Spectrum of Developmental Disabilities

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Spectrum of Developmental Disabilities

  1. 1. March 17 - 19, 2014 Johns Hopkins University School of Medicine Baltimore, Maryland The Spectrum of Developmental Disabilities XXXVI Intellectual Disability: At the Precipice 720 Rutland Avenue / Turner 20 Baltimore, Maryland 21205-2195 Office of Continuing Medical Education Jointly Sponsored by Johns Hopkins University School of Medicine Division of Child Development, Department of Pediatrics and Kennedy Fellows Association Kennedy Krieger Institute March 17 - 19, 2014 Johns Hopkins University School of Medicine Thomas B. Turner Building Baltimore, Maryland Mark Your Calendar for Spectrum of Developmental Disabilities XXXVII March 23 - 25, 2015 Non-Profit Org. U.S. Postage PAID Baltimore, MD Permit No. 5839 The Spectrum of Developmental Disabilities XXXVI Intellectual Disability: At the Precipice CON T I N U I NG M EDIC A L EDUC AT ION GENERAL INFORMATION DESCRIPTION Intellectual disability is a chronic, life-long disorder that has major public health implications. Since the 1970s people with intellectual disability have entered the mainstream of society and served in community programs. Intellectual disability and developmental delay is the second most common reason for provision of special education services in the US. The breadth of the issues relating to intellectual disability are well suited for the interdisciplinary focus of the Spectrum of Developmental Disabilities and its targeted audience. WHO SHOULD ATTEND This activity is intended for physicians, pediatricians, neurodevelopmentalists, developmental-behavioral pediatricians, child neurologists, child psychiatrists, educators, nurses, occupational therapists, psychologists, speech and language pathologists, physical therapists, physician assistants and social workers. OBJECTIVES After attending this activity, the participant will demonstrate the ability to: •  ist three current challenges confronting people with intellectual L disability. •  hoose appropriate genetic testing to evaluate the child who presents C with intellectual disability. •  iscuss the rationale for targeted pharmacotherapy of intellectual D disability. •  efine and discuss the need for adaptive behavior in the diagnosis of D intellectual disability. •  nalyze the benefits and challenges associated with inclusive education A for intellectual disability. •  ame three epileptic syndromes associated with intellectual disability N and list their clinical features and identify the preferred agents for their treatment. •  valuate current intervention strategies in light of lessons learned from E older people with intellectual disability. ACCREDITATION STATEMENT This activity has been planned and implemented in accordance with the Essential Areas and policies of the Accreditation Council for Continuing Medical Education through the joint sponsorship of the Johns Hopkins University School of Medicine and the Kennedy Krieger Institute. The Johns Hopkins University School of Medicine is accredited by the ACCME to provide continuing medical education for physicians. CREDIT DESIGNATION STATEMENT The Johns Hopkins University School of Medicine designates this live activity for a maximum of 18.0 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity. OTHER CREDIT American Nurses Credentialing Center (ANCC) accepts AMA PRA Category 1 CreditTM from organizations accredited by the ACCME. American Academy of Nurse Practitioners (AANP) accepts AMA PRA Category 1 CreditTM from organizations accredited by the ACCME. American Academy of Physician Assistants (AAPA) accepts certificates of participation for educational activities certified for AMA PRA Category 1 Credit™ from organizations accredited by ACCME. Physician assistants may receive a maximum of 18.0 AAPA Category 1 CME credits for completing this program. The Johns Hopkins University School of Medicine is authorized by the State Board of Examiners of Psychologists as a provider of continuing education. The Johns Hopkins University School of Medicine maintains responsibility for this program. A certificate for 18.0 CEUs will be awarded upon completion of this activity. The Maryland Board of Social Work Examiners certifies that this program meets the criteria for 18.0 credit hours of Category 1 or 1.8 CEUs of continuing education for social workers and associates licensed in Maryland. The Johns Hopkins University School of Medicine is an approved sponsor of the Maryland Board of Social Work Examiners for continuing education credits for licensed social workers in Maryland. The Johns Hopkins University has approved this activity for 18.0 contact hours for non-physicians. POLICY ON SPEAKER AND PROVIDER DISCLOSURE HOTEL INFORMATION Homewood Suites by Hilton (800) 873-6668 625 South President Street (443) 392-9010 Baltimore, Maryland 21202 FAX: (443) 392-9020 HOTEL RESERVATION CUT-OFF DATE: FEBRUARY 15, 2014 A limited block of sleeping rooms has been reserved for your convenience and will be available on a first-come, first-served basis. Make your reservation online at www.baltimorehomewoodsuites.com or call the hotel directly and specify that you are attending the Johns Hopkins Developmental Disabilities group to receive the special group rate of $172 for studio king or $179 for a one bedroom double, plus tax. Complimentary roundtrip transportation will be provided. Check-in time is 3:00 p.m. Check-out time is 12:00 noon. OUTCOMES SURVEY REGISTRATION AND LOCATION A form will be available to attendees to evaluate each session and each speaker’s presentation, as well as to identify future educational needs. It is the policy of the Johns Hopkins University School of Medicine that the speaker and provider disclose real or apparent conflicts of interest relating to the topics of this educational activity, and also disclose discussions of unlabeled/unapproved uses of drugs or devices during their presentation(s). The Johns Hopkins University School of Medicine OCME has established policies in place that will identify and resolve all conflicts of interest prior to this educational activity. Detailed disclosure will be made in the activity handout materials. Monday, March 17, 2014  •  8:00 - 8:45 a.m. Thomas B. Turner Building, Johns Hopkins University School of Medicine 720 Rutland Avenue, Baltimore, Maryland 21205 The Turner Building is located on Rutland Avenue at Monument Street. Directions and campus parking information are available on our website under the contact and travel section at www.HopkinsCME.edu.Handicapped parking is available in the nearby Rutland Garage. Complimentary roundtrip transportation for attendees staying at conference headquarters hotel will be provided. Johns Hopkins is smoke-free. FEES REGISTRATION CUT-OFF DATE: March 11, 2014 Methods of Payment: Payment by check or credit card must accompany the registration form prior to the activity. On-site payments by credit card only. Foreign payments must be by credit card or with a U.S. Dollar World Money Order. The registration fee includes instructional materials, continental breakfasts, refreshment breaks and lunches. Registration Fee .....................................................$535 You will receive a confirmation by e-mail if you have provided your e-mail address. Otherwise confirmation will be sent by mail. If you have not received it by March 11, 2014 call (410) 502-9636 to confirm that you are registered. A certificate of attendance will be sent by May 2, 2014 to the e-mail address you provide on the registration form. The Johns Hopkins University reserves the right to cancel or postpone any activity due to unforeseen circumstances. In this event, the University will refund the registration fee but is not responsible for travel expenses. Additionally, we reserve the right to change the venue to a comparable venue. Under such circumstances registrants will be notified as soon as possible. LATE FEE AND REFUND POLICY EVALUATION A survey will be sent to all physician attendees within three months post activity to assist us in determining what impact this activity had on the attendee’s practice. EMERGENCY CALLS During the days of this activity only, March 17 - 19, 2014, direct emergency calls to the Hopkins registration desk, (410) 955-3673. Messages will be posted for participants. AMERICANS WITH DISABILITIES ACT The Johns Hopkins University School of Medicine fully complies with the legal requirements of the ADA and the rules and regulations thereof. Please notify us if you have any special needs. TO REGISTER OR FOR FURTHER INFORMATION Register Online (credit card and eCheck) www.HopkinsCME.edu Register by Phone (credit card only) (410) 502-9636 Register by Fax (866) 510-7088 Confirmation/Certificates (410) 502-9636 General Information (410) 955-2959 E-mail the Office of CME cmenet@jhmi.edu For general information, the direct link for this CME activity web page is: http://www.hopkinscme.edu/CourseDetail.aspx/80032518 Follow us on Twitter: http://twitter.com/HopkinsCME Facebook: http://www.facebook.com/HopkinsCME COMMERCIAL SUPPORT The Johns Hopkins University School of Medicine did not solicit or receive commercial funding from any commercial entity, including pharmaceutical and medical device manufacturers, for this activity. A $50 late fee applies to registrations received after 5:00 p.m. EST on March 11, 2014. A handling fee of $50 will be deducted for cancellation. An additional fee may apply for cancellation of other events, including workshops and social activities. Refund requests must be received by fax or mail by March 11, 2014. No refunds will be made thereafter. Transfer of registration to another Johns Hopkins conference in lieu of cancellation is not possible. SOCIAL EVENT A complimentary reception for registrants and faculty will be held Monday, March 17, 2014, 5:10 – 6:00 p.m. Guests are invited to attend at an additional charge of $20. Please indicate your attendance on the activity registration form.
  2. 2. Office of Continuing Medical Education 720 Rutland Avenue / Turner 20 Baltimore, Maryland 21205-2195 The Spectrum of Developmental Disabilities XXXVI Intellectual Disability: At the Precipice March 17 - 19, 2014 Johns Hopkins University School of Medicine Baltimore, Maryland Jointly Sponsored by Johns Hopkins University School of Medicine Division of Child Development, Department of Pediatrics and Kennedy Fellows Association Kennedy Krieger Institute March 17 - 19, 2014 Johns Hopkins University School of Medicine Thomas B. Turner Building Baltimore, Maryland Mark Your Calendar for Spectrum of Developmental Disabilities XXXVII March 23 - 25, 2015 The Spectrum of Developmental Disabilities XXXVI Intellectual Disability: At the Precipice Non-Profit Org. U.S. Postage PAID Baltimore, MD Permit No. 5839 CON T I N U I NG M EDIC A L EDUC AT ION GENERAL INFORMATION DESCRIPTION Intellectual disability is a chronic, life-long disorder that has major public health implications. Since the 1970s people with intellectual disability have entered the mainstream of society and served in community programs. Intellectual disability and developmental delay is the second most common reason for provision of special education services in the US. The breadth of the issues relating to intellectual disability are well suited for the interdisciplinary focus of the Spectrum of Developmental Disabilities and its targeted audience. WHO SHOULD ATTEND This activity is intended for physicians, pediatricians, neurodevelopmentalists, developmental-behavioral pediatricians, child neurologists, child psychiatrists, educators, nurses, occupational therapists, psychologists, speech and language pathologists, physical therapists, physician assistants and social workers. OBJECTIVES After attending this activity, the participant will demonstrate the ability to: •  ist three current challenges confronting people with intellectual L disability. •  hoose appropriate genetic testing to evaluate the child who presents C with intellectual disability. •  iscuss the rationale for targeted pharmacotherapy of intellectual D disability. •  efine and discuss the need for adaptive behavior in the diagnosis of D intellectual disability. •  nalyze the benefits and challenges associated with inclusive education A for intellectual disability. •  ame three epileptic syndromes associated with intellectual disability N and list their clinical features and identify the preferred agents for their treatment. •  valuate current intervention strategies in light of lessons learned from E older people with intellectual disability. ACCREDITATION STATEMENT This activity has been planned and implemented in accordance with the Essential Areas and policies of the Accreditation Council for Continuing Medical Education through the joint sponsorship of the Johns Hopkins University School of Medicine and the Kennedy Krieger Institute. The Johns Hopkins University School of Medicine is accredited by the ACCME to provide continuing medical education for physicians. CREDIT DESIGNATION STATEMENT The Johns Hopkins University School of Medicine designates this live activity for a maximum of 18.0 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity. OTHER CREDIT American Nurses Credentialing Center (ANCC) accepts AMA PRA Category 1 CreditTM from organizations accredited by the ACCME. American Academy of Nurse Practitioners (AANP) accepts AMA PRA Category 1 CreditTM from organizations accredited by the ACCME. American Academy of Physician Assistants (AAPA) accepts certificates of participation for educational activities certified for AMA PRA Category 1 Credit™ from organizations accredited by ACCME. Physician assistants may receive a maximum of 18.0 AAPA Category 1 CME credits for completing this program. The Johns Hopkins University School of Medicine is authorized by the State Board of Examiners of Psychologists as a provider of continuing education. The Johns Hopkins University School of Medicine maintains responsibility for this program. A certificate for 18.0 CEUs will be awarded upon completion of this activity. The Maryland Board of Social Work Examiners certifies that this program meets the criteria for 18.0 credit hours of Category 1 or 1.8 CEUs of continuing education for social workers and associates licensed in Maryland. The Johns Hopkins University School of Medicine is an approved sponsor of the Maryland Board of Social Work Examiners for continuing education credits for licensed social workers in Maryland. The Johns Hopkins University has approved this activity for 18.0 contact hours for non-physicians. POLICY ON SPEAKER AND PROVIDER DISCLOSURE It is the policy of the Johns Hopkins University School of Medicine that the speaker and provider disclose real or apparent conflicts of interest relating to