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Social Media and Patient Advocacy


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Slides from my talk at the 4th Annual Putting Patients First Conference in Mumbai.

Social Media and Patient Advocacy

  1. 1. Nrip Nihalani Plus91 Technologies Pvt. Ltd. Adding Value to Healthcare Social Media and Patient Advocacy
  2. 2. Social Media and Advocacy • Social media is not an activity it's a strategy. • Social media has created an army of readily available brand advocates. • Integrates Technology, Social Interaction and • Media • Social media such as blogs, social networks are all about speeding up & enriching communication. Mostly just regular people who are talking about the things they like and in doing so are influencing their social circle to also check it out.
  3. 3. SocMed’s Impact on Patient Advocacy • Advocacy groups have a powerful medium to reach local individuals • Thus, work more with individuals online to effect change in local communities • SocMed is disrupting the idea of Patient Advocacy  Patients connecting with each other – Not just with Brands  Patient Advocacy beyond Advocacy Groups • Creation of both Online Patient Advocates as well as Online Patient Advocacy Communities
  4. 4. Online Communities • Mark Zuckerberg once said “You don’t start communities…Communities already exist. They’re already doing what they want to do. The question you should ask is how you can help them do that better.” In Online Communities Patients support and learn from each other in Volumes  in Real Time 
  5. 5. Some Ideas which Work • • • • • • • • Online Support Groups Online Coaches Website/Portal/Library of Useful Information Digital Animated Superheroes as Advocates Quiz based Games Social Dietician “How To” Video Galleries on YouTube Blog based Advocacy of Treatments/Preventive Techniques
  6. 6. Examples of Social Media Advocacy • Type 1 Parent shares experiences of being parents of a child with type 1 diabetes  provides simple, straight-forward explanations to the fundamental aspects of diabetes  helps parents help their children understand what is happening to them. • Diabetic-Diet-Secrets was an on-line community of people who had well-controlled diabetes  they helped other people with diabetes who were newly diagnosed or poorly controlled
  7. 7. Some Patient Advocates on Social Media • • • • • Dave DeBronkart (@ePatientDave) Regina Holliday (@ReginaHolliday) Marie Ennis O’Connor (@jbbc) Kari Ulrich (@FMDGirl) Virna Elly (@VirnaElly)
  8. 8. Thanks for Viewing this Presentation For us to help you further, please contact us Email: Corporate: Twitter: @plus91 @nrip Facebook: