Mom lived with me from 2007 to2009. I was a remote caregiver forher remaining two years as shelived independently.1963 1964 19811970 1972 1978 1983 1985 1998 2000 2007 2009DaughterSon (me)Son*BAMA MAEdD2011RIPHeartFailureBipolarDisorderCOPDLungCancer 1LungCancer 2BreastCancerSmall BowelCancerLiver Cancer(terminal)Tubal Ligation*
What Caregiving Means for CaregiversCaregiving reduces work time impacting short and long-term incomeSource: Gallup July 2011 - http://www.gallup.com/poll/148670/caregiving-costs-economy-billion-lost-productivity.aspxof caregivers say providingcare keeps them from workingmoreof caregivers miss 1-5 days ofwork per year due to caregivingresponsibilitiesof caregivers miss 6+ days ofwork per year due to caregivingresponsibilitiesAverage DaysMissed Per Year
Caregiving Trips 2005 – 2007Mom Living IndependentlyBrother SisterMomMeOut-of-Pocket CostsSister: ~$2,000Me: ~$600Brother: ~$200Two TripsDays of Work MissedSister: ~8Me: ~2Brother: ~1Daryl
Caregiving Trips 2007 – 2009Mom Living with MeBrother SisterMomMeOut-of-Pocket CostsMe: ~$15,000Sister: ~$100Brother: ~$100Two TripsDays of Work MissedMe: ~10Sister: ~0Brother: ~0
Caregiving Trips 2009 – 2011Mom Living IndependentlyBrother SisterMomMeOut-of-Pocket CostsMe: ~$8,000Sister: ~$2,500Brother: ~$1,000Two TripsDays of Work MissedMe: ~6Sister: ~6Brother: ~3Daryl
Social Caregiving: Multiple PlatformsComputerTablet Smartphone
Social Caregiving: How?• Engage in Social Caregiving• Access everyone using multiple technologies• Organize• Connect• Involve!
Social Caregiving: Organize• Choose an e-platform to organize information –preferably all in one place– Calendar– Appointment Book– To-Do List– Medication List– Emergency List– Journal– Friends• Make sure you can access your e-platform fromanywhere
Social Caregiving: Connect• Get people who will help on thesame communications platform• Enter all organized informationinto that integratedcommunications platform• Make sure everyone gets themessages so you know when youmake a request for help, othersare receiving it
Social Caregiving: Involve!• Ask for help!• Now that you have others involved, let themhelp you. Don’t be bashful, afraid, orprideful. These people are thereunconditionally• Help them help you. Make sure the requestyou’re making is clear and concise. Pictureshelp. Even record your instructions forothers so they hear your voice.• Create a list of third-party providers who canhelp if you or your family/friends networkcan’t– Transportation, adult daycare, home care,respite services, etc.
Real-World: How Would Social Caregiving Help?• Mom can’t remember doctor’s instructions• Haven’t visited mom in a while• Can’t get to the pharmacy to pick up meds• Mom is not taking medication—but not telling anyone• You’re remote and mom needs help• Haven’t heard from mom in a few hours and not pickingup the phone
David S. Williams IIICo-Founder and CEOInvolveCare™www.involvecare.comThank You!