Child Neurology Society(CNS): 41st Annual Meeting 2012


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Child Neurology Society(CNS): 41st Annual Meeting 2012

  1. 1. 2012Forty FirstANNUAL MEETING Child Neurology Society Where the next 40 years begins....Hyatt Huntington Beach Resort & Spa Huntington Beach, California October 31 – November 3, 2012
  2. 2. 20 Learning Objectives of 2012 CNS Scientific Program The CNS Scientific Program is designed by and is primarily intended for child 12 neurologists and professionals in other fields of study related to neurologic and developmental disorders in children and adolescents. At the conclusion of this activity, participants should be able to: 1. Incorporate recent advances in neuroscience, neuro-diagnostics and therapeutics in the practice 2. Create new and/or collaborative research studies to enhance the management of child neurology disorders 3. Select best treatment options based on a multidisciplinary review of neurological conditions Where the next 40 years begins....2
  3. 3. This activity has been planned and implemented in accordance with theEssential Areas and Policies of the Accreditation Council for ContinuingMedical Education (ACCME) through the joint sponsorship of TheNationwide Children’s Hospital and the Child Neurology Society.The Nationwide Children’s Hospital is accredited by the ACCME toprovide continuing medical education for physicians.The Nationwide Children’s Hospital designates this educational activityfor a maximum of 25.5 AMA PRA Category 1 creditsTM. Physicians shouldonly claim credit commensurate with the extent of their participationin the activity. 3
  4. 4. Wednesday, October 31 7:30 AM – 4:30 PM Symposium I: Neurobiology of Disease in Children: Batten’s Disease Organizer: Bernard L. Maria, MD, MBA Medical College of Georgia, Augusta, GA Batten’s Disease Supported by the National Institutes of Health (NIH grant 5R13NS040925-09), the Child Neurology Society and Batten’s Disease Support and Research Association 20 7:30 AM – 7:40 AM Opening Comments Bernard L. Maria, MD, MBA, Principal Investigator Medical College of Georgia, Augusta, Georgia 12 Forty First Story Landis, PhD, Director of NINDS ANNUAL MEETING Bethesda, Maryland Where the next 40 years begins.... SESSIONS highlighted in blue are designated for CME credit4
  5. 5. 7:40 AM – 9:45 AM SESSION II:SESSION I: Molecular MechanismsINTRODUCTION AND Co-Director and Moderator: AdditionalCLINICAL FEATURES David Pearce, PhD Wednesday Co-Director and Moderator: Sanford Children’s Health Center, Meetings/Sessions Jonathan Mink, MD, PhD Sioux Falls, SD University of Rochester School 8:00 AM – 4:30 PM of Medicine, Rochester, NY 9:55 AM – 10:20 AM Association of Child Neurology Neuroinflammation and Microglial Nurses (See page 12)7:40 AM – 8:05 AM Activation in JNCLNatural Histories and Tammy Kielian, PhD 2:00 PM – 5:00 PMClassification of NCLs University of Nebraska Medical Center, Professors of Child Neurology Jonathan Mink, MD, PhD Omaha, NE 6:00 PM – 8:00 PM8:05 AM – 8:30 AM 10:20 AM – 10:45 AM OPENING RECEPTIONGenetics of the NCLs CLN3: What does it do? Lighthouse Courtyard Katherine Sims, MD David Pearce, PhD Massachusetts General Hospital, 8:00 PM – 10:00 PM Boston, MA 10:45 AM – 11:10 AM SIG Meetings (including Neuronal Ceroid Lipofusin: Movement Disorders)8:30 AM – 8:55 AM Marker or Cause of Disease?Neurobehavioral Aspects of CLN3 David Palmer, PhD Heather Adams, PhD Lincoln University, Lincoln, University of Rochester School Canterbury, New Zealand of Medicine, Rochester, NY 11:10 AM – 11:30 AM8:55 AM – 9:20 AM Question and Answer SessionNeuropathology of the NCLs Jonathan Cooper, PhD 11:30 AM – 1:00 PM Kings College London, London, UK Lunch and Presentation by the Batten’s Disease Support9:20 AM – 9:40 AM and Research AssociationQuestion and Answer Session9:40 AM – 9:55 AM Coffee Break 5
