“It’s a teachable moment...anopportunity to address thedifferences between formal andinformal writing. They learn tomake the distinction...just asthey learn not to use slangterms in formal writing.” — Amanda Lenhart, senior research specialist at Pew
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Kim said...I am the mother of one of the boys in the PSA. My son is 14 and has DUCHENNE.He has never played football and he never will. Instead he watches his friends playfootball, run, walk, stand and do many other things he can not do. He does this fromhis wheelchair, where he sits every single day. My son knows he has a terminalillness and he stuggles with that knowledge every single day. I struggle with thatknowlege every second of every single day, now, and for the rest of my life, whichwill likely be 30 years longer than his will be.My son is proud to be a part of the PSA and happy with all the positive attention hehas received and the awareness about DUCHENNE that has been generated in ourcommunity because of this commercial. I will always remember the beautiful smileon my sons face when he saw Clay Matthews talking about "his" disease,DUCHENNE. Thank you Cadillac for making a difference for the future of all childrenwith DUCHENNE by marketing DUCHENNE and raising money to go towards a cureso that one day mothers like myself will not have to "remember" their childs smile.They will see it every single day as their child grows into an adult.And thank you tknaiz for saving me the trouble of Googling the word "imbecile",because in my opinion that is what you clearly are.January 6, 2011 8:45 PM
TUESDAY, JANUARY 11, 2011 FOLLOWERSA Sincere Apology Follow with Google Friend ConnectI am writing in response to Debra from CureDuchenne andother constructive writers who commented on my recent blog post. Thanks There are no followersespecially to Debra and Hannah for helping me realize that I clearly Be the first!lacked some basic knowledge about Duchenne Muscular Dystrophy. Afterspending some time researching this devastating disease, I have begun to Already a member? Sign inunderstand a little more about it and to appreciate how much familiesare suffering from this disease that strikes young children andcurrently has no known cure. For those, like me, who were ignorant of BLOG ARCHIVEthe basic facts of the disease, I would like to tell you some of what I ! 2011 (3) !learned. Duchenne Muscular Dystrophy (DMD) is a genetic disorder carried ! January (3) !on the x chromosome that afflicts about 1 in 3,500 boys (and some girls Right and Left Wing Argaccording to http://ghr.nlm.nih.gov/condition/duchenne-and-becker- Meta-Blogmuscular-dystrophy). If any readers are interested, I found A Sincere Apologyhttp://www.cureduchenne.org and http://www.mdausa.org/disease " 2010 (17) "/dmd.html and http://www.nlm.nih.gov/medlineplus/ency/article/000705.htm to be very informative sites. Please let me know of othersites people may visit to learn more about this disease. My deepest ABOUT MEsympathies go out to victims of this disease and their families. trevork View my complete profile Posted by trevork at 11:12 AM
8 comments: Doc OC said... Wow! What a thoughtful re-consideration of your earlier post. I had never heard of this disease by name and I had no idea its consequences were so awful. Thanks for this! January 11, 2011 11:46 AM ozrae said... As one of the parents who posted on your last blog post I would like to say thankyou for posting this. January 11, 2011 1:29 PM Laurie P said... Thank you. From another DMD parent. January 11, 2011 4:12 PM Debra said... I appreciate your response to the posted comments. Youll find parents of terminally ill children to be quite passionate about their cause. I subscribe to the opinion that all can be turned to good and I think youve opened some new eyes to our cause. If you ever want to get involved with a charity, please contact CureDuchenne. You might also want to post our website as a resource: www.CureDuchenne.org Thank you so much, Debra Miller January 11, 2011 5:10 PM
SUNDAY, JANUARY 16, 2011 FOLLOWMeta-Blog Fo with GoI discovered this quarter to be an opportunity for me to learn the importance of empathyfor the reader. Up until my last two blogs I had only received a total of three commentson all the blogs I wrote this year. I foolishly believed that my audience was my class and Therteachers, at best, and I needed to solely address them in my blog. I was wrong. Afterigniting a storm of outrage from a recent blogpost, I was reminded that on the Internet,anything can be viewed by anyone, and the world is my audience. Also, once a post iswritten and viewed, it cant be taken back. The response to my blog referencing AlreadyDuchenne Muscular Dystrophy shocked me. For half the year, barely anyone in my classhad ever commented on my posts, and then suddenly I generated about fifty comments BLOG ARin two posts. In the original post I wrote about a connection I considered fascinating andintriguing between marketing and a disease, Duchenne Muscular Dystrophy, that I first ! 2011 !heard about in a commercial that aired during a football game. I lacked clarity in this ! Ja !blog, and my audience interpreted what I wrote as an insult to the very real suffering Rigexperienced by victims of Duchenne and their families. Although my post has been Meofficially taken off the Internet and I have written an apology in a follow-up blog, I stillhave to acknowledge the initial reaction to the post. I also learned from this experience ASthe impact an apology can have. The comments I received following my apology blogshowed me how meaningful an apology can be to people who feel that they are not " 2010 "being heard. Still, the power of a controversial blog post can lead to good. Theeffectiveness of the commercial came into question, along with general discussion of this ABOUT Mdisease. Also, it was crucial to understand where the comments posted to my blog werecoming from, and show empathy to the people who were writing them. trevork
On the Internet, any topic has the potential to spark particular interest from any numberof people. When you write a blog you have to question who could read it and how theymight interpret what you say, and then show empathy to those people. I can voice myopinion freely, but I must watch my tone and intentions. Based on experience, I neveranticipated anyone would actually read my blog, but even still I should have found anappropriate tone for what I was attempting to say. Not only was it offensive to people, butit was misinterpreted because of my flippant and arrogant tone. People were particularlyfrustrated with the fact that I would complain that a disease would have anadvertisement. The readers did not know that my intention was positive, and I did notmean to have an offensive tone. Duchenne Muscular Dystrophy should of course befunded, and a commercial is a great way to draw public attention, and generatedonations to help find a cure. From now on, I hope to carefully examine who my blogmight impact and how it might be interpreted, not only to avoid causing hurt, but to getmy point across.Note: The Judge and The Teacher Posted by trevork at 11:55 PM3 comments: Debra said... I believe I speak for the entire Duchenne community in thanking you for your apology. Any time youd like to volunteer or get involved in a great cause, please let me know.