
    and knowledge,collaborative approaches and new interfaces between
    users and professionals across disciplines.
    Designers turn radical innovation into practical reality on a daily basis,
    be that in the creation of new products and environments,or the
    development ofservices and experiences

  • 20090703 prestentation how endorse and improve v1.0

    1. 1. HOW ONLINE TRENDS AND TOOLS CAN ENDORSE HEALTHCARE AND IMPROVE QUALITY OF LIFE. A conversation about search, social media, co-creation, patient empowerment and new business models. Saturday 3/07/2009 remi.maddens@fishtank.be
    2. 2. When you’re sick, you have a lot of questions •Questions you might ask relating to illness or symptom(s) •What's wrong with me? •Can you draw a picture or show me what is wrong? •What causes this kind of problem? •Can I give this illness to someone else, and if so, how and for what period of time can I pass this on? •Are there any activities or foods which I should avoid? •When can I return to work or school? •What is the long-term prognosis of my condition? •How can I prevent this from happening again? •How will this problem affect me in the future? •What will happen if I don't treat my condition right away? •What treatment should I follow, including dietary, medical treatment, and lifestyle changes? •When do I need to see the doctor? •Where can I get more information about my condition?
    3. 3. So you start searching Google • In Belgium more than 50% of the total population uses internet in search for health information (2006). • People in Nordic countries tend to be frequent users (does it have to do with the weather?) • And in the US the number of adults on the web searching for health information has doubled in the past 2 years from 31% tot 60% (june 2009).
    4. 4. Or you can ask somebody else to search Google for you • 50% of all online health searches are on behalf of someone else
    5. 5. People love using thet net when they’re sick • 26% (fully) agrees with ‘when I feel something I first look on the Internet to see what might be the cause’ • 24% (fully) agrees with ‘before I go to a doctor, I first look for more information on the Internet’ • 50% (fully) agrees with ‘when my doctor makes a diagnosis, I often look on the Internet for extra information’ • 27% (fully) agrees with ‘when my doctor makes a diagnosis, I will check it based on online information’ • 26% (fully) agrees with ‘when I need to take medicine, I first look up more information on the Internet about this medicine’ • The physician remains by far the most reliable source of health related information. But the patient has joined the online conversation
    6. 6. And Microsoft doesn’t help •Bing gives us 10% more results than Google, 82.300.000 in total.
    7. 7. They send surfers to strange places
    8. 8. They want to learn about their medication, treatment, alternatives and what the illness will cost them 1. Specific disease or medical problem; 2. Certain medical treatment or procedure; 3. Diet, nutrition, supplements; 4. Excercise or fitness; 5. Prescription or over-the-counter drug; 6. Alternative treatment or medicine; 7. Health Insurance; 8. Depression, anxiety, stress, mental health; 9. A particular doctor or hospital; 10.Experimental treatments or medicines.
    9. 9. And as far as diabetes is concerned, they look for: 1. Symptoms of Diabetes 2. Diabetes Diet 3. Types of Diabetes 4. What Causes Diabetes? 5. Type 1 Diabetes 6. Treatment for Diabetes 7. Facts About Diabetes 8. Diabetes Tests 9. Prediabetes 10. Type 2 Diabetes 11. Gestational Diabetes 12. Hypoglycemia
    10. 10. And questions evolve over time
    11. 11. Chronicle patients use search engines less • Chronicle patients use less search engines in search for health information; • 56% chronicle patients start with search engine; • 67% non-chronicle patients start with search engine; • 50% of chronicle patients talk to their fysician about information found on the internet; • 30 of non-chronicle patients talk to fysician about information found on the internet; • It could be that chronicle patients become more experienced with higher quality results and more networked (worth talking about tot physician) over time.
    12. 12. The web will provide some answers
    13. 13. But the web will also provide you with some tools • so that you can start monitoring yourself and make the right choices
    14. 14. …also available on the iPhone, of course
    15. 15. And people enter the conversation • Health consumers are often looking for tailored information, searching for a “just-in-time someone-like-me.” For example: • 41% of e-patients have read someone else's commentary or experience about health or medical issues on an online news group, website, or blog. • 24% of e-patients have consulted rankings or reviews online of doctors or other providers. • 24% of e-patients have consulted rankings or reviews online of hospitals or other medical facilities. • 19% of e-patients have signed up to receive updates about health or medical issues. • 13% of e-patients have listened to a podcast about health or medical issues.
