Rett Syndrome: Rett syndrome is relatively rare, affecting almost exclusively females, one out of 10,000 to 15,000. After a period of normal development, sometime between 6 and 18 months, autism-like symptoms begin to appear. The little girl’s mental and social development regresses—she no longer responds to her parents and pulls away from any social contact. If she has been talking, she stops; she cannot control her feet; she wrings her hands. Some of the problems associated with Rett syndrome can be treated. Physical, occupational, and speech therapy can help with problems of coordination, movement, and speech.
Impediments identified during childhood can follow them to adulthood if not addressed during the school days.
Conflicting viewpoints as to the extent to the percentages of children involved in bullying but all agree that the children need to look at bullying the same as adults or is this a stretch due the cognitive abilities of children. Children function within their own structure, a pecking order is established, children need to want to change the status quo in a large number not just one or two.
Relate some of Andrews preoccupations.
Research suggests that on-going support during placement as the clients’ needs change leads to longer employment.
Asperger’S Syndrome And Pervasive Developmental Disorder
According to the Autism Societywebsite In December 2009, the Centers for Disease Control and Prevention issued their ADDM autism prevalence report. The report concluded that the prevalence of autism had risen to 1 in every 110 births in the United States and almost 1 in 70 boys. The issuance of this report caused a media uproar, but the news was not a surprise to the Autism Society or to the 1.5 million Americans living with the effects of autism spectrum disorder.
Costs Currently, the Autism Society estimates that the lifetime cost of caring for a child with autism ranges from $3.5 million to $5 million, and that the United States is facing almost $90 billion annually in costs for autism (this figure includes research, insurance costs and non-covered expenses, Medicaid waivers for autism, educational spending, housing, transportation, employment, in addition to related therapeutic services and caregiver costs).
The diagnostic category of pervasive developmental disorders (PDD) refers to a group of disorders characterized by delays in the development of socialization and communication skills. Parents may note symptoms as early as infancy, although the typical age of onset is before 3 years of age. Symptoms may include problems with using and understanding language; difficulty relating to people, objects, and events; unusual play with toys and other objects; difficulty with changes in routine or familiar surroundings, and repetitive body movements or behavior patterns. Autism (a developmental brain disorder characterized by impaired social interaction and communication skills, and a limited range of activities and interests) is the most characteristic and best studied PDD.The DSM-IV-TR defines
Zero to Three Casebook Addition According to the 0-3 casebook there is a pdd listed for those 24 months and younger called Multi-System developmental disorder. A child with MSDD does not totally lack the ability to develop a social/emotional relationship with a primary caregiver but will have impairment in developing this relationship. The child may: 1) avoid contact with caregivers, but will give slight cues that show attachment. Thesechildren have difficulty forming, maintaining, and/or developing communication, includingpreverbal gestures. For many toddlers with MSDD, language does not serve a communicative intent. They may memorize parts of songs or dialogue but they do not use speech to communicate. 2)A child with MSDD may have major difficulty processing visual, auditory, tactile, proprioceptive (spatial awareness of one’s body), and vestibular sensations. Most have poor motor planning—they lack the ability to sequence theirmovements to create a desired outcome—and may appear very clumsy when learning a new skill. 3) Infants and toddlers diagnosed with MSDD also show impairments in processingsensations. For example, they may be extremely sensitive to touch (startling or even having a tantrum when touched lightly), or they may show great pleasure in heavy pressure (being sat on or wedging themselves in small spaces behind furniture). 4)Get an interactive brain map which provides information on brain development of young children.
