Exceptional familes exceptional service


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Exceptional familes exceptional service

  1. 1. IN THIS ISSUE My Command News FallMy Command News• Childcare & the Americans with Disabilities Act 2011 Childcare & the Americans• USO of Hampton Roads & Central Virginia celebrates EFMP families• Navy Region Mid Atlantic has a new with Disabilities Act STOMP Parent Professional Team in Hampton Roads!My Resources• Back to School Privately-run child care centers • Centers cannot exclude children with• Strategies for parents and as child care services provided by disabilities from their programs unless• School discipline & your Special government agencies, such as Head Start, their presence would pose a direct Needs Child summer programs, and extended school threat to the health or safety of others• Legal & financial considerations for day programs, must comply with title II or require a fundamental alteration of children with disabilities transitioning of the ADA, regardless of size or number of to adulthood the program. employees. Even small, home-based centers• What is a HUMS Package? that may not have to follow some State laws • Centers have to make reasonable• Check out your local Center for are covered by title III. The exception is child modifications to their policies and Independent Living for one-stop care centers that are run by religious entities practices to integrate children, parents, disability help such as churches, mosques, or synagogues, or and guardians with disabilities intoMy Healthy Family activities controlled by religious organizations their programs unless doing so would• Sexuality of children and adolescents are not covered by title III. Private childcare constitute a fundamental alteration. with developmental disabilities centers that are operating on the premises of a• Sexual abuse of children and youth religious organization, however, are generally • Centers must provide appropriate not exempt from Title III. auxiliary aids and services needed for with disabilities• Supporting depressed and anxious effective communication with children or spouses The ADA requires that child care providers adults with disabilities, when doing so not discriminate against persons with would not constitute an undue burden.Family Fun disabilities on the basis of disability, that is,• Inclusive Halloween adventures that they provide children and parents with • Centers must generally make theirUpcoming Events disabilities with an equal opportunity to facilities accessible to persons with disabilities. Existing facilities are subject participate in the child care center’s programs and services. Specifically: to the readily achievable standard for barrier removal, while newlyOur Summer 2011 issue stated that one of the requirements of the National Defense constructed facilities and any alteredAuthorization Act of 2010 was for “military services to stabilize service members at a location portions of existing facilities must befor a minimum of four years”. It should be clarified that this requirement is met by the Navy fully accessible.via the sea/shore rotation plan that already exists to align fleet and mission requirementswhile providing more predictable career tracks for Sailors. A recent update to the Sea Shore Reference: U.S. Department of Justice, CivilFlow (SSF) enlisted career paths are detailed in NAVADMIN 202/11 which announces Rights Division, Disabilitymodifications to existing tour lengths and can be viewed at http://www.public.navy.mil/ Rights Sectionbupers-npc/reference/messages/Documents/NAVADMINS/NAV2011/NAV11201.txt http://www.ada.gov/childq%26a.ht NAVY EFMP MID-ATLANTIC REGION NEWSLETTER • FALL EDITION 2011 1
  2. 2. My Command News The annual USO of Central Virginia/ Kings Dominion EFMP Day was held on 24 June 2011 for EFMP families from all service branches stationed around Hampton USO of tral Virginia Roads. Families enjoyed a day of s & Cen fun including Kings Dominion Ham pton Road families passes, t-shirts, show and lunch celebra tes EFMP all provided by the USO. EFMP family support staff members from all military branches were in attendance to assist with the event and show support for EFMP families. OMP est ST t av y’s new nts) Paren - , the Nary Pare rce, Mid 2011 Milit e 26-30, f ifer Pi erette, m July Training o ting of Jenn Marian Lev renda Fro d consis Lead, B lize r, and t (Specia ional Team MP Liaison aison Office arent Suppor P s F rofes Region E School L c Schools P i ic n li ed Atlant tlantic Regio ia Beach Pub ator, attend at M id-A .D., Virgin r Coordin of 2011 d nte ss Reed, E rmation Ce art of the cla ssional Team fo p & In aduated as Parent Pro shington. fe and gr ual STOMP r Seattle, Wa the annhop held nea Team Works PTW n TO MP P training i avy S d level ry & ilita cs, The N dvance ion, m i ived rece tion and g, t a mediat eam dynam nt/ e m negoti a kin evelop port networ nce, d p civ ilian amily assistaive parent su local ary f t of effect ups on milit emen gro special manag nformation l & Military special i a and tions, Feder lations, and oking in stalla s and regu PPTW is lo P- law M NAVY REGION MID ATLA e needs esources. Th g as a STOteam eeds r to servin ds resource the NTIC n d ee forwar red special n ofessionals in HAS A NEW STOMP PAR ponso lies and pr . ENT s i to fam tlantic region PROFESSIONAL TEAM IN Mid A HAMPTON ROADS!2 NAVY EFMP MID-ATLANTIC REGION NEWSLETTER • FALL EDITION 2011
