The story of how Be The Match is leveraging technology to give critically ill patients a chance at life


Published on

“The need for
Be The Match’s
work might grow
100-fold over the
next two decades…
NetApp solutions
will allow us to
accelerate those
opportunities to
further improve
and save lives.”
Jeffrey W. Chell, M.D.
Chief Executive Officer
Be The Match

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The story of how Be The Match is leveraging technology to give critically ill patients a chance at life

  1. 1. White Paper—Be The Match Transforming IT to Save Lives The story of how Be The Match is leveraging technology to give critically ill patients a chance at life Sav g lives s This is one in a series of stories told by NetApp customers that demonstrate how an organization’s storage architecture has a direct impact on its success. This is the story of Be The Match® and how its NetApp based shared IT infrastructure is helping save more lives than ever before.
  2. 2. The flow of data is critical for all organizations, but for Be The Match, lives literally depend on it. In 2007, Be The Match was helping to facilitate 3,700 transplants annually. But how many more lives could Be The Match save if IT were an enabler, not a constraint?“There is no way Executive Summary Thousands of patients with With a shared IT infrastructure built on a NetApp® storage foundation, we could have life‑threatening diseases such as Be The Match is dramatically reducing the time to transplant and steadily leukemia, lymphoma, and sickle cell achieved our growth disease need a marrow transplant increasing the number of transplants but don’t have a match in their family. it facilitates annually. According to numbers or gained More than 70% of patients depend Jones, “Deploying a storage archi‑ the efficiencies we on Be The Match to find a match. To call its data “mission critical” would tecture that is efficient, that is flexible, is absolutely key to decision making have…without be an understatement. Operated by the nonprofit National Marrow Donor and driving more patients to trans‑ plant sooner.” building our IT Program ® (NMDP), Be The Match Eliminating Barriers helps connect these patients with foundation on donors. By providing patients access When Jones arrived at Be The Match, he set out to rethink the role tech‑ NetApp storage.” to a registry of more than 15 million donors and 400,000 umbilical cord nology should play in helping the organization deliver on its mandate blood units, Be The Match facilitatesMichael Jones to save lives.Chief Information Officer thousands of potentially lifesavingBe The Match transplants every year. Diseases like leukemia and lymphoma can progress in a matter of months or Data is at the core of the registry and weeks, so speed is critical. The best the transplant process. The more outcomes are achieved when Be The efficiently it flows, the faster critical Match can deliver the right cells at decisions can be made and the precisely the right time in the process. greater the chance that patients can be saved. This is what inspired Be How much faster could Be The Match The Match Chief Information Officer help facilitate transplants if it were Michael Jones, newly hired in 2007, not limited by its infrastructure? to set a bold goal for the organiza‑ How many more lives could it tion: remove technology barriers to potentially save? connect more patients to more donors faster and ultimately save more lives. Aligning IT with the organization’s goals became Jones’ top priority.
  3. 3. Accelerating Data Flow to Save More Lives Be The Match transformed IT into a catalyst for achieving lifesaving goals. Faster data access speeds the process of matching patients with potential donors. 3,70 ransplants per ear 5,50 ransplants per ear 10,0 0 ransplants per ear 20 7 201 goal by 2015 “The problem was that without requirements by 900TB and dramati‑ a complete IT transformation, we cally simplified management, allowing knew we simply could not handle the it to scale from 65TB to 350TB without expected data growth and complexity adding headcount. with our existing landscape of dispa‑ Jones explains, “There is no way rate systems and storage silos.” we could have achieved our growth Transforming IT numbers or gained the efficiencies we NetApp storage is at the heart of have—with no increases in headcount Be The Match’s IT transformation, or expenses—without building our accelerating the transplant process foundation on NetApp storage.” by speeding service delivery and Changing Lives A CEO’s Perspective improving information visibility. As a result of its overall transformation“Faster decisions and real‑time information Seamless scalability and faster directly impact the lives of our patients. program, Be The Match