What Happens When You Combine…                       Patient                     Engagement                      Company  ...
MobileHealthStudy         Kevin A. Clauson, PharmD              @kevinclauson
ResolvingMedicationIssues forNon-adherence inDiabetes
Help our patients with type 2 diabetes put themselves     in a better position to manage their disease
Target low-hanging fruit
oot                 causes of                medication                   non-                adherenceforgetfulness
The mostubiquitous   deviceon the planet
Textus interruptus                     Retrevo Gadgetology Report 2010
Adhere to me.Not the other way around.
The most accessiblehealthcare professional
Actual patient perspective  Means to engage patientsMissing pieces of the puzzle
Groups in theReMIND study        N=162
The control group does notreceive any short message service (SMS)              (aka text messages)
The passive group receivesunidirectional SMS (uSMS)
The active group participates via   bidirectional SMS (bSMS)
Measuring our outcomes of interest   Knowledge of disease   Health literacy   Engagement   Medication adherence   Cli...
RESEARCH STUDY FOR PATIENTS WITH DIABETES                             Nova Southeastern University is conducting          ...
Lessons learned 1. Impact of involvement of    patient on front end on    ethics/IRB/IC 2. Research participants    versus...
Participatory Design Approach    (Integrating a patient perspective)             @DanaMLewis
Patient perspective: snapshots
(Other background: @DanaMLewis)#hcsm
Approached toparticipate…..
“Non-compliant diabetic”
The future is bright forparticipatory   design
The elephant in the room (the patient)
Researchers: rememberpatients are new to this.
Lessons Learned 1. As patients,    we have a valuable role,     but it is    different.   2. Don’t let   yourself be inhib...
Patient Engagement Company           @BorisGlants
What is Tonic?
Role in ReMIND Study    Engage the patient    Simplify data     collection    Easily extract     insights
The Art of Engaging Patients Contextually relevant  images boost  understanding and  meaning Patients can’t wait to  see...
The Art of Engaging PatientsOnly serve up onequestion per pageto sharpenrespondent focus
The Art of Engaging PatientsIncrease perceived— and actual —speed by providingrobust skip logicand broad range of“tapable”...
A picture is worth… 40% more data                Boris Glants
Lessons Learned1. Engagement is iterative2. There are many   opportunities to   leverage patient   engagement   technology...
It’s time to work    together to improve patient     outcomes
Acknowledgments  Alexandra Perez, PharmD  Goar Alvarez, PharmD  Naushira Pandya, MD  Joshua Caballero, PharmD  Andrea Fass...
Images•   http://www.flickr.com/photos/santheo/5074032126/sizes/o/•   http://anewscafe.com/wp-content/uploads/2009/10/root...
Questions? Kevin Clauson, PharmD   clauson@nova.edu     @kevinclauson    www.CCHIR.org      Dana M. Lewis      @danamlewis...
What happens when you combine the participatory design research approach and a patient engagement company for a mHealth st...
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What happens when you combine the participatory design research approach and a patient engagement company for a mHealth study?

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Panel of @KevinClauson, @DanaMLewis, and @BorisGlants from Stanford Medicine X 2012: http://medicinex.stanford.edu/clauson-abstract/

Published in: Health & Medicine

What happens when you combine the participatory design research approach and a patient engagement company for a mHealth study?

