Helping you to help me (slides)

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  • Helping you to help me (slides)

    1. 1. HELPING YOU TO HELP ME: EXPLORING SUPPORTIVE INTERACTION IN ONLINE HEALTH COMMUNITY ASIST 2010 | Pittsburgh, PA | October 24, 2010 Katherine Y. Chuang katychuang@drexel.edu Christopher C. Yang ccy24@drexel.edu Drexel University Department of Information Science and Technology 1
    2. 2. Online Health Social Networking “e-patients are looking for ‘just-in-time someone-like-me” health information” - Boase et al, 2006; Fox & Jones, 2009 *E-patient: internet user that is looking for health information “e-patients are looking for a sense of community” -Wright & Bell, 2003 41% read patient blog, health newsgroup, or health website 39% used social networking site 12% shared updates or viewed updates 2 Introduction
    3. 3. “Positive comments are observed between MySpace friends” -Thelwall & Wilkinson, 2010 3 Social Networking Site Features “Friending enables users to form and maintain connections” - Ahn et al, 2007 “Private and public messaging allow for interpersonal communication” - Thellwall & WIlkinson, 2010 “SNS users expect to gratify their social-emotional needs” - Rau et al, 2008 Introduction
    4. 4. Motivation for Study • What are the different levels of social support across different CMC formats? • Multiple CMC formats  each has different audience and usage • Forum for asking questions • Journals for recording experiences • Notes for keeping in touch 4 Introduction
    5. 5. Medhelp.org “connects people with the leading medical experts and others who have similar experiences” “helping patients find answers to their questions” “helping patients actively manage their health” •Founded in 1994 •Oldest online community •Pioneer of online health communities •10 mil monthly visitors 5 Introduction
    6. 6. Profile Page •Forum: Public Q&A •Journals: Diary Style •Notes: Profile Posts 6 Notes Forum Journal Introduction
    7. 7. The Study Research Question • What are the different levels of social support across different CMC formats? Objective • Study the patterns of social support exchanges of 3 CMC formats: • Forums, Journals, Notes Approach • Descriptive Content Analysis • Coding: social support types for each message 7 Introduction
    8. 8. Social Support Types Information: expressions that can directly help the situation Advice suggests actions to deal with situation Fact reassesses the situation and presents facts. Personal experience stories about person’s experiences or incidents as a way of presenting information. Opinion a view or judgment formed about something, not necessarily based on fact or knowledge Referral refers the recipient to a resource Nurturant: expressions that focus on comfort of recipient Esteem positive comments intended to praise support seekers abilities or to alleviate their feelings of guilt. Network messages to help support seeker from feeling alone. Emotional providing understanding of situation, express sorrow, provide with hope and confidence. 8 Methods: Coding
    9. 9. Medhelp Alcoholism Community Forums (n = 493) • [FP] 81 posts • [FC] 412 comments Journals (n = 423) • [JP] 88 posts • [JC] 335 comments Notes (n = 1180) 9 Methods: Data
    10. 10. Support Offered 84.9% 82.1% 73.9% 67.0% 16.0% 57.5% 51.9% 92.0% 85.2% 82.7% (n=1180) Notes (n=335) JC (n=88) JP (n=412) FC (n=81) FP Informational Nurturant 11 Informational > Nurturant Informational < Nurturant Divided btwn Posts & Comments Results
    11. 11. Support Requested 1.4% 4.2% 36.4% 6.3% 44.4% 20.0% 8.4% 13.6% 15.5% 72.8% (n=1180) Notes (n=335) JC (n=88) JP (n=412) FC (n=81) FP Informational Nurturant 13 Informational > Nurturant Divided btwn posts & comments Informational > Nurturant Results
    12. 12. Key Findings Forums • Used for exchanging information • Replies are more likely to request information but offer nurturant support. Journals • Used by journal keeper to document information and feelings • Posts implicitly request nurturant support. • Replies offer nurturant support. Notes • Used for keeping in touch, offering nurturant support • Seeks information, mostly of the form “how are you?” 14 Results
    13. 13. Part 2: Information Support in Forum 0.0% 12.4% 0.5% 1.9% 1.7% 4.9% 48.1% 1.2% 27.2% 16.0% Fact Personal Opinion Advice Referral Requested FP (n = 81) FC (n=412) 15 4.9% 64.8% 18.7% 32.5% 13.6% 0.0% 74.1% 33.3% 0.0% 0.0% Fact Personal Opinion Advice Referral Offered FP (n = 81) FC (n = 412) Results
    14. 14. Key Findings Forums • Used for exchanging information • Replies are more likely to request information but offer nurturant support. Journals • Used by journal keeper to document information and feelings • Posts implicitly request nurturant support. • Replies offer nurturant support. Notes • Used for keeping in touch, offering nurturant support • Seeks information, mostly of the form “how are you?” 16 Results Information Nurturant
    15. 15. Public vs. Personal Space Public Space = less intimate Discussion Forum Private Space = more intimate Journals & Notes 17 Discussion
    16. 16. Support Seeking Strategy • Disclose personal experience (info) to get support • Must be able to describe their problem • Gain a sympathetic ear • increases experience of intimacy • Self-therapy • Specific person instead of group 18 Discussion
    17. 17. Maintaining Relationships • Periodic, short interactions to keep in touch 19 Discussion
    18. 18. Insights • Supportive interactions will vary depending on space and strength of relationship • Forum = informational support > emotional support. • Journal & notes = emotional support > informational support. • Implications For Alcoholics: • Anonymity + Accessibility = Less Stigma • Peer communication can play a role in facilitating new health habits, i.e, quitting smoking (Ancker et al, 2009). 20 Discussion
    19. 19. Limitations • Data limited to those publicly available • Further work • Intercoder Reliability • Social Network Analysis (positional analysis) • Compare to generic SNS (i.e. Facebook) • Order of support exchanges • i.e. is support offered as result of a specific request? • Other variables • i.e. gender, culture, intimacy, audience, age, and stigma • Stage of information seeking process or phase of overcoming alcoholism 21 Discussion
    20. 20. THANK YOU! Katherine Y. Chuang katychuang@drexel.edu Christopher C. Yang ccy24@drexel.edu http://www.slideshare.net/katychuang/helping-you-to-help-me 22

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