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Hashtag TBI: How do Traumatic Brain Injury communities communicate and network in Twitter?


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Brunner M, Hemsley B, Togher L, Dann S, Palmer S (2017). Hashtag TBI: How do Traumatic Brain Injury communities communicate and network in Twitter? Oral presentation at the International Cognitive-Communication Disorders Conference, 19-21 January 2017, Orange California, USA.

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Hashtag TBI: How do Traumatic Brain Injury communities communicate and network in Twitter?

  1. 1. Hashtag #TBI: How do Traumatic Brain Injury communities communicate and network in Twitter? a.University of Newcastle b.University of Sydney c.NHMRC CRE Brain Recovery d.Australian National University e.Deakin University Melissa Brunnera, Bronwyn Hemsleya, Leanne Togherbc, Stephen Dannd, Stuart Palmere #TwitterMind @LissBEE_CPSP
  2. 2. #TwitterMind Research - What’s in a tweet? User’s Twitter name (their ‘handle’) Topic #hashtags can be used to reach a much wider audience Still 4 characters left (from the max of 140) Add different types of media - pictures, GIFs, polls, location details… Add links to external content, e.g. blog #TwitterMind @LissBEE_CPSP Read more: Structural layers of Twitter (Bruns & Moe 2014)
  3. 3. #TwitterMind @LissBEE_CPSP #TBI study - Method Hashtag search - March 2016 Analysis via: a) Content Classification framework (Dann 2015) (i) conversational; (ii) news; (iii) pass-along; (iv) social presence; and (v) status broadcast b) Inductive, qualitative thematic coding (Hemsley et al. 2014, 2017) c) Computational analysis – visualisations by Gephi and KH Coder (Palmer 2014; Hemsley & Palmer 2016)
  4. 4. #TwitterMind @LissBEE_CPSP Results 52,581 tweets captured (1st - 31st March 2016) 23,382 tweets excluded 29,199 tweets analysed 131 422 343 0 50 100 150 200 250 300 350 400 450 TBI-related Not TBI-related Unknown 166 297 The #TBI tweeting community Tweets excluded if they were: a) sent prior to 1st March; b) irrelevant; c) not written in English; d) contained no content; e) spam; or f) adverts.
  5. 5. #TwitterMind @LissBEE_CPSP The #TBI tweeting community 219 42 8 7 5 5 4 3 2 2 0 50 100 150 200 250 Person with TBI/BI TBI-related Organisation Health professional TBI-related Product TBI Community group or forum Academic Health advocate Staff of TBI Organisation Parent of person with TBI Veteran organisation TBI-related users (n=297)
  6. 6. #TwitterMind @LissBEE_CPSP Computational analysis – Gephi Undirected tweets Complicated interactions ‘Plumes’ Unconnected
  7. 7. #TwitterMind @LissBEE_CPSP Content classification of tweets 23077 4000 1419 406 297 Pass Along Conversational Status Broadcast News Social Presence
  8. 8. #TwitterMind @LissBEE_CPSP Preliminary content thematic analysis Preliminary analysis Sharing TBI- related info Raising Awareness Personal Insights Rehabilitation & Recovery Film and Media Inspirational & Motivational Social Connection
  9. 9. #TwitterMind @LissBEE_CPSP Content thematic analysis – Conversational tweets 0 100 200 300 400 500 600 No.ofconversationaltweets
  10. 10. #TwitterMind @LissBEE_CPSP Content thematic analysis – 7 broad categories 0 100 200 300 400 500 600 700 TBI Awareness Film and Media Lived experience TBI Service Inspiration Humour Impact of TBI on families and communities No.oftweets Status Broadcast tweets Conversational tweets
  11. 11. #TwitterMind @LissBEE_CPSP Content thematic analysis – Film and Media 0 20 40 60 80 100 120 Opinion of Concussion movie Acting in Concussion movie Watching the Concussion movie Making sense of Concussion movie relating meaning to sport Making sense of Concussion movie relating meaning to own life Making sense of Concussion movie relating meaning to relationship of industry in sport Promotion of Concussion movie Quote from Concussion movie Reading the book (Concussion movie) Status Broadcast (all Film and Media tweets related to the Concussion movie) 0 10 20 30 40 50 60 70 80 Concussion movie Concussion in sport News Documentary Research Politics Book Television drama Tour Conversational
