Navigating the Rough Waters of Caregiving


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Navigating the Rough Waters of Caregiving

  1. 1. Navigating the Rough Watersof Family CaregivingPresented By: Donna Benton, Ph.D.
  2. 2. Who is a Caregiver? Definition: Anyone who cares for and givesunpaid support to a family member, friend, orneighbor who is frail, ill, or disabled and wholives at home or in a care facility.
  3. 3. Further Classifications of Caregivers Non – Working Caregivers Working Caregivers Long Distance Caregivers
  4. 4. Caregiver Statistics Family caregivers in the United States: Nearly one out of every four U.S. households isinvolved in care to persons aged 50 or over. 25.8 million family caregivers provide personalassistance to adults (aged 18+) with a disability orchronic illness. More than 7 million spouses, adult children, otherrelatives, and friends or neighbors provide unpaidhelp to disabled older adults living in thecommunity.(Family Caregiver Alliance, 2003)
  5. 5. Who Are the Caregivers? 85% of all home care is provided by family membersand friends. 71% of all long-term care is provided in thecommunity. 14% of home care is rendered by paidproviders. 72% of caregivers are female.(Family Caregiver Alliance, 2003)
  6. 6. Long Distance Caregiving Definition: Caregivers who travel a distance ofone hour or more to care for older adult needingassistance. Nearly 7 million Americans are long-distancecaregivers for older relatives. The average travel time for these caregivers toreach their relatives is 4 hours.
  7. 7. Strains of Caregivers 25% of care receivers need to be lifted, movedwhich often results in muscle strain/back pain. 16% of caregivers indicate that their health hasworsened since becoming a caregiver. 46% are clinically depressed. 2 to 3 times more likely to use prescription drugsfor anxiety, depression, insomnia. 80% of working caregivers report emotionalstrain.
  8. 8. Introduction to CommunityCare Options The challenges of caregiving can be overwhelming forthe friends and family of someone with an illness. Caregivers are responsible for a variety of care needs(examples: physical, household chores, long-termcare planning, and providing emotional support andother daily needs). There are resources in your community to help youwith the care of your loved one.
  9. 9. Assessing Your Needs: Make a list of your needs and problems as theyhappen so you know what kind of help you need.
  10. 10. Assess Your Situation: What is the friend’s or family member’s level offunctioning? What type of help does my loved one need to live asindependently as possible? How much money is available to pay for outsideresources? Will my insurance cover any of these services? What days and times do I need help? What assistance can I provide myself? What types of help are my friends and family memberswilling to provide? What specific types of help are still needed?
  11. 11. Contacting Community Resources: Start looking for information before yoursituation becomes overwhelming. Write down all the information you are given.Obtain the name of the agency, person you spokewith, date of your conversation, servicesrequested, services promised and any agreed-upon information. When you call be prepared with information ofthe medical doctor’s name, diagnosticinformation, insurance coverage and Medicare,Medi-Cal, and Social Security Numbers (whenrelevant).
  12. 12. Contacting Community Resources(Continued): With agencies, be assertive and specific aboutyour needs. Mornings are usually the best time to call. Do not hang up until you understand the follow-up procedures. Be aware that you might be placed on a wait list.Demand for services has increased while fundingfor many service programs has decreased. Don’t hesitate to ask for help.
  13. 13. Community Care Options Available: Informal Care family & friends who help with specific task,emotional support and activities Information & Referral (I & R) Helps identify what resources exist Case Management Services Provides assistance in locating/managing services foron-going needs Transportation Services Trips to and from medical appointments, dayprograms and other services
  14. 14. Community Care Options Available: Nutrition Programs Congregate meal programs & Meals-on-Wheels Programs Home Care Combines health care/supportive services to homebound people Respite Care Relief for family friends so they can take a break Umbrella term for adult day care, home care and facilities. Adult Day Care Community-Based Adult Services (CBAS) Adult Day Health Care Support Groups Brings together persons to meet, share information and talk aboutsolutions to common problems
  15. 15. Further Care . . . . . Many caregivers continue providing care beyondtheir physical and emotional capacity beforeconsidering long-term placement for theirimpaired relative. Yet moving to a residential facility may be theonly way to relieve the caregiver.