  3. 3. My ResourcesStrategies for parents School discipline Communicate with the school & teacher(s) by addressing any known Avoid homework hassles by reinforcing time management, break & your special problems in a straightforward manner as soon as possible. assignments down into parts with the child, support an organized place for after-school work, and if, needs child necessary, negotiate extended time for The Individuals with Disabilities Promote self-esteem by finding assignments. Set homework rules and activities that highlight your child’s boundaries early and stick to them. Education Act (IDEA) is a federal law strengths and interests. giving disabled students a legal right to a Set high, achievable expectations free, appropriate public education, and to build confidence, self esteem, procedural protections against school Organize and structure homework, recovery, and self-reliance. discipline. IDEA also requires schools to deadlines, and schedules through partnership with your child’s teacher. provide services that address behavior issues Discipline consistently. Set and of disabled students. The 2004 amendments stick to boundaries and expectations to IDEA updated these provisions. There Stay informed about your child’s around certain behaviors, regardless are strict procedures that must be followed progress through regular updates of diagnosis. Encourage play by before a school district can remove a special from teachers, special education spending time outdoors, allowing for kid-directed activities, reducing/ education student from school to ensure staff, and/or guidance counselor. eliminating screen time, avoiding over- that discipline is not imposed for conduct scheduling, and encouraging exercise related to a disability. Minimize distractions by and responsibility by allowing your avoiding the bus, arranging just- child to help you in the kitchen and For a more comprehensive overview late arrival to avoid crowded halls, in the yard. designated classroom seating, and or to read the IDEA guidelines, permission for your child to use Educate yourself on the law, visit the National Dissemination accessible and adaptive equipment. your child’s rights, and available Center for Children with Disabilities interventions. (NICHY) at http://nichcy.org/schoolage/ placement/disciplineplacements, or contact your local Navy School Liaison Officer. NAVY EFMP MID-ATLANTIC REGION NEWSLETTER • FALL EDITION 2011 3
  4. 4. My Resources Legal & financial considerations for children with disabilities transitioning to adulthood Do you have a child or young adult who might need help managing his or her financial, legal, or day to day care after age 18? It’s never too early to start planning for this complex and emotional transition. or whether your child might benefit from Legal Relationships Social Security Benefits transition now to an assisted or independent Consult with an attorney regarding vari- Persons with disabilities may be eligible for living situation from your home, to ous options for legal relationships after the Social Security and Medicaid benefits. Social minimize the trauma and disruption that child’s 18th birthday, such as Guardianship Security Disability Insurance (SSDI) pays can occur if something happens to you and (aka Conservatorship) versus a Power Of benefits to adults who have a disability that the child’s grief is compounded with having Attorney. began before they became 22 years old. This to suddenly adjust to a new living situation. SSDI benefit is a “child’s” benefit because it Financial Planning is paid on a parent’s Social Security earnings Consult a financial planner/qualified attor- record. Supplemental Security Income (SSI) Educational Protections makes monthly payments to people with low During school years, protections offered ney to discuss estate planning options, such income and limited resources who are 65 or by IDEA and the IEP are automatically as a Special Needs Trust and how to man- older, or blind or disabled. Children younger provided, but keep in mind that legal age your Survivor Benefit Plan. than age 18 can qualify if he or she meets Social entitlements end with graduation, Security’s definition of disability for children, withdrawal from high school, or age 22. and if the family income and resources fall After high school, services are available within the eligibility limits. under ADA and Section 504 of the http://www.socialsecurity.gov/ Rehabilitation Act, but the student must ask for accommodations. Medicaid and Waiver Services Transition Services Every state operates a Department of Persons with disabilities who qualify for Social Rehabilitative Services which provides Security benefits often may also receive health programs and services such as employment care coverage through Medicaid or Medicare. and vocational services, community-based Additionally, the respective state Medicaid services, assistive technology devices and Office can help you determine if your Special equipment, disability determination, and Needs dependent qualifies for funding via the services to employers, to empower persons Medicaid Waiver Program. Today, Medicaid with disabilities. allows more diverse services for individuals October with developmental disabilities to remain in the home by waiving the need to get those n to at- same services in an institution. You may apply Virginia, pla If you’re in ioning for funding as early as 3 years of age. 26 from Pediatrics to A tend the n ext “Transit dulthood” Advocacy ical Center Ports- Consider writing a Letter of Intent, outlining Forum at Naval Med , 0900 -1500. ber 26, 2011 your child’s condition, history, services, likes mouth, Octo visit http://w ww. & dislikes, hopes & dreams, and your plan for For more information /Patients/pedi- cp il/sites/nm his future, so that others may best understand med.navy.m and- /Documents and care for him in your absence. Think about atrics/Neu roPeds/Pages how to teach your child self-advocacy skills Tools.aspx4 NAVY EFMP MID-ATLANTIC REGION NEWSLETTER • FALL EDITION 2011
  5. 5. My ResourcesWhat is a HUMS Package? Check out your local Center for Independent Living for It is important to understand the Service Member must demonstrate that there one-stop disability helpdifferences between the EFM Program and are no other family members in the area to Centers for Independent Living, oftena HUMS tour. EFMP enrollment is a detailing assist. Member’s presence must be required for referred to as “CILs” are non-residential placestool only, and does not absolve a Service specific reasons (excluding morale or financial) of action and coalition, where persons withMember of the requirement to deploy and be and the hardship should be resolvable within a disabilities learn empowerment and developworldwide assignable. However, there are some reasonable period of time (normally less than 6 the skills necessary to make lifestyle choices.cases, during periods of a family member’s months). In the event that the hardship involves Centers provide services and advocacy toserious illness or other situations, which the illness of a family member, the promote the leadership, independence, andcreate a hardship and require extended Service Member must immediately productivity of people with disabilities.leave. Emergency leave frequently initiate EFMP enrollment. Centers work with both individuals as well asprovides sufficient time to fulfill those To apply for Reassignment for with the local communities to remove barriersobligations, however when the situation Humanitarian Reasons, a Service to independence and ensuring equality ofcannot be reasonably resolved in the Member should first consult their persons with disabilities.time allotted, then Reassignment for chain of command. The Request forHumanitarian Reasons may be requested Humanitarian Reassignment must To find your local CIL, go online atto obtain orders to a temporary duty be routed through the Chain of http://www.virtualcil.net/cils/shore command in a specific geographic Command, and requires a letter of endorsementarea. HUMS assignments are time-limited, from the Commanding Officer, though aand a Service Member who cannot resolve package with a COs disapproval of the requesttheir hardship within a reasonable amount may still be sent on to the HUMS panel forof time may require a hardship discharge. review. Service Members who need assistance Watch This Service Members may consider applying with a HUMS package can contact their This Emotional Life (2009)for HUMS if a severe hardship exists within EFMP Liaison at the Fleet and Family Support A three-part PBS series that exploresthe Sailor’s immediate family, which has Centers or their Command Representative. improving our social relationships,occurred or is aggravated by the Sailor’s active learning to cope with depression andduty obligations. Reasonable efforts must first For more information, please reference anxiety, and becoming more posi-be made to alleviate the hardship through MILPERSMAN 1300-500. tive, resilient individuals.emergency leave and other means, and the Including Samuel (2007) A documentary about educational inclusion by photojournalist and filmmaker Dan Habib whose son Questions about ADHD? has cerebral palsy. Free The National Resource Center on Disability ADHD, a Program of CHADD Temple Grandin (2010) A 2010 biopic about Temple Gran- Phone Apps offers the chance to speak with din, a woman with autism who http://www.oneplacefor- a knowledgeable and caring ADHD Health Information revolutionized practices for the hu- specialneeds.com/main/ Specialist, one-on-one, about mane handling of livestock on cattle library_special_needs_ ADHD related questions and ranches and slaughterhouses. apps.html concerns! Call (800) 233-4050, or submit your question online Murderball (2005) at http://www.help4adhd.org/ A sports documentary following the info_request.cfm U.S. Quad Rugby Team’s quest to compete in the Paralympics. NAVY EFMP MID-ATLANTIC REGION NEWSLETTER • FALL EDITION 2011 5