People who have Aspergers say its like being locked in a shell withlittle ability to communicate with the outside world. Its hard tostay involved with your world.http://www.youtube.com/watch?v=OV_CcmLlaw4&feature=related
Types of PDD Autistic Disorder central feature is the markedly abnormal or impaired development in social interaction and communication and a restricted repertoire of activity and interest. Aspergers disorder-Severe or sustained impairment in social interaction and the significant development of restrictive patterns of behavior, interest and activity. The difference is that there was no clinically significant delays in Language or cognitive development. No delays in the development of age-appropriate self-help skills, adaptive behavior and curiosity about the environment. Retts Syndrome is the development of multiple specific deficits following a period of normal functioning after birth. A loss of previously acquired purposeful hand skills before the development of a characteristic resembling hand wringing or hand washing. The interest in the social environment diminishes in the first several years after the onset of the disorder. Significant impairment in expressive and receptive language development with severe psychomotor retardation. Childhood Disintegrative Disorder is a marked regression in multiple areas of functioning following two years of apparently normal behavior development. A clinically significant loss in at least two areas ; expressive or receptive language; social skills or adaptive behavior; bowel or bladder control; or play and motor skills. They also display characteristics of Autistic disorder. PDD- NOS is used when the criteria has not been met in the descriptors above because of a typical symptomatology.
What impediments are thereduring childhood Difficulty with Sometimes children These children have aunderstanding verbal have odd behaviors low frustrationand non-verbal social which aren’t readily tolerance and may interactions accepted by peers strike others Motor skills may not Could to be both a be like their peers – bully and a victim. lack interest in play
To Improve Social SkillCurrently, some school uses the Step 2Social skills training program for children with different levels ofsocial skill attainment[i.e.Aspergers Syndrome].One common theme is accessing peer interactions to model thethings learned in training when using this Step 2 program.Children without these impediments could benefit from increasingtheir skills in handling interactions with others.A recurrent theme in research is to increase social and conflictresolution skills as a mechanism to decrease bullying behavior andchange the learning environment.In one instance a psychologist developed a way for nuero-typicalkids helped those with Aspergers learn to interact with peers anddevelop a freindships with others. Thereby decreases the level ofbullying by others.
Communication2) verbal and nonverbal communication By age 3, most children have passed predictable milestones on the path to learning language; one of the earliest is babbling. By the first birthday, a typical toddler says words, turns when he hears his name, points when he wants a toy, and when offered something distasteful, makes it clear that the answer is “no.” Some children diagnosed with ASD remain mute throughout their lives. Some infants who later show signs of ASD coo and babble during the first few months of life, but they soon stop. Others may be delayed, developing language as late as age 5 to 9. Some children may learn to use communication systems such as pictures or sign language. Those who do speak often use language in unusual ways. They seem unable to combine words into meaningful sentences. Some speak only single words, while others repeat the same phrase over and over softly. Some ASD children parrot what they hear, a condition called echolalia. Although many children with no ASD go through a stage where they repeat what they hear, it normally passes by the time they are 3.
Repetitive Behavior 3) They will often have unusual responses to sensory experiences, such as certain sounds or the way objects look. Each of these symptoms can range from mild to severe. Although children with ASD usually appear physically normal and have good muscle control, odd repetitive motions may set them off from other children. These behaviors might be extreme and highly apparent or more subtle. Some children and older individuals spend a lot of time repeatedly flapping their arms or walking on their toes. Some suddenly freeze in position. As children, they might spend hours lining up their cars and trains in a certain way, rather than using them for pretend play. If someone accidentally moves one of the toys, the child may be tremendously upset. ASD children need, and demand, absolute consistency in their environment. A slight change in any routine—in mealtimes, dressing, taking a bath, going to school at a certain time and by the same route—can be extremely disturbing. Perhaps order and sameness lend some stability in a world of confusion. Repetitive behavior sometimes takes the form of a persistent, intense preoccupation. For example, the child might be obsessed with learning all about vacuum cleaners, train schedules, or lighthouses. Often there is great interest in numbers, symbols, or science topics.
There is no known cure for PDD. Medications are used toaddress specific behavioral problems; therapy for children with PDD should be specialized according to need. Somechildren with PDD benefit from specialized classrooms in which the class size is small and instruction is given on aone-to-one basis. Others function well in standard special education classes or regular classes with additional support.
Some children need therapy fordepression symptoms Use medication to assist with depression symptoms. Seek therapy where CBT can be used to restructure thought patterns. Learn to see how thoughts impact experiences. Provide direction as to how to deal with the depression and changes that could improve symptoms and dealing with change.
