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Making services fit for an ageing
          population
 What else do we need to do?
             David Oliver
    The King’s Fund, 27 June 2012
What I want to cover...
• I: Population ageing and attitudes to it
•   II: Implications for health and wellbeing?
•   III: And for services?
•   IV: What older people/carers want?
•   V: Systems/services are fit for ageing pop.?
•   VI: How do we get better?

• I have provided article and key references
• I try to answer all emails/questions
• Will take Qs on specifics of policy (DH England)
Recommendations for:
 – Senior leaders
 – Team leaders
 – Professional bodies/societies
 – Policy makers, government, NHS commissioning
   board
 – Think tanks and commentators
2012: ‘Perfect storm’ circling round
            care of older people
•   Equally perfect opportunity for lasting change
•   Ombudsman ‘care and compassion’
•   Patients’ association campaign
•   CQC DANI inspections
•   Age UK/NHS Confederation. Dignity commission
•   Dementia strategy (and several reports on care)
•   Social care funding/reform
•   Age equality duty
•   £ 15-20bn ‘Nicholson Challenge’
    – Older patients with complex needs as key
• Francis report
Health and care services.
          Why ‘older people R us’?
• Success story of population ageing
   – Key facts and figures
• Big issues
   – Pensions, housing, workforce, long term care, carers
• Unhelpful/polarised attitudes/stereotypes
• Ageism and age-discrimination
   – Society, media, professionals, services, behaviour
• Upside of ageing/health/wellbeing
   – Stereotypes wrong.
   – Most older people feel ‘healthy’ and fairly independent
• Downside
   – LTC (multiple, age-related) frailty, disability, dependency
• Implications for health/social care services
   – Volume, spend, case-mix, multiple service use
What do older people/carers want?
•   In health and wellbeing to avoid need for care?
•   In safe/good/dignified/person-centred care?
•   In care for their loved-one?
•   Including those with dementia?
•   In end of life care?
•   In continuity, transition, co-ordination?
How we define quality?
•   Outcomes
•   Applying proven interventions to deliver
•   Safety
•   Experience
•   (Continuity/integration/co-ordination)
•   (Fairness/non-discrimination)
Before I ‘talk down’ services
• Much good practice guidance
• Many brilliant services
    – Slow dissemination/adoption?
• Successful campaigns/programmes
    – Which have delivered
•   Many happy patients/carers
•   Good overall satisfaction
•   Comparisons with services in other nations
•   ‘Public narrative’ unhelpful
    – Gloom, sensation, scandal, “golden-age”, victimhood

• Modern, relevant constructive solutions?
Prof Ken Rockwood 2005

• ‘If we design services for people with one thing
  wrong at once but people with many things wrong
  turn up, the fault lies not with the users but with the
  service, yet all too often these patients are labelled
  as inappropriate and presented as a problem.’
Rt Hon Stephen Dorrell MP 2011 (HSJ)

• ‘Systems designed to treat occasional episodes of
  care for normally healthy people are being used to
  deliver care for people who have complex and long
  term conditions. The result is often that they are
  passed from silo to silo without the system having
  ability to co-ordinate different providers.’
Back to ‘Quality’...
• Outcomes/interventions eg,
   – National audits: continence, nutrition, falls, fractures, hip
     fractures, dementia care
   – NCEPOD reports periop. care/ressus
   – Cancer care (eg, registry)
• Safety eg,
   – falls, drugs, hospital mortality, DVT, pressure sore, hospital
     acquired infection, readmission
Quality: efficiency
• Efficiency
• Unwarranted variation
   – NHS and Social Care Atlas
   – National Audits with local feedback
   – Activity eg, admission/readmission/care home
     placement/LOS
• Inefficiencies at interfaces/transitions
   – Delayed transfers of care
   – Avoidable admissions/readmissions
Quality: experience

