Disability issues in Macedonia


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Role of the NGO sector in supporting the families with children with developmental needs (in English).
Dr Vasilka Dimoska about disability issues in Macedonia for the international conference in Bishkek, 1-3 arch 2011.

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Disability issues in Macedonia

  1. 1. Role of the NGO sector in supporting the families with children with developmental needs International conference "Innovative approaches to working with disabled children and their families: Kyrgyzstan and international experience" 1-3 March, Bishkek - Kyrgyzstan Dr.Vasilka Dimoska Republic centre for support of persons with intellectual disability-PORAKA Republic of Macedonia
  2. 2. First information about disability <ul><li>For the parents of the new born child the first information brings mixed feelings : </li></ul><ul><li>Sadness, shock,anger </li></ul><ul><li>Responsibility, prejudices, fear of isolation </li></ul><ul><li>To find the most sophisticate way </li></ul><ul><li>how to inform parents about the condition </li></ul><ul><li>of the new born child is one of the </li></ul><ul><li>most important task for the doctors </li></ul><ul><li>and other professionals </li></ul>
  3. 3. Important approach <ul><li>Mutual trust between parents and professionals </li></ul><ul><li>must be established!!! </li></ul><ul><li>Acceptance of the facts for the </li></ul><ul><li>abilities and disabilities of the child </li></ul><ul><li>Support by the family, friends </li></ul><ul><li>and family doctor </li></ul><ul><li>Appropriate support and care, education, </li></ul><ul><li>and management of the needs of child </li></ul>
  4. 4. Situation of the families <ul><li>Parents faced with: </li></ul><ul><li>Limited access in the society and cut-off from the social opportunities </li></ul><ul><li>Incapability to make contribution in the socio-economic development of the family either to their society </li></ul><ul><li>Lack of opportunities and inability to make choices </li></ul>
  5. 5. Parent’s movement <ul><li>Parent’s associations = join forces </li></ul><ul><li>Focus on the potential and abilities </li></ul><ul><li>Fight for new social justice, benefits of rehabilitation and new scientific overview </li></ul><ul><li>Change of the approach from </li></ul><ul><li>the institutional model of care </li></ul><ul><li>to the community based services </li></ul>
  6. 6. Planning challenges <ul><li>Responsibility of parent to </li></ul><ul><li>plan for their children </li></ul><ul><li>Role of the parent’s </li></ul><ul><li>associations on the local, </li></ul><ul><li>regional and national level </li></ul><ul><li>Planning of the impact on the legal system, system of services and provision of care </li></ul>
  7. 7. Different situations between the countries <ul><li>Western European Countries </li></ul><ul><li>Public awareness campaigns </li></ul><ul><li>Inclusive policies for integration </li></ul><ul><li>of persons with disabilities </li></ul><ul><li>Substantive knowledge about effective actions </li></ul><ul><li>Improvement of the education system, system of care and rehabilitation </li></ul>
  8. 8. Central and East Europe <ul><li>Situation in the Republic of Macedonia </li></ul><ul><li>Part of the Former Yugoslavia </li></ul><ul><li>(socialistic system of governance) </li></ul><ul><li>Minimized role of the NGOs </li></ul><ul><li>Since 1991, transition period </li></ul><ul><li>Reforms </li></ul>
  9. 9. Reforms and projects in R.Macedonia R epublic centre for support of persons with intellectual disability-PORAKA- <ul><li>1998 –2000 supported project by PHARE LIEN Program </li></ul><ul><li>10 units for the pre-school age children in 10 different communities, training of 20 parents/volunteer for the work in the units </li></ul><ul><li>Capacity building of the National organization and local branches </li></ul>
  10. 10. De-institutionalization Creation of alternative community based services <ul><li>Since 2000, program of Family support in prevention of institutionalization </li></ul><ul><li>and creation of alternative community based services for adults with intellectual disability </li></ul><ul><li>Clubs and counseling for the parents </li></ul><ul><li>5 Day Centers for adolescents and adults </li></ul><ul><li>Pre-conditions for creation of </li></ul><ul><li>small group home </li></ul>
  11. 11. Republic center for support of persons with intellectual disability-PORAKA- <ul><li>National Level </li></ul><ul><li>National Council of Organizations of Persons with Disabilities </li></ul><ul><li>National Coordinative Body for the rights of persons with disabilities in R.Macedonia </li></ul><ul><li>International level </li></ul><ul><li>Member of Inclusion Europe </li></ul><ul><li>Member of Inclusion International </li></ul><ul><li>Member of European Association of Service Providers for Persons with Disabilities (EASPD) </li></ul>
  12. 12. Advancing the Human Rights of People with Intellectual Disability in Civil Society 2000 - 2003 <ul><li>Partner organization </li></ul><ul><li>in the Project </li></ul><ul><li>Country report </li></ul><ul><li>Support and straighten </li></ul><ul><li>the capacity of the </li></ul><ul><li>national organization and </li></ul><ul><li>local branches </li></ul>
  13. 13. National Awareness Campaign for the Support of Persons with intellectual disability in R.Macedonia <ul><li>Headline: Don’t test only your intelligence, </li></ul><ul><li>TEST YOUR HUMANITY!!! </li></ul><ul><li>Primary target group: </li></ul><ul><li>- public/all citizens </li></ul><ul><li>2. Secondary target group: </li></ul><ul><li>-Authorities and policy makers </li></ul>
  14. 14. Communication’s aim of the Campaign <ul><li>Braking prejudice and discrimination </li></ul><ul><li>Building positive image about the needs and abilities of persons with intellectual disability </li></ul><ul><li>Change of the attitudes and differentiation between intellectual disability and mental illness </li></ul><ul><li>Creation of politics for equalization of the opportunity of the persons with intellectual disability </li></ul>
  15. 15. Target areas of the Campaign <ul><li>Income maintenance and social security </li></ul><ul><li>Education for all and </li></ul><ul><li>possibilities for employment </li></ul><ul><li>Health care and rehabilitation </li></ul><ul><li>De-institutionalization and provision of alternative community based service </li></ul>
  16. 16. Collaboration and Support <ul><li>Campaign organized by the Republic center for support of persons with intellectual disability- PORAKA , supported by the Ministry of Labor and Social Policy, Ministry of Education and Science and Ministry of Health </li></ul><ul><li>Positive sign  Government </li></ul><ul><li>become more open for </li></ul><ul><li>the collaboration with </li></ul><ul><li>the NGO sector </li></ul>
  17. 17. Partnership <ul><li>For the successful development of the program and successful results the most important step </li></ul><ul><li>COLLABORATION and COORDINATION between the governmental bodies/institutions and non-governmental organizations/parents associations </li></ul>
  18. 18. UN Convention for the rights of persons with disabilities <ul><li>Signature  Ratification = Obligation </li></ul><ul><li>Instrument for improvement of the rights in all aspects of life </li></ul>