1.
What Happens When You Combine…
Patient
Engagement
Company
Participatory
Mobile
Design Health
Research Study
Approach
Kevin A. Clauson
Dana M. Lewis
Boris Glants

2.
Mobile
Health
Study
Kevin A. Clauson, PharmD
@kevinclauson

3.
Resolving
Medication
Issues for
Non-adherence in
Diabetes

4.
Help our patients with type 2 diabetes put themselves
in a better position to manage their disease

5.
Target low-
hanging fruit

6.
oot
causes of
medication
non-
adherence
forgetfulness

7.
The most
ubiquitous
device
on the planet

8.
Textus interruptus
Retrevo Gadgetology Report 2010

9.
Adhere to me.
Not the other way around.

10.
The most accessible
healthcare professional

11.
Actual patient perspective
Means to engage patients
Missing pieces of the puzzle

12.
Groups in the
ReMIND study
N=162

13.
The control group does not
receive any short message service (SMS)
(aka text messages)

14.
The passive group receives
unidirectional SMS (uSMS)

15.
The active group participates via
bidirectional SMS (bSMS)

16.
Measuring our outcomes of interest
 Knowledge of disease
 Health literacy
 Engagement
 Medication adherence
 Clinical marker

17.
RESEARCH STUDY FOR PATIENTS WITH DIABETES
Nova Southeastern University is conducting
research to see if texting can help people
remember to take their diabetes medicine
Who can participate?
If you are an adult diagnosed with
type 2 diabetes mellitus and:
 Read English
 Take diabetic medications by
mouth or injection (like insulin)
 Own a cell phone that can send and
receive text messages
What would I receive if I
was in the research study?
 Free blood glucose (Hemoglobin
A1C) testing
 $20 worth of Publix gift cards
If you are interested in learning more about this 6 month study, please
contact Dr. Kevin Clauson at 754-300-TEXT (8398)

18.
Lessons learned
1. Impact of involvement of
patient on front end on
ethics/IRB/IC
2. Research participants
versus research subjects
3. Technology has potential
to reduce clinician and
patient burden
IRB=institutional review board, IC= informed consent

19.
Participatory Design Approach
(Integrating a patient perspective)
@DanaMLewis

20.
Patient perspective: snapshots

21.
(Other background: @DanaMLewis)
#hcsm

22.
Approached to
participate…..

23.
“Non-compliant diabetic”

24.
The future is
bright for
participatory
design

25.
The elephant in the room (the patient)

26.
Researchers: remember
patients are new to this.

27.
Lessons Learned
1. As patients,
we have a
valuable role,
but it is
different.
2. Don’t let
yourself be
inhibited from
fully
participating
in the design
process.

28.
Patient Engagement Company
@BorisGlants

29.
What is Tonic?

30.
Role in ReMIND Study
 Engage the patient
 Simplify data
collection
 Easily extract
insights

31.
The Art of Engaging Patients
 Contextually relevant
images boost
understanding and
meaning
 Patients can’t wait to
see what we are
going to ask them
next

32.
The Art of Engaging Patients
Only serve up one
question per page
to sharpen
respondent focus

33.
The Art of Engaging Patients
Increase perceived
— and actual —
speed by providing
robust skip logic
and broad range of
“tapable” answer
constructs (rather
than free text)

34.
A picture is worth… 40% more data
Boris Glants

35.
Lessons Learned
1. Engagement is iterative
2. There are many
opportunities to
leverage patient
engagement
technology in research

36.
It’s time to work
together to
improve patient
outcomes

37.
Acknowledgments
Alexandra Perez, PharmD
Goar Alvarez, PharmD
Naushira Pandya, MD
Joshua Caballero, PharmD
Andrea Fass, PharmD
Sydney Kchao, PharmDCand

38.
Images
• http://www.flickr.com/photos/santheo/5074032126/sizes/o/
• http://anewscafe.com/wp-content/uploads/2009/10/root-1.jpg
• http://2.bp.blogspot.com/-H51sJ8-jkP0/TyLXw-UWRBI/AAAAAAAABRY/_ZtBLF296No/s1600/ROOTS.jpg
• http://memotext.com
• http://www.flickr.com/photos/jimsawthat/4682146054/sizes/o/
• http://www.friendship-quotes.info/wp-content/uploads/2010/05/1_-_Gotham.jpg
Images without citations are
licensed and/or rights are held
by the presenter

39.
Questions?
Kevin Clauson, PharmD
clauson@nova.edu
@kevinclauson
www.CCHIR.org
Dana M. Lewis
@danamlewis
www.swedish.org
Boris Glants
boris@tonicforhealth.com
www.tonicforhealth.com