The Good, The Bad and the Ugly
Luis Fernandez Luque - PhD Candidate
(luis.luque@norut.no)
Per Egil Kummervold - PhD
eHealt...
HEALTH SOCIAL MEDIA TODAY
Overview of the current context
6th August, 2013
6th August, 2013
The Internet Boom
Social Media in the World
Dr. Google
Kummervold PE, Chronaki CE, Lausen B, et al. eHealth Trends in Europe 2005-2007: A Population-
Based Survey J M...
Dr. Google
McDaid D, Park A. Online Health: Untangling the Web.; 2011:30. Available at:
http://www.bupa.com/media/44806/on...
Health Social Media: The Perfect Storm
6th August, 2013
THE GOOD
The power of social media in the health domain
6th August, 2013
Playing Together
6th August, 2013
Viral Information
6th August, 2013
Viral Information
6th August, 2013
Digital Disease Detection
Chunara R, Andrews JR, Brownstein JS. Social and news media enable estimation of epidemiological...
Digital Disease Detection
Brownstein JS, Freifeld CC, Madoff LC. Digital disease detection--harnessing the Web for public ...
The World of Apps
6th August, 2013
Weitzman ER, Adida B, Kelemen S, Mandl KD. Sharing data for public
health research by m...
THE BAD
Not everything is good
6th August, 2013
Pro-Anorexia in YouTube
Syed-Abdul S, Fernandez-Luque L, Jian WS, Li YC, et al. Misleading health-related information prom...
Pro-Anorexia in YouTube
Syed-Abdul S, Fernandez-Luque L, Jian WS, Li YC, et al. Misleading health-related information prom...
Pro- vs Anti- Anorexia in Flickr
Yom-Tov E, Fernandez-Luque L, Weber I, Crain SP Pro-Anorexia and Pro-Recovery Photo
Shari...
Pro- vs Anti- Anorexia in Flickr
Yom-Tov E, Fernandez-Luque L, Weber I, Crain SP Pro-Anorexia and Pro-Recovery Photo
Shari...
THE UGLY
Anti-Vaccination Online Movement
6th August, 2013
Anti-vaccination movement
James Gillray, The Cow-Pock—or—the Wonderful Effects of the New Inoculation! (1802)
Global Concern
6th August, 2013
―With ever increasing access to Internet-based
information, an unsubstantiated rumour abou...
Anti-vaccination movement 2.0
Anti-vaccination movement 2.0
Who is winning the battle?
Briones, Rowena, et al. "When vaccines go viral: An analysis of HPV vaccine coverage on
YouTube...
Anti-vaccination movement 2.0
Studies show:
– With questions regards about vaccination the most trusted source
are physici...
Anti-vaccination movement 2.0
Sentiments
Salathé M, Khandelwal S. Assessing vaccination sentiments with online social medi...
Map of Anti-vaccination 2.0
―Although 11 (28%) of the 39 reports about HPV in India obtained during the study
period (May ...
Discussion
• Internet is exploding and being used for health purposes.
• Lack of knowledge on health social media in devel...
Luis Fernandez Luque (luis.luque@norut.no)
6th August, 2013
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The Good, the Bad and the Ugly: a portrait of health social media trends and anti-vaccination

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The Good, the Bad and the Ugly: a portrait of health social media trends and anti-vaccination.

This presentation was made for the Norwegian Knowledge Centre for the Health Service. Global Health Unit Open Seminar – 6th August 2013

In this presentation, we will introduce how social media is being used in transforming communication with patients. We will use study cases, such as the ‘zombi invasion’ organised by the CDC and online puzzles for biomedical research, to provide an overview of current trends. In addition, we will present research conducted at Norut (Northern Research Institute) about the challenges of finding trustworthy health social media. Our focus will be directed towards harmful online communities promoting anorexia as a lifestyle or anti-vaccination online groups.

Published in: Health & Medicine, Business

The Good, the Bad and the Ugly: a portrait of health social media trends and anti-vaccination

