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Presenter
 Dr M MUNAWAR KHAN
    BCC COORDINATOR
SINDH AIDS CONTROL PROGRAM




                             1
2
Stigma: Definition
     Stigma: unfavourable attitudes and
      beliefs directed toward someone or
      something

     HIV-related stigma: unfavourable
      attitudes and beliefs directed toward
      people living with HIV, their family and
      friends, social groups, and communities

PMTCT Generic Training Package

              Module 4, Slide 3
Stigma & Discrimination
 UNAIDS
  Definition of HIV-related
 stigma and discrimination

 “…a ‘process of devaluation’ of
 people either living with or
 associated with HIV and AIDS…
HIV-related Stigma
 Stigma particularly pronounced when
  behaviour causing disease is perceived to
  be under individual’s control, e.g., sex work
  or injection drug use
 Certain groups, e.g., poor people, men who
  have sex with men, sex workers and
  injection drug users, often bear heaviest
  burden of HIV-related stigma.
       People who are HIV-infected are often assumed
           to be members of these groups, whether they
           are or not

PMTCT Generic Training Package

              Module 4, Slide 5
Examples of Stigma
   Believing HIV is great punishment for moral
    misconduct / bad behaviour
   Thinking women are responsible for
    transmitting HIV and other STIs in our
    community
   A daughter refusing to visit her father once she
    finds out he has HIV because she felt
    "dirtied“(infected) by contact with him
   A woman with HIV refusing to join support
    group or tell people outside the family about
    her HIV because she fears being stigmatized
PMTCT Generic Training Package

              Module 4, Slide 6
Discrimination: Definition
 Discrimination: the treatment of an
  individual or group with prejudice
  (injustice)
 Discrimination includes the denial
  (refusal) of basic human rights such as
  health care, employment, legal services
  and social welfare benefits



PMTCT Generic Training Package

              Module 4, Slide 7
Cont….   Stigma & Discrimination
   When a person is labeled by their illness
    they are seen as part of a stereotyped /
    Stigma group.

   Negative attitudes create injustice
    which leads to negative actions and
    discrimination.
Stigma:
   (Dishonour / Badnami) is when people think that some
    people are bad for some reason.

   Self-stigma and fear of a negative community reaction can
    hinder efforts to address the AIDS epidemic

   Stigma creates false differences between people. based
    on, illogical judgments and results in ‘us-and-them’ type of
    thinking

    AIDS stigma and discrimination exist worldwide, although
    they marked themselves differently across
    countries, communities, religious groups and individuals
Cont…
   In the workplace, people living with HIV
    may suffer stigma from their co-workers
    and employers, such as social isolation
    and ridicule, or experience

   Discriminatory practices, such as
    termination or refusal of employment.
    Fear of an employer’s reaction can
    cause a person living with HIV anxiety:
What is Discrimination?
 When Stigma is acted upon, the result is
  discrimination:
 It includes:
 Arbitrary / illogical actions against the
  affected person
     Exclusion
     Restrictions
     Denials
What is discrimination?(
          Inequity}
  Discrimination is when people do act on the
  stigma, they have for another person.
 It can be say that they do or don’t do, such
  as:
 Many countries have laws that restrict the
  entry, stay and residence of people living
  with HIV.
 Preventing children of PLHIV from going to
  school
 Gossiping about or pointing at PLHIV
 Ignoring or staring at family members of
  PLHIV
 Other children teasing and making fun of
  children of PLHIV
Forms of stigma &
discrimination
   Physical:
    Physical isolation and violence
   Social:
    Social isolation, loss of identity and role
   Verbal:
    Insults, taunts, blame, gossip, and rumours
   Institutional:
     Loss of livelihood,( employment opportunities,
     housing & education)
   Multi-layered stigma:
    Among people already socially excluded (MSM,
    FSW, IDU)
                                          cont.....
Cont…


 Due  to Lack of knowledge regarding how
  HIV is transmitted, contributes to increase
  the discrimination among members of the
  general public and health workers.

 HIV  positive members of the family can
  find themselves stigmatised and
  discriminated against within the home.
Key points :
about stigma and discrimination are:

  Stigmais based on beliefs / principles
   A person is 'stigmatised' when another
   person thinks negatively of them
   because they belong to a particular
   group.

  Discrimination:(unfairness)  occurs
   when actions are taken (or not taken)
   on the basis of a stigmatising belief.
                                   Cont…..
Cont……
   HIV/AIDS leads to stigma and discrimination.

   Stigma and discrimination occur in many
    settings, including the family, local
    community, school and health care facilities.

