De bronkart osu panel 2011 10-7


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De bronkart osu panel 2011 10-7

  1. 1. The ability to create value<br />in healthcare<br />depends on accessto information<br />
  2. 2. Milisa<br />When started ER EMR docs said “my pts are going to hate this”<br />Kathryn Teng – Cleveland Clinic<br />SocMed instead of health fairs<br />
  3. 3. 4<br />True storiesof value arisingin social media<br />My kidney cancer<br />Monique’s painful side effect<br />Robin’s Cushing’s med<br />Facebook brings vital information<br />
  4. 4. What do you do when you’re diagnosed with...<br />Stage IV, Grade 4Renal Cell Carcinoma<br />?<br />
  5. 5.
  6. 6. “My doctor prescribed ACOR”<br />
  7. 7. ACOR members told me:<br />The median isn’t the message<br />This is an uncommon disease – get to a hospital that does a lot of cases<br />There’s no cure, but HDIL-2 sometimes works.<br />When it does, about half the time it’s permanent<br />The side effects are severe.<br />Don’t let them give you anything else first<br />Here are four doctors in your area who do it<br />
  8. 8. Radical Proposition 1<br />Genuine value in healthcarecan and does arisefrom people with no medical training.<br />
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  10. 10. “May Require Refrigeration”, 9 / 17 / 10<br />“Panic!  For the first time, I got a note on my florinef that it might (MIGHT?) need to be refrigerated.  <br />I didn't know that.  Should I have been doing that all along?  <br />No one told me.”<br />“I called the pharmacy.  <br />They read what is on the printout which comes with the drug.  I had already read that. It wasn't helpful.”<br />
  11. 11. “May Require Refrigeration”, 9 / 17 / 10<br />“So, I asked the ones who know. My "Cushie" friends who take it. Those who have had BLA’s.<br />“The verdict: <br />No, that's a generic warning with fludrocortisone (generic). <br />Only at extreme temps should it be refrigerated in the U.S. <br />Some of the brands in the UK and other countries need refrigerated.”<br />
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  13. 13. Today, because of the Web, patients can connect to information and to each other (and other doctors)<br />
  14. 14. Web 2.0: “When the web began to harness the intelligence of its users” – Tim O’Reilly<br />Charlene Li(“Groundswell”)<br />“Social networks will be like air”<br />
  15. 15. Cluetrain Manifesto, 1999: “Markets are Conversations”<br />30 years ago the “marketing funnel” was this: (Graphics by Forrester)<br />Today’s buyer progresses like this:<br />
  16. 16. 75% of USadults areonline<br />80% of themlook forhealth info<br />That’s 60%of US adults<br />A filibuster-proof majority<br />
  17. 17. Radical Proposition 2<br />“The people on ACOR don’t need our helpand they don’t need our permission.”<br />
  18. 18.
  19. 19. How a kidney cancer wife found the info she needed<br />No insurance; no treatment. Then:<br />Three bad hospitals;no help. Then:<br />A friend said“I know a guy...<br />on Twitter”<br />
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  22. 22. The ability to create value<br />in healthcare<br />depends on accessto information<br />
  23. 23. The internetchanges everything.<br />Transformation<br />