  6. 6. My Healthy Family Sexuality of children and adolescents with developmental disabilities Young people with disabilities are no standings and mistakes, incrase their vul- • Be “ask-able” and approachable when different from other kids in their need nerability to criticism and/or sexual abuse, it comes to questions or incidents that to understand their bodies and relation- and have negative legal or disciplinary involve your child’s sexuality ships. It is unreasonable to assume that consequences. they will not have the same physical • Use the same teaching strategies that changes, thoughts, desires, and needs as you have used to teach your child typical children: all children go through Communication Tips for Parents other skills puberty regardless of • Know what you believe, and • Think of puberty as just another stage of IQ or social skills. why, to effectively communicate development Withholding sex ed- your values about sexuality to ucation to children your children with disabilities does them a disservice that • Answer questions simply and can lead to misunder- directly Sexual abuse of children and youth with disabilities Children with disabilities are sexually abused at a rate that is 2.2 times higher What PARENTS Can Do….. April is than that for children without disabilities. • Protect children by giving them when it is okay Child Abuse These children are more at risk for sexual Prevention correct information about sex and to say “no”. abuse and assault because they often need teach them to use correct language Month assistance with personal care and hygiene, • Role play situ- they may find it difficult to report abuse for their own body parts. ations; practice because of communication difficulties, • Be certain their children understand saying no. they may have been taught to comply and are aware of the concept of with authority which may make it harder • Ensure their children understand privacy. for them to recognize abuse, they may be their personal rights and their choices targeted because of their lower cognitive • Teach about good touch versus bad for healthy sexuality. functioning, they may not be believed touch, personal boundaries, and when they report abuse. For more information & references, visit: National Center on Child Abuse and Neglect – NICHCY (National Information Clearinghouse for Children and Youth with Disabilities) http://nichcy.org/wp-content/uploads/docs/nd17.pdf Autism Society – http://support.autism-society.org/site/DocServer/LWA_Puberty.pdf?docID=4182 Sexuality of Children and Adolescents With Developmental Disabilities American Academy of Pediatrics (AAP) – http://pediatrics.aappublications.org/content/118/1/398.full6 NAVY EFMP MID-ATLANTIC REGION NEWSLETTER • FALL EDITION 2011
  7. 7. My Healthy FamilySupporting depressed and anxious spouses It is sometimes assumed that military where to turn for help, you may be able depression is also very treatable.spouses who experience depression and anxiety to make this difficult time a little easier.are suffering as a result of the stress of a military Everyone experiences anxiety, worry, andlifestyle. While for many spouses this stress in some form or another,may be the case, where the rigorous but problems arise when theseoperational tempo resulting in more symptoms become chronic andfrequent and longer deployments interfere with our daily livesexacerbates a mild condition. But and our ability to function,for some, depression, anxiety, and causing feelings of discomfort,other mood disorders may have been loss of control, and helplessness.present prior to the person becominga military spouse, or problems worsen Assist your spouse indue to other issues, such as parenting getting the correct diagnosischallenges, financial stressors, physical and treatment, even if it meansconditions, job pressure, marital making the appointmentsdiscord, or problems with extended yourself and arrangingfamily. All of these are issues faced transportation for him. Learnby both military and non-military about the disorder. Help yourspouses alike. spouse remember to take her medication. Help set specific goals Deployment and separation can increase Depression is a common but serious that are realistic and can be approached oneanxiety, fear, anger, loneliness, and other condition. According to the National Institute step at a time. Show positive reinforcementstrong feelings. By knowing what to expect, of Mental Health, major depressive disorder is of healthy behavior, rather than criticizinglearning to recognize the signs that your the leading cause of disability in the United irrational fear, avoidance, or rituals. Be openspouse is struggling to cope, and knowing States for people ages 15 to 44. However, to seeking marital counseling if needed.Maintain CompassionVerbalize how much you care for your spouse, avoid criticism, and work on balancing patience and persistence.Encourage WellnessInitiate activities that are good for the mind, body, and soul, such as exercise, time with friends, or a fun/relaxing hobby.Be ObservantRemain vigilant about any behaviors that might signal thoughts of suicide or self-harm and get professional help right awayif necessary.Don’t Forget Your Own NeedsNurture yourself by making time for activities you enjoy, eating well, getting enough sleep, and taking time out withfriends and family. Seek professional help for yourself as necessary.Communicate with Your SpouseAsk what he or she needs, don’t assume or guess. Talk, listen carefully, try and connect and really listen to what’sgoing on. NAVY EFMP MID-ATLANTIC REGION NEWSLETTER • FALL EDITION 2011 7
