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Building Strong Advocacy Efforts to Address Southern HIV/AIDS Disparities

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Building Strong Advocacy Efforts to Address Southern HIV/AIDS Disparities

  1. 1. Patrick Packer Executive Director Southern AIDS Coalition, Inc.
  2. 2. <ul><li>Alabama </li></ul><ul><li>Arkansas </li></ul><ul><li>Delaware </li></ul><ul><li>District of Columbia </li></ul><ul><li>Florida </li></ul><ul><li>Georgia </li></ul><ul><li>Kentucky </li></ul><ul><li>Louisiana </li></ul><ul><li>Maryland </li></ul><ul><li>Mississippi </li></ul><ul><li>North Carolina </li></ul><ul><li>Oklahoma </li></ul><ul><li>South Carolina </li></ul><ul><li>Tennessee </li></ul><ul><li>Texas </li></ul><ul><li>Virginia </li></ul><ul><li>West Virginia </li></ul>
  3. 3. <ul><li>Began with the “Southern States Manifesto - HIV/AIDS & STD’s in the South: A Call to Action!” Released in 2003 </li></ul><ul><li>Southern State AIDS/STD Directors Work Group </li></ul>
  4. 4. <ul><li>Released on July 21, 2008. </li></ul><ul><li>Highlights accomplishments over the prior 6 years. </li></ul><ul><li>Continues to highlight the challenges for preventing new infections and caring for those living with HIV as we continue to face an ever-growing southern epidemic. </li></ul>
  5. 5. <ul><li>2009-2010 HIV/AIDS Health Care Policy Brief and Recommendations </li></ul><ul><li>The Potential Impact of Health Care Reform on HIV in the South (07/29/09) </li></ul><ul><li>Housing Persons with HIV Disease (10/26/09) </li></ul>
  6. 6. National Policy Collaborative Efforts Congressional and Senate Briefings Living Quilt and National HIV/AIDS Atlas State Advocacy Efforts The Southern Access Advocate Network Leadership Council
  7. 9. <ul><li>Inadequate funding for Care and Treatment for People Living with HIV disease in the south and particularly in Texas </li></ul><ul><li>Inadequate funding for HIV prevention services to stop the spread of the HIV virus </li></ul><ul><li>Inadequate funding for research to find a cure for HIV disease </li></ul>
  8. 10. <ul><li>ADAP Program Waiting List </li></ul><ul><li>ADAP Waiting List Data </li></ul><ul><li>Kentucky_______200 </li></ul><ul><li>North Carolina___506 </li></ul><ul><li>South Carolina___81 </li></ul><ul><li>1056 individuals on waiting list </li></ul><ul><li>75% are Southerners </li></ul>
  9. 11. <ul><li>In 2007, there were 26,347 newly diagnosed cases of HIV infection </li></ul><ul><li>(not AIDS) in the US. </li></ul><ul><ul><li>Data from 47 states and the District of Columbia </li></ul></ul><ul><li>Of the 26,347 new diagnoses, 51.2% were diagnosed in the 17 Southern States </li></ul>*CDC. HIV/AIDS Surveillance Report , 2007 , Vol. 19
  10. 12. Southern States CDC. HIV/AIDS Surveillance Report , 2007 , Vol. 19 <ul><li>34 states with confidential name-based HIV infection reporting: </li></ul><ul><li>10 of the top 15 are Southern States </li></ul>
  11. 13. CDC. HIV/AIDS Surveillance Report , 2007 , Vol. 19 Southern States <ul><li>11 of the top 20 are Southern States </li></ul>
  12. 15. CDC. HIV/AIDS Surveillance Report , 2007 , Vol. 19 Southern Metropolitan Areas <ul><li>14 of the top 20 are Southern Metropolitan Areas </li></ul>
  13. 16. CDC. HIV/AIDS Surveillance Report , 2007 , Vol. 19 Southern States <ul><li>11 of the top 20 are Southern States </li></ul>
  14. 18. <ul><li>Southern states represent 37% of the U.S. population, but account for 40% of the persons living with AIDS and 46% of the new AIDS cases in 2007 </li></ul><ul><li>Of the 20 states that had the highest AIDS case rates in 2007, 11 (55%) are in the South </li></ul><ul><li>Of the 20 metropolitan areas that had the highest AIDS case rates in 2007, 14 (70%) are in the South </li></ul><ul><ul><li>Of the top 10 metropolitan areas that had the highest AIDS case rates in 2007, 8 (80%) are in the South </li></ul></ul><ul><li>Of the 20 states that had the highest rates of persons living with AIDS in 2007, 11 (55%) are in the South </li></ul>