the topics of this educational activity, and also disclose discussions of unlabeled/unapproved uses of drugs or devices during their presentation(s). The Johns Hopkins University School of Medicine OCME has established policies in place that will identify and resolve all conflicts of interest prior to this educational activity. Detailed disclosure will be made in the activity handout materials. REGISTRATION AND LOCATION HOTEL INFORMATION Homewood Suites by Hilton (800) 873-6668 625 South President Street (443) 392-9010 Baltimore, Maryland 21202 FAX: (443) 392-9020 HOTEL RESERVATION CUT-OFF DATE: FEBRUARY 15, 2014 A limited block of sleeping rooms has been reserved for your convenience and will be available on a first-come, first-served basis. Make your reservation online at www.baltimorehomewoodsuites.com or call the hotel directly and specify that you are attending the Johns Hopkins Developmental Disabilities group to receive the special group rate of $172 for studio king or $179 for a one bedroom double, plus tax. Complimentary roundtrip transportation will be provided. Check-in time is 3:00 p.m. Check-out time is 12:00 noon. EVALUATION A form will be available to attendees to evaluate each session and each speaker’s presentation, as well as to identify future educational needs. OUTCOMES SURVEY Monday, March 17, 2014  •  8:00 - 8:45 a.m. Thomas B. Turner Building, Johns Hopkins University School of Medicine 720 Rutland Avenue, Baltimore, Maryland 21205 The Turner Building is located on Rutland Avenue at Monument Street. Directions and campus parking information are available on our website under the contact and travel section at www.HopkinsCME.edu.Handicapped parking is available in the nearby Rutland Garage. Complimentary roundtrip transportation for attendees staying at conference headquarters hotel will be provided. Johns Hopkins is smoke-free. A survey will be sent to all physician attendees within three months post activity to assist us in determining what impact this activity had on the attendee’s practice. FEES The Johns Hopkins University School of Medicine fully complies with the legal requirements of the ADA and the rules and regulations thereof. Please notify us if you have any special needs. REGISTRATION CUT-OFF DATE: March 11, 2014 Methods of Payment: Payment by check or credit card must accompany the registration form prior to the activity. On-site payments by credit card only. Foreign payments must be by credit card or with a U.S. Dollar World Money Order. The registration fee includes instructional materials, continental breakfasts, refreshment breaks and lunches. Registration Fee .....................................................$535 You will receive a confirmation by e-mail if you have provided your e-mail address. Otherwise confirmation will be sent by mail. If you have not received it by March 11, 2014 call (410) 502-9636 to confirm that you are registered. A certificate of attendance will be sent by May 2, 2014 to the e-mail address you provide on the registration form. The Johns Hopkins University reserves the right to cancel or postpone any activity due to unforeseen circumstances. In this event, the University will refund the registration fee but is not responsible for travel expenses. Additionally, we reserve the right to change the venue to a comparable venue. Under such circumstances registrants will be notified as soon as possible. LATE FEE AND REFUND POLICY A $50 late fee applies to registrations received after 5:00 p.m. EST on March 11, 2014. A handling fee of $50 will be deducted for cancellation. An additional fee may apply for cancellation of other events, including workshops and social activities. Refund requests must be received by fax or mail by March 11, 2014. No refunds will be made thereafter. Transfer of registration to another Johns Hopkins conference in lieu of cancellation is not possible. SOCIAL EVENT A complimentary reception for registrants and faculty will be held Monday, March 17, 2014, 5:10 – 6:00 p.m. Guests are invited to attend at an additional charge of $20. Please indicate your attendance on the activity registration form. EMERGENCY CALLS During the days of this activity only, March 17 - 19, 2014, direct emergency calls to the Hopkins registration desk, (410) 955-3673. Messages will be posted for participants. AMERICANS WITH DISABILITIES ACT TO REGISTER OR FOR FURTHER INFORMATION Register Online (credit card and eCheck) www.HopkinsCME.edu Register by Phone (credit card only) (410) 502-9636 Register by Fax (866) 510-7088 Confirmation/Certificates (410) 502-9636 General Information (410) 955-2959 E-mail the Office of CME cmenet@jhmi.edu For general information, the direct link for this CME activity web page is: http://www.hopkinscme.edu/CourseDetail.aspx/80032518 Follow us on Twitter: http://twitter.com/HopkinsCME Facebook: http://www.facebook.com/HopkinsCME COMMERCIAL SUPPORT The Johns Hopkins University School of Medicine did not solicit or receive commercial funding from any commercial entity, including pharmaceutical and medical device manufacturers, for this activity.