  8. 8. Family FunInclusive Halloween adventures Ideas to keep your child with a disability included in Halloween activities Parties & Games Arts & Crafts Trick-or-Treating Matching Game Sandpaper ArtFind Halloween celebrations at your therapy Have your child match pumpkins that are Use different types of sandpaper to paint, cut,center, local disability group, parks department, exactly alike in shape and color. Do the and glue Halloween designs.water/amusement park, or family-friendly same with other Halloween shapes likehotel, or host a gathering in your home. cats and broomsticks and funny looking Halloween Sensory TubMost malls, churches, and zoos offer safe and witches. Do the same thing with real apples. Make a fun & scary sensory experience using aaccessible alternatives to neighborhood trick- Cut apples up into different shapes and plastic container, dried black beans, driedor-treating. Look for local Halloween parades have your child pick which ones match. orange lentils, dried macaroni for bones, plasticfor your child to participate in to boost self spiders, snakes and other spooky creatures!esteem and promote inclusion. “Fishing” Get foam, soft plastic, or even an air-filled Decoupage Costumes long and straight pole and attach a string to Decorate a wooden crate or a shoe box withIncorporate creativity into the Halloween the end of it. Have your child swing the pole images cut from a magazine or with stickerscostumes. Dress up wheelchairs, walkers, around like they are fishing. Instead of a hook or photos.and other devices. For example, use a big at the end of your string, attach a pumpkincardboard box to cover a wheelchair and draw with tape on it to attach a treat to the end ofa jungle theme and have the child wear an it. Treats can be pencils, stickers, or small toys.animal mask. Managing Behavior• Use pre-task rehearsal to teach acceptable Pass the Pumpkin Toss an inflatable pumpkin around, across, Alternatives to Candy behaviors on the trick or treat routes Non-food items are great alternatives to add and during parties and other activities. and through a circle of kids sitting on the floor as each one tries to catch it and pass it on. to the treat bowl for children with juvenile• Use positive reinforcement for appropriate Don’t put a time limit or make the children diabetes, celiac disease, food allergies and other behavior and negative reinforcement to rush around to play this game. Just let them dietary restrictions. Consider giving temporary reduce problem behaviors. play it at their own pace. tattoos, pencils, bouncy balls, stickers, plastic spiders, glow in the dark bracelets, bubbles,• Set a time limit for trick or treating, plan your and other fun trinkets! Visit http://www. route ahead of time, tell your child what to Halloween Bingo gfcfdiet.com/ to find lists of popular candy expect, how long the trek will last, where you Match shapes on an orange colored bingo & treats that are Gluten Free/Casein Free are going, and when you plan to return home. card. Each square on the bingo page has a (GCFC) friendly. different shape in it and have your child draw• Plan an activity for after trick or treating a shape out of a hat or bowl and have them such as a favorite snack and an age- match which shape is on the bingo card. This appropriate movie. Before you begin trick is the kind of bingo that everyone can win. or treating, tell your child about your plans and remind him when it is time to go home about the fun activity awaiting to reduce the possibility of a tantrum.8 NAVY EFMP MID-ATLANTIC REGION NEWSLETTER • FALL EDITION 2011
  9. 9. UPCOMING EVENTSLeukemia & Lymphoma Socie Light the Night Walk ty esearch Albany, NY Organization for AutismmR 9/23/2011 Run for Autis Newport, RI 9/24/2011 9/18/11 Philadelphia York, ME 10/1/2011 10/9/11 Chicago New London, CT 10/30/11 10/5/2011 Washington D.C. Red Bank, NJ 10/22/2011 New York 11/6/11 Hampton, VA 10/27/2011 Pittsburgh 5/6/11 Virginia Beach, VA rg/ 11/5/2011 http://www.researchautism.o http://www.lightthenight.org/ Susan G. Komen Race for the Cure Albany, NY 10/1/11 Jackson, NJ 10/2/11 Virginia Beach, VA 10/15/11 .aspx http://ww5.komen.org/findarace WalkNational Multiple Sclerosis American Heart Association Heart Society Walk MS Virginia Beach, VA 09/24/2011 Bennington, VT 9/24/2011 10/29/2011 Hartford, CT Falmouth, MA 9/25/11 09/17/2011 Asbury Park, NJ Petersburg, VA 10/1/11 Saratoga Springs ,NY 10/22/2011 Winterthur, DE 10/22-23/11 http://www.heartwalk.org/ http://www.walk4ms.org/ jtwalk & bea for ALch party S Virginia Beac March of Dimes ht h, VA 10 /9/11 March for Babies tp://www 11/511 .jtwalk.or Chesapeake, VA g/ Providence, RI 10/1/11 g/ http://www.marchforbabies.or NAVY EFMP MID-ATLANTIC REGION NEWSLETTER • FALL EDITION 2011 9