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Community-based Indicators for HIV Programs


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Shared during a July 2018 webinar.

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Community-based Indicators for HIV Programs

  1. 1. Community-based Indicators for HIV Programs Jackie Hellen, MPH MEASURE Evaluation Palladium July 31, 2018 WEBINAR
  2. 2. Overview of the collection A web-based interactive tool that provides community-based HIV programs with a list of routine standardized indicators, detailed indicator definitions and reference details, examples of data use, additional resources, and a means by provide feedback and recommendations Available at: Monitoring community HIV programs
  3. 3. Addressing a need • Community data is key to HIV programming but access to quality data can be complicated • Lack of guidance on a set of standardized indicators to evaluate HIV program performance at community level • Information collected primarily to inform reporting requirements, not decision making • Community-based information systems (CBIS) often collect duplicative and poor-quality information, cause high reporting burden for community workers at the community level
  4. 4. What do you mean by Community-based HIV programs or program components, implemented by government or nongovernmental agencies, target the general population, key populations, or vulnerable children and their families in HIV prevention or treatment interventions at the household and individual levels through community workers community-based HIV programs?
  5. 5. What do you mean by A CBIS is a dynamic system that includes information on how data are collected, how they flow, how to assess and improve data quality, and how the information is used. A CBIS involves data collection, management, and analysis of health and related services provided to communities outside of facilities (de la Torre, 2014). community-based information systems?
  6. 6. What do you mean by • Volunteer or non-volunteer community health, extension, or outreach workers • Can also be called community volunteers, agents, promoters, or distributors • Skilled birth attendants or midwives, social service or case management workers • Key collectors of this data • Provide household-level HIV care and support • Often members of the communities that they support • Often trained and supported by the health or social service systems community workers?
  7. 7. Background and Methods In 2017-2018, MEASURE mapped data elements from data collection tools used at the community level by HIV programs in Nigeria, Ethiopia, South Africa, Uganda, Kenya, Côte d’Ivoire, the Democratic Republic of the Congo, and Botswana. We examined registers, home visit and household data collection sheets, referral forms, and checklists from key population, vulnerable children, outreach, and HIV prevention, care, and treatment programs used at the community level.
  8. 8. Methods step by step 1. Reached out to governmental partners and implementing partners in each country 2. Collected data collection tools used at community level for HIV programs 3. Extracted all data elements from the tools in Excel database 4. Recorded data elements by source and number of times collected 5. Identified the most commonly collected data elements 6. Sent to partners for feedback 7. Transformed final data elements into list of indicators 8. Created performance indicator reference sheets per indicator
  9. 9. Summary List 27 indicators are categorized in the summary list by areas of community-based HIV program implementation: 1. Vulnerable children 2. Prevention of mother-to- child transmission 3. Key populations 4. HIV prevention 5. Home-based care
  10. 10. implementation Areas of program
  11. 11. Clicking on an indicator brings users to indicator definitions based on USAID’s performance indicator reference sheets. Indicators were designed for data collection by community programs and agents. Definitions include: • How to use the indicator • Numerator • Unit of measure • Calculation • Method of measurement • Data source • Disaggregation • Data quality considerations • Reporting frequency • Data element • Category • References and additional resources Reference sheets Performance Indicator
  12. 12. Data use cases We also reached out to partners to learn about instances where community- based HIV data informed programmatic actions, plans, or decisions. These decisions led to reallocation of project inputs or could be attributed to improved outputs or outcomes. Are there examples of data use for these indicators? Source: L10K Project, JSI
  13. 13. Conceptual framework for community-based HIV program data demand and use
  14. 14. Thank you…. Any questions? For any additional questions, please contact either myself ( or Dawne Walker (
  15. 15. This presentation was produced with the support of the United States Agency for International Development (USAID) under the terms of MEASURE Evaluation cooperative agreement AID-OAA-L-14-00004. MEASURE Evaluation is implemented by the Carolina Population Center, University of North Carolina at Chapel Hill in partnership with ICF International; John Snow, Inc.; Management Sciences for Health; Palladium; and Tulane University. Views expressed are not necessarily those of USAID or the United States government.