This is a summary description of what the ALISS project is, the open innovation process we have run this spring (2010) and the working model of the Engine. There are also some ideas for what we intend to do next.
We set up a mock-clinical encounter between our Project Manager (a Practice Nurse in real life) and our researcher, who was then sent off out into his local community to see what he could kind, to help him live well with his circumstances. Besides being ‘recently diagnosed’ with rheumatoid arthritis, the researcher was also told that he needed to loose some weight, and be aware that he would be likely to ‘feel rather low about all this’ (we did not want to go any further towards identifiable mental health problems). In practice the response from community information-intermediaries was markedly different when approached about ‘feeling low’. Almost everyone immediately signposted our researcher direct to health resources. Whereas for rheumatoid arthritis, the range of potentially relevant resources seemed much easier for them to discuss, and to advise upon. Our researcher blogged about his search on ‘Being patient’ (see links). It should be noted that this ‘ethnography’ in no way attempted to appreciate the broader physical, mental and emotional implications of undertaking such a search while actually having a combination of LTCs – what we were after at this earlier stage was some understanding of the information considerations. Interestingly though, when our researcher did himself fall ill over the summer, he did indeed experience some of the broader implications of trying to find out about his condition while distinctly ‘under par’ and exhausted.
ALISS goes to the NHS Scotland conference 080610
The ALISS Project A ccess to L ocal I nformation to S upport S elf-Management Working towards better access to information to support self management of long term conditions. A collaboration of the Scottish Government, NHS Scotland, and the Long Term Conditions Alliance Scotland…and ever so many other organisations…and people… ALISS goes to the NHS Conference 08 th . June 2010
So, what is ALISS? <ul><li>“ It’s…Technology + innovation… </li></ul><ul><li>and it’s Innovation + technology…” </li></ul><ul><ul><li>The Open Innovation Process </li></ul></ul><ul><ul><li>The ALISS Engine </li></ul></ul><ul><ul><li>What next? </li></ul></ul>
starting point: a scenario <ul><li>You’ve been diagnosed with a Long-Term Condition…(e.g. rheumatoid arthritis) </li></ul><ul><ul><li>Got the pamphlet about the disease and how worried to be about it </li></ul></ul><ul><li>You’re minded to try ‘self-management’ of the condition </li></ul><ul><ul><li>Got the general advice about living with it </li></ul></ul><ul><ul><ul><li>Which suggests you need to go & find out some stuff…. </li></ul></ul></ul><ul><li>What help d’you commonly find? </li></ul>http:// inthelongterm.wordpress.com /about/
Hard at work <ul><li>Not long to go before their final presentations… </li></ul><ul><li>http://vimeo.com/12049911 </li></ul>
...it was incredibly validating to see that design process can work in real situations, with real people, who have real problems... This workshop made me believe in design, my career, and that given the opportunity, people can achieve change for the better It has to be the way forward in getting information on any long term condition Overall, all enjoyed working together and coming up with a fun service. Was really nice to see all the smiles on peoples faces. Really good levels of enthusiasm to deliver better access to Information at local level. The work could have significant change in content, accessibility, sharing and managing health information for all stakeholders. “ ”
The ALISS Engine <ul><li>Is it a website? </li></ul><ul><li>Is it a database? </li></ul><ul><li>Is it a search engine? </li></ul><ul><li>Have a look at the Screencast , and see what you think! </li></ul>http://vimeo.com/11986849
What next? <ul><li>The ALISS Engine </li></ul><ul><li>ALISS as a Family </li></ul><ul><li>ALISS as a service </li></ul>
Voluntary Sector Scottish Govt NHSScotland Community integrated/ social care eHealth Social Enterprise LTCAS Higher Education Library & info services (NHS24/ e-library) Tech industry Service Design The ALISS Family
Talking together, working together <ul><li>workshop with existing info providers & ALISS meet-up </li></ul><ul><li>ALISS at large in Renfrewshire </li></ul><ul><li>‘ Out of the Box’ </li></ul><ul><li>Interested parties include: </li></ul><ul><li>Grampian Care Data </li></ul><ul><li>Angus Cardiac Group </li></ul><ul><li>Moray Carers’ Group </li></ul><ul><li>Citizens Advice Bureau </li></ul><ul><li>Interest from further afield </li></ul><ul><li>London, Leeds, Wales... </li></ul>
JARCS (Jean Alcock research and Consultancy Services) NHS GGC NHS Scotland National Services Scottish Centre for Telehealth Information for Mental Health NHS QIS Sitekit Labs British Heart Foundation Scotland Project and Relationship Manager, Space Unlimited DigitalAgency.com Cardiff University Wearesnook Stroke association Awakening Senses Scottish Government Scottish Government Wearesnook National Practice Forum LTCAS NESTA Angus CHP , NHS Tayside StartHere wearesnook BigEars epilepsywestlothian NHS Health Scotland Long Term Conditions Alliance Scotland Renfrewshire LTCAS Web developer, NISG - NHS NSS NHS24 SnowCloud Scottish Government National Association for Colitis and Chron's Disease (NACC) Friends of Glasgow Homeopathic Hospital IST, SCOT Govt DISIP Scottish Health Council Designer, GSA Epilepsy Connections Scottish Government NHS GGC Chest, Heart and Stroke Scotland E library MCN Chest, Heart and Stroke Forum Diabetes UK National Practice Forum Mental Health, NHS Tayside VOCAL - Voice of Carers Across Lothian Nursing Board for Chronic Heart Disease BrainIAC Patient Opinion LTC collaborative Grampian Care Data Glasgow School of Art information professional (health, social media and digital inclusion) Design Researcher, Space Unlimited Peer Support Worker, Community Horizons Epilepsy Connections Tuberous Sclerosis Association Eden Therapies Wellness and Health Innovation National Osteoporosis Society Design Students NHS Education for Scotland MS Society ticker talk heart failure support group NESTA NHS NSS NHS Ayrshire and Arran Acupuncturist Stroke Association Product Design Student, GSA Designer, GSA Epilepsy Connections Epilepsy Connections Designer, GSA NACE Designer, GSA NHS GG&C Sitekit Labs Lupus UK Strathclyde Lupus Group Who’s come along
ALISS as a service IT and tech support Networking Funding Mentoring Service Design Information Hub The Engine Promotion Idea incubation
Quick Links <ul><li>ALISS Project Blog </li></ul><ul><ul><li>http://www.aliss.scot.nhs.uk/ </li></ul></ul><ul><li>ALISS Engine explained </li></ul><ul><ul><li>http://vimeo.com/11986849 </li></ul></ul><ul><li>ALISS Open Innovation Process & Service-Design </li></ul><ul><ul><li>http:// alissproject.wordpress.com / </li></ul></ul>
For more information <ul><li>“ The Access to Local Information to Support Self Management ( ALISS) project is using new emergent and mobile technologies to empower people with long term conditions to support each other by easily accessing, co-creating and sharing information.” </li></ul><ul><li>Contact: </li></ul><ul><ul><li>christine.hoy-at-scotland-dot-gsi-dot-gov-dot-uk </li></ul></ul><ul><li>ALISS Project Blog: </li></ul><ul><ul><li>http:// www.aliss.scot.nhs.uk / </li></ul></ul>