  6. 6. Wednesday, October 31 1:00 PM – 2:40 PM SESSION III: TRANSLATIONAL SCIENCE AND CLINICAL FRONTIERS continued Co-Director and Moderator: Marc Patterson, MD Mayo Clinic, Rochester, MN 1:00 PM – 1:25 PM Gene Therapy and Enzyme Replacement Beverly Davidson, PhD University of Iowa, Iowa City, IA 1:25 PM – 1:50 PM Combinational Therapies Mark Sands, PhD Washington University, St. Louis, MO 1:50 PM – 2:15 PM Clinical Trials: Challenges and Opportunities Erika Augustine, MD University of Rochester School of Medicine, Rochester, NY 20 2:15 PM – 2:40 PM Question and Answer Session 2:40 PM – 3:00 PM Coffee Break 12 Forty First ANNUAL MEETING Where the next 40 years begins.... SESSIONS highlighted in blue are designated for CME credit6
  7. 7. 3:00 PM – 3:50 PMEXECUTIVE SUMMARY OF THE DAY Jonathan Mink, MD, PhD University of Rochester School of Medicine, Rochester, NY David Pearce, PhD Sanford Children’s Health Center, Sioux Falls, SD3:50 PM – 4:25 PMSESSION IV:FUTURE DIRECTIONS PANEL DISCUSSION Panelists: Danilo Tagle, PhD, Moderator NIH, Bethesda, MD Marc Patterson, MD Mayo Clinic, Rochester, MN Robert Steiner, MD Oregon Health Science Center, Portland, OR Gary Clark, MD Texas Children’s Hospital, Houston, TX Anne Pariser, MD FDA, Silver Springs, MD Beverly Davidson, PhD University of Iowa, Iowa City, IA4:25 PM – 4:30 PMClosing Comments and Thanks Bernard L. Maria, MD, MBA 7
  8. 8. Thursday, November 1 7:00 AM – 8:15 AM CONTINENTAL BREAKFAST AND SEMINARS Breakfast Seminar 1: Childhood Encephalitis: Neuroradiographic, electrodiagnostic, and laboratory crossroads Organizer: John Crawford, MD; UCSD, San Diego, CA Speakers: Mark Nespeca, MD; UCSD, San Diego, CA Carol Glaser, MD; UCSF, San Francisco, CA Breakfast Seminar 2: Ethical Issues Regarding Fetal MRI for NeurodeveloPMental Disorders and Genetic Testing in Child Neurology Patients Organizer: Leon Epstein, MD; Children’s Memorial Hospital, Chicago, IL Speakers: William Graf, MD; Yale University, New Haven, CT Jennifer Kwon, MD; University of Rochester School of Medicine, Rochester, NY 20 Edwin Trevathan, MD, MPH; St. Louis University, St. Louis, MO Howard Schub, MD; Atlanta, GA Breakfast Seminar 3: Recent Advances in Sturge-Weber syndrome Pathophysiology, Diagnosis, and Treatment Organizer: Anne Comi, MD; Kennedy Krieger Institute, Baltimore, MD 12 Forty First Speakers: ANNUAL MEETING Joshua Ewen, MD; Kennedy Krieger Institute, Baltimore, MD Csaba Juhasz, MD, PhD; Wayne State University, Detroit, MI 8:45 AM – 9:00 AM CNS Lifetime Achievement Awards M. Richard Koenigsberger, MD; Demarest, NJ Bhuwan Garg, MD; Indianapolis, IN (Posthoumous presentation) Where the next 40 years begins.... SESSIONS highlighted in blue are designated for CME credit8
  9. 9. 9:00 AM – 12:00 PM 1:45 PM – 4:00 PMSymposium II: symposium III:Presidential Symposium: Recent Progress and ControversiesMechanism Based Treatments in in NeurorehabilitationNeurodeveloPMental Disorders Organizer: Organizer: Warren Lo, MD; The Nationwide Children’s Mustafa Sahin, MD, PhD Hospital, Columbus, OH Children’s Hospital of Boston, Boston, MA Speakers: Speakers: Overview: Why and What are the New Tuberous Sclerosis Complex Promises in Neurorehabilitation? Mustafa Sahin, MD, PhD Warren Lo, MD Fragile X Syndrome Recovery, Plasticity or Vulnerability? Elizabeth Berry-Kravis, MD, PhD Contributions to Functional Outcomes Rush University Medical