Videoconferencing vs.  face-to-face meetings  in counseling  for rare disorders  Kari Hagen a,b,  Rolf Wynn a,c ,  Oddgeir...
What are rare disorders? <ul><li>Prevalence ≤1:10.000 </li></ul><ul><li>In total less than 500 patients in Norway per diso...
Frambu – Norwegian National Centre for Rare Disorders  <ul><li>Counseling on more than 100 rare disorders </li></ul><ul><l...
Two types of clinical conferences at Frambu
Typical videoconference room
Aim of the study To compare the two types of clinical conferences, videoconferencing vs. face-to-face meetings, in the amb...
Hypothesis <ul><li>Professionals and clients participating in videoconferences show the same degree of satisfaction with t...
How was the study conducted? <ul><li>724 participants in clinical conferences 2008-2010 </li></ul><ul><li>375 of the 724 p...
Who participated in the clinical consultations and answered the questionnaire? 1 VC = Videoconference 2 FtF = Face-to-face...
Questionnaire <ul><li>Two versions: clients and professionals </li></ul><ul><ul><li>Clients: on paper distributed by mail ...
12 items on user satisfaction and user activity  <ul><li>The atmosphere at the conference was relaxed </li></ul><ul><li>Fr...
Factor analysis <ul><li>I made  comments  and asked questions </li></ul><ul><li>I got  questions  and/or direct requests t...
Main results:  Same degree of satisfaction  in VC and FtF # No significant difference between videoconference and face to ...
Main result: Significant higher degree of user activity in FtF than VC *** p< 0.001compared to the VC User activity VC FtF...
Discussion <ul><li>User satisfaction was independent of modality and role </li></ul><ul><ul><li>The hypothesis is supporte...
Discussion <ul><li>Other factors probably explaining the lower activity on VC </li></ul><ul><ul><li>Unfamiliar situation <...
Conclusion: VC and FtF as equal modalities <ul><li>Participants in VC are satisfied </li></ul><ul><ul><li>Actively involve...
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ICCH 2011: Videoconferencing kari_hagen

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Videoconferencing vs face-to-face meeting in counseling for rare disorders

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ICCH 2011: Videoconferencing kari_hagen

  1. 1. Videoconferencing vs. face-to-face meetings in counseling for rare disorders Kari Hagen a,b, Rolf Wynn a,c , Oddgeir Friborg d,e a Telemedicine Research Group, Department of Clinical Medicine, Faculty of Health Sciences, University of Tromsø, Norway b Frambu Centre for Rare Disorders, Oslo, Norway c Division of Addiction and Specialized Psychiatry, University Hospital of North Norway, Tromsø, Norway d Department of Psychology, Faculty of Health Sciences, University of Tromsø, Norway e Psychiatric Research Centre of North Norway, University Hospital of North Norway, Tromsø, Norway
  2. 2. What are rare disorders? <ul><li>Prevalence ≤1:10.000 </li></ul><ul><li>In total less than 500 patients in Norway per disorder </li></ul><ul><li>Complex and special needs from different services </li></ul>
  3. 3. Frambu – Norwegian National Centre for Rare Disorders <ul><li>Counseling on more than 100 rare disorders </li></ul><ul><li>Familiy courses </li></ul><ul><li>Summercamps </li></ul><ul><li>Multidisciplinary ambulatory clinical conferences </li></ul>
  4. 4. Two types of clinical conferences at Frambu
  5. 5. Typical videoconference room
  6. 6. Aim of the study To compare the two types of clinical conferences, videoconferencing vs. face-to-face meetings, in the ambulatory consulting service regarding the participants’ satisfaction
  7. 7. Hypothesis <ul><li>Professionals and clients participating in videoconferences show the same degree of satisfaction with the meeting as those participating in face to face clinical conferences </li></ul>
  8. 8. How was the study conducted? <ul><li>724 participants in clinical conferences 2008-2010 </li></ul><ul><li>375 of the 724 partcipants answered a questionnaire (51.8%) </li></ul><ul><li>Factor analysis, comparative analyses </li></ul><ul><ul><li>Methods </li></ul></ul><ul><ul><li>Analyses </li></ul></ul><ul><ul><li>Material </li></ul></ul>
  9. 9. Who participated in the clinical consultations and answered the questionnaire? 1 VC = Videoconference 2 FtF = Face-to-face meeting 3 Clients ( N = 122) were mainly parents (72 mothers, 41 fathers, 2 clients, 7 other relatives). Informants VC 1 FtF 2 Σ Clients 3 27 95 122 Local professionals 79 151 230 Professionals from Frambu 16 7 23 Sum 122 253 375
  10. 10. Questionnaire <ul><li>Two versions: clients and professionals </li></ul><ul><ul><li>Clients: on paper distributed by mail </li></ul></ul><ul><ul><li>Professionals: electronic questionnaire </li></ul></ul><ul><li>35 items totally </li></ul><ul><li>12 items on user satisfaction and user activity </li></ul><ul><li>5 point Likert scale </li></ul>
  11. 11. 12 items on user satisfaction and user activity <ul><li>The atmosphere at the conference was relaxed </li></ul><ul><li>Frambu’s professional contribution did not live up to my expectations (Reversed) </li></ul><ul><li>More professionals from Frambu should have participated (Reversed) </li></ul><ul><li>Frambu’s professionals contributed to solving the tasks we wanted </li></ul><ul><li>The role of Frambu at the conference was unclear to me (Reversed) </li></ul><ul><li>I made comments and asked questions </li></ul><ul><li>I got questions and/or direct requests that I replayed to </li></ul><ul><li>The service providers from the Municipality and from Frambu cooperated well at the conference </li></ul><ul><li>We had a good dialogue at the meeting </li></ul><ul><li>I felt uncomfortable (Reversed) </li></ul><ul><li>The break(s) contributed to valuable talks </li></ul><ul><li>I am satisfied with the benefit of the conference </li></ul><ul><li>The atmosphere at the conference was relaxed </li></ul><ul><li>Frambu’s professional contribution did not live up to my expectations (Reversed) </li></ul><ul><li>More professionals from Frambu should have participated (Reversed) </li></ul><ul><li>Frambu’s professionals contributed to solving the tasks we wanted </li></ul><ul><li>The role of Frambu at the conference was unclear to me (Reversed) </li></ul><ul><li>I made comments and asked questions </li></ul><ul><li>I got questions and/or direct requests that I replayed to </li></ul><ul><li>The service providers from the Municipality and from Frambu cooperated well at the conference </li></ul><ul><li>We had a good dialogue at the meeting </li></ul><ul><li>I felt uncomfortable (Reversed) </li></ul><ul><li>The break (s) contributed to valuable talks </li></ul><ul><li>I am satisfied with the benefit of the conference </li></ul>
  12. 12. Factor analysis <ul><li>I made comments and asked questions </li></ul><ul><li>I got questions and/or direct requests that I replayed to </li></ul>User satisfaction User activity
  13. 13. Main results: Same degree of satisfaction in VC and FtF # No significant difference between videoconference and face to face conference User satisfaction VC FtF Number of participants (N) 94 224 Mean score 4.4 4.3 # SD 0.5 0.6
  14. 14. Main result: Significant higher degree of user activity in FtF than VC *** p< 0.001compared to the VC User activity VC FtF Number of participants (N) 103 249 Mean score 3.7 4.2*** SD 1.3 1.0
  15. 15. Discussion <ul><li>User satisfaction was independent of modality and role </li></ul><ul><ul><li>The hypothesis is supported </li></ul></ul><ul><li>User activity was influenced by modality </li></ul>
  16. 16. Discussion <ul><li