  3. 3. PROGRAM 4:50 - 5:10 5:10 - 6:00 Monday, March 17, 2014 Morning 8:00 - 8:45 8:45 - 9:00 Registration and Continental Breakfast Welcome with Conference Goals George Dover, MD Gary Goldstein, MD Morning 8:00 - 8:30 Continental Breakfast CLINICAL CONSIDERATIONS Moderator: Mary Leppert, MBBCh 8:30 - 9:20 hat is Significantly Sub-Average W General Intellectual Functioning? Daniel Reschly, PhD 9:20 - 10:10 W hat Adaptive Competencies Should We Be Measuring? Stephen Greenspan, PhD 10:10 - 10:30 Refreshment Break 10:30 - 11:15 G lobal Developmental Delay vs. IDD: Is Early Identification of IDD Possible? Paul Lipkin, MD 11:15 - 12:00 Evaluating Untestable Children Karen Wills, PhD, LP, ABPP 12:00 - 12:30 Discussion 12:30 - 1:30 Lunch Afternoon NEUROBIOLOGICAL ASPECTS Moderator: Sarah Risen, MD 1:30 - 2:15 aryotypes, SNPs and Whole Exome K Sequencing: What’s a Clinician to Do? S. Ali Fatemi, MD 2:15 - 3:00 X-Linked ID: Beyond Fragile X Roger Stevenson, MD 3:00 - 3:20 Refreshment Break 3:20 - 4:05 From ‘Neurological Taint’ to Genomic Medicine: Developmental Brain Dysfunction in the 21st Century Scott Myers, MD 4:05 - 4:50 Neurobiology of The Intellectual Disabilities Michael Johnston, MD Afternoon ASSOCIATION DYSFUNCTION Moderator: Scott Myers, MD 1:30 - 2:15 Intellectual Disability in the Age of Autism James Harris, MD 2:15 - 3:05 ADHD and ID Nancy Roizen, MD 3:05 - 3:25 Refreshment Break 3:25 - 4:10 Social Aspects of The Intellectual Disabilities Gary Siperstein, PhD 4:10 - 4:55 ID and Epilepsy Patti Vining, MD 4:55 - 5:20 Discussion Mary Leppert, MBBCh Co-Director, Neonatal Follow-up Clinic Kennedy Krieger Institute Assistant Professor of Pediatrics Johns Hopkins University School of Medicine Bruce Shapiro, MD Arnold J. Capute MD, MPH Chair in Neurodevelopmental Disabilities Professor of Pediatrics Johns Hopkins University School of Medicine Vice President of Training Kennedy Krieger Institute Paul Lipkin, MD Director, Center for Development and Learning Kennedy Krieger Institute Associate Professor of Pediatrics Johns Hopkins University School of Medicine JOHNS HOPKINS AND KENNEDY Sarah Risen, MD Post-Doctoral Research Fellow Department of Neurology Johns Hopkins University School of Medicine George Dover, MD Director, The Johns Hopkins Children’s Center Professor of Pediatrics and Oncology Johns Hopkins University School of Medicine Patti Vining, MD Professor of Neurology and Pediatrics Johns Hopkins University School of Medicine S. Ali Fatemi, MD Chief, Neurogenetics Kennedy Krieger Institute Assistant Professor of Neurology and Pediatrics Johns Hopkins University School of Medicine GUEST SPEAKERS Leonard Abbeduto, PhD Director, UC Davis MIND Institute Tsakopoulos-Vismara Endowed Chair Professor of Psychiatry and Behavioral Sciences UC Davis School of Medicine Sacramento, California Tanjala Gipson, MD Associate Director, Clinical Trials Unit Kennedy Krieger Institute Assistant Professor of Neurology Johns Hopkins University School of Medicine Gary Goldstein, MD President and Chief Executive Officer Kennedy Krieger Institute Professor of Neurology and Pediatrics Johns Hopkins University School of Medicine Professor of Environmental Health Sciences Johns Hopkins University Bloomberg School of Public Health Pasquale Accardo, MD Professor of Pediatrics James H. Franklin Chair in Developmental Research in Pediatrics Virginia Commonwealth University Wake Forest,Virginia Maureen Durkin, PhD, DrPh Professor of Population Health Sciences and Pediatrics Waisman Center Investigator Vice Chair, Department of Population Health Sciences Director of the Graduate Program, Department of Population Health Sciences University of Wisconsin-Madison School of Medicine and Public Health Madison, Wisconsin James Harris, MD Professor of Psychiatry and Behavioral Sciences, Pediatrics, Mental Health and History of Medicine Johns Hopkins University School of Medicine Michael Johnston, MD Chief Medical Officer, Kennedy Krieger Institute Blum Moser Chair for Pediatric Neurology Professor of Neurology, Pediatrics and Physical Medicine and Rehabilitation Johns Hopkins University School of Medicine Morning 8:00 - 8:30 Tuesday, March 18, 2014 SCOPE OF THE PROBLEM Moderator: Brian Rogers, MD 9:00 - 9:40 The Prevalence of ID: Is It Decreasing? Maureen Durkin, PhD, DrPh 9:40 - 10:20 Are We Abandoning Intellectual Disability? Ruth Luckasson, JD 10:20 - 10:40 Refreshment Break 10:40 - 11:25 B alkanization of NDD: Implication for Future Progress Leonard Abbeduto, PhD 11:25 - 12:10 Intellectual