  12. 12. #TwitterMind @LissBEE_CPSP Content thematic analysis – Lived experience 0 20 40 60 80 100 120 Feelings after TBI Strategies Changes in cognition after TBI Changes in physical ability Events Rehabilitation after TBI Changes in activity and participation Research No.oftweets Status broadcast tweets Conversational tweets
  13. 13. #TwitterMind @LissBEE_CPSP Content thematic analysis – Lived experience Frustration Vulnerability TraumaticAcceptance Generosity
  14. 14. #TwitterMind @LissBEE_CPSP Computational analysis - KH Coder Disseminating information Raising awareness Sport and TBI Everyday life with a brain injury Mental health Rehabilitation and recovery Hope and encouragement
  15. 15. #TwitterMind @LissBEE_CPSP Clinical Implications Clinicians Support people with TBI to use Twitter* Listen to TBI-related discussions on Twitter Use Twitter for Research Translation *Brunner et al. (2015); Paterson (in press, 2017)
  16. 16. Limitations and Directions for Future Research #TwitterMind @LissBEE_CPSP
  17. 17. References Brunner M, Hemsley B, Palmer S, Dann S, Togher L (2015). Review of the literature on the use of social media by people with traumatic brain injury (TBI). Disability and Rehabilitation, 37(2): p. 1511–1521. Bruns A, Moe H (2014). Structural layers of communication on Twitter. In: Weller K, Bruns A, Burgess Mahrt M, Puschmann C, eds. Twitter and society. New York: Peter Lang: p. 15–28. Dann S (2015). Benchmarking Micro-Blog Performance: Twitter Content Classification Framework, in Maximizing Commerce and Marketing Strategies through Micro-Blogging, Burkhalter J and Wood N, Editors. IGI Global: Hershey. p. 313-332. Hemsley B, Dann S, Palmer S, Allan M, Balandin S (2015). “We definitely need an audience”: experiences of Twitter, Twitter networks and tweet content in adults with severe communication disabilities who use augmentative and alternative communication (AAC). Disability and rehabilitation, 37(17), 1531-1542. Hemsley B, Palmer S (2016, January). Two Studies on Twitter Networks and Tweet Content in Relation to Amyotrophic Lateral Sclerosis (ALS): Conversation, Information, and ‘Diary of a Daily Life’. In Digital Health Innovation for Consumers, Clinicians, Connectivity and Community: Selected Papers from the 24th Australian National Health Informatics Conference (HIC 2016) (Vol. 227, p. 41-47). Available at Hemsley B, Palmer S, Goonan W, Dann S (2017, January). Motor Neurone Disease (MND) and Amyotrophic Lateral Sclerosis (ALS): Social Media Communication on Selected# MND and# ALS Tagged Tweets. In Proceedings of the 50th Hawaii International Conference on System Sciences. Available at Hemsley B, Palmer S, Balandin S (2014). Tweet reach: A research protocol for using Twitter to increase information exchange in people with communication disabilities. Developmental Neurorehabilitation, 17(2): p. 84-89. Palmer S (2014). Characterizing Twitter communication – a case study of international engineering academic units. Journal of Marketing for Higher Education, 24(2): p. 257-273. Paterson H (in press, 2017). The use of social media by adults with acquired conditions who use AAC: current gaps and considerations in research. Augmentative and Alternative Communication. #TwitterMind @LissBEE_CPSP
  18. 18. Image acknowledgements Preliminary content thematic analysis slide Sharing info: content/uploads/2013/02/woman_computer_file_share_400_clr_7854.png Raising Awareness: Personal Insights: a-Great-Story-Step-3.jpg Rehabilitation & Recovery: Film and Media: Inspirational/Motivational: Social Connection: id472870593?s=640x640 Method slide Twitter search: NCapture: NVivo: Excel: #TwitterMind @LissBEE_CPSP
  19. 19. #TwitterMind @LissBEE_CPSP Questions?