Center, Chicago, IL Vicki Anderson, PhD University of Melbourne, Down Syndrome Melbourne, Australia William Mobley, MD, PhD UCSD, San Diego, CA Motor Therapies: What Works in Grown- ups, What Works in Kids, and for Whom? Rett Syndrome Anne Gordon, BAppSc, MSc, PhD Mriganka Sur, PhD Evelina Children’s Hospital, London, UK MIT, Cambridge, MA Cognitive and Behavioral Interventions Autism for Children with CNS Disorders: What We Daniel Geschwind, MD, PhD Know (and What We Don’t) Geschwind Laboratory, UCLA, Los Angeles, CA Keith Owen Yeats, PhD The Nationwide Children’s Hospital,11:30 AM – 7:00 PM Columbus, OHExhibits 4:00 PM – 6:00 PM12:00 PM – 12:30 PM Child Neuro News Break:CNS Business Meeting Poster Walkaround/Wine & Cheese Reception12:30 PM – 1:30 PM 6:00 PM – 7:00 PMArnold Gold Foundation for Exhibitor Appreciation ReceptionHumanism in Medicine Luncheon Huntington Ballroom, Mariner’s Ballroom and Salon AB12:30 PM – 1:30 PMLunch, Exhibit & Poster Viewing 9
  10. 10. Friday, November 2 7:00 AM – 8:15 AM 12:30 PM – 2:30 PM CONTINENTAL BREAKFAST AND SEMINARS Legislative Affairs Seminar: Lunch & Poster/Exhibit Walkaround Advocacy 101 for Child Neurologists Breakfast Seminar 4: Organizer: 2:30 PM – 4:45 PM NeuroNEXT: Network for Excellence Bennett Lavenstein, MD; Chair, CNS Legislative Symposium IV: in Neuroscience Clinical Trials Affairs Committee; Children’s National Medical Novel Therapies for Pediatric Epilepsy Organizer: Center, Washington, DC Organizer: Bradley Schlaggar, MD, PhD; Washington Speakers: Mary Zupanc, MD; University of University School of Medicine, St. Louis, MO Joe Gagen; Legislative Grassroots Trainer, California Irvine, Irvine, CA Speakers: Austin, TX Speakers: Petra Kaufmann, MD, MSc; NIH, Bethesda, MD The Protean Nature of Epilepsy: 8:30 AM – 10:15 AM Elizabeth McNeil, MD, MSc; NIH, Bethesda, MD Beyond Seizures Platform Sessions I & II: TBA E. Steve Roach, MD; President, CNS; The Rod C. Scott, MD; Dartmouth-Hitchcock Nationwide Children’s Hospital, Columbus, OH 10:45 AM – 10:55 AM Medical Center, Durham, NH Arnold Gold Humanitarian Award: TBA The Newly Described Pediatric Epilepsy Breakfast Seminar 5: Syndromes: From the Channelopathies to Vaccines and Neurological Adverse 11:00 AM – 11:25 AM Autoimmune Epilepsy Events: the myth and the reality Philip R. Dodge Young Investigator Susan Koh, MD; Children’s Hospital of Organizer: Award Lecture: Colorado, Denver, CO Max Wiznitzer, MD; Rainbow Babies & “Functional Annotations of the Children’s Hospital, Cleveland, OH Medulloblastoma Genome” Current State of the Art Therapeutic Approaches to Pediatric Epilepsy Speakers: Yoon-Jae Cho, MD; Stanford University School of Medicine, Stanford, CA Mary Zupanc, MD Max Wiznitzer, MD Re-engineering the Epileptic Developing James Sejvar, MD; Centers for Disease 11:30 AM – 12:15 PM Brain: Future Approaches to Therapy Control and Prevention, Atlanta, GA Bernard Sachs Lecture: Tallie Z. Baram, MD, PhD; University of “Medulloblastoma: Progress and the California Irvine, Irvine, CA Breakfast Seminar 6: Challenges that Lie Ahead” Beyond ADEM & MS: alternative Roger Packer, MD; Children’s National diagnoses you shouldn’t miss during 4:45 PM – 6:00 PM Medical Center, Washington, DC a workup for pediatric demyelinating Junior Member Seminars disorders Organizer: 9:00 AM - 2:30 PM Organizer: Renee Shellhaas, MD Exhibits Keith Van Haren, MD; Stanford University University of Michigan, Ann Arbor, MI School of Medicine, Stanford, CA 12:45 PM – 2:15 PM Moderated Poster Session 7:00 PM – 10:00 PM Speakers: Moderators: CNS ALUMNI RECEPTION Anita L. Belman, MD; SUNY Stony Brook Bradley Schlaggar, MD, PhD More food choices, more conversation partners School of Medicine, Stony Brook, NY Washington University, St. Louis, MO; than the sit-down banquets of yesteryear. Teri L. Schreiner, MD, MPH; Children’s Hospital Greet friends, old and new, with designated of Colorado, Denver, CO Janet Soul, MD “islands” grouped by training programs. Children’s Hospital of Boston, Boston, MA Keith Van Haren, MD10
