Midwest Chronic Kidney Disease Coalition


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  • The CKD Coalition convened their first meeting in November 2005. It meets about 3 times per year in Chicago.
  • The Coalition agreed at the first meeting to the primary focus and goals.
  • These groups are represented on the coalition. Officers include – Jay Wish, MD – President (Network) Randy Howard, MD – Vice Chairman (Health Plan) Susie Stark – Treasurer (Network) Bonnie Hollopeter – Secretary (QIO)
  • Jay to Present: The new Coalition structure. Ron Savrin from KePro, the Ohio QIO, has agreed to chair the Development Subcommittee and Randy Kipling of Genzyme has agreed to chair the Resource Allocation Subcommittee. Bridget Carson will serve as coordinator for the Coalition. Questions can be directed to her at the Network office regarding any Coalition matter.
  • Jay to Present: This slide pretty much sums it up. Leadership will provide oversight for the big picture of the Coalition, and also the details of maintaining membership rosters, recruitment as needed, scheduling locations as needed.
  • Jay to Present: These are still the two basic subcommittees we have been working with. The Development Subcommittee will take ideas and form into projects. When projects are completed, they will be handed off to the Resource Allocation Subcommittee to determine the best means of dissemination.
  • Jay to Present as Randy Kipling is unable to attend this Webex. The PowerPoint is completed. The next step is to break this into modules and label for different audiences. This PowerPoint is intended for use by anyone looking for resources to educate on CKD, however, we have discussed the idea of a Speaker’s Bureau. We need to determine if this is a viable opportunity and, if so, how to assemble it. GFR Position Paper. This paper is completed but we’ve not yet distributed it. What are our potential audiences, how do we reach them, and are there supporting materials we could add to this? Curriculum Development. This has been suggested for mid-level care providers and but it is still in the idea stage. PICC Line Position Paper. How to limit the use of PICC lines in CKD patients. A task force is forming around this issue; it will be chaired by Craig Stafford of the Network Board of Trustees. Dr. Jeremy Engel, a primary care physician from the Cincinnati area, is working to develop a model to identify CKD patients in the primary care arena and map out their care. Medicare Part D. A task force has been formed to look at the impact of Medicare Part D on in-center hemodialysis patients. Dr. Brian Decker of Indiana University is chairing this task force. New ideas will be solicited from the group.
  • Ron to Present: The Web site is nearing completion. Once live, the subcommittee will review content and suggest improvements, and updates as needed. Members will be asked to search for existing CKD resources which can be added to the Web site (i.e., not reinventing the wheel). Outreach activities include identifying audiences we need to reach with our CKD messages and strategizing methods to reach them, i.e., dovetailing with other educational meetings, with QIO help - outreach to PCP offices and hospitals through Webex and email distributions. New Ideas will be solicited from this group.
  • Bridget & Susie to Present: The web site will be live this month pending the complete redesign in a handicapped accessible format (508 compliance mandated by CMS). The Web site will contain all materials developed by the CKD coalition, links to other available resources, information to publicize CKD Coalition activities to the public as needed. We will develop a private log-on for Coalition members. There we will house meeting minutes and updates on the various task group projects, along with a meeting calendar.
  • Jay to Present: Each Coalition member needs to determine which subcommittee he or she would like to serve on. A list was emailed prior to this Webex to show the membership the subcommittee each is currently serving on. They can remain, or contact Bridget to change to the other subcommittee. Cross-over by task group is possible if there is a project of interest in the other subcommittee. The Subcommittees will hold conference call meetings in January to go over each project on the table, determine what is required for completion and set a timeline. The Leadership Committee, working with the subcommittee input, will plan the in-person meeting in Fall 2008. At this meeting we can recruit membership as needs are identified, offer and educational component and review our accomplishments.
  • Ron & Becky to Present: The 9 th scope of work for the QIO program may include opportunities for individual QIOs to bid on sub national projects in CKD. The four QIOs within the Midwest Renal Coalition have expressed an interest in working together to win a sub national project, and The Renal Network has offered to support such a bid. The Leadership Committee will seek out opportunities with other coalitions on CKD and also employers and health plans.
  • Midwest Chronic Kidney Disease Coalition

    1. 1. Midwest Chronic Kidney Disease Coalition To work with the medical community at large to better manage the health and quality of life of patients with chronic kidney disease
    2. 2. Midwest Chronic Kidney Disease Coalition <ul><li>Primary Focus – </li></ul><ul><li>Early intervention for detection and treatment of chronic kidney disease. </li></ul><ul><li>Goals – </li></ul><ul><ul><li>Identification of CKD </li></ul></ul><ul><ul><li>Education for Quality Improvement </li></ul></ul><ul><ul><li>Payment/Coverage </li></ul></ul>
    3. 3. Midwest Chronic Kidney Disease Coalition Participants <ul><li>Organizations - </li></ul><ul><ul><li>Large Dialysis Organizations </li></ul></ul><ul><ul><li>Independent Dialysis Organizations </li></ul></ul><ul><ul><li>Kidney Foundations </li></ul></ul><ul><ul><li>QIOs </li></ul></ul><ul><ul><li>State Departments of Health </li></ul></ul><ul><ul><li>JCAHO </li></ul></ul><ul><ul><li>IL Academy of Family Physicians </li></ul></ul><ul><ul><li>Health Plans </li></ul></ul><ul><ul><li>Manufacturers </li></ul></ul><ul><ul><li>Network </li></ul></ul>
    4. 4. Midwest Chronic Kidney Disease Coalition Structure
    5. 5. Leadership Committee <ul><li>Oversight of all activities </li></ul><ul><li>Maintains Membership </li></ul><ul><li>Recruitment </li></ul><ul><li>Meeting Scheduling </li></ul><ul><ul><li>Periodic Webex for full Coalition </li></ul></ul><ul><ul><li>Annual In-Person Autumn Meeting </li></ul></ul><ul><li>Membership includes officers, </li></ul><ul><li>subcommittee chairs & coordinator </li></ul>
    6. 6. Subcommittees <ul><li>Development Subcommittee </li></ul><ul><ul><li>Develop new projects based on needs identified by the Coalition or suggestions from outside entities. </li></ul></ul><ul><li>Resource Allocation Subcommittee </li></ul><ul><ul><li>Manage the dissemination of Coalition resources, identify existing resources, and provide oversight of the Web site. </li></ul></ul>
    7. 7. Midwest Chronic Kidney Disease Coalition Educational Initiatives <ul><li>Public Service Announcement </li></ul><ul><ul><li>Coordinated by the NKF for March Kidney Awareness Month </li></ul></ul><ul><ul><li>Includes - Intro to Coalition, CKD statistics & “Know Your Number” format for CKD levels </li></ul></ul><ul><ul><li>Sent to Coalition members for dissemination </li></ul></ul><ul><ul><li>to constituents and posting on websites </li></ul></ul>
    8. 8. Midwest Chronic Kidney Disease Coalition Educational Initiatives <ul><li>Needs Assessment </li></ul><ul><ul><li>Ohio NKF Campaign – Kidney Score </li></ul></ul><ul><ul><li>Generalize for Coalition </li></ul></ul><ul><li>Website Development </li></ul>
    9. 9. Midwest Chronic Kidney Disease Coalition Payer Summit <ul><li>September 21, 2006, Chicago, IL </li></ul><ul><li>Objectives: </li></ul><ul><ul><li>To bring awareness of the importance of early identification and treatment of chronic kidney disease </li></ul></ul><ul><ul><li>To create an ongoing clearinghouse for gathering and disseminating CKD information to payers </li></ul></ul><ul><ul><li>To create a common shared data set including </li></ul></ul><ul><ul><li>processes and outcomes for quality disease </li></ul></ul><ul><ul><li>management and for benchmarking best practices </li></ul></ul>
    10. 10. Midwest Chronic Kidney Disease Coalition Payer Summit <ul><li>Agenda </li></ul><ul><ul><li>CKD Overview & Benefits of Early CKD Care </li></ul></ul><ul><ul><li>Panel: Cost of Care </li></ul></ul><ul><ul><ul><li>WellPoint </li></ul></ul></ul><ul><ul><ul><li>RMS </li></ul></ul></ul><ul><ul><ul><li>Care Level Management </li></ul></ul></ul><ul><ul><ul><li>Kaiser </li></ul></ul></ul><ul><ul><li>Cost Savings Economic Model </li></ul></ul><ul><ul><li>Best Practice Model: Texas CKD Clinic Experience </li></ul></ul>
    11. 11. Development Subcommittee Projects <ul><li>PowerPoint & Speaker’s Bureau </li></ul><ul><li>GFR Position Paper </li></ul><ul><li>Curriculum Development </li></ul><ul><li>PICC Line Position Paper </li></ul><ul><li>Medicare Part D </li></ul>