  16. 16. Issuesmay signal theneed to consider for . . . .Out-of-Home Care Options Caregiver providesfor around-the clockcare (or supervision). Caregivers health isgreatly affected. Caregiver suffer fromexhaustion, stress,fear, isolation. Your relative wandersaway from home. Your relative cannotcomplete theiractivities of dailyliving (ADLs). Your relative receivesno rehabilitation athome.
  17. 17. Types of Facilities Include: Assisted Living Facilities (ALFs) For individuals who are independent and desire privacy (Apartment-style living) Skilled Nursing Facilities (SNF) For individuals who require extensive care. Continued nursingservices under an RN or LVN Retirement Communities Offer a range of living options from independent living to SNFs. Alzheimer’s Care Facilities/Units For individuals with Alzheimer’s Disease/Dementia. Emphasis onindependent with secured grounds
  18. 18. Information & Referral (I & R) Help identify what resources exists. For example, the local Caregiver ResourceCenter, Area Agency on Aging (AAA),Senior Centers are a few organizations. Point of entry to housing, food, and adultday care programs.
  19. 19. Case Management Services Provide assistance in locating and managingservices for ongoing needs. Case managers usually have a background incounseling, social work, or related health carefield. Case managers may help determine eligibility forentitlement programs, plan for long-term careand intervene in crisis situations.
  20. 20. Respite Care Definition: Relief for family and friends so theycan take a break from the demands of providingconstant care. Respite care includes adult day care andhome care services, as well as, overnightstays in a facility, and can be provided fora few hours a week or for a weekend.
  21. 21. Adult Day Care Offers participants time to socialize, enjoy peersupport and receive health & social services. Provides a break for caregivers responsible forperson. Services may include:care & supervision; group & individual activities;nutritious meals; transportation; case management;recreation & exercise; nursing care; education; counseling;assistance with activities of daily living; and therapy(OT,ST, PT).
  22. 22. Adult Day Care (Continued)Types of Adult Day Care:Adult Day Social Care: provides social activities,meals, recreation and some health-relatedservices.Adult Day Health Care: offers more intensivehealth, therapeutic & social services forindividuals with severe medical programs andthose at risk of requiring nursing home care.
  23. 23. Support Groups Brings together persons to meet, shareinformation and talk about solutions to commonproblems. Source of information on available resources. Opportunity to give and receive encouragement,understanding, and support from others whohave similar concerns. Knowledge that person is not alone. Groups are held at hospitals and disease-specificsupport organizations.
  24. 24. Home Care Combines health care and supportiveservices to help homebound individuals ordisabled persons. Hours, types or services and level of carevary due to the needs of the person. Aides can be located through personalreferrals or at a private home healthagency, hospital, public health departmentor other community organizations Costs is dependent on level of care needed.
  25. 25. Home Care (Continued)For homebound individuals in need of skillednursing, a plan of treatment is prescribed by amedical doctor or other health care professional. Professional home care workers may include:nurses, social workers, speech pathologists,therapists (PT, OT, ST), and dieticians. These professionals can assist with medical care,personal care, and nutrition.
  26. 26. Home Care (Continued)For persons with dementia, intensive nursing careis not usually needed unless there are additionalmedical problems. A Homemaker, Chore Worker, or Home HealthAide to help for a few hours a day or week toassist.
  27. 27. Transportation Services Trips to and from medical appointments,day programs, and other services. Volunteer drivers, bus, taxi, or speciallyequipped van services. Generally requested in advance and on aregular schedule to go to weeklyappointments. There is usually a fee for riding.
  28. 28. Nutrition ProgramsCongregate Meal Programs:Provide mealsusually lunchin a group setting. Many churches,synagogues, housingprojects, senior centers,community centers, andday programs offermeals. Minimal fee for services.Meals-on-Wheels Programs:Provides homebound individuals who areunable to shop for or prepare theirown meals. Various groups providesthis and it may be fundedpartially withgovernment money or bycharitable groups. Delivered on weekdays. Nominal fee for services.
  29. 29. Questions