  1. 1. The Good, The Bad and the Ugly Luis Fernandez Luque - PhD Candidate (luis.luque@norut.no) Per Egil Kummervold - PhD eHealth Group, Norut Tromsø (Norway) A portrait of health social media trends and anti-vaccination. Norwegian Knowledge Centre for the Health Service. Global Health Unit Open Seminar – 6th August 2013
  2. 2. HEALTH SOCIAL MEDIA TODAY Overview of the current context 6th August, 2013
  3. 3. 6th August, 2013 The Internet Boom
  4. 4. Social Media in the World
  5. 5. Dr. Google Kummervold PE, Chronaki CE, Lausen B, et al. eHealth Trends in Europe 2005-2007: A Population- Based Survey J Med Internet Res 2008;10(4):e42 McDaid D, Park A. Online Health: Untangling the Web.; 2011:30. Available at: http://www.bupa.com/media/44806/online_20health_20-_20untangling_20the_20web.pdf. Accessed March 8, 2013.
  6. 6. Dr. Google McDaid D, Park A. Online Health: Untangling the Web.; 2011:30. Available at: http://www.bupa.com/media/44806/online_20health_20-_20untangling_20the_20web.pdf. Accessed March 8, 2013.
  7. 7. Health Social Media: The Perfect Storm 6th August, 2013
  8. 8. THE GOOD The power of social media in the health domain 6th August, 2013
  9. 9. Playing Together 6th August, 2013
  10. 10. Viral Information 6th August, 2013
  11. 11. Viral Information 6th August, 2013
  12. 12. Digital Disease Detection Chunara R, Andrews JR, Brownstein JS. Social and news media enable estimation of epidemiological patterns early in the 2010 Haitian cholera outbreak. Am J Trop Med Hyg. 2012 Jan;86(1):39-45. doi: 10.4269/ajtmh.2012.11-0597.
  13. 13. Digital Disease Detection Brownstein JS, Freifeld CC, Madoff LC. Digital disease detection--harnessing the Web for public health surveillance. N Engl J Med. 2009 May 21;360(21):2153-5, 2157. doi: 10.1056/NEJMp0900702. Epub 2009 May 7..
  14. 14. The World of Apps 6th August, 2013 Weitzman ER, Adida B, Kelemen S, Mandl KD. Sharing data for public health research by members of an international online diabetes social network. PLoS One. 2011 Apr 27;6(4):e19256. doi: 10.1371/journal.pone.0019256.
  15. 15. THE BAD Not everything is good 6th August, 2013
  16. 16. Pro-Anorexia in YouTube Syed-Abdul S, Fernandez-Luque L, Jian WS, Li YC, et al. Misleading health-related information promoted through video-based social media: anorexia on YouTube. J Med Internet Res. 2013 Feb 13;15(2):e30.
  17. 17. Pro-Anorexia in YouTube Syed-Abdul S, Fernandez-Luque L, Jian WS, Li YC, et al. Misleading health-related information promoted through video-based social media: anorexia on YouTube. J Med Internet Res. 2013 Feb 13;15(2):e30.
  18. 18. Pro- vs Anti- Anorexia in Flickr Yom-Tov E, Fernandez-Luque L, Weber I, Crain SP Pro-Anorexia and Pro-Recovery Photo Sharing: A Tale of Two Warring Tribes J Med Internet Res 2012;14(6):e151
  19. 19. Pro- vs Anti- Anorexia in Flickr Yom-Tov E, Fernandez-Luque L, Weber I, Crain SP Pro-Anorexia and Pro-Recovery Photo Sharing: A Tale of Two Warring Tribes J Med Internet Res 2012;14(6):e151 Figure 4. Network graphs according to four connection types (from top left, clockwise): Contacts, Favorites, Tags, Comments.
  20. 20. THE UGLY Anti-Vaccination Online Movement 6th August, 2013
  21. 21. Anti-vaccination movement James Gillray, The Cow-Pock—or—the Wonderful Effects of the New Inoculation! (1802)
  22. 22. Global Concern 6th August, 2013 ―With ever increasing access to Internet-based information, an unsubstantiated rumour about vaccines can rapidly circle the globe and undermine immunization services, sparking outbreaks of disease and untold deaths.‖ State of the World’s Vaccines and Immunization WHO, Unicef and the World Bank (2010)
  23. 23. Anti-vaccination movement 2.0
  24. 24. Anti-vaccination movement 2.0
  25. 25. Who is winning the battle? Briones, Rowena, et al. "When vaccines go viral: An analysis of HPV vaccine coverage on YouTube." Health Communication 27.5 (2012): 478-485.
  26. 26. Anti-vaccination movement 2.0 Studies show: – With questions regards about vaccination the most trusted source are physicians. However, 70% will check Internet and only 30% physicians. (USA) – In many cases misleading information in social media has been found to be more popular (e.g. HPV in YouTube, Forums about measles vaccination). – In some cases anti-vaccination webs are ranked higher than leading information Special Issue: The Role of Internet Use in Vaccination Decisions. Edited by Cornelia Betsch and Katharina Sachse. Vaccine, Volume 30, Issue 25, Pages 3723-3818 (28 May 2012) European Centre for Disease Prevention and Control. ―Communication on immunisation – building trust‖. Stockholm: ECDC; 2012. http://ecdc.europa.eu/en/publications/publicati ons/ter-immunisation-and-trust.pdf
  27. 27. Anti-vaccination movement 2.0 Sentiments Salathé M, Khandelwal S. Assessing vaccination sentiments with online social media: implications for infectious disease dynamics and control. PLoS Comput Biol. 2011. Oct;7(10) Figure 1. (A) Total number of negative (red), positive (green), and neutral (blue) tweets relating to influenza A(H1N1) vaccination during the Fall wave of the 2009 pandemic “We validated our approach by identifying a strong correlation between sentiments expressed online and CDC-estimated vaccination rates by region”
  28. 28. Map of Anti-vaccination 2.0 ―Although 11 (28%) of the 39 reports about HPV in India obtained during the study period (May 1, 2011, to April 30, 2012) were positive or neutral about HPV vaccines, most, 28 (72%), were negative‖ Larson HJ, Smith DM, et al. Measuring vaccine confidence: analysis of data obtained by a media surveillance system used to analyse public concerns about vaccines. Lancet Infect Dis. 2013 Jul;13(7):606-13
  29. 29. Discussion • Internet is exploding and being used for health purposes. • Lack of knowledge on health social media in developing countries. • Anti-vaccination is being catalyzed by social media, but it is not fully understood. – Quantification of the impact of online anti-vaccination propaganda. – Why anti-vaccination is successful in social media (vs. health authorities). – Tools for automatic surveillance of vaccination propaganda in social media. – ―Evidence‖-based guidelines for vaccination communication in social media 6th August, 2013
  30. 30. Luis Fernandez Luque (luis.luque@norut.no) 6th August, 2013

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