Some of the treatment programs Applied Behavior Analysis (ABA) ABA is a broad set of principles and guidelines that is often used as a framework for treating autism. ABA is a one-on-one, intensive, structured teaching program based on the ideas of behavior modification and involving reinforced practice of different skills. You may also hear it called Discrete Trial Therapy (or DTT). Other terms associated with ABA are: functional communication training, incidental teaching, script/script fading, self-management, shaping, behavior chaining, errorless learning, functional assessment, reinforcement systems and activity schedules. Each word in the name “Applied Behavior Analysis” is important: “Applied” means that you are trying cause positive change in socially significant behaviors. “Behavior” changes over time are observed and measured. “Analysis” refers to the way the evidence is collected and evaluated to show how an intervention caused a behavior change. Lovaas Therapy The Lovaas Model of Applied Behavior Analysis is a specific ABA treatment method developed by Ivar Lovaas. For more information, visit his website. Developmental, Individual-Difference, Relationship-Based (DIR) Therapy : DIR—also called Floor time or the Greenspan Method—is based more on relationships than behavior modification. The Interdisciplinary Council on Developmental and Learning Disorders (founded by Stanley Greenspan) has information about the DIR/Floor time model. You can also visit The Floortime Foundation to learn more. Augmentative and Alternative Communication (AAC)-This augmentative communication glossary will help you learn the terms. AAC can use strategies like the Picture Exchange Communication System (PECS) and sign language.
Unconventional therapies Auditory Integration therapy After 35+ years of clinical practice and study, Dr. Berard determined that, in many cases, distortions in hearing or auditory processing contribute to behavioral or learning disorders. In the large majority of Dr. Berards cases, AIT significantly reduced some or many of the handicaps associated with autism spectrum disorders, central auditory processing disorders (CAPD), speech and language disorders, sensory issues including auditory, tactile or other sensory sensitivities (hyper or hypo), dyslexia, pervasive developmental disorder (PDD), attention deficit disorder with or without hyperactivity, anxiety, and depression. Berard Auditory Integration Training was designed to normalize hearing and the ways in which the brain processes auditory information. For example, an individual tests as hypersensitive to the frequencies of 1,000 and 8,000 Hertz while perception of all other frequencies falls within the normal range. The individual becomes over stimulated, disoriented or agitated in the presence of sounds at 1,000 and 8,000 Hertz. Therefore, Berard AIT works to normalize the hearing response across all frequencies within the normal hearing range. In another example, an individuals hearing is asymmetrical (significantly different between the two ears). When the right and left ears perceive sounds in an extremely different way, problems with sound discrimination can occur. Again, Berard AIT works to normalize the hearing of both ears.
Unconventional Therapies Cont. Sensory integration therapy best if referred to Occupational therapy the child must be able to successfully meet the challenges that are presented through playful activities (Just Right Challenge); the child adapts her behavior with new and useful strategies in response to the challenges presented (Adaptive Response); the child will want to participate because the activities are fun (Active Engagement); and the childs preferences are used to initiate therapeutic experiences within the session (Child Directed). Suggestions for activities: swinging in a hammock (movement through space); dancing to music (sound); playing in boxes filled with beans (touch); crawling through tunnels (touch and movement through space); hitting swinging balls (eye-hand coordination); spinning on a chair (balance and vision); and balancing on a beam (balance Pasted from <http://autism.healingthresholds.com/therapy/sensory-integration
