A Librarian by Any Other NameThe Role of the Informationist on aMedical School Research Team
PresentersSally A. Gore, MS, MS LISResearch Librarian & InformationistLamar Soutter LibraryUniversity of Massachusetts Med...
The InformationistLibrarianExpert in health informationresources• Collection development• General referenceassistance• Ins...
These new professionals might be calledinformationists (not a graceful term, but onethat parallels such terms as gastroent...
A Little Historyat UMMS• A Funding Opportunity• A Chance to ExpandService• Finding Collaborators• Making it Happen
The GrantPromoting Breast Cancer Screening inNon-Adherent WomenA five year (2009-14) clinical research project fundedby th...
Promoting Breast Cancer Screening inNon-Adherent Women++GOAL OF THE STUDY:To assess the cost-effectiveness of each arm in ...
• Large data sets to handle• Multiple data sources• Multiple investigators• Confusion among data sources re variabledefini...
• Grant requirements for an embeddedinformationist• Review of „mother‟ grant needs• Description of informationist‟s traini...
• Informationist should be a colleague• Share in discussion of progress of „mother‟ grant• Assist in analyzing data• Parti...
SUCCESS!!Grant Funding:September 2012 – January 2014Supporting 20% of Informationist‟s Time (10hrs/wk)
We Begin• Introduce Informationist to team members• Meet with individual key members of team• Participation at weekly team...
• UMass Medical School– Family & CommunityMedicine• Principal Investigator• Project Director• Scheduler, Counselor Instruc...
Progress to Datethe informationist• AIM 1: Improve effectiveness and efficiency ofcommunication w/in team regarding data• ...
Progress to Datethe teamStudy began Jan. 2009• Slowly winning battle with:• tracking system glitches• collating multiple d...
Lessons Learnedso far…• Need cooperative players• Need buy-in from research team• Earlier imbedding on team to improve res...
The Future of InformationistsSally‟s ThoughtsGraduate programs MUSTchangeResearch is NOT optionalSoft skills need to berec...
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A Librarian by Any Other Name: The Role of the Informationist on a Clinical Research Team

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  • 3 Intervention arms:A. Reminder letter if a woman has not had a M >18 mos.B. Same letter  call from a “scheduler” if no responseC. Same letter call from a “counselor” if no responseGoal:Assess cost-effectiveness of each arm in improving a) M scheduling, b) M completion c) self-efficacy in repeating M
  • Team at Umassmed SchoolPIs: Mary Costanza, MD and Roger Luckmann, MD, MPH Project Director: Mary Jo White, MA, MPHCounselor trainer: Caroline CranosPsychologist: Milagros Rosal, PhDBiostatistician: George Reed, PhD Analyst: Christine FoleyCost Analysts: Robin Clark, PhD; RA: Michelle LandryAdministrative Assistant: Katharine PrapuolenisTeam at Fallon Clinic (now RMG)Research Director: Robert Yood, MDResearch Administrator: Ellen TrencherSite Project Director: Susan Sama, RN, PhDAnalyst: Devi SundaresanIT: Scott PilateChief of Radiology: Daniel Roswig, MDCounselors and SchedulersFallon Community Health Plan (FCHP)Reminder System Facilitator: Beth FoleyCambridge Computing Firm: ClaricodeConsultant Programmer: Michelle Kohut 
  • Informationist plan of attack PlanProgress reportsFuture plans
  • Days of graduate school need for ‘usual’ librarians are overTraining in meta-data analysis will be requiredTeam-based endeavor will replace one-o-one assistanceDays of a single PI are overComplex clinical studies have huge data bases, many data sourcesClear communication among investigators criticalInformationists can provide a team with conceptual cohesion
  • A Librarian by Any Other Name: The Role of the Informationist on a Clinical Research Team

