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LESSONS FROM
TRUSTBUILDING
AHEAD OF
EMERGENCIES FOR
TRUSTBUILDING FOR
EHDS
This presentation © 2023 by Tina D Purnat is licensed under Attribution-NonCommercial-ShareAlike
4.0 International
How you can use this slide deck
Thanks for your interest in this topic. I developed this deck to support public health efforts and have made it available for others to
use it as well. I’ve made full effort to acknowledge sources of information and adaptation of slides from other people. You are
welcome to adapt the slide deck as per the license below. Please make an effort to properly credit the efforts of others that you use.
This presentation © 2023 by Tina D Purnat is
licensed under Attribution-NonCommercial-
ShareAlike 4.0 International
You are free to:
1.Share — copy and redistribute the material in any medium or format
2.Adapt — remix, transform, and build upon the material
3.The licensor cannot revoke these freedoms as long as you follow the license terms.
Under the following terms:
1.Attribution - You must give appropriate credit , provide a link to the license, and indicate if changes were made . You may do so in any reasonable manner,
but not in any way that suggests the licensor endorses you or your use.
2.NonCommercial - You may not use the material for commercial purposes .
3.ShareAlike - If you remix, transform, or build upon the material, you must distribute your contributions under the same license as the original.
4.No additional restrictions - You may not apply legal terms or technological measures that legally restrict others from doing anything the license permits.
Creator: https://www.linkedin.com/in/tinadpurnat/ Work is published at: https://tinapurnat.com
access to health services
access to health information
trust in health system, health workers and recommended health behaviors
Effective social and behavior change in health includes two
components
People are very selective about the health data they are willing to
share
Willingness to share data depends on level of trust placed in the
receiving entity and how close that entity is to the direct provision of
healthcare.
There’s a gap between intent and action --- people want to choose
what happens to their data, prefer to opt in to share their health
data, but their privacy settings today do not reflect that.
Consumers are split about sharing their data across borders of the EU.
People can see benefits, but also have concerns when they share their
health data electronically.
Data altruism
•
•
•
•
.... but we will need to make health data sharing and
secondary data use a social and workplace norm
•
•
•
•
•
Thank you
very much!
An infodemic is an overabundance of information, accurate or
not, in the digital and physical space, accompanying an acute
health event such as an outbreak or epidemic.
Infodemic management is the
systematic use of risk- and evidence-
based analysis and approaches to
promote a healthier information
environment and resilience against
infodemic impacts on health behaviours
during health emergencies.
Challenges in the information environment need to be
identified and adressed.
Information environment x trust
•
•
•
•
•
•
•
•
•
Trust and confidence building for European Health Data Space
Trust and confidence building for European Health Data Space

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Trust and confidence building for European Health Data Space

  • 1. LESSONS FROM TRUSTBUILDING AHEAD OF EMERGENCIES FOR TRUSTBUILDING FOR EHDS This presentation © 2023 by Tina D Purnat is licensed under Attribution-NonCommercial-ShareAlike 4.0 International
  • 2. How you can use this slide deck Thanks for your interest in this topic. I developed this deck to support public health efforts and have made it available for others to use it as well. I’ve made full effort to acknowledge sources of information and adaptation of slides from other people. You are welcome to adapt the slide deck as per the license below. Please make an effort to properly credit the efforts of others that you use. This presentation © 2023 by Tina D Purnat is licensed under Attribution-NonCommercial- ShareAlike 4.0 International You are free to: 1.Share — copy and redistribute the material in any medium or format 2.Adapt — remix, transform, and build upon the material 3.The licensor cannot revoke these freedoms as long as you follow the license terms. Under the following terms: 1.Attribution - You must give appropriate credit , provide a link to the license, and indicate if changes were made . You may do so in any reasonable manner, but not in any way that suggests the licensor endorses you or your use. 2.NonCommercial - You may not use the material for commercial purposes . 3.ShareAlike - If you remix, transform, or build upon the material, you must distribute your contributions under the same license as the original. 4.No additional restrictions - You may not apply legal terms or technological measures that legally restrict others from doing anything the license permits. Creator: https://www.linkedin.com/in/tinadpurnat/ Work is published at: https://tinapurnat.com
  • 3.
  • 4. access to health services access to health information trust in health system, health workers and recommended health behaviors
  • 5. Effective social and behavior change in health includes two components
  • 6.
  • 7. People are very selective about the health data they are willing to share
  • 8. Willingness to share data depends on level of trust placed in the receiving entity and how close that entity is to the direct provision of healthcare.
  • 9. There’s a gap between intent and action --- people want to choose what happens to their data, prefer to opt in to share their health data, but their privacy settings today do not reflect that.
  • 10. Consumers are split about sharing their data across borders of the EU.
  • 11. People can see benefits, but also have concerns when they share their health data electronically.
  • 12.
  • 14.
  • 16. .... but we will need to make health data sharing and secondary data use a social and workplace norm • • • • •
  • 18. An infodemic is an overabundance of information, accurate or not, in the digital and physical space, accompanying an acute health event such as an outbreak or epidemic. Infodemic management is the systematic use of risk- and evidence- based analysis and approaches to promote a healthier information environment and resilience against infodemic impacts on health behaviours during health emergencies.
  • 19. Challenges in the information environment need to be identified and adressed.
  • 20. Information environment x trust • • • • • • • • •

Editor's Notes

  1. 1.7.2013
  2. 1.7.2013
  3. 1.7.2013