• Do we consistently deliver what older people and
  their carers want? Eg,
• All-parliamentary inquiry 2008
• Ombudsman
• Patients’ Association
• ‘Counting the cost’ report on dementia
• Equality act consultation
• Francis Inquiry
• Older people have autonomy, personhood, humanity,
  rights, yet often infantilised/de-personalised etc
Quality: continuity/integration
• Patients moved repeatedly
• Transitions/shared care with multiple
  agencies/professionals
• Problems at interfaces
• Repeating information/poor sharing
• Confusion over ‘who is who’
• Miscommunication/mistakes at ‘hand offs’
• Bewilderment ‘a stranger in a strange land’
• Lack of useful information/support for carers
• No one ‘system navigator’
Quality: fair/non-discriminatory
•   Surveys of managers/doctors/nurses/AHPs
•   Experience of older people/carers
•   Equality Act Consultation
•   Centre for policy on ageing reviews
    – Services differentiated by age, always justified?
    – Incentives/investment
    – Common conditions of ageing neglected/care gaps
    – Worse Rx for older vs younger with same condition
    – Older people with frailty/‘atypical’ presentation written
      off/therapeutic nihilism
    – ‘acopia’, ‘social’, ‘inappropriate’, ‘medically discharged’,
      ‘bed blocker’ etc
‘Known knowns’ - why things go
              wrong?
• No shortage of evidence eg,
  – PANICOA ‘dignity in practice’ report
   – Alzheimer’s ‘counting the cost of care’ report
   – RCN report on nurse staffing for older people
  – consultations/enquiries/strategies
How do we get better?
• No more ‘groundhog day’
• No more ‘death by awareness?’
• We already know more than enough about:
   –   What older people/carers want
   –   What ‘good’ looks like
   –   What’s going wrong
   –   Why

• Need to focus on constructive solutions
   – relevant, effective, multifaceted, multi-agency
• No ‘magic bullet’
‘Delivering Dignity’ Commission
(Only 6 recommendations for central gov/policy)
                            • Recommendations for:
                               –   Hospitals
                               –   Nursing/Res Homes
                               –   Systems
                               –   Universities
                               –   Educators
                               –   Professional Bodies
                               –   Regulators
                               –   Leaders
                               –   DH
                               –   Wider government
                               –   Commissioners
                               –   Professions
                               –   Advocacy Groups
Solutions...beyond obvious/clichéd?
• More focus on prevention/proactive
  care/integration/care closer to home
• So patients only in institutions when required
• Stop tired narrative on ‘basic’ nursing care
   – ‘accountability’, ‘matron’, ‘degrees’, ‘too posh to wash’
• People need a proper
  diagnosis/assessment/adequate rehab etc
• So not as dependent on ‘basic care’
• Medicine/allied professions have a stake
Solutions..beyond central policy
• Systematically involve older people, carers
   – Training, feedback, design, governance, care
• Re-balance training, education
   – So skills and knowledge reflect new reality
• Workforce skills/planning
   – Right workforce in right part of system
• Good practice guidelines/delivery models
   – Dissemination/implementation/innovation
   – Measurement via audit etc
• Professional/clinical leadership
   – Ward to board to college/society
   – Development
• Advocacy, lobbying, awareness-raising, information
   – Charities, campaigning groups, think tanks
Solutions...policy/central
• Funding decisions/priorities
• System incentives eg,
   –   Operating/outcomes framework
   –   Tariff/CQUIN
   –   Rules/permissions (eg, for more integration)
   –   Targeted programmes/investment (eg, dementia, reablement)
• Good practice guidelines eg,
   – NICE guidelines/quality standards
• Regulation, inspection, follow up
• Transparent performance/variation data
• Law
   – Equality, human rights, mental capacity, negligence, statutory
     obligations etc
Platitudes, motherhood, apple pie?
• Not all hypothetical ‘newspeak’?
• Several recent examples; approach can work
   – Eg, dementia, stroke, hip fracture
• Many examples of clinical leadership
   – Local service models, RCP, RCN, BGS
• Many examples of advocacy
   – Patients’ Association, Age UK, NOS, Alzheimer’s, WRVS
• Law
   – Equality Act, human rights, mental capacity, NHS Constitution
• Concerted health policy from ‘the centre’
   – NHS Op Framework, NICE quality standards, dementia strategy,
     ‘reablement monies’
Question
• Is all this momentum?
• Sufficient
• To transform care?
• Or convince media and public that it has been
  transformed?
• If not, what else is required?
If we do have a once in a generation opportunity
    to transform care for older people let’s not
       waste it. It’s us and our families next.

