Maximum responsibilities

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Maximum responsibilities

  1. 1. Maximum Responsibilities. Minimum Rights <ul><li>A very Heavy Load for: </li></ul><ul><li>Carers </li></ul><ul><li>Family members </li></ul><ul><li>Nearest relatives </li></ul><ul><li>Friends </li></ul><ul><li>Buddies and befrienders </li></ul><ul><li>Supporters </li></ul><ul><li>Next of Kin </li></ul><ul><li>Nominated decision makers </li></ul><ul><li>Uncle Tom Cobley and all </li></ul>
  2. 2. <ul><li>Policy shift to community-based care will produce many “ informal ” carers. </li></ul><ul><li>“ Carers ” is a term that may have limitations </li></ul><ul><li>Words impute personal characteristics/motivations that may not reflect reality </li></ul>
  3. 3. Key Areas <ul><li>No formal recognition of carers rights </li></ul><ul><li>Policy documents rarely turn into meaningful action on changes </li></ul>
  4. 4. <ul><li>The assumption of clear agreements and supportive relationships between carer and service user </li></ul><ul><li>The “ noble ” carer acting disinterestedly in a caring community </li></ul><ul><li>Stigma attaching to relatives and friends </li></ul>
  5. 5. <ul><li>Often the exploding of the myth of symbiosis occurs during disputes between parties under mental health legislation </li></ul><ul><li>Increasing emphasis on human rights (Storck vs. Germany ECHR 2005; Shtukaturov vs. Russia ECHR 2010) </li></ul>
  6. 6. <ul><li>Want to do what ’ s “ best ” for the person </li></ul><ul><li>Caught between rock and a hard place </li></ul><ul><li>Would welcome an alternative decision-maker in difficult and emotionally upsetting circumstances </li></ul>
  7. 7. <ul><li>“ gatekeepers ” to specialist services </li></ul><ul><li>Advocates </li></ul><ul><li>Decision makers </li></ul><ul><li>Supports –physical, emotional etc. </li></ul><ul><li>Managing risk at home and in the community </li></ul><ul><li>Multiple roles= inevitable conflicts </li></ul>
  8. 8. <ul><li>Carers are essential in cost-effective community care </li></ul><ul><li>In-patient bed costs? </li></ul><ul><li>Guesstimates? </li></ul><ul><li>Savings on medication </li></ul><ul><li>Carers saving UK economy 57 billion (carers UK 2006) </li></ul>
  9. 9. Hobson ’ s Choice? <ul><li>Willingness is assumed </li></ul><ul><li>Biologically programmed? </li></ul><ul><li>Legal guardian? </li></ul><ul><li>Moral, financial, practical supports? </li></ul><ul><li>Caring for individuals that the community rejects </li></ul>
  10. 10. <ul><li>Self-sacrifice –Why? </li></ul><ul><li>Saccarine rhetoric abounds (expert carer) </li></ul><ul><li>Ambivalent feelings rarely acknowledged </li></ul><ul><li>Home is where the carer is </li></ul><ul><li>Competing philosophies </li></ul><ul><li>Exploitation – absense of choice </li></ul>
  11. 11. <ul><li>No training exists for this role </li></ul><ul><li>Internal and external resources </li></ul><ul><li>Partner capacity and conflict </li></ul><ul><li>Life outside of the designated role </li></ul><ul><li>Familial ideology </li></ul>
  12. 12. <ul><li>Only 24% felt that staff treated them with respect </li></ul><ul><li>Isolation </li></ul><ul><li>93% felt emotional health suffered </li></ul><ul><li>Information, housing, advocacy, meaningful activities, alternative therapies, support for themselves, inclusion in decisions. </li></ul>
  13. 13. <ul><li>Respite </li></ul><ul><li>Information </li></ul><ul><li>Dignity </li></ul><ul><li>Respect </li></ul><ul><li>Active participation </li></ul><ul><li>Rights </li></ul><ul><li>Recovery for the individual </li></ul>
  14. 14. <ul><li>Clear routes </li></ul><ul><li>Contact numbers </li></ul><ul><li>Challenging the myths- e.g. Identity of interest </li></ul><ul><li>Independent living for all </li></ul><ul><li>Reality of modern life </li></ul>

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