Impact of a patient information website - how, where, what and why Peter Rutherford, Paul Forte, Tom Bowen, Rory Matthews ...
Introduction <ul><li>Delivery of high quality information to patients with chronic diseases can lead to: </li></ul><ul><ul...
Kidney disease <ul><li>Progressive, debilitating, need for dialysis and reduced life expectancy </li></ul><ul><li>Patients...
Aims of the project <ul><li>To develop an interactive kidney patient information web site </li></ul><ul><li>To perform an ...
Basic principles <ul><li>A project team was established (see poster for details of approach) </li></ul><ul><li>Patients le...
Internet Survey  <ul><li>An internet-based survey was performed of over 1000 individual visitors by Virtual Surveys. </li>...
COUNTRY Base : 970 (all answering)
RELATIONSHIP WITH KIDNEY DISEASE Base : 887 (all answering)
TREATMENTS USED (Patients)
TREATMENTS USED : UK V USA/CANADA
LEVEL OF KNOWLEDGE REGARDING KIDNEY DISEASE Base : 995 (all answering)
AGE Base : 882 (all answering)
SEX Base : 931 (all answering)
HOW HEARD ABOUT WEB SITE: UK vs USA Base : 1032 (all answering)
MAIN REASONS FOR VISITING WEB SITE Base : 1010 (all answering)
OTHER SOURCES OF INFORMATION Base : 978 (all answering)
OVERALL OPINION OF WEB SITE
HOW SITE COMPARED WITH OTHER KIDNEY DISEASE WEB SITES
Internet-based information in nephrology <ul><li>Telephone survey amongst UK renal units and patients undertaken by BMRB <...
Patient sample
Patients perception regarding information
Information sources for patients
Information sources for staff
Patients view of internet based information sites
Problems raised by patients <ul><li>Majority had access to the internet at home or via a friend or family member </li></ul...
Conclusions <ul><li>High quality information web sites can be created to give information to patients with chronic disease...
Finally <ul><li>There are problems </li></ul><ul><ul><li>Time </li></ul></ul><ul><ul><li>Bulletin Board problems </li></ul...
Upcoming SlideShare
Loading in …5
×

Impact of a patient information website - how, where, what ...

252 views

Published on

0 Comments
0 Likes
Statistics
Notes
  • Be the first to comment

  • Be the first to like this

No Downloads
Views
Total views
252
On SlideShare
0
From Embeds
0
Number of Embeds
2
Actions
Shares
0
Downloads
3
Comments
0
Likes
0
Embeds 0
No embeds

No notes for slide

Impact of a patient information website - how, where, what ...

  1. 1. Impact of a patient information website - how, where, what and why Peter Rutherford, Paul Forte, Tom Bowen, Rory Matthews and Alex Morrison University of Wales College of Medicine, Wrexham and Cognitive Applications, Brighton, UK
  2. 2. Introduction <ul><li>Delivery of high quality information to patients with chronic diseases can lead to: </li></ul><ul><ul><li>improved compliance/concordance </li></ul></ul><ul><ul><li>improved quality of life </li></ul></ul><ul><li>Internet based technology offers an additional resource with some clear advantages: </li></ul><ul><ul><li>renewable resource </li></ul></ul><ul><ul><li>potential for interaction </li></ul></ul><ul><ul><li>accessible at all times </li></ul></ul>
  3. 3. Kidney disease <ul><li>Progressive, debilitating, need for dialysis and reduced life expectancy </li></ul><ul><li>Patients are expected to retain much information and make decisions </li></ul><ul><li>Information can be very effective at improving quality of life and concordance </li></ul>
  4. 4. Aims of the project <ul><li>To develop an interactive kidney patient information web site </li></ul><ul><li>To perform an internet-based and Renal Unit based survey of the site </li></ul>
  5. 5. Basic principles <ul><li>A project team was established (see poster for details of approach) </li></ul><ul><li>Patients led the process to determine the style, colours, language and content of the site. </li></ul><ul><li>Uses animations, patient experiences and includes a bulletin board facility </li></ul><ul><li>Site = www.kidneypatientguide.org.uk </li></ul>
  6. 6. Internet Survey <ul><li>An internet-based survey was performed of over 1000 individual visitors by Virtual Surveys. </li></ul><ul><li>Results are presented in comparison to an average of other sites surveyed by Virtual Surveys - UK-based financial and commercial sites. </li></ul>
  7. 7. COUNTRY Base : 970 (all answering)
  8. 8. RELATIONSHIP WITH KIDNEY DISEASE Base : 887 (all answering)
  9. 9. TREATMENTS USED (Patients)
  10. 10. TREATMENTS USED : UK V USA/CANADA
  11. 11. LEVEL OF KNOWLEDGE REGARDING KIDNEY DISEASE Base : 995 (all answering)
  12. 12. AGE Base : 882 (all answering)
  13. 13. SEX Base : 931 (all answering)
  14. 14. HOW HEARD ABOUT WEB SITE: UK vs USA Base : 1032 (all answering)
  15. 15. MAIN REASONS FOR VISITING WEB SITE Base : 1010 (all answering)
  16. 16. OTHER SOURCES OF INFORMATION Base : 978 (all answering)
  17. 17. OVERALL OPINION OF WEB SITE
  18. 18. HOW SITE COMPARED WITH OTHER KIDNEY DISEASE WEB SITES
  19. 19. Internet-based information in nephrology <ul><li>Telephone survey amongst UK renal units and patients undertaken by BMRB </li></ul><ul><li>Telephone interview with patients and staff </li></ul><ul><li>Sample </li></ul><ul><ul><li>147 patients </li></ul></ul><ul><ul><li>26 staff </li></ul></ul>
  20. 20. Patient sample
  21. 21. Patients perception regarding information
  22. 22. Information sources for patients
  23. 23. Information sources for staff
  24. 24. Patients view of internet based information sites
  25. 25. Problems raised by patients <ul><li>Majority had access to the internet at home or via a friend or family member </li></ul><ul><li>Minority had used it to access health information web sites </li></ul><ul><li>Most felt it would be good to do so </li></ul><ul><li>The hospital offers a potential route for internet access </li></ul>
  26. 26. Conclusions <ul><li>High quality information web sites can be created to give information to patients with chronic disease </li></ul><ul><li>An internet based survey demonstrated who was looking for information, where from and why. </li></ul><ul><li>A survey of UK renal patients demonstrated practical issues - there is a desire to look for information but limitations in terms of internet access </li></ul>
  27. 27. Finally <ul><li>There are problems </li></ul><ul><ul><li>Time </li></ul></ul><ul><ul><li>Bulletin Board problems </li></ul></ul><ul><li>Contact </li></ul><ul><ul><li>[email_address] </li></ul></ul><ul><ul><li>[email_address] </li></ul></ul>

×