  1. 1. What Happens When You Combine… Patient Engagement Company Participatory Mobile Design Health Research Study Approach Kevin A. Clauson Dana M. Lewis Boris Glants
  2. 2. MobileHealthStudy Kevin A. Clauson, PharmD @kevinclauson
  3. 3. ResolvingMedicationIssues forNon-adherence inDiabetes
  4. 4. Help our patients with type 2 diabetes put themselves in a better position to manage their disease
  5. 5. Target low-hanging fruit
  6. 6. oot causes of medication non- adherenceforgetfulness
  7. 7. The mostubiquitous deviceon the planet
  8. 8. Textus interruptus Retrevo Gadgetology Report 2010
  9. 9. Adhere to me.Not the other way around.
  10. 10. The most accessiblehealthcare professional
  11. 11. Actual patient perspective Means to engage patientsMissing pieces of the puzzle
  12. 12. Groups in theReMIND study N=162
  13. 13. The control group does notreceive any short message service (SMS) (aka text messages)
  14. 14. The passive group receivesunidirectional SMS (uSMS)
  15. 15. The active group participates via bidirectional SMS (bSMS)
  16. 16. Measuring our outcomes of interest  Knowledge of disease  Health literacy  Engagement  Medication adherence  Clinical marker
  17. 17. RESEARCH STUDY FOR PATIENTS WITH DIABETES Nova Southeastern University is conducting research to see if texting can help people remember to take their diabetes medicine Who can participate? If you are an adult diagnosed with type 2 diabetes mellitus and:  Read English  Take diabetic medications by mouth or injection (like insulin)  Own a cell phone that can send and receive text messages What would I receive if I was in the research study?  Free blood glucose (Hemoglobin A1C) testing  $20 worth of Publix gift cards If you are interested in learning more about this 6 month study, please contact Dr. Kevin Clauson at 754-300-TEXT (8398)
  18. 18. Lessons learned 1. Impact of involvement of patient on front end on ethics/IRB/IC 2. Research participants versus research subjects 3. Technology has potential to reduce clinician and patient burden IRB=institutional review board, IC= informed consent
  19. 19. Participatory Design Approach (Integrating a patient perspective) @DanaMLewis
  20. 20. Patient perspective: snapshots
  21. 21. (Other background: @DanaMLewis)#hcsm
  22. 22. Approached toparticipate…..
  23. 23. “Non-compliant diabetic”
  24. 24. The future is bright forparticipatory design
  25. 25. The elephant in the room (the patient)
  26. 26. Researchers: rememberpatients are new to this.
  27. 27. Lessons Learned 1. As patients, we have a valuable role, but it is different. 2. Don’t let yourself be inhibited from fully participating in the design process.
  28. 28. Patient Engagement Company @BorisGlants
  29. 29. What is Tonic?
  30. 30. Role in ReMIND Study  Engage the patient  Simplify data collection  Easily extract insights
  31. 31. The Art of Engaging Patients Contextually relevant images boost understanding and meaning Patients can’t wait to see what we are going to ask them next
  32. 32. The Art of Engaging PatientsOnly serve up onequestion per pageto sharpenrespondent focus
  33. 33. The Art of Engaging PatientsIncrease perceived— and actual —speed by providingrobust skip logicand broad range of“tapable” answerconstructs (ratherthan free text)
  34. 34. A picture is worth… 40% more data Boris Glants
  35. 35. Lessons Learned1. Engagement is iterative2. There are many opportunities to leverage patient engagement technology in research
  36. 36. It’s time to work together to improve patient outcomes
  37. 37. Acknowledgments Alexandra Perez, PharmD Goar Alvarez, PharmD Naushira Pandya, MD Joshua Caballero, PharmD Andrea Fass, PharmD Sydney Kchao, PharmDCand
  38. 38. Images• http://www.flickr.com/photos/santheo/5074032126/sizes/o/• http://anewscafe.com/wp-content/uploads/2009/10/root-1.jpg• http://2.bp.blogspot.com/-H51sJ8-jkP0/TyLXw-UWRBI/AAAAAAAABRY/_ZtBLF296No/s1600/ROOTS.jpg• http://memotext.com• http://www.flickr.com/photos/jimsawthat/4682146054/sizes/o/• http://www.friendship-quotes.info/wp-content/uploads/2010/05/1_-_Gotham.jpg Images without citations are licensed and/or rights are held by the presenter
  39. 39. Questions? Kevin Clauson, PharmD clauson@nova.edu @kevinclauson www.CCHIR.org Dana M. Lewis @danamlewis www.swedish.org Boris Glants boris@tonicforhealth.com www.tonicforhealth.com

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