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Costello - EMCC Cancer on the Internet

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Denis Costello - EURORDIS - Presenting on how patient groups use social media, 25 Sept 2011, Stockholm

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Costello - EMCC Cancer on the Internet

  1. 1. Serving patient communities through social mediaecco/esmo Stockholm 2011<br />Denis Costello<br />Web Communications Officer, EURORDIS<br />
  2. 2. 2<br />EURORDIS at your service<br />www.eurordis.org<br />
  3. 3. Serving the Patient Community<br />3<br />
  4. 4. 4<br />Blogs – e-advocacy: developing the patients’ voice<br />http://www.rarediseaseblogs.net<br />
  5. 5. 5<br />Engagement via Twitter<br />http://www.twitter.com/eurordis<br />
  6. 6. 6<br />Rare Disease Day – An awareness platform<br />http://www.rarediseaseday.org<br />
  7. 7. 7<br />Live streaming – grow an audience<br />http://www.livestream.com/eurordis<br />
  8. 8. 8<br />Example – Networking patients<br />www.marshallsmith.org<br />
  9. 9. 9<br />Example –collaborative authoring<br />www.marshallsmith.org<br />
  10. 10. 10<br />www.rareconnect.org<br />
  11. 11. Patient reported outcomes:<br /><ul><li>Treatments
  12. 12. Side effects
  13. 13. Quality of Life</li></li></ul><li>Q & A<br />12<br />Thank you!<br />You can also email me:<br />denis.costello@eurordis.org<br />

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