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Serving patient communities through social mediaecco/esmo Stockholm 2011<br />Denis Costello<br />Web Communications Officer, EURORDIS<br />

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2<br />EURORDIS at your service<br />www.eurordis.org<br />

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Serving the Patient Community<br />3<br />

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4<br />Blogs – e-advocacy: developing the patients’ voice<br />http://www.rarediseaseblogs.net<br />

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5<br />Engagement via Twitter<br />http://www.twitter.com/eurordis<br />

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6<br />Rare Disease Day – An awareness platform<br />http://www.rarediseaseday.org<br />

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7<br />Live streaming – grow an audience<br />http://www.livestream.com/eurordis<br />

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8<br />Example – Networking patients<br />www.marshallsmith.org<br />

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9<br />Example –collaborative authoring<br />www.marshallsmith.org<br />

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10<br />www.rareconnect.org<br />

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Patient reported outcomes:<br /><ul><li>Treatments

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Side effects

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Quality of Life</li></li></ul><li>Q & A<br />12<br />Thank you!<br />You can also email me:<br />denis.costello@eurordis.org<br />