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Real Lives, Real Choices
Laws addressed in today’s workshop:
 Chapter 234 – An Act Requiring National Background Checks
 Chapter 226 – An Act Rel...
The Massachusetts Alliance for
21st Century Policy
Fully supports community
inclusion and a
community-based system.
Respec...
21st Century Disability Policy
Foundations
Individuals and families are involved in the planning
Supports are flexible
Sup...
The system is transparent
Funding is personalized and flexible
Change to regulations and policies is based on substantial
...
Supports and education are maximized – rules and
regulations minimized
The system promotes and supports innovation and
cre...
Chapter 234
An Act Requiring National Background Checks
SAFETY OF THE
INDIVIDUAL
SERVED BY DDS
Finger-print
background
che...
“Autism Omnibus”
Chapter 226 – An Act Relative to Assisting Individuals with
Autism and other Intellectual or Developmenta...
DMH and DDS to develop and implement a plan to provide
services to individuals who have both a mental illness and a
develo...
Across Lifespan
Best Practices
Identify gaps
Existing supports
& services
A Focus
on
Autism
“Autism Omnibus”
Reestablishes...
Chapter 255 –
An Act Relative to Real Lives
The Real Lives law expands the ability of individuals with
developmental disab...
Real Lives - The program itself
• Person-Centered
Planning
• Corresponding
Individual Support
Plan
• Individual Budget
Req...
Real Lives – Training, Education and information
FOR STAFF:
• Thorough review of self-determination
• Concept of self-dete...
FOR PARTICIPANTS:
• Assistance in obtaining facilitators
• Financial intermediary (or Agency with Choice)
• Provide inform...
FOR POTENTIAL PARTICIPANTS AND OTHERS:
• Hold meetings, briefings and orientations
• Advance continuing improvement by mee...
Real Lives – Safeguards to guard
against financial abuse in the program
•Detail reporting
•Auditing
•Appropriation
The law...
CHAPTER 171
OF THE ACTS OF 2002
An Act Providing Support to
Individuals with Disabilities
and Their Families.
Intended to ...
1991 - 1992
“If family support was truly supportive what would it
look like?” and “Can you imagine better supports?”
Famil...
Chapter 171
• Gives individuals with disabilities and their
families a voice in crucial decisions being made
about their l...
What does Flexible
Individual & Family
Support mean?
Flexible Supports are whatever it takes to…
• help families live toge...
FLEXIBLE SUPPORTS
person-
centered
planning
respite
life
planning
advocacy
training
Examples listed in the Chapter 171 Law...
Seven State agencies named in the Chapter 171
• Department of Developmental Services
• Department of Mental Health
• Depar...
CHAPTER 171 Requirements
Substantial Consultation
Annual Agency Individual & Family Support
Plans (Action Plan)
Legislativ...
Substantial consultation can be obtained from,
but not limited to:
• Advisory Boards
• Surveys
• Focus Groups-Listening Se...
Develop Agency Individual & Family
Support Action Plans
• Using the substantial consultation received
throughout the year ...
Each action plan must include goals that
address, at the “minimum”:
• Interagency collaboration with public and private
pa...
Each action plan must include goals that
address, at the “minimum”:
• Enable full participation of individuals and
their f...
Legislative Review and Monitoring
• Plans are written and submitted to the
Governor, Secretary of Health and Human
Service...
How can you provide substantial
consultation that will effect positive
change and strengthen disability
policy in the comm...
Massachusetts Families Organizing for Change
Our Vision is one of empowerment for
individual and family support that inclu...
Chapter 171 – State Agency Liaisons
DDS
Margaret Van Gelder (617) 624-7764 Margaret.Van.Gelder@state.ma.us
DMH
Beth Lucas ...
Acronyms
• AAC - Augmentative and alternative communication
• ABA – Applied Behavioral Analysis
• ASD - Autism Spectrum Di...
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Real Lives - Real Choices

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Since the inception of MFOFC 23 years ago, our organization has taken a stand on the issues affecting individuals and their families. Our work has created positive change in disability policy~pursuing policy driven budgets rather than budget driven policies. This powerpoint presentation addresses several laws that improve the lives of individuals with intellectual and developmental disabilities. ** Families need to understand the meaning of these laws and how they effect the life of their loved one with a disability.

