Patient-centered innovations in the future

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My second presentation at the ESHRE campus workshop in Leuven 7-2-13

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Patient-centered innovations in the future

  1. 1. Patient-centered innovations in the future Prof dr Jan A.M. Kremer, gynaecologist Radboud University Nijmegen Medical Centre Twitter: @JKNL #ESHREinnovations Email: j.kremer@obgyn.umcn.nl Leuven, February 7th, 2013
  2. 2. Course objectives• Know the current paradigm shifts in healthcare and understand that the patient will be the new centre• Understand the disruptive and innovative possibilities of personal health communities (PHC’s)• Get inspired to start or implement your own patient-centered innovations
  3. 3. Warming up: the ePatient Rap
  4. 4. Interaction Online access to your own EMR? Online contact with your doctor?
  5. 5. Inspiration 1: Clayton Christensen• Sustaining innovations make good things better• Disruptive innovations make things more affordable and simple• Disruptive innovations are not good for current organizations, but are good for mankind
  6. 6. Inspiration 2: Clay Shirky• The power of organizing without organizations• Spectacular developments of internet 2.0 and its social consequences• Web 2.0 is a platform of virtual communication & participation• Consumers are the new producers in agile and fluent networks
  7. 7. Inspiration 3: Prince• The Artist Formerly Known As Prince (TAFKAP)• Patient comes from the Latin word Patientia: patience, suffering, waiting• The Individual Formerly Known As Patient (TIFKAP)
  8. 8. Modern medicine The new doctor: • from god to guide • from host to guest (Don Berwick) The new patient: • from passive object to active subject • from patient to person (TIFKAP) The new healthcare organization: • from better/expensive, to simple/affordable • from physical centre to virtual community
  9. 9. Patient-centred innovation in Nijmegen • Virtual IVF Clinic Wouter Tuil • Stress and IVF Chris Verhaak, Jesper Smeenk • Online prevention of stress/anxiety Angelique van Dongen • Shared decision making in SET/DET Arno van Peperstraten • Guideline implementation Selma Mourad • Guideline development Elvira den Breejen • Patient education via wiki’s Tom van de Belt • Patient-centredness questionnaire NL Inge van Empel • Patient-centredness questionnaire EU Eline Dancet • Patient-centredness improvement Dana Huppelschoten • Health Communities Annemijn Aarts • Personal Health communities (apps) Helga Schouten
  10. 10. MijnZorgnet (MyHealthNet) Personal Health Community Digital ClinicPlatform for online health communities: Personal Health Community (community of the patient) Digital Clinic (community of the provider)
  11. 11. MijnZorgnet: the meeting place forpatients, doctors and nurses
  12. 12. Activities Enter search term ….Personal Health Activities Files Diary Consultations Apps Problem list Team membersRelations Olga de HaesCommunities Digital fertility clinic Fertility community Herniated disk community
  13. 13. FilesPersonal Health Activities Files Diary Consultations Apps Problem list Team membersRelations Olga de HaesCommunities Digital fertility clinic Fertility community Herniated disk community
  14. 14. DiaryPersonal Health Activities Files Diary Consultations Apps Problem list Team membersRelations Olga de HaesCommunities Digital fertility clinic Fertility community Herniated disk community
  15. 15. ConsultationsPersonal Health Activities Files Diary Consultations Apps Problem list Team membersRelations Olga de HaesCommunities Digital fertility clinic Fertility community Herniated disk community
  16. 16. Problem listPersonal Health Activities Files Diary Consultations Apps Problem list Team membersRelations Olga de HaesCommunities Digital fertility clinic Fertility community Herniated disk community
  17. 17. TeamPersonal Health Activities Files Diary Consultations Apps Problem list Team membersRelations Olga de HaesCommunities Digital fertility clinic Fertility community Herniated disk community
  18. 18. AppsPersonal Health Activities Files Diary Consultations Apps Problem list Team membersRelations Olga de HaesCommunities Digital fertility clinic Fertility community Herniated disk community
  19. 19. Decision support for referral
  20. 20. Screening for emotional problems before IVF
  21. 21. First experiences with PHC’s (1) Qualitative study in 11 patients: (Aarts et al, submitted) PHC is a potential powerful tool to facilitate personalized care and may improve: • emotional support • accessibility of care • patient autonomy • relationship between professionals and patients
  22. 22. First experiences with PHC’s (2) "I got a miscarriage. The gynaecologist’s reaction to this bad news in my PHC was really fast. On the one hand, it was of course disappointing, but on the other hand it felt like someone was embracing me.” patient after IUI, having a PHC interview 2011
  23. 23. Conclusion• It is all about patients• The PHC is a promising example of patientcentred innovation• Don’t overplan, take babysteps
  24. 24. We are quite disappointed …how static & top-down.in your website: no blogs, As modern care no wikis, no twitter, no consumers, we want more PHR, no HC, no PHC… than just being treated!

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