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What happens when you combine the participatory design research approach and a patient engagement company for a mHealth study?

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What happens when you combine the participatory design research approach and a patient engagement company for a mHealth study?

  1. 1. What Happens When You Combine… Patient Engagement Company Participatory Mobile Design Health Research Study Approach Kevin A. Clauson Dana M. Lewis Boris Glants
  2. 2. Mobile Health Study Kevin A. Clauson, PharmD @kevinclauson
  3. 3. Resolving Medication Issues for Non-adherence in Diabetes
  4. 4. Help our patients with type 2 diabetes put themselves in a better position to manage their disease
  5. 5. Target low- hanging fruit
  6. 6. oot causes of medication non- adherence forgetfulness
  7. 7. The most ubiquitous device on the planet
  8. 8. Textus interruptus Retrevo Gadgetology Report 2010
  9. 9. Adhere to me. Not the other way around.
  10. 10. The most accessible healthcare professional
  11. 11. Actual patient perspective Means to engage patients Missing pieces of the puzzle
  12. 12. Groups in the ReMIND study N=162
  13. 13. The control group does not receive any short message service (SMS) (aka text messages)
  14. 14. The passive group receives unidirectional SMS (uSMS)
  15. 15. The active group participates via bidirectional SMS (bSMS)
  16. 16. Measuring our outcomes of interest  Knowledge of disease  Health literacy  Engagement  Medication adherence  Clinical marker
  17. 17. RESEARCH STUDY FOR PATIENTS WITH DIABETES Nova Southeastern University is conducting research to see if texting can help people remember to take their diabetes medicine Who can participate? If you are an adult diagnosed with type 2 diabetes mellitus and:  Read English  Take diabetic medications by mouth or injection (like insulin)  Own a cell phone that can send and receive text messages What would I receive if I was in the research study?  Free blood glucose (Hemoglobin A1C) testing  $20 worth of Publix gift cards If you are interested in learning more about this 6 month study, please contact Dr. Kevin Clauson at 754-300-TEXT (8398)
  18. 18. Lessons learned 1. Impact of involvement of patient on front end on ethics/IRB/IC 2. Research participants versus research subjects 3. Technology has potential to reduce clinician and patient burden IRB=institutional review board, IC= informed consent
  19. 19. Participatory Design Approach (Integrating a patient perspective) @DanaMLewis
  20. 20. Patient perspective: snapshots
  21. 21. (Other background: @DanaMLewis) #hcsm
  22. 22. Approached to participate…..
  23. 23. “Non-compliant diabetic”
  24. 24. The future is bright for participatory design
  25. 25. The elephant in the room (the patient)
  26. 26. Researchers: remember patients are new to this.
  27. 27. Lessons Learned 1. As patients, we have a valuable role, but it is different. 2. Don’t let yourself be inhibited from fully participating in the design process.
  28. 28. Patient Engagement Company @BorisGlants
  29. 29. What is Tonic?
  30. 30. Role in ReMIND Study  Engage the patient  Simplify data collection  Easily extract insights
  31. 31. The Art of Engaging Patients  Contextually relevant images boost understanding and meaning  Patients can’t wait to see what we are going to ask them next
  32. 32. The Art of Engaging Patients Only serve up one question per page to sharpen respondent focus
  33. 33. The Art of Engaging Patients Increase perceived — and actual — speed by providing robust skip logic and broad range of “tapable” answer constructs (rather than free text)
  34. 34. A picture is worth… 40% more data Boris Glants
  35. 35. Lessons Learned 1. Engagement is iterative 2. There are many opportunities to leverage patient engagement technology in research
  36. 36. It’s time to work together to improve patient outcomes
  37. 37. Acknowledgments Alexandra Perez, PharmD Goar Alvarez, PharmD Naushira Pandya, MD Joshua Caballero, PharmD Andrea Fass, PharmD Sydney Kchao, PharmDCand
  38. 38. Images • • • • • • Images without citations are licensed and/or rights are held by the presenter
  39. 39. Questions? Kevin Clauson, PharmD @kevinclauson Dana M. Lewis @danamlewis Boris Glants