  11. 11. Saturday, November 37:00 AM – 8:15 AM 9:00 AM – 9:45 AMCONTINENTAL BREAKFAST AND SEMINARS Hower Award Lecture: “The Power of Belief”Breakfast Seminar 7: Ann Tilton, MDPlasticity in the Developing Brain Children’s Hospital of Louisiana, New Orleans, LA Organizer: Doris Trauner, MD; UCSD, San Diego, CA 10:00 AM – 12:15 PM Speakers: Symposium V: Doris Trauner, MD Mitochondria: So many diseases, so little cross-sectional area Harley Kornblum, MD, PhD; UCLA, Los Angeles, CA Organizer: William Gaillard, MD; Children’s National Nina Schor, MD, PhD; University of Rochester Medical Center, Washington, DC Medical School, Rochester, NY Donna Ferriero, MD; UCSF, San Francisco, CA Speakers: Conventional Mitochondrial Disease: NewBreakfast Seminar 8: Approaches to Diagnosis and Classification 2012 Update for CPT, ICD-10-CM, PQRS and Amy Goldstein, MDGuidelines: Sit at the table or be served Children’s Hospital of Pittsburgh, Pittsburgh, PAas the meal Organizer: Conventional Mitochondrial Disease: Bruce Cohen, MD, Chair, CNS Practice Committee; Not-so-conventional Treatment Children’s Hospital of Akron, Akron, OH Sumit Parikh, MD; Cleveland Clinic Foundation, Speakers: Cleveland, OH Jeffrey Buchhalter, MD, PhD; Phoenix Children’s Hospital, Phoenix, AZ Unconventional Roles for Mitochondria: Deborah Hirtz, MD; NINDS, Bethesda, MD They’re Not Just Little Fuel Cells George Porter, MD, PhD; University of RochesterBreakfast Seminar 9: Medical School, Rochester, NYDopa-Responsive Motor Disorders:treatable conditions that may mimiccerebral palsy From Neurodevelopmental Disorders to Organizer: Neurodegenerative Disease: Jennifer Friedman, MD; UCSD, San Diego, CA it’s All Mitochondria! Nina Schor, MD, PhD Speakers: Terence D. Sanger, MD, PhD; Sanger Lab, UCLA, Los Angeles, CA Kathryn J. Swoboda, MD, FACMG; Primary Children’s Hospital, Salt Lake City, UT Andrew Zimmerman, MD; Massachusetts General Hospital, Boston, MA SESSIONS highlighted in blue are designated for CME credit 11
  12. 12. 20 12 ACNN Conference Program Hyatt Huntington Beach Resort & Spa Huntington Beach, California October 31 – November 2, 201212
  13. 13. Tuesday, October 30 10:45 AM – 11:30 AM Thursday, November 1 Independent NP/PA Practice Model7:00 PM – 9:00 PM as a Method for improving New Patient 12:00 PM – 12:45 PM ACNN Welcome Reception (Nurses only) Access within an Academic Pediatric Lunch Neurology Clinic Special Interest Groups Table Discussions Scott Turner MSN, FNP 12:45 PM – 1:15 PM 11:30 AM – 12:00 PM Epilepsy at a Glance –Wednesday, October 31 Awards and Annual Business Meeting Health Information Transfer Melissa Reider-Demer DNP, CPNP7:00 AM – 8:00 AM 12:00 PM – 1:00 PM Registration and Continental Breakfast Lunch 1:15 PM – 1:45 PM Current and Emergent Uses of Botulinum 1:00 PM – 1:30 PM Toxin for Pediatric Neurology Patients8:00 AM – 8:15 AM Innovative Practice Award Presentation Shuna Thomas APN, PNP-BCWelcome and Introduction Parenting with Parents: A Recipe for Success 4:30 PM 8:15 AM – 9:00 AM Claire Chee RN, BS 5k Run/walk fundraiser forJanet Brucker Keynote Address: ACNN/CNF Nursing Research GrantAccidental Leadership: A Result ofIntentional Engagement? 