   There are many negative effects of stigma and
    discrimination.


   Stigma and discrimination go against a
    patient’s right ,to be treated equally and fairly.
Cont….
 Children and young people in other groups may
  also experience stigma and discrimination.
  These include:
 Orphans,
 Children of women who sell sex,
 Street children,
 Refugees (Immigrant)
 Intravenous drug users,
 Sex workers and prisoners .
 Many of these experience 'double' stigma
  because they are also more exposed to HIV.
Effects of stigma and
discrimination
  Children and young people experience stigma
   and discrimination in different places these
   include :
  at home, Withdrawal of caregiving in the
   home
  in their local community, Loss of reputation
  in schools
  and at health care facilities. Poor care within
   the health sector
  This may result in children and young people
   being denied access to health care and
   education.
Effects of stigma and discrimination
include:
  Fear of members of the stigmatised group.

 Verbaland physical abuse of children and
  young people.

 Fear  of disclosing information, including
  results of HIV tests. This may mean that
  people do not get the treatment they need.

 Reduced self-Respect and confidence
  among children.
                                     cont…
cont…
   Stigma brings experiences and feelings of:
   shame
   blame
   hopelessness
   distress
   misrepresentation in the media

   Reluctance to seek and/or accept necessary
    help

   Families are also affected by stigma, leading
    to a lack of support.
Cont….
 Children and young people being isolated
  socially. This can mean they are 'excluded'
  from society.

 leavingdepression and other psychosocial
  problems.

 Children and young people running away
  from the place where they are
  experiencing stigma and discrimination.
  This may involve them moving from rural
  to urban areas. This carries the risk of
  them ending up living on the street.
How stigma and discrimination
contribute to the spread of HIV
 Some   people who are HIV positive do
 not tell anybody because they are
 afraid that the community will blame
 them for being infected.

 Some people fear being tested for HIV
 because they are worried that they
 might be positive and also because
 others will treat them badly.
Cont….
 People   living with HIV sometimes do
  not go for treatment because they are
  afraid that health care workers will tell
  others that they are HIV positive.
 (This is against the law and the
  health workers do not have the
  right to disclose anyone’s status
  to anyone )

                                   Cont….
Cont..

 Men  and women, because of poverty, will
  sometimes necessarily engage in
  stigmatized behaviors such as selling sex in
  exchange for money or other favors.
 Society and cultural norms tell them they
  have to follow their husbands’ commands.
 In many societies women do not have
  control of their sex lives.
 They are afraid to ask their partner to use a
  condom, even if they know he has had
  unprotected sex with other men or women.
Stigma, discrimination and
women
   There are many society where women are
    wrongly blamed for STIs and HIV.

   However, men are generally responsible for
    spreading STIs and HIV to their female partners.
    mostly men refuse to use condoms or they have
    unprotected sex.

   Sometimes men force women into having sex
    against their wish.

   And sometimes men engage in risky behaviors
    such as injecting drugs and sharing needles.
Vulnerable groups at high risk for
                 stigma
   People living with HIV and AIDS (PLHIV) and their
    families including children
   Injecting drug users and their partners
   Female and male sex workers and their clients
    (e.g. truckers), partners, spouses
   Males having sex with males (MSM)
   Migrant workers male migrant workers and their
    wives
   Women and young girls
   Street kids, out-of-school youth
Stigma and medical
conditions
Disease stigma is greatest when:
 Not   well understood / Lake of awareness.

 Supposed       as contagious disease.

 HIV  infection is often thought to be the result
  of personal irresponsibility.

 Condition     is severe, degenerative or harming
Stigma is a common reaction to
disease
    Many diseases have carried stigma in the
     past including STIs, leprosy, TB, cancer
     and mental illnesses.

    Some people are afraid because they do
     not understand it.

    They may discriminate against people who
     have HIV. This makes it difficult for
     PLHIV, to talk about HIV and seek help.
How stigma and discrimination
contribute to
     the bad result of HIV disease:
 people who are at risk of being infected may
  avoid seeking HIV testing and counseling.

 unwillingness to individual tested for HIV
  among those who are positive, results in late
  diagnosis of HIV and delayed initiation of care
  and treatment, which can in turn lead to further
  transmission of HIV.

                                             Cont…
Cont…
 Lessthan 10% of people in the Asia-Pacific
 region who are HIV-positive know their
 status.

 Accuracyto ART needs to be greater than
 95% in order for treatment to be effective.