Disability: A Call to A Dignity Revolution Timothy Shriver, PhD 12:10 - 12:30 Discussion 12:30 - 1:30 Lunch ACTIVITY DIRECTOR Wednesday, March 19, 2014 Discussion Welcome Reception Continental Breakfast INTERVENTIONS AND OUTCOMES Moderator: Paul Lipkin, MD 8:30 - 9:15 Health Promotion for People with ID Gloria Krahn, PhD, MPH 9:15 - 10:00 Special Education in the Era of Inclusion Michael Wehmeyer, PhD 10:00 - 10:40 Is Transition Ever Achieved? Karrie Shogren, PhD 10:40 - 11:00 Refreshment Break 11:00 - 11:45 Targeted Therapy for NDD Tanjala Gipson, MD 11:45 - 12:30 T esting and the Feeble Minded: A Forgotten Pioneer Pasquale Accardo, MD 12:30 - 1:00 Discussion and Closing Remarks 1:00 Adjourn – Please complete and return the Evaluation and Credit Report Forms. The Johns Hopkins University School of Medicine takes responsibility for the content, quality and scientific integrity of this CME activity. This schedule is subject to change. Gloria Krahn, PhD, MPH Director, Division of Human Development and Disability Centers for Disease Control Atlanta, Georgia Ruth Luckasson, JD Distinguished Professor of Special Education Chair, Department of Educational Specialties University of New Mexico Albuquerque, New Mexico Scott Myers, MD Neurodevelopmental Pediatrician Geisinger Autism Developmental Medicine Institute Clinical Associate Professor of Pediatrics Temple University School of Medicine Daniel Reschly, PhD Professor of Education and Psychology Peabody College of Vanderbilt University Nashville, Tennessee Brian Rogers, MD Professor of Pediatrics Director, Institute on Development Disability Oregon Health and Science University Portland, Oregon Gary Siperstein, PhD Professor of Psychology Founder and Director, Center for Social Development and Education University of Massachusetts Boston, Massachusetts Roger Stevenson, MD Senior Clinical Geneticist Greenwood Genetic Center Greenwood, South Carolina Michael Wehmeyer, PhD Professor of Special Education Director, Kansas University Center on Developmental Disabilities University of Kansas Lawrence, Kansas Karen Wills, PhD, LP, ABPP Pediatric Neuropsychologist Children’s Hospital and Clinics of Minnesota Minneapolis, Minnesota Nancy Roizen, MD Professor of Pediatrics Case Western Reserve University School of Medicine Division Chief, Pediatric Developmental and Behavioral Psychology University Hospitals Case Medical Center Cleveland, Ohio Karrie Shogren, PhD Associate Professor of Special Education Associate Director, Kansas University Center on Developmental Disabilities University of Kansas Lawrence, Kansas Timothy Shriver, PhD Chairman, Special Olympics Washington, DC Stephen Greenspan, PhD Clinical Professor of Psychiatry University of Colorado Health Sciences Center Littleton, Colorado REGISTRATION FORM Course Number 80032518 The Spectrum of Developmental Disabilities XXXVI • Intellectual Disability: At the Precipice • March 17-19, 2014 Online (credit card and eCheck): www.HopkinsCME.edu By fax: (866) 510-7088 By phone (credit card only): (410) 502-9636 Or mail this form to the Johns Hopkins University, Office of Continuing Medical Education, P.O. Box 64128, Baltimore, Maryland 21264-4128. Include check payable to HOPKINS/80032518 , or include credit card information below. PAYMENT MUST ACCOMPANY FORM TO CONFIRM YOUR REGISTRATION. h I am a Johns Hopkins speaker for this activity. Please type or print clearly: last name first name m.i. What do you hope to learn by attending this activity?_______________________________________ Please notify us if you have any special needs.________________________________________________ Registration Fee:................................................................................................... $535 For registrations received after 5:00 p.m. EST on March 11, 2014, include a $50 late fee. On-site registrations are payable only by credit card. Social Event – Welcome Reception h I will attend h number of guests at $20 each Total amount enclosed $ __________ highest degree primary specialty For Physicians Only: NPI – 10 digits Hopkins faculty/staff only JHED ID State License # State of License mailing address city state daytime telephone ZIP country Payment Type: JHU Faculty/Staff Only: If you are using your Tuition Remission Benefit or an ION budget, please complete this registration form and return with appropriate payment processing form to OCME,Turner 20. Forms can be found on-line at http://www.hopkinscme.edu/Resources/resources.aspx. h Check (See instructions on top of form.) fax number h Credit Card:  h VISA   h MASTERCARD    h DISCOVER    h AMEX e-mail You will receive a confirmation notice and your attendance certificate by e-mail if you provide your e-mail address. h Check here if you wish to receive e-mail notices about upcoming CME activities. Card # _____________ - _____________ - _____________ - _____________ Exp. Date ________ Name on Card______________________________________________________________________ Signature Date____________________________________________________________________
