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Use of a Web-based Personal Health Record, Patients Know Best, to build closer relationships with people with Type 1 Diabetes

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Sandwell and West Birmingham Hospitals partners with PKB to study how using a personal health record system can add value to diabetes care and promote self-management

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Use of a Web-based Personal Health Record, Patients Know Best, to build closer relationships with people with Type 1 Diabetes

  1. 1. 0% 10% 20% 30% 40% 50% 60% 70% 80% Messages Blood tests Clinic letters Skype Consultation Adding measurements Adding Wearables Viewing Documents from library Saving Time Definitely saves time Sometime time saving Doesnot save time 46% 27% 27% Ease of use Easy Medium Difficult 66% 21% 13% Registration process Easy Medium Difficult 10% 27% 33% 13% 17% Age <25 25-40 40-50 50-60 >60 36.5% 66.3% Gender Distribution Males Females 0% 20% 40% 60% 80% Used >once Used once Not used but plan to use Use of Secure Messaging 0% 10% 20% 30% 40% 50% used more than once Used once Not used but plan to use No plans to use Online blood results 0% 10% 20% 30% 40% Used more than once Used once Not used but plan to use Clinical Correspondence 0% 5% 10% 15% 20% 25% 30% Strognly agree Agree Not agree nor disagree Disagree Strongly disagree Control of own record 0% 10% 20% 30% 40% 50% 60% 70% Messages Blood tests Clinic letters Skype Consultation Adding measurements Adding Wearables Viewing Documents from library Enhance Relationship Definitely enhance relationship May enchance our relationship Doesnot save change our relationship 0% 10% 20% 30% 40% 50% 60% 70% Messages Blood tests Clinic letters Skype Consultation Adding measurements Adding Wearables Viewing Documents from library Saving Cost Definitely saves Money / cost Sometime save money / cost Doesnot save money / cost Use of a Web-based Personal Health Record (Patients Know Best) to build closer relationships with people with Type 1 Diabetes A W Safi, A Basu, PH Davies Sandwell General Hospital Objective We investigated to what extent a web-based personal health record system, "Patients Know Best" (PKB), could add value to diabetes care and promote self-management. Methods A PKB account was offered to each person attending our type 1 diabetes service. Basic functions include secure messaging, direct access to laboratory blood test results and electronic receipt of clinic letters, with more advanced functions include Skype consultations, access to a resource library, storing & sharing measurements and linking trackers & wearables. PKB is designed to be user-friendly, with no training required for patients to use. After 6 months PKB users were surveyed for their views. Summary Personal health records are popular with people type 1 diabetes and have potential to enhance their relationship with their healthcare team. Evaluation of PKB: September 2015 6% 14% 50% 30% Skype Consultation Used More than once Used once Not used but plan to use No plans to use 14% 49% 37% Tracker or wearable device Used once Not used but plan to use No plans to use Results: After 6 months 121 people with Type 1 diabetes had enroled and used PKB. Survey respondents were representative of our patient population, male:female 40:60 and median age 45. 73% had used PKB for more than 3 months. 73% found it easy/very easy to register; 60% found it easy/very easy to use. 92% had used secure messaging, 64% had viewed blood test results online, 70% had received clinical correspondence, 14% had had a Skype consultation (50% said they planned to use in future), 14% had added a tracker or wearable device (49% said they planned to use in future); 32% had added/stored Health-related measurements. 60% felt they owned/ fully controlled their PKB record. Time-saving potential was rated between 91-95%; cost-saving between 56-84%; enhancing the relationship with their diabetes team 71- 98% (highest perceived benefit came from secure messaging).

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