is seeing data integration and processing With NetApp at the foundation of our results that extend far beyond the IT architecture we’ve been able to speed enable the organization to quickly data center—results that are saving up the entire process to help more people develop and bring to market new in less time, and do it cost effectively.” lives. Since 2007, the number of lifesaving capabilities. transplants per year has risen steadilyJeffrey W. Chell, M.D.Chief Executive Officer “Faster decisions and real‑time from 3,700 to 5,500. Be The MatchBe The Match information have a direct impact expects to reach its goal of 10,000 on the lives of our patients. With annual transplants by 2015. NetApp at the foundation of our Its newly integrated application suite, IT architecture, we’ve been able to which includes consolidating its speed up the entire process, help storage on NetApp, has enabled more people in less time, and do Be The Match to: it cost effectively,” says Jeffrey W. Chell, M.D., chief executive • Cut time to transplant by 15%. officer, Be The Match. Be The Match has already shaved two weeks from time to transplant With the built‑in efficiencies of and is on track to meet its goal of its NetApp storage infrastructure, dropping time to transplant from Be The Match has reduced capacity 96 to 45 days.
  4. 4. “The need for • Double annual donor registrations. With its new shared IT infrastructure, therapies could help treat many other diseases,” says Chell, “NetApp Be The Match’s Be The Match built a new donor recruitment portal that helped solutions will allow us to accelerate those opportunities to further improve work might grow increase annual donor registrations and save lives.” from an average of 360,000 per 100-fold over the year from 2000 to 2008 to about Join the Registry If you are interested in helping next two decades… 850,000 per year for the last two years. Be The Match support patients, join the Be The Match Registry today NetApp solutions • Improve the accuracy of its at You could will allow us to matching algorithm. Be The Match uses a proprietary matching be the one to save a life. accelerate those algorithm that is significantly more complex than blood typing pro‑ About Be The Match opportunities to grams. With the ability to more Be The Match engages a growing community of people inspired to help quickly integrate patient outcome further improve data, Be The Match is accelerating patients who need a marrow or umbilical cord blood transplant from and save lives.” the evolution of its algorithm to improve matching accuracy and an unrelated donor. The National boost survival rates. Marrow Donor Program (NMDP),Jeffrey W. Chell, M.D. a leader in the field of marrow andChief Executive Officer • Extend lifesaving services to the cord blood transplantation, operatesBe The Match global community. Today, 50% of Be The Match, which provides oppor‑ Be The Match transplants cross an tunities for the public to become international border. Be The Match involved in saving the lives of people is helping to save more lives by with leukemia, lymphoma and other making its search algorithm and life‑threatening diseases. Volunteers resources available to 525 partners can join the Be The Match Registry— in more than 40 countries via a the world’s largest and most diverse NetApp based private cloud. listing of potential marrow donors and donated cord blood units—as well as The Bottom Line contribute financially to Be The Match Rethinking its storage infrastructure Foundation or give their time. led Be The Match to an ambitious business transformation that is saving About NetApp the lives of critically ill patients around NetApp creates innovative storage the world. Once limited by its archi‑ and data management solutions that tecture, Be The Match can now accelerate business breakthroughs take in more data, process it faster, and deliver outstanding cost efficien‑ and provide ready access to the cy. Discover our passion for helping information transplant physicians companies around the world go need, 24/7. further, faster at “The need for Be The Match’s work might grow 100‑fold over the next two decades, and our cellular © 2011 NetApp, Inc. All rights reserved. No portions of this document may be reproduced without prior written consent of NetApp, Inc. Specifications are subject to change without notice. NetApp, the NetApp logo, and Go further, faster are trademarks or registered trademarks of NetApp, Inc. in the United States and/or other countries National Marrow Donor Program, Be The Match, and Be The Match Registry are registered trademarks of National Marrow Donor Program. All other brands or products are trademarks or registered trademarks of their respective holders and should be treated as such. WP‑7144‑