  4. 4. PROGRAM 4:50 - 5:10 5:10 - 6:00 Monday, March 17, 2014 Morning 8:00 - 8:45 8:45 - 9:00 Registration and Continental Breakfast Welcome with Conference Goals George Dover, MD Gary Goldstein, MD Morning 8:00 - 8:30 Continental Breakfast CLINICAL CONSIDERATIONS Moderator: Mary Leppert, MBBCh 8:30 - 9:20 hat is Significantly Sub-Average W General Intellectual Functioning? Daniel Reschly, PhD 9:20 - 10:10 W hat Adaptive Competencies Should We Be Measuring? Stephen Greenspan, PhD 10:10 - 10:30 Refreshment Break 10:30 - 11:15 G lobal Developmental Delay vs. IDD: Is Early Identification of IDD Possible? Paul Lipkin, MD 11:15 - 12:00 Evaluating Untestable Children Karen Wills, PhD, LP, ABPP 12:00 - 12:30 Discussion 12:30 - 1:30 Lunch Afternoon NEUROBIOLOGICAL ASPECTS Moderator: Sarah Risen, MD 1:30 - 2:15 aryotypes, SNPs and Whole Exome K Sequencing: What’s a Clinician to Do? S. Ali Fatemi, MD 2:15 - 3:00 X-Linked ID: Beyond Fragile X Roger Stevenson, MD 3:00 - 3:20 Refreshment Break 3:20 - 4:05 From ‘Neurological Taint’ to Genomic Medicine: Developmental Brain Dysfunction in the 21st Century Scott Myers, MD 4:05 - 4:50 Neurobiology of The Intellectual Disabilities Michael Johnston, MD Afternoon ASSOCIATION DYSFUNCTION Moderator: Scott Myers, MD 1:30 - 2:15 Intellectual Disability in the Age of Autism James Harris, MD 2:15 - 3:05 ADHD and ID Nancy Roizen, MD 3:05 - 3:25 Refreshment Break 3:25 - 4:10 Social Aspects of The Intellectual Disabilities Gary Siperstein, PhD 4:10 - 4:55 ID and Epilepsy Patti Vining, MD 4:55 - 5:20 Discussion Mary Leppert, MBBCh Co-Director, Neonatal Follow-up Clinic Kennedy Krieger Institute Assistant Professor of Pediatrics Johns Hopkins University School of Medicine Bruce Shapiro, MD Arnold J. Capute MD, MPH Chair in Neurodevelopmental Disabilities Professor of Pediatrics Johns Hopkins University School of Medicine Vice President of Training Kennedy Krieger Institute Paul Lipkin, MD Director, Center for Development and Learning Kennedy Krieger Institute Associate Professor of Pediatrics Johns Hopkins University School of Medicine JOHNS HOPKINS AND KENNEDY Sarah Risen, MD Post-Doctoral Research Fellow Department of Neurology Johns Hopkins University School of Medicine George Dover, MD Director, The Johns Hopkins Children’s Center Professor of Pediatrics and Oncology Johns Hopkins University School of Medicine Patti Vining, MD Professor of Neurology and Pediatrics Johns Hopkins University School of Medicine S. Ali Fatemi, MD Chief, Neurogenetics Kennedy Krieger Institute Assistant Professor of Neurology and Pediatrics Johns Hopkins University School of Medicine GUEST SPEAKERS Leonard Abbeduto, PhD Director, UC Davis MIND Institute Tsakopoulos-Vismara Endowed Chair Professor of Psychiatry and Behavioral Sciences UC Davis School of Medicine Sacramento, California Tanjala Gipson, MD Associate Director, Clinical Trials Unit Kennedy Krieger Institute Assistant Professor of Neurology Johns Hopkins University School of Medicine Gary Goldstein, MD President and Chief Executive Officer Kennedy Krieger Institute Professor of Neurology and Pediatrics Johns Hopkins University School of Medicine Professor of Environmental Health Sciences Johns Hopkins University Bloomberg School of Public Health Pasquale Accardo, MD Professor of Pediatrics James H. Franklin Chair in Developmental Research in Pediatrics Virginia Commonwealth University Wake Forest,Virginia Maureen Durkin, PhD, DrPh Professor of Population Health Sciences and Pediatrics Waisman Center Investigator Vice Chair, Department of Population Health Sciences Director of the Graduate Program, Department of Population Health Sciences University of Wisconsin-Madison School of Medicine and Public Health Madison, Wisconsin James Harris, MD Professor of Psychiatry and Behavioral Sciences, Pediatrics, Mental Health and History of Medicine Johns Hopkins University School of Medicine Michael Johnston, MD Chief Medical Officer, Kennedy Krieger Institute Blum Moser Chair for Pediatric Neurology Professor of Neurology, Pediatrics and Physical Medicine and Rehabilitation Johns Hopkins University School of Medicine Morning 8:00 - 8:30 Tuesday, March 18, 2014 SCOPE OF THE PROBLEM Moderator: Brian Rogers, MD 9:00 - 9:40 The Prevalence of ID: Is It Decreasing? Maureen Durkin, PhD, DrPh 9:40 - 10:20 Are We Abandoning Intellectual Disability? Ruth Luckasson, JD 10:20 - 10:40 Refreshment Break 10:40 - 11:25 B alkanization of NDD: Implication for Future Progress Leonard Abbeduto, PhD 11:25 - 12:10 Intellectual Disability: A Call to A Dignity Revolution