 Stigma and discrimination against PLHIV
 effects on the end result of HIV worse.
SUMMARY
 Stigma and discrimination can be very
  destructive to people with HIV and their loved
  ones.
 We as humans all experience, at some
  point, forms of stigma and discrimination. But
  some of us may experience more stigma
  (Badnami) than others, as with PLHIV.
 If we as HIV care providers work to normalize
  HIV in the community and build sympathy for
  PLHIV, we can help to reduce HIV-related stigma
  and discrimination and improve the quality of life
  of our clients
Thanks
Have a nice
   day

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Stigma & discrimination final by dr. munawar

  • 1. Presenter Dr M MUNAWAR KHAN BCC COORDINATOR SINDH AIDS CONTROL PROGRAM 1
  • 2. 2
  • 3. Stigma: Definition  Stigma: unfavourable attitudes and beliefs directed toward someone or something  HIV-related stigma: unfavourable attitudes and beliefs directed toward people living with HIV, their family and friends, social groups, and communities PMTCT Generic Training Package Module 4, Slide 3
  • 4. Stigma & Discrimination  UNAIDS Definition of HIV-related stigma and discrimination “…a ‘process of devaluation’ of people either living with or associated with HIV and AIDS…
  • 5. HIV-related Stigma  Stigma particularly pronounced when behaviour causing disease is perceived to be under individual’s control, e.g., sex work or injection drug use  Certain groups, e.g., poor people, men who have sex with men, sex workers and injection drug users, often bear heaviest burden of HIV-related stigma.  People who are HIV-infected are often assumed to be members of these groups, whether they are or not PMTCT Generic Training Package Module 4, Slide 5
  • 6. Examples of Stigma  Believing HIV is great punishment for moral misconduct / bad behaviour  Thinking women are responsible for transmitting HIV and other STIs in our community  A daughter refusing to visit her father once she finds out he has HIV because she felt "dirtied“(infected) by contact with him  A woman with HIV refusing to join support group or tell people outside the family about her HIV because she fears being stigmatized PMTCT Generic Training Package Module 4, Slide 6
  • 7. Discrimination: Definition  Discrimination: the treatment of an individual or group with prejudice (injustice)  Discrimination includes the denial (refusal) of basic human rights such as health care, employment, legal services and social welfare benefits PMTCT Generic Training Package Module 4, Slide 7
  • 8. Cont…. Stigma & Discrimination  When a person is labeled by their illness they are seen as part of a stereotyped / Stigma group.  Negative attitudes create injustice which leads to negative actions and discrimination.
  • 9. Stigma:  (Dishonour / Badnami) is when people think that some people are bad for some reason.  Self-stigma and fear of a negative community reaction can hinder efforts to address the AIDS epidemic  Stigma creates false differences between people. based on, illogical judgments and results in ‘us-and-them’ type of thinking  AIDS stigma and discrimination exist worldwide, although they marked themselves differently across countries, communities, religious groups and individuals
  • 10. Cont…  In the workplace, people living with HIV may suffer stigma from their co-workers and employers, such as social isolation and ridicule, or experience  Discriminatory practices, such as termination or refusal of employment. Fear of an employer’s reaction can cause a person living with HIV anxiety:
  • 11. What is Discrimination?  When Stigma is acted upon, the result is discrimination:  It includes:  Arbitrary / illogical actions against the affected person  Exclusion  Restrictions  Denials
  • 12. What is discrimination?( Inequity} Discrimination is when people do act on the stigma, they have for another person. It can be say that they do or don’t do, such as:  Many countries have laws that restrict the entry, stay and residence of people living with HIV.  Preventing children of PLHIV from going to school  Gossiping about or pointing at PLHIV  Ignoring or staring at family members of PLHIV  Other children teasing and making fun of children of PLHIV
  • 13. Forms of stigma & discrimination  Physical: Physical isolation and violence  Social: Social isolation, loss of identity and role  Verbal: Insults, taunts, blame, gossip, and rumours  Institutional: Loss of livelihood,( employment opportunities, housing & education)  Multi-layered stigma: Among people already socially excluded (MSM, FSW, IDU) cont.....
  • 14. Cont…  Due to Lack of knowledge regarding how HIV is transmitted, contributes to increase the discrimination among members of the general public and health workers.  HIV positive members of the family can find themselves stigmatised and discriminated against within the home.
  • 15. Key points : about stigma and discrimination are:  Stigmais based on beliefs / principles A person is 'stigmatised' when another person thinks negatively of them because they belong to a particular group.  Discrimination:(unfairness) occurs when actions are taken (or not taken) on the basis of a stigmatising belief. Cont…..
  • 16. Cont……  HIV/AIDS leads to stigma and discrimination.  Stigma and discrimination occur in many settings, including the family, local community, school and health care facilities.  There are many negative effects of stigma and discrimination.  Stigma and discrimination go against a patient’s right ,to be treated equally and fairly.