    16. 16. Sharing is healthy Sharing on other sites: • All information sources today encourage visitors to share the information in their own community Discussion on Google Friend Connect: and networks. • Natural selection: Get e-mail alerts on related topics: people share only information they find interesting
    17. 17. Even the pope is sharing • Pope-to-You (P2Y) • Facebook application • Receive messages from the pope • Meet the pope on Facebook • Listen to his words • See picture of the pope • Send virtual postcards • But the pope is not only on Facebook: • WikiCultura • iPhone application • YouTube channel
    18. 18. Sharing occurs through numerous channels • 35.755 links • Top rated diabetes • America Diabetes Association • Diabetes Mine • DLife • Sugar Stats • Glycemic Index
    19. 19. With Audience engagement depending on disease
    20. 20. It can give us (false) hope • A break-through in diabets research? • And we are off on a journey through cyber health space (via “Newest First”): • Checkdiabetes.org with message ‘Sharing is healthy’. • NYTimes: bycicle challenge by Type1 patients
    21. 21. Or “interesting” insights • Guardian: Cannabis might treat diabetes, says top researcher • MSNBC: No more needs for expensive equipment. Dogs will do the job in the near future.
    22. 22. And even confort.
    23. 23. Similarity breeds connection. Homophily is the principle that a contact between similar people occurs at a higher rate than among dissimilar people.
    24. 24. Take Lise’s story for example • Diabetes is a complex condition. For at the end of the day, no one can better understand the challenges we face and deal with, better than those of us who share this condition, having a faulty pancreas.
    25. 25. There are more people like Lise out there
    26. 26. Look at Firas’ profile for example • Firas
    27. 27. Maybe Firas and Lise want to share more
    28. 28. And more
    29. 29. And more
    30. 30. even more than we could ever imagine
    31. 31. Chances are • they will make kids... • they will become involved in making us aware ...
    32. 32. Chances are • they become assertive and start a blog Picture 2 Picture 2 Picture 2
    33. 33. Chances are • they will post their stories on http:// stories.barackobama.com/ healtcare, just like hundreds of thousands of ordinary Americans who have watched their premiums rise faster than wages, and spiraling costs shackle American businesses — put a personal touch on the health care crisis.
    34. 34. Chances are • they will come up with solutions for future generations.
    35. 35. using collaboration platforms • Learn the secrets to managing diabetes.Ask questions and get answers in minutes. • Get real-time support in Live Chat.Meet people who understand what you're going through. • Stay up-to-date on critical advances.Be the first to know about research discoveries and new treatments.
    36. 36. Which can be set up in seconds • In 60 seconds a private or public platform is created with • Personal pages • POI’s on Google Maps • Chat history • Network • Blogs • Pictures • Links • Wiki’s • ....
    37. 37. If they get access to the right data • Have the right to our own health data • Have the right to know the source of each health data element • Have the right to take possession of a complete copy of our individual health data, without delay, at minimal or no cost; if data exist in computable form, they must be made available in that form • Have the right to share our health data with others as we see fit
    38. 38. Getting a complete medical record centralized online is almost accomplished • Tracking medical history and learn about your conditions • Import your medical records • Find out how medications might interact • Share your medical records • Make your health information work for you •
    39. 39. They will become e-patients • E-patients: individuals who are equipped, enabled, empowered and engaged in their health and health care decisions. • Health care as an equal partnership between e- patients and health professionals and systems that support them.
    40. 40. e-Patients know how to use webtools • Social networks, webvideo and weblog are also for e-patient most popular webtool. • 61% is more then 11 hours online per week; • 31% is more then 20 hours online per week; • 35% on social networks; • 25,2 % on webvideosites; • 22,5 % on weblogs;
    41. 41. Like DIEP
    42. 42. It is time for business models based on collaboration
    43. 43. The web will provide us with solutions • Not to find the cure for the diabetes (never say never) but certainly to endorse health care and to improve the quality of life.
    44. 44. Thank you Fishtank Aalststraat 7-11 1000 Brussel remi.maddens@fishtank.be +32 477 99 99 81 +32 2 888 78 89
    45. 45. The pharmaceutical, payer and provider value chains will be much more closely intertwined
    46. 46. Because the situation want get better without drastic change • Adult obesity rates now exceed 25% in 31 states, up from 28 states last year and 19 the year before that. • Among children 10-17, about 30% are overweight or obese in 30 states. • "There is a huge wave of obese adults coming that will bankrupt us as a nation unless we get this under control now,"
    47. 47. Design efficient tools for co- creation • Working across disciplines and institutions • Design is a process that makes connections.The design process hasthe proven ability to forge connections between people and organisations,unlock solutions and address change. • The user process • The design process is a set of techniques and approaches that puts users at its heart,works from their perspectives,engaging with articulated knowledge,latent perceptions and emotional responses. • Usable interfaces • Design is a practical tool.It helps to make things more visible,legible, coherent and easy to navigate. • Platforms,tools and motivators • Distributed,collaborative services will involve the need for new tools andplatforms that enable the sharing of knowledge and resources and the continual adaptation of services.