    12. 12. Development Subcommittee Projects (continued) PowerPoint Presentation <ul><li>Chronic Kidney Disease: </li></ul><ul><li>Improving Outcomes and Planning for ESRD </li></ul><ul><li>Slide Deck </li></ul><ul><ul><li>100 Slides </li></ul></ul><ul><ul><ul><li>Outline demographics </li></ul></ul></ul><ul><ul><ul><li>Propose strategies to slow progression and improve outcomes </li></ul></ul></ul><ul><ul><ul><li>Plan for treatment of ESRD </li></ul></ul></ul><ul><ul><li>Speakers Notes </li></ul></ul><ul><ul><li>Branding/Packaging </li></ul></ul><ul><ul><li>Distribution Plan </li></ul></ul>
    13. 13. Development Subcommittee Projects (continued) <ul><li>GFR Initiative </li></ul><ul><ul><li>Created position paper on the importance of converting serum creatinine to GFR on all lab reports </li></ul></ul><ul><ul><li>Develop standard cover letter for use by coalition partners to disseminate the paper to their key stakeholders </li></ul></ul><ul><ul><li>Develop/advertise other GFR calculators for use by primary care physicians </li></ul></ul><ul><ul><li>Post on Coalition Website </li></ul></ul>
    14. 14. Resource Allocation Subcommittee <ul><li>Web Site </li></ul><ul><li>Search Out Existing Resources </li></ul><ul><li>Outreach Activities – ID ways to reach potential audiences with Coalition message </li></ul>
    15. 15. www.ckdcoalition.org <ul><li>Repository for information specific to Coalition membership </li></ul><ul><li>Repository of Coalition messages to various external audiences </li></ul><ul><li>  </li></ul>
    16. 17. Midwest Chronic Kidney Disease Coalition <ul><li>Current Projects Under Way </li></ul><ul><li>Fall Recruitment Meeting </li></ul><ul><li>Launch Web Site </li></ul><ul><li>Marketing GFR Position Paper </li></ul><ul><li>Marketing PowerPoint Presentation & Speaker Notes </li></ul><ul><li>  </li></ul>
    17. 18. Midwest Chronic Kidney Disease Coalition <ul><li>Fall Recruitment Meeting </li></ul><ul><li>Agenda </li></ul><ul><ul><li>CKD Coalition Accomplishments-Call to Action </li></ul></ul><ul><ul><li>Health Care Costs </li></ul></ul><ul><ul><li>Managed Care </li></ul></ul><ul><ul><li>Proposed or Expected Outcomes </li></ul></ul><ul><ul><li>Building a Business Case for CKD Care </li></ul></ul><ul><ul><li>Review Current Projects-Recruit & Sign-Up </li></ul></ul>
    18. 19. Midwest Chronic Kidney Disease Coalition <ul><li>Proposed Projects </li></ul><ul><li>Position Papers </li></ul><ul><ul><li>PICC Lines </li></ul></ul><ul><ul><li>Medicare Part D/CKD Drug Coverage </li></ul></ul><ul><li>ICD-9 Codes/Staging Wall Chart </li></ul><ul><li>Educational Webex w/QIOs to educate hospitals </li></ul><ul><li>Contact w/County Health Departments to align activities </li></ul><ul><li>What is CKD/Mineral & Bone Disorders – Staging Info </li></ul><ul><li>Curriculum Development </li></ul><ul><ul><li>NP/PA/Mid-Line Nephrology Providers </li></ul></ul><ul><ul><li>Education for American College of Surgeons </li></ul></ul>
    19. 20. Midwest Chronic Kidney Disease Coalition Successes <ul><li>Sound work plan </li></ul><ul><li>Delegation of responsibilities </li></ul><ul><li>Early achievement of goals </li></ul><ul><li>Continued commitment by members </li></ul><ul><li>Increasing representation </li></ul>
    20. 21. Midwest Chronic Kidney Disease Coalition Challenges <ul><li>Membership outside of the nephrology community </li></ul><ul><li>Coordination & ownership of the coalition and identified initiatives </li></ul><ul><li>Funding - $$$$$$$ </li></ul><ul><ul><li>For Payer summit & other conferences </li></ul></ul><ul><ul><li>For Ongoing meetings and conference calls </li></ul></ul>
    21. 22. Next Steps <ul><li>Subcommittees </li></ul><ul><ul><li>Examine current projects and map out timeline for completion </li></ul></ul><ul><ul><li>Suggest new projects </li></ul></ul><ul><li>Annual In-Person Meeting – Autumn 2008 </li></ul><ul><ul><li>Educational Component </li></ul></ul><ul><ul><li>Review of Coalition accomplishments </li></ul></ul><ul><ul><li>Provide network opportunities </li></ul></ul><ul><ul><li>& membership recruitment </li></ul></ul>
    22. 23. The Future <ul><li>Potential sub-national projects for QIOs </li></ul><ul><li>Alliances with related stakeholders </li></ul><ul><ul><li>Other CKD Coalitions </li></ul></ul><ul><ul><li>National Business Coalition on Healthcare </li></ul></ul>