  15. 19. <ul><li>The South has the highest number of adults/adolescents living with AIDS in the U.S. </li></ul><ul><li>The number of persons living with AIDS has increased from 1993 to 2006 at a greater rate in the South than in the other regions of the U.S. </li></ul><ul><li>In 2006, the Southern states had the highest AIDS rate among adults and adolescents in nonmetropolitan areas with <50,000 residents and in metropolitan areas with >500,000 residents. The South had the second highest AIDS rate in cities with 50,000 to 499,999 residents. </li></ul>
  16. 20. <ul><li>From 2003 to 2007, deaths decreased in all regions of the U.S. but the South had the smallest percent decrease </li></ul><ul><ul><li>Northeast:  30.6% </li></ul></ul><ul><ul><li>Midwest:  19.5% </li></ul></ul><ul><ul><li>South:  8.5% </li></ul></ul><ul><ul><li>West:  17.1% </li></ul></ul>CDC. HIV/AIDS Surveillance Report , 2007 , Vol. 19
  17. 21. Federal Funding for HIV/AIDS Dollars Spent per Person Living with AIDS By Region, 2007 Kaiser Family Foundation: www.statehealthfacts.org Total Federal Funding for HIV/AIDS CDC HIV/AIDS Funding Ryan White HIV/AIDS Funding Rank $ Spent Rank $ Spent Rank $ Spent North 1 $6,623 2 $1,196 1 $4,476 Midwest 2 $6,506 1 $1,314 2 $4,470 South 3 $6,215 4 $1,035 3 $4,439 West 4 $5,974 3 $1,180 4 $4,030
  18. 22. Federal Funding for HIV/AIDS Dollars Spent per Person Living with AIDS By Region, 2007 Kaiser Family Foundation: www.statehealthfacts.org CDC - Prevention HIV/AIDS Funding CDC - Surveillance HIV/AIDS Funding Rank $ Spent Rank $ Spent North 2 $712 3 $133 Midwest 1 $791 1 $189 South 4 $528 4 $128 West 3 $676 2 $163
  19. 23. <ul><li>The South has 40% of the official distribution of cases, but only 33% of the prevention funds. </li></ul>Percent of all Prevention Money Percent of all AIDS Cases Kaiser Family Foundation: www.statehealthfacts.org
  20. 24. Ethiopian Proverb
  21. 25. <ul><li>Advocacy: Speaking out on issues of concern. This can mean something as formal as sitting down and talking to your legislator; as intensive as engaging in efforts to make a change in laws or policies; or as simple as telling your neighbor about the impact of a law. </li></ul>
  22. 26. <ul><li>Know who has the power/decision makers </li></ul><ul><li>http://www.house.state.tx.us/committees/welcome.htm </li></ul><ul><li>http://www.senate.state.tx.us/ </li></ul><ul><li>Motivating factors for the decision makers </li></ul><ul><ul><li>Telling your story </li></ul></ul><ul><ul><li>Votes and Money </li></ul></ul><ul><ul><li>Who is asking </li></ul></ul>
  23. 27. <ul><li>Development of the ASK </li></ul><ul><li>Building relationships with elected officials (federal, state, and local) </li></ul><ul><li>Time to Speak (public forums, media, letters ) </li></ul><ul><li>Build a coalition of people speaking with one voice </li></ul><ul><li>Speak directly to your elected officials (district offices, state capital, national office) </li></ul>
  24. 28. <ul><li>Individuals with HIV disease </li></ul><ul><li>Individuals who work in clinics, agencies, </li></ul><ul><li>academic environments, prevention </li></ul><ul><li>programs, ASO, CBO </li></ul><ul><li>All people who are impacted by HIV disease </li></ul><ul><li>Organizations (ASO, CBO, Church, Community Groups, Businesses) </li></ul>
  25. 29. Margaret Mead

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