1:30 PM – 2:30 PM Linda R. Littlejohns RN, MSN, FAAN “Handle with Care” Dealing with Dravet Syndrome Deborah A. Gardner, RNC, BSN9:00 AM – 10:00 AM Friday, November 2Case Studies:Neurogenetic and Metabolic Disorders 2:30 PM – 2:45 PM Identified in a Neurology/Neurogenetics Break 12:00 PM – 1:00 PM Collaborative Practice Lunch Marian J Kolodgie MSN, CPNP 2:45 PM – 3:45 PM Implementing Evidence Based Nursing 1:00 PM – 1:30 PM 10:00 AM – 10:15 AM Practice in Pediatric Neurology Diagnosing MLD:Break Ruth Rosenblum DNP, RN, PNP-BC A Case Presentation Cleo Park RN, MSN, CPNP10:15 AM – 10:45 AM 3:45 PM – 4:15 PM Pediatric Neurology: Cyclic Vomiting Syndrome:The Role of Genetic Testing Assessment, Diagnosis and Management Note: The ACNN conference program is Dona Clarin MSN, FNP Cynthia B. tenHoopen MS, RN, CPNP geared for nurses, but all CNS meeting registrants are welcome to attend any of 4:15 PM – 4:30 PM the presentations. Nursing CE contact Wrap up hours will be provided. 13
  14. 14. Travel, Lodging, travel information Contact Partners in Travel at Updates & On-line Registration The CNS Website will provide links Touring Information 612-338-0004 to take advantage of the many ways to save on meeting airfare by with information regarding weather, tourist attractions, and scientific booking 60 days in advance (or more). program updates. Log on at www. The travel professionals at Partners in to register. Travel will find the very best combination Hotel registration must be handled of price and schedule to suit your directly with the Hyatt or Shorebreak specific needs. links provided on the CNS home page. Partners in Travel, Ltd. NOTE: THE WEDNESDAY NDC 12 S. 6th St., Suite 200 (Battens Disease) SYMPOSIUM IS Minneapolis, MN 55402 AVAILABLE BY ADVANCE Tel: 612-338-0004 REGISTRATION ONLY. Fax: 612-338-2396 • NDC registration ends Sept 20 or sooner (i.e., when all 300 seats available are taken) hotel accommodations On-line Booking for CNS Annual To ensure adequate seating, Meeting now available. printed handouts, food and beverage, etc., the following guidelines will apply: The CNS has reserved a block of 20 • No admission or printed syllabi will rooms in two hotels. be available to anyone not registering on or before September 20 for the Hyatt Huntington Beach Resort & Spa Wednesday NDC Symposium, • All meetings are at the Hyatt. • Additional $150 course fee is required • Rates begin at $209/night. for this symposium. • Reservations can be made on-line using the following link: Special Interest Group Meetings Plan on attending one or more Special 12 Interest Group Meeting(s). Consult the new&eventID=5272435 SIG work area on the CNS website for Forty First ANNUAL MEETING Shorebreak Hotel more information regarding times, dates, room assignments, and agendas. • Downtown Huntington Beach (2 miles from the Hyatt). Restaurants, bars, shops. Attendees are strongly encouraged • Rates begin at $199/night to make hotel reservations AND • Reservations can be made on-line using the following link: plane reservations early to ensure best options. Where the next 40 years begins....14
  15. 15. REGISTRATION FEE SCHEDULE Registration Form Registration Fee includes admission to all educational functions (one exception—Wednesday NDC Symposium: Additional $150.00 fee), Wednesday opening reception, continental breakfasts, coffeeOn-line Registration is available at breaks, lunches, Friday reception and banquet, CME credit. Fixed fee—no partial/day fees available. Early late On-Site Registration Registration RegistrationName ____________________________________________________________ On or Before Sept. 20 Sept. 21 – Oct. 28 Oct. 28 – Nov. 3Degree (for nametag: MD, PhD, RN, etc)_________________________________ Active Member $495.00 $575.00 $625.00 Emeritus Member $295.00 $375.00 $425.00Address __________________________________________________________ Junior Member $295.00 $375.00 $425.00City_____________________________________ State ______ Zip___________ (To qualify for Future Leaders Scholarships enter code # sent by CNS National OfficeCountry___________________________________________________________ to a) Jr Member presenters, and b) Jr Member 3rd Year Residents)Tel_______________________________ Fax ____________________________ Resident/Trainee $395.00 $495.00 $545.00E-mail (required to process) __________________________________________ Non-CNS Member (Apply for CNS Jr Membership by September 1 and qualify for $100 savings)Special Requests Medical Student $0 $375.00 $425.00Dietary Needs/Requests_____________________________________________ Contact CNS National Office for Future Leaders Scholarship code #Handicap Access___________________________________________________ ACNN (nurse) Member $295.00 $375.00 $425.00Other_____________________________________________________________ Nurse (non-ACNN member) $395.00 $495.00 $545.00 Non-CNS Member $625.00 $725.00 $775.00ADVANCE REGISTRATION REQUIRED | Indicate which sessions you plan to attend. Guest Nametag/Reception Pass $75.00WEDNESDAY | october 31 FRIDAY | november 2 Includes Wednesday, Thursday and Friday Evening Receptions (Note: Registrant nametag = 1 pass for Wednesday, Thursday & Friday Receptions. Additional passes for spouse and/or children may be purchased.) NDC Symposium: Breakfast Seminars: Select ONE Batten’s Disease Breakfast 4: NeuroNEXT Name ____________________________________________________________ ($150 course fee and Breakfast 5: Vaccines Wednesday NDC Symposium $150.00 preregistration by Sept 20 Breakfast 6: Peds Demyelinating Disorders required; max 300 registrants) LAC Breakfast Seminar (non-CME): TOTAL ENCLOSED ________________________ Advocacy 101 Please sign and accurately enter credit card information. Checks payable in US funds only to Child Neurology Society.THURSDAY | NOVember 1 ----------------- Dodge Young Investigator Award Lecture VISA, MasterCard or AMEX #____________________________________________________Breakfast Seminars: Select ONE Breakfast 1: Bernard Sachs Lecture Signature__________________________________________ Exp Date__________________ Childhood Encephalitis Moderated Poster Session Symposium 4: Pediatric Epilepsy SEND TO: Child Neurology Society QUESTIONS? Phone: 651-486-9447 Breakfast 2: Ethics Junior Member Seminar c/o RMI, 6598 Carlisle Curve E-mail: Breakfast 3: Sturge Weber Shakopee, MN 55379 Fax credit card payment to: 952-487-5059----------------- Symposium 2: SATURDAY | november 3 CANCELLATIONS and REFUNDS REGISTRATION CONFIRMATION Presidential Symposium Breakfast Seminars: Select ONE • Cancellations received in writing on or before • E-mail confirmation only Symposium 3: Breakfast 7: Plasticity in Developing Brain September 20 will receive full refund (less $75.00 (include address) Neurorehabilitation Breakfast 8: CPT Update administrative fee). • Hotel registration and Breakfast 9: Motor Disorders • The CNS assumes significant non-refundable financial/ confirmation must be handled ----------------- contractual obligations one month prior to meeting, independently with the Hower Award Lecture for which reason no refunds of registration fees will be meeting hotels. Symposium 5: Mitochondria made after September 20. 15
  16. 16. 1000 West County Road E, Suite 290 St. Paul, MN 55126Where the next 40 years begins.... Tel: 651-486-9447 Fax: 952-487-5059 E-mail: Web: