Autism A Generation At Threat By Sabeeha Rehman

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Noor Conference | Global Knowledge Forum | http://www.noor.org.sa | Day 2 - Panel 4 - Autism A Generation At Threat By Sabeeha Rehman

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Autism A Generation At Threat By Sabeeha Rehman

  1. 1. AUTISM A Generation At Threat Sabeeha Rehman, FACHE
  2. 2. Fastest Growing Developmental Disability <ul><li>In 1980: 1 in 10,000 </li></ul><ul><li>USA Today: 1 in 150 1.5 million </li></ul><ul><li>Saudi Arabia: 1 in 160 42,500 </li></ul><ul><li>World: Fastest growing neurobiological condition </li></ul>
  3. 3. Fastest Growing Developmental Disability <ul><li>1.5 million </li></ul><ul><li>Growth rate: 10-17% </li></ul><ul><li>New case every 20 min </li></ul><ul><li>24,000 new cases a year </li></ul><ul><li>$90 billion </li></ul>
  4. 4. What Do We Know About It <ul><li>No consensus on causes: </li></ul><ul><ul><li>Genetics? </li></ul></ul><ul><ul><li>Vaccines? </li></ul></ul><ul><ul><li>Environmental Toxins? </li></ul></ul><ul><ul><li>Immune Deficiencies? </li></ul></ul>
  5. 5. What Are We Doing About It <ul><li>No consensus on treatment </li></ul><ul><li>MAINSTREAM </li></ul><ul><li>Behavior </li></ul><ul><li>Pharmaceutical </li></ul><ul><li>ALLIED HEALTH </li></ul><ul><li>Diet: CF/GF </li></ul><ul><li>Biomedical </li></ul><ul><li>Chelation </li></ul>
  6. 6. MEANWHILE: We Are Losing Our Children <ul><li>Late diagnosis </li></ul><ul><li>Missed diagnosis </li></ul><ul><li>Mis-diagnosis </li></ul><ul><li>Shortage of: </li></ul><ul><ul><li>Services </li></ul></ul><ul><ul><li>Trained professionals </li></ul></ul><ul><ul><li>School System </li></ul></ul><ul><ul><li>Community-based services </li></ul></ul>
  7. 7. Family Unit Is At Risk <ul><li>Emotional Stress </li></ul><ul><li>Financial Burden </li></ul><ul><li>Psychological impact on child & siblings </li></ul><ul><li>Safety at risk </li></ul>
  8. 8. A GENERATION AT THREAT
  9. 9. What Does This Mean For SA <ul><li>Accelerate & Escalate </li></ul>
  10. 10. ACTION PLAN <ul><li>Autism: A National Priority </li></ul><ul><li>KEC: Nucleus; Ownership & Manage </li></ul>
  11. 11. ACTION ITEMS <ul><li>Regulatory </li></ul><ul><ul><li>Health Planning </li></ul></ul><ul><ul><li>Health Policy </li></ul></ul><ul><ul><li>Budget </li></ul></ul><ul><li>Research, Diagnosis,Treatment, Education </li></ul><ul><li>Support Services </li></ul><ul><ul><li>Community-based programs </li></ul></ul><ul><ul><li>Organize & Mobilize </li></ul></ul>
  12. 12. REGULATORY INITIATIVES <ul><li>HEALTH PLANNING </li></ul><ul><ul><li>Office of Health Planning for Autism </li></ul></ul><ul><ul><ul><li>National Strategic Plan </li></ul></ul></ul><ul><ul><ul><ul><ul><li>Based on needs assessment </li></ul></ul></ul></ul></ul><ul><ul><ul><ul><ul><li>Short term (2 yr) </li></ul></ul></ul></ul></ul><ul><ul><ul><ul><ul><li>Long Term (5 yr) - research, treatment, education </li></ul></ul></ul></ul></ul>
  13. 13. REGULATORY INITIATIVES <ul><li>HEALTH POLICY </li></ul><ul><ul><li>Mandatory Screening </li></ul></ul><ul><ul><li>Provider licensure/certification </li></ul></ul><ul><ul><li>Biomedical treatments </li></ul></ul><ul><li>BUDGET </li></ul>
  14. 14. <ul><li>RESEARCH </li></ul><ul><ul><li>Autism Research Institute </li></ul></ul><ul><ul><li>National Registry </li></ul></ul><ul><li>DIAGNOSIS & TREATMENT </li></ul><ul><ul><li>Standardized tests: CHAT, M-CHAT, CAST.. </li></ul></ul><ul><ul><li>Laboratory: toxicity, yeast, leaky gut, food allergies.. </li></ul></ul><ul><ul><li>Conventional Treatment: ABA, OT, SIT, Speech, PT, Social skills </li></ul></ul><ul><ul><li>Biomedical Treatment: Chelation, Methyl B12, diet, HBOT, gut.. </li></ul></ul><ul><ul><li>Specialized centers for children w/ special needs </li></ul></ul><ul><ul><li>Integrating Special Education into school system </li></ul></ul><ul><ul><li>Home-Based Care </li></ul></ul><ul><li>EDUCATION </li></ul><ul><ul><li>Specialty Training for Professional & Allied Health Professionals </li></ul></ul><ul><ul><li>Parental education </li></ul></ul>Infrastructure: Research, D&T, Education
  15. 15. <ul><li>Community-based Programs: </li></ul><ul><ul><li>Recreation </li></ul></ul><ul><ul><li>Support Groups/Resource Centers </li></ul></ul><ul><ul><li>Siblings </li></ul></ul><ul><ul><li>Counseling Services </li></ul></ul><ul><li>Product Availability </li></ul><ul><ul><li>Food supplements </li></ul></ul><ul><ul><li>Tools: flash cards, games, toys </li></ul></ul><ul><ul><li>Books: Guides, manuals, DVDs </li></ul></ul>Infrastructure: Support Services
  16. 16. Organize & Mobilize <ul><li>Media Awareness Campaigns: sensitize </li></ul><ul><li>Associations - Chapters </li></ul><ul><li>Lend-A-Helping-Hand </li></ul><ul><li>Publicize Role Models </li></ul><ul><li>Neighborhood Watch: </li></ul><ul><ul><li>Keep our children safe </li></ul></ul>
  17. 17. CONCLUSION <ul><li>KEC: Model for the world </li></ul><ul><li>Safeguard your most valuable asset </li></ul><ul><li>YOUR CHILDREN </li></ul>

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