                         • Thank You
                         • David.Oliver@dh.gsi.gov.uk
                         • David.Oliver.1@city.ac.uk
                         • David.Oliver@royalberkshire.n
                           hs.uk

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David Oliver: Making services fit for an ageing population

  • 1. Making services fit for an ageing population What else do we need to do? David Oliver The King’s Fund, 27 June 2012
  • 2. What I want to cover... • I: Population ageing and attitudes to it • II: Implications for health and wellbeing? • III: And for services? • IV: What older people/carers want? • V: Systems/services are fit for ageing pop.? • VI: How do we get better? • I have provided article and key references • I try to answer all emails/questions • Will take Qs on specifics of policy (DH England)
  • 3. Recommendations for: – Senior leaders – Team leaders – Professional bodies/societies – Policy makers, government, NHS commissioning board – Think tanks and commentators
  • 4. 2012: ‘Perfect storm’ circling round care of older people • Equally perfect opportunity for lasting change • Ombudsman ‘care and compassion’ • Patients’ association campaign • CQC DANI inspections • Age UK/NHS Confederation. Dignity commission • Dementia strategy (and several reports on care) • Social care funding/reform • Age equality duty • £ 15-20bn ‘Nicholson Challenge’ – Older patients with complex needs as key • Francis report
  • 5. Health and care services. Why ‘older people R us’? • Success story of population ageing – Key facts and figures • Big issues – Pensions, housing, workforce, long term care, carers • Unhelpful/polarised attitudes/stereotypes • Ageism and age-discrimination – Society, media, professionals, services, behaviour • Upside of ageing/health/wellbeing – Stereotypes wrong. – Most older people feel ‘healthy’ and fairly independent • Downside – LTC (multiple, age-related) frailty, disability, dependency • Implications for health/social care services – Volume, spend, case-mix, multiple service use
  • 6. What do older people/carers want? • In health and wellbeing to avoid need for care? • In safe/good/dignified/person-centred care? • In care for their loved-one? • Including those with dementia? • In end of life care? • In continuity, transition, co-ordination?
  • 7. How we define quality? • Outcomes • Applying proven interventions to deliver • Safety • Experience • (Continuity/integration/co-ordination) • (Fairness/non-discrimination)
  • 8. Before I ‘talk down’ services • Much good practice guidance • Many brilliant services – Slow dissemination/adoption? • Successful campaigns/programmes – Which have delivered • Many happy patients/carers • Good overall satisfaction • Comparisons with services in other nations • ‘Public narrative’ unhelpful – Gloom, sensation, scandal, “golden-age”, victimhood • Modern, relevant constructive solutions?
  • 9. Prof Ken Rockwood 2005 • ‘If we design services for people with one thing wrong at once but people with many things wrong turn up, the fault lies not with the users but with the service, yet all too often these patients are labelled as inappropriate and presented as a problem.’
  • 10. Rt Hon Stephen Dorrell MP 2011 (HSJ) • ‘Systems designed to treat occasional episodes of care for normally healthy people are being used to deliver care for people who have complex and long term conditions. The result is often that they are passed from silo to silo without the system having ability to co-ordinate different providers.’
  • 11. Back to ‘Quality’... • Outcomes/interventions eg, – National audits: continence, nutrition, falls, fractures, hip fractures, dementia care – NCEPOD reports periop. care/ressus – Cancer care (eg, registry) • Safety eg, – falls, drugs, hospital mortality, DVT, pressure sore, hospital acquired infection, readmission
  • 12. Quality: efficiency • Efficiency • Unwarranted variation – NHS and Social Care Atlas – National Audits with local feedback – Activity eg, admission/readmission/care home placement/LOS • Inefficiencies at interfaces/transitions – Delayed transfers of care – Avoidable admissions/readmissions
  • 13. Quality: experience • Do we consistently deliver what older people and their carers want? Eg, • All-parliamentary inquiry 2008 • Ombudsman • Patients’ Association • ‘Counting the cost’ report on dementia • Equality act consultation • Francis Inquiry • Older people have autonomy, personhood, humanity, rights, yet often infantilised/de-personalised etc