    1. 1. A Librarian by Any Other NameThe Role of the Informationist on aMedical School Research Team
    2. 2. PresentersSally A. Gore, MS, MS LISResearch Librarian & InformationistLamar Soutter LibraryUniversity of Massachusetts Medical SchoolMary E. Costanza, MDPrincipal InvestigatorProfessor of MedicineUniversity of Massachusetts Medical School
    3. 3. The InformationistLibrarianExpert in health informationresources• Collection development• General referenceassistance• Instruction• Searching assistanceInformationistExpert in health information resourcesand extensive domain knowledge• Consultation services• Database training• Systematic review• Knowledge management• Writing
    4. 4. These new professionals might be calledinformationists (not a graceful term, but onethat parallels such terms as gastroenterologistsor hospitalists), or clinical knowledge workers(in parallel with social workers).A Little Historythe big picture
    5. 5. A Little Historyat UMMS• A Funding Opportunity• A Chance to ExpandService• Finding Collaborators• Making it Happen
    6. 6. The GrantPromoting Breast Cancer Screening inNon-Adherent WomenA five year (2009-14) clinical research project fundedby the National Institutes of Health.A large controlled trial of women in a local health planages 40-84 randomized to 1 of 3 ways to improvegetting mammograms regularly every 1-2 years
    7. 7. Promoting Breast Cancer Screening inNon-Adherent Women++GOAL OF THE STUDY:To assess the cost-effectiveness of each arm in improving:a. Mammogram schedulingb. Mammogram completionc. Self-efficacy in repeating mammogram
    8. 8. • Large data sets to handle• Multiple data sources• Multiple investigators• Confusion among data sources re variabledefinitions and names• Need to improve communication amonginvestigators• Need for categorizing, creating taxonomies,clarifying data collection inconsistenciesWhy an Informationist?The Collaborator’s View
    9. 9. • Grant requirements for an embeddedinformationist• Review of „mother‟ grant needs• Description of informationist‟s training andstrengths• Consultations with library seniority• Consultations with co-investigators• Iteration of multiple drafts• Submission of grant applicationWriting the Grant Proposalstep one
    10. 10. • Informationist should be a colleague• Share in discussion of progress of „mother‟ grant• Assist in analyzing data• Participate in writing and publishing teammanuscripts• Meet with team regularlyWriting the Grant ProposalWriting the Grant Proposalstep two
    11. 11. SUCCESS!!Grant Funding:September 2012 – January 2014Supporting 20% of Informationist‟s Time (10hrs/wk)
    12. 12. We Begin• Introduce Informationist to team members• Meet with individual key members of team• Participation at weekly team meetings• Review ongoing reports from analyst(s)• Extricate Informationist from on-going libraryduties
    13. 13. • UMass Medical School– Family & CommunityMedicine• Principal Investigator• Project Director• Scheduler, Counselor Instructor• Administrative Secretary– Medicine• Principal Investigator• Behavioral Psychologist– Biostatistics• Biostatistician• Analyst– Center for Health Policy &Research• Director, Expert in CostAnalysis• Research Assistant– Library• Informationist• Fallon Community HealthPlan– Claims Data Representative• Reliant Medical Group– Research Director– Research Coordinator– Site Project Director– Analyst– IT Guru– Chief of Radiology– Phone Counselors– Phone Schedulers– Primary Care Physicians• Claricode– ProgrammerThe Team
    14. 14. Progress to Datethe informationist• AIM 1: Improve effectiveness and efficiency ofcommunication w/in team regarding data• AIM 2: Articulate technology issues related toimplementation of the study• AIM 3: Enhance information organization,management, utilization, and access skills ofteam members• AIM 4: Assess value of an informationist to theresearch team
    15. 15. Progress to Datethe teamStudy began Jan. 2009• Slowly winning battle with:• tracking system glitches• collating multiple data sources• miscommunication re variable names and definitions• 40,000 women on study• 4,500 reminder letters sent• 1,000 Wave 2 “Booster” reminder letters sent
    16. 16. Lessons Learnedso far…• Need cooperative players• Need buy-in from research team• Earlier imbedding on team to improve researchefforts• Optimum: join team early and help write „mother‟grant• Increase covered Informationist‟s time• Be realistic about decreasing librarycommitments
    17. 17. The Future of InformationistsSally‟s ThoughtsGraduate programs MUSTchangeResearch is NOT optionalSoft skills need to berecognizedRole isn‟t always for librariansMary‟s ThoughtsDays of a single PI are overComplex clinical studieshave huge data bases frommany data sourcesClear communicationamong investigators criticalInformationists can providea team with conceptualcohesionHmmmm…

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