Motivations and Challenges of ePatients in YouTube

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Presented in Medicine 2.0 2010 - NL

Motivations and Challenges of ePatients in YouTube

  1. 1. Motivations and Challenges of ePatients in YouTube Luis Fernandez-Luque (luis.luque@norut.no) -Norut, Tromsø, Norway Vern R Beachy - e-Patient YouTuber - vbeachy Bill Woods - e-Patient YouTuber - 1HappyDiabetic Lauren Parrott - e-Patient YouTuber - laurenvparrott Kerri Sparkling e-Patient YouTuber - sixuntilme Medicine 2.0 Maastricht NL – 29, 30 November 2010
  2. 2. Background Health Information is moving to the Web 2.0 (blogs, YouTube) –  For example, 20.000+ videos from US hospitals
  3. 3. Background Many of the videos are created by ePatients
  4. 4. ePatients in YouTube- Motivations and Challenges 4 e-Patients sharing their experience living with Multiple Sclerosis and Diabetes
  5. 5. Vern R Beachy (Vbeachy) http://www.youtube.com/watch?v=CuOVDAm6tlE
  6. 6. Lauren Parrott (laurenvparrott) http://www.youtube.com/watch?v=Atq0LP_mfYE Old video Medicine 2.0 (2008): http://www.youtube.com/watch?v=Fb8_k-VIg4k
  7. 7. Kerri Sparkling (sixuntilme) http://www.youtube.com/watch?v=lc9hA4gmlhw
  8. 8. Bill Woods (1HappyDiabetic) http://www.youtube.com/watch?v=jsP9nZXIpME
  9. 9. Challenges •  It hurts when people don’t believe me – laurenvparrott •  some people told me… You are not a doctor, you shouldn’t be making videos.. I make very clear in all my videos I am only talking about my life – laurenvparrott •  I am not a doctor, I am just telling my story – vbeachy •  I have been solicited by companies promoting herbal supplements… - 1happydiabetic •  One of the challenges is privacy… I am sharing with the entire world -1happydiabetes
  10. 10. Motivations •  Finding others make you feel less alone, and feeling less alone has an huge impact in how you manage your chronic illness. –SixUntilMe •  I have gotten so much feedback from my videos… a lot of people have told me they have helped – vbeachy •  I was looking for information on a video format and it wasn’t there – 1HappyDiabetic •  To share my experience… so others can learn from my mistakes – 1HappyDiabetes
  11. 11. Join our conversation •  Our YouTube e-Patients: –  http://www.youtube.com/user/1happydiabetic –  http://www.youtube.com/user/laurenvparrott –  http://www.youtube.com/user/sixuntilme –  http://www.youtube.com/user/vbeachy •  Slideshare: –  http://www.slideshare.net/luis.luque •  Twitter: –  @luisluque, @1happydiabetic, @laurenvparrott, @sixuntilme

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