  • 17. Cont….  Children and young people in other groups may also experience stigma and discrimination. These include:  Orphans,  Children of women who sell sex,  Street children,  Refugees (Immigrant)  Intravenous drug users,  Sex workers and prisoners .  Many of these experience 'double' stigma because they are also more exposed to HIV.
  • 18. Effects of stigma and discrimination  Children and young people experience stigma and discrimination in different places these include :  at home, Withdrawal of caregiving in the home  in their local community, Loss of reputation  in schools  and at health care facilities. Poor care within the health sector This may result in children and young people being denied access to health care and education.
  • 19. Effects of stigma and discrimination include:  Fear of members of the stigmatised group.  Verbaland physical abuse of children and young people.  Fear of disclosing information, including results of HIV tests. This may mean that people do not get the treatment they need.  Reduced self-Respect and confidence among children. cont…
  • 20. cont…  Stigma brings experiences and feelings of:  shame  blame  hopelessness  distress  misrepresentation in the media  Reluctance to seek and/or accept necessary help  Families are also affected by stigma, leading to a lack of support.
  • 21. Cont….  Children and young people being isolated socially. This can mean they are 'excluded' from society.  leavingdepression and other psychosocial problems.  Children and young people running away from the place where they are experiencing stigma and discrimination. This may involve them moving from rural to urban areas. This carries the risk of them ending up living on the street.
  • 22. How stigma and discrimination contribute to the spread of HIV  Some people who are HIV positive do not tell anybody because they are afraid that the community will blame them for being infected.  Some people fear being tested for HIV because they are worried that they might be positive and also because others will treat them badly.
  • 23. Cont….  People living with HIV sometimes do not go for treatment because they are afraid that health care workers will tell others that they are HIV positive.  (This is against the law and the health workers do not have the right to disclose anyone’s status to anyone ) Cont….
  • 24. Cont..  Men and women, because of poverty, will sometimes necessarily engage in stigmatized behaviors such as selling sex in exchange for money or other favors.  Society and cultural norms tell them they have to follow their husbands’ commands.  In many societies women do not have control of their sex lives.  They are afraid to ask their partner to use a condom, even if they know he has had unprotected sex with other men or women.
  • 25. Stigma, discrimination and women  There are many society where women are wrongly blamed for STIs and HIV.  However, men are generally responsible for spreading STIs and HIV to their female partners. mostly men refuse to use condoms or they have unprotected sex.  Sometimes men force women into having sex against their wish.  And sometimes men engage in risky behaviors such as injecting drugs and sharing needles.
  • 26. Vulnerable groups at high risk for stigma  People living with HIV and AIDS (PLHIV) and their families including children  Injecting drug users and their partners  Female and male sex workers and their clients (e.g. truckers), partners, spouses  Males having sex with males (MSM)  Migrant workers male migrant workers and their wives  Women and young girls  Street kids, out-of-school youth
  • 27. Stigma and medical conditions Disease stigma is greatest when:  Not well understood / Lake of awareness.  Supposed as contagious disease.  HIV infection is often thought to be the result of personal irresponsibility.  Condition is severe, degenerative or harming
  • 28. Stigma is a common reaction to disease  Many diseases have carried stigma in the past including STIs, leprosy, TB, cancer and mental illnesses.  Some people are afraid because they do not understand it.  They may discriminate against people who have HIV. This makes it difficult for PLHIV, to talk about HIV and seek help.
  • 29. How stigma and discrimination contribute to the bad result of HIV disease:  people who are at risk of being infected may avoid seeking HIV testing and counseling.  unwillingness to individual tested for HIV among those who are positive, results in late diagnosis of HIV and delayed initiation of care and treatment, which can in turn lead to further transmission of HIV. Cont…
  • 30. Cont…  Lessthan 10% of people in the Asia-Pacific region who are HIV-positive know their status.  Accuracyto ART needs to be greater than 95% in order for treatment to be effective.  Stigma and discrimination against PLHIV effects on the end result of HIV worse.
  • 31. SUMMARY  Stigma and discrimination can be very destructive to people with HIV and their loved ones.  We as humans all experience, at some point, forms of stigma and discrimination. But some of us may experience more stigma (Badnami) than others, as with PLHIV.  If we as HIV care providers work to normalize HIV in the community and build sympathy for PLHIV, we can help to reduce HIV-related stigma and discrimination and improve the quality of life of our clients