  • 14. Quality: continuity/integration • Patients moved repeatedly • Transitions/shared care with multiple agencies/professionals • Problems at interfaces • Repeating information/poor sharing • Confusion over ‘who is who’ • Miscommunication/mistakes at ‘hand offs’ • Bewilderment ‘a stranger in a strange land’ • Lack of useful information/support for carers • No one ‘system navigator’
  • 15. Quality: fair/non-discriminatory • Surveys of managers/doctors/nurses/AHPs • Experience of older people/carers • Equality Act Consultation • Centre for policy on ageing reviews – Services differentiated by age, always justified? – Incentives/investment – Common conditions of ageing neglected/care gaps – Worse Rx for older vs younger with same condition – Older people with frailty/‘atypical’ presentation written off/therapeutic nihilism – ‘acopia’, ‘social’, ‘inappropriate’, ‘medically discharged’, ‘bed blocker’ etc
  • 16. ‘Known knowns’ - why things go wrong? • No shortage of evidence eg, – PANICOA ‘dignity in practice’ report – Alzheimer’s ‘counting the cost of care’ report – RCN report on nurse staffing for older people – consultations/enquiries/strategies
  • 17. How do we get better? • No more ‘groundhog day’ • No more ‘death by awareness?’ • We already know more than enough about: – What older people/carers want – What ‘good’ looks like – What’s going wrong – Why • Need to focus on constructive solutions – relevant, effective, multifaceted, multi-agency • No ‘magic bullet’
  • 18. ‘Delivering Dignity’ Commission (Only 6 recommendations for central gov/policy) • Recommendations for: – Hospitals – Nursing/Res Homes – Systems – Universities – Educators – Professional Bodies – Regulators – Leaders – DH – Wider government – Commissioners – Professions – Advocacy Groups
  • 19. Solutions...beyond obvious/clichéd? • More focus on prevention/proactive care/integration/care closer to home • So patients only in institutions when required • Stop tired narrative on ‘basic’ nursing care – ‘accountability’, ‘matron’, ‘degrees’, ‘too posh to wash’ • People need a proper diagnosis/assessment/adequate rehab etc • So not as dependent on ‘basic care’ • Medicine/allied professions have a stake
  • 20. Solutions..beyond central policy • Systematically involve older people, carers – Training, feedback, design, governance, care • Re-balance training, education – So skills and knowledge reflect new reality • Workforce skills/planning – Right workforce in right part of system • Good practice guidelines/delivery models – Dissemination/implementation/innovation – Measurement via audit etc • Professional/clinical leadership – Ward to board to college/society – Development • Advocacy, lobbying, awareness-raising, information – Charities, campaigning groups, think tanks
  • 21. Solutions...policy/central • Funding decisions/priorities • System incentives eg, – Operating/outcomes framework – Tariff/CQUIN – Rules/permissions (eg, for more integration) – Targeted programmes/investment (eg, dementia, reablement) • Good practice guidelines eg, – NICE guidelines/quality standards • Regulation, inspection, follow up • Transparent performance/variation data • Law – Equality, human rights, mental capacity, negligence, statutory obligations etc
  • 22. Platitudes, motherhood, apple pie? • Not all hypothetical ‘newspeak’? • Several recent examples; approach can work – Eg, dementia, stroke, hip fracture • Many examples of clinical leadership – Local service models, RCP, RCN, BGS • Many examples of advocacy – Patients’ Association, Age UK, NOS, Alzheimer’s, WRVS • Law – Equality Act, human rights, mental capacity, NHS Constitution • Concerted health policy from ‘the centre’ – NHS Op Framework, NICE quality standards, dementia strategy, ‘reablement monies’
  • 23. Question • Is all this momentum? • Sufficient • To transform care? • Or convince media and public that it has been transformed? • If not, what else is required?
  • 24. If we do have a once in a generation opportunity to transform care for older people let’s not waste it. It’s us and our families next. • Thank You • David.Oliver@dh.gsi.gov.uk • David.Oliver.1@city.ac.uk • David.Oliver@royalberkshire.n hs.uk