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Real Lives - Real Choices

  1. 1. Real Lives, Real Choices
  2. 2. Laws addressed in today’s workshop:  Chapter 234 – An Act Requiring National Background Checks  Chapter 226 – An Act Relative to Assisting Individuals with Autism and other Intellectual or Developmental Disabilities (“Autism Omnibus”)  Chapter 255 – An Act Relative to Real Lives  Chapter 171 – An Act Providing Support to individuals and their Families
  3. 3. The Massachusetts Alliance for 21st Century Policy Fully supports community inclusion and a community-based system. Respects individual choice and self-determination. Self-Determination – control over decisions and freedom to take risks
  4. 4. 21st Century Disability Policy Foundations Individuals and families are involved in the planning Supports are flexible Supports are understandable, easy to access, culturally- sensitive, multilingual if necessary – reflected in all communications
  5. 5. The system is transparent Funding is personalized and flexible Change to regulations and policies is based on substantial consultation from individuals and families 21st Century Disability Policy Foundations
  6. 6. Supports and education are maximized – rules and regulations minimized The system promotes and supports innovation and creativity The system is free of “us-ism” and “they-ism” 21st Century Disability Policy Foundations
  7. 7. Chapter 234 An Act Requiring National Background Checks SAFETY OF THE INDIVIDUAL SERVED BY DDS Finger-print background checks - state and federal criminal history databases New hires will be subject to a FULL criminal background check Modeled after “Education Background Check” Law (2013)
  8. 8. “Autism Omnibus” Chapter 226 – An Act Relative to Assisting Individuals with Autism and other Intellectual or Developmental Disabilities MassHealth to cover medically necessary treatments for children with ASD under 21 years old MassHealth to cover ABA therapies, dedicated and non- dedicated Augmentative Communication Devices Eligibility criteria for DDS to include adults with ASD, Prader-Willi and those with Smith-Magenis Syndrome
  9. 9. DMH and DDS to develop and implement a plan to provide services to individuals who have both a mental illness and a developmental disability Create Autism Endorsement for public school special education teachers The creation of tax-free saving accounts (called “Achieving a Better Life Experience” or ABLE)
  10. 10. Across Lifespan Best Practices Identify gaps Existing supports & services A Focus on Autism “Autism Omnibus” Reestablishes the Autism Commission as a permanent entity.
  11. 11. Chapter 255 – An Act Relative to Real Lives The Real Lives law expands the ability of individuals with developmental disabilities to decide where and with whom they are able to live and work, by allowing them to self-direct their DDS dollars. The law places into statute a number of person- centered policies and procedures implemented by DDS under the concept of self-determination.
  12. 12. Real Lives - The program itself • Person-Centered Planning • Corresponding Individual Support Plan • Individual Budget Requires DDS to inform and offer self-determination as a service option to all individuals eligible through the department.
  13. 13. Real Lives – Training, Education and information FOR STAFF: • Thorough review of self-determination • Concept of self-determination • Mechanics of self-determination • Information about the selection and supervision of vendors
  14. 14. FOR PARTICIPANTS: • Assistance in obtaining facilitators • Financial intermediary (or Agency with Choice) • Provide information about possible budget expenditures • Help with managing self-determination Real Lives – Training, Education and information
  15. 15. FOR POTENTIAL PARTICIPANTS AND OTHERS: • Hold meetings, briefings and orientations • Advance continuing improvement by meeting with providers, organizations and businesses Real Lives – Training, Education and information
  16. 16. Real Lives – Safeguards to guard against financial abuse in the program •Detail reporting •Auditing •Appropriation The law has several safeguards against financial abuse. Requires the department shall seek maximum federal financial reimbursement for self-determination.
  17. 17. CHAPTER 171 OF THE ACTS OF 2002 An Act Providing Support to Individuals with Disabilities and Their Families. Intended to ensure individuals with disabilities or chronic illness and their families are provided with a variety of flexible home and community supports to live and participate in their own community.
  18. 18. 1991 - 1992 “If family support was truly supportive what would it look like?” and “Can you imagine better supports?” Families want to live ordinary lives Family support needs to be for the whole family Families should be treated with respect. Families want real choices
  19. 19. Chapter 171 • Gives individuals with disabilities and their families a voice in crucial decisions being made about their lives. • Is about providing a variety of flexible home and community supports that help families stay together and live . • To help people with disabilities or chronic illness live in their own home within their community.
  20. 20. What does Flexible Individual & Family Support mean? Flexible Supports are whatever it takes to… • help families live together. • create a meaningful and enriching life for the individual. • help the individual develop relationships and build friendships with people in his/her community.
  21. 21. FLEXIBLE SUPPORTS person- centered planning respite life planning advocacy training Examples listed in the Chapter 171 Law: ** Respite – a short period of rest or relief; a break
  22. 22. Seven State agencies named in the Chapter 171 • Department of Developmental Services • Department of Mental Health • Department of Public Health • Massachusetts Commission for the Blind • Massachusetts Commission for the Deaf and Hard of Hearing • Massachusetts Rehabilitation Commission • MassHealth
  23. 23. CHAPTER 171 Requirements Substantial Consultation Annual Agency Individual & Family Support Plans (Action Plan) Legislative Review and Monitoring
  24. 24. Substantial consultation can be obtained from, but not limited to: • Advisory Boards • Surveys • Focus Groups-Listening Sessions • Meetings with Individuals and Families
  25. 25. Develop Agency Individual & Family Support Action Plans • Using the substantial consultation received throughout the year from the “consumers” and their families. • Explain how the department intends to provide flexible supports. • Written in Chapter 171… “each department shall seek creative and innovative ways to provide flexible supports..”
  26. 26. Each action plan must include goals that address, at the “minimum”: • Interagency collaboration with public and private partnerships. • Create opportunities for individuals and families to oversight of, input and development of policies and programs. • Specific long and short-term objectives, strategies for implementing accessible and flexible supports, as well as, ways for individuals and families to monitor progress of previous years plan.
  27. 27. Each action plan must include goals that address, at the “minimum”: • Enable full participation of individuals and their families in community life – respecting all cultures. • Expand the capacity of community services to include individuals by training and educating community service providers. • Empower individuals and ensure their active leadership and advocacy through education, leadership development and training.
  28. 28. Legislative Review and Monitoring • Plans are written and submitted to the Governor, Secretary of Health and Human Services, Joint Committee on Human Services and Elderly Affairs and House and Senate Ways and Means Committee. • Plans must be submitted by August 1st of each year.
  29. 29. How can you provide substantial consultation that will effect positive change and strengthen disability policy in the commonwealth?
  30. 30. Massachusetts Families Organizing for Change Our Vision is one of empowerment for individual and family support that includes planning, choices and decision-making. JOIN OUR EMAIL LIST www.mfofc.org **Send email by text – Text MFOFC to 22828 to get started
  31. 31. Chapter 171 – State Agency Liaisons DDS Margaret Van Gelder (617) 624-7764 Margaret.Van.Gelder@state.ma.us DMH Beth Lucas (617) 626-8084 Beth.Lucas@state.ma.us DPH Suzanne Gottlieb (617) 624-5979 Suzanne.Gottlieb@state.ma.us MCB Janet LaBreck (617) 727-5550 Janet.LaBreck@state.ma.us MCDHH Aurora Wilber (617) 740-1600 aurora.wilber@state.ma.us MRC Betty Maher (617) 204-3631 Betty.Maher@state.ma.us MassHealth Michele Goody (617) 573-1857 Michele.Goody@state.ma.us
  32. 32. Acronyms • AAC - Augmentative and alternative communication • ABA – Applied Behavioral Analysis • ASD - Autism Spectrum Disorder • DDS - Department of Developmental Services • DMH - Department of Mental Health • DPH - Department of Public Health • EOHHS - Executive Office of Health and Human Services • MassHealth - Office of Medicaid, MassHealth • MCB - Massachusetts Commission for the Blind • MCDDH - Massachusetts Commission for the Deaf and Hard of Hearing • MRC - Massachusetts Rehabilitation Commission

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