Timothy Shriver, PhD 12:10 - 12:30 Discussion 12:30 - 1:30 Lunch ACTIVITY DIRECTOR Wednesday, March 19, 2014 Discussion Welcome Reception Continental Breakfast INTERVENTIONS AND OUTCOMES Moderator: Paul Lipkin, MD 8:30 - 9:15 Health Promotion for People with ID Gloria Krahn, PhD, MPH 9:15 - 10:00 Special Education in the Era of Inclusion Michael Wehmeyer, PhD 10:00 - 10:40 Is Transition Ever Achieved? Karrie Shogren, PhD 10:40 - 11:00 Refreshment Break 11:00 - 11:45 Targeted Therapy for NDD Tanjala Gipson, MD 11:45 - 12:30 T esting and the Feeble Minded: A Forgotten Pioneer Pasquale Accardo, MD 12:30 - 1:00 Discussion and Closing Remarks 1:00 Adjourn – Please complete and return the Evaluation and Credit Report Forms. The Johns Hopkins University School of Medicine takes responsibility for the content, quality and scientific integrity of this CME activity. This schedule is subject to change. Gloria Krahn, PhD, MPH Director, Division of Human Development and Disability Centers for Disease Control Atlanta, Georgia Ruth Luckasson, JD Distinguished Professor of Special Education Chair, Department of Educational Specialties University of New Mexico Albuquerque, New Mexico Scott Myers, MD Neurodevelopmental Pediatrician Geisinger Autism Developmental Medicine Institute Clinical Associate Professor of Pediatrics Temple University School of Medicine Daniel Reschly, PhD Professor of Education and Psychology Peabody College of Vanderbilt University Nashville, Tennessee Brian Rogers, MD Professor of Pediatrics Director, Institute on Development Disability Oregon Health and Science University Portland, Oregon Gary Siperstein, PhD Professor of Psychology Founder and Director, Center for Social Development and Education University of Massachusetts Boston, Massachusetts Roger Stevenson, MD Senior Clinical Geneticist Greenwood Genetic Center Greenwood, South Carolina Michael Wehmeyer, PhD Professor of Special Education Director, Kansas University Center on Developmental Disabilities University of Kansas Lawrence, Kansas Karen Wills, PhD, LP, ABPP Pediatric Neuropsychologist Children’s Hospital and Clinics of Minnesota Minneapolis, Minnesota Nancy Roizen, MD Professor of Pediatrics Case Western Reserve University School of Medicine Division Chief, Pediatric Developmental and Behavioral Psychology University Hospitals Case Medical Center Cleveland, Ohio Karrie Shogren, PhD Associate Professor of Special Education Associate Director, Kansas University Center on Developmental Disabilities University of Kansas Lawrence, Kansas Timothy Shriver, PhD Chairman, Special Olympics Washington, DC Stephen Greenspan, PhD Clinical Professor of Psychiatry University of Colorado Health Sciences Center Littleton, Colorado REGISTRATION FORM Course Number 80032518 The Spectrum of Developmental Disabilities XXXVI • Intellectual Disability: At the Precipice • March 17-19, 2014 Online (credit card and eCheck): www.HopkinsCME.edu By fax: (866) 510-7088 By phone (credit card only): (410) 502-9636 Or mail this form to the Johns Hopkins University, Office of Continuing Medical Education, P.O. Box 64128, Baltimore, Maryland 21264-4128. Include check payable to HOPKINS/80032518 , or include credit card information below. PAYMENT MUST ACCOMPANY FORM TO CONFIRM YOUR REGISTRATION. h I am a Johns Hopkins speaker for this activity. Please type or print clearly: last name first name m.i. What do you hope to learn by attending this activity?_______________________________________ Please notify us if you have any special needs.________________________________________________ Registration Fee:................................................................................................... $535 For registrations received after 5:00 p.m. EST on March 11, 2014, include a $50 late fee. On-site registrations are payable only by credit card. Social Event – Welcome Reception h I will attend h number of guests at $20 each Total amount enclosed $ __________ highest degree primary specialty For Physicians Only: NPI – 10 digits Hopkins faculty/staff only JHED ID State License # State of License mailing address city state daytime telephone ZIP country Payment Type: JHU Faculty/Staff Only: If you are using your Tuition Remission Benefit or an ION budget, please complete this registration form and return with appropriate payment processing form to OCME,Turner 20. Forms can be found on-line at http://www.hopkinscme.edu/Resources/resources.aspx. h Check (See instructions on top of form.) fax number h Credit Card:  h VISA   h MASTERCARD    h DISCOVER    h AMEX e-mail You will receive a confirmation notice and your attendance certificate by e-mail if you provide your e-mail address. h Check here if you wish to receive e-mail notices about upcoming CME activities. 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