Observations or questions used toidentify traits 1. Poor eye contact, or staring from unusual angle 2. Ignores when called, pervasive ignoring, not turning head to voice 3. Excessive fear of noises (vacuum cleaner); covers ears frequently 4. In his/her own world (aloof) 5. Lack of curiosity about the environment 6. Facial expressions dont fit situations 7. Inappropriate crying or laughing 8. Temper tantrums, overreacting when not getting his/her way 9. Ignores pain (bumps head accidentally without reacting)10. Doesnt like to be touched or held (body, head) 11. Hates crowds, difficulties in restaurants and supermarkets 12. Inappropriately anxious, scared 13. Inappropriate emotional response (not reaching to be picked up) 14. Abnormal joy expression when seeing parents 15. Lack of ability to imitate
Questions or Observations toidentify SOCIAL INTERACTIONDIFFICULTIES1. Loss of acquired speech2. Produces unusual noises or infantile squeals3. Voice louder than required 4. Frequent gibberish or jargon 5. Difficulty understanding basic things ("just cant get it") 6. Pulls parents around when wants something 7. Difficulty expressing needs or desires, using gestures8. No spontaneous initiation of speech and communication9. Repeats heard words, parts of words or TV commercials10. Repetitive language (same word or phrase over and over)11. Cant sustain conversation12. Monotonous speech, wrong pausing13. Speaks same to kids, adults, objects (cant differentiated14. Uses language inappropriately (wrong words or phrases
ABNORMAL SYMBOLIC ORIMAGINARY PLAY / use as questions or observations1. Hand or finer flapping; self stimulation2. Head banging3. Self mutilation, inflicting pain or injury4. Toe walking, clumsy body posture5. Arranging toys in rows6. Smelling, banging, licking or other inappropriate use of toys 7. Interest in toy parts, such as car wheels8. Obsessed with objects or topics (trains, weather, numbers, dates)9. Spinning objects, self, or fascination with spinning objects10. Restricted interest, (watching the same video over and over11. Difficulty stopping repetitive "boring" activity or conversation12. Attachment to unusual objects, (sticks, stones, strings, or hair)13. Stubborn about rituals and routines; resists to change14. Restricted taste by consistency, shape or form (refuses solids)15. Savant ability, restricted skill superior to age group (reads early, memorizes books)
Individuals who have Aspergersand Employment Employment should take advantage of the individuals strengths and abilities. Temple Grandin, Ph.D., suggests, "jobs should have a well-defined goal or endpoint," and that your "boss must recognize your social limitations." In A Parents Guide to Asperger Syndrome and High-Functioning Autism, the authors describe three employment possibilities: competitive, supported, and secure or sheltered. Competitive employment is the most independent, with no support offered in the work environment. Individuals with Asperger’s Syndrome may be successful in careers that require focus on details but have limited social interaction with colleagues such as computer sciences, research or library sciences. In supported employment, a system of supports allows individuals to have paid employment in the community, sometimes as part of a mobile crew, other times individually in a job developed for the person. In secure or sheltered employment, an individual is guaranteed a job in a facility-based setting. Individuals in secure settings generally also receive work skills and behavior training, while sheltered employment may not provide training that would allow for more independence. There is a 70% unemployment rate for individuals 20 yrs old or older.
Concerns with vocational concerns One way to engage the client in therapy is to provide structure. Individuals with Asperger‟s struggle with planning, organizing, and prioritizing; external structure can compensate for these weaknesses (Anderson & Morris, 2006). Be clear about details concerning where to wait, where to sit, the beginning and ending time of the session, etc. Set an agenda for each session, including appropriate topics of discussion (Ramsay et al., 2005). Be aware that the typical therapy hour may not be appropriate for this population. Clients may need shorter sessions because they are mentally exhausted due to the combined stressors of social interaction and CBT therapy. Conversely, clients may need longer sessions if they need extra time to process information or are particularly difficult to redirect from their restricted and repetitive interests (Anderson & Morris, 2006). In order to develop workable treatment goals that are relevant
Vocational IssuesInterview transcripts revealed four major themes identified bypeople with Asperger’s concerning why they have difficultybecoming successfully employed. The four themes are: 1) masteringthe job application process, 2) adapting to new job routines, 3)communication, and 4) navigating social interactions withemployers and coworkers. The job coach should be able to help the client break down largertasks into smaller, more manageable parts, and to help the clientdevelop strategies to prioritize which tasks should be completedfirst, act as a social “translator” between the client , must be able toexplicitly decode coworkers and supervisors‟ body language, voicetone, and facial expressions for the individual with Asperger‟s .http://youtu.be/XP3zE1P2-a0- is a video about teaching vocationalskills
Researchers can be found The NINDS conducts and supports research on developmental disabilities, including PDD. Much of this research focuses on understanding the neurological basis of PDD and on developing techniques to diagnose, treat, prevent, and ultimately cure this and similar disorders. NIH Patient Recruitment for Pervasive Developmental Disorders Clinical Trials At NIH Clinical Center There is an Autism research Institute
Websites firstname.lastname@example.org Horizons Developmental Remediation Center. Horizons Developmental Remediation Center has a reputation locally, nationally, and abroad for providing exceptional quality assessment and treatment to children, adolescents, and adults with autism, Asperger’s Syndrome, PDD- NOS, ADHD, and other neurodevelopmental disorders. Through the use of a comprehensive developmental and family-based approach, we develop individualized treatment plans to meet the needs of your child and family. www.grasp.org- This organization was started by a man who was diagnosed after his son was diagnosed. He has a lot of pertinent information .Parenting Aspergers, Information Online LLC, PO Box 789, Portsmouth, PO19DY, UK. Phone: 0845 519 3412 For the quickest response use our support desk http://parentingaspergers.zendesk.com/anonymous_requests/new www.fraser.org Provides information and services for individuals with PDD and Autism Spectrum Disorders.
Resources National Dissemination Center for Children with Disabilities U.S. Dept. of Education, Office of Special Education Programs 1825 Connecticut Avenue NW, Suite 700 Washington, DC 20009 email@example.com http://www.nichcy.org Tel: 800-695-0285 202-884-8200 Fax: 202-884-8441 National Institute of Mental Health (NIMH) National Institutes of Health, DHHS 6001 Executive Blvd. Rm. 8184, MSC 9663 Bethesda, MD 20892-9663 firstname.lastname@example.org http://www.nimh.nih.gov Tel: 301-443-4513/866-415-8051 301-443-8431 (TTY) Fax: 301-443-4279 National Institute on Deafness and Other Communication Disorders Information Clearinghouse 1 Communication Avenue Bethesda, MD 20892-3456 email@example.com http://www.nidcd.nih.gov Tel: 800-241-1044 800-241-1055 (TTD/TTY) National Institute of Child Health and Human Information Resource Center P.O. Box 3006 Rockville, MD 20847 NICHDInformationResourceCenter@mail.nih.gov Tel: 800-370-2943 888-320-6942 (TTY)
Resources Cont. National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT 06813-1968 firstname.lastname@example.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291 American Speech-Language-Hearing Association (ASHA) 2200 Research Boulevard Rockville, MD 20850 email@example.com https://asha.org Tel: 800-638-8255 Fax: 301-571-0457
Resources Cont. MAAP Services for Autism, Asperger Syndrome, and PDD P.O. Box 524 Crown Point, IN 46307 firstname.lastname@example.org http://www.maapservices.org Tel: 219-662-1311 Fax: 219-662-0638 Autism Network International (ANI) P.O. Box 35448 Syracuse, NY 13235-5448 email@example.com http://www.ani.ac Autism Research Institute (ARI) 4182 Adams Avenue San Diego, CA 92116 firstname.lastname@example.org http://www.autismresearchinstitute.com Tel: 866-366-3361 Fax: 619-563-6840 Autism National Committee (AUTCOM) P.O. Box 429 Forest Knolls, CA 94933 http://www.autcom.org
References Zero- Three Casebook(1997) Lieberman, Wieder, Fenichel www.zerotothree.org/baby-brain-map.html www.childrain.org The PDD Assessment Scale/ Screening Questionnaire www.autism.com/ari - ATEC form screening tool Minnesota Association for Children’s Mental Health • MACMH 800-528-4511 • 651-644-7333 • www.macmh.org National Institute of /neurological disorders and Stroke http://www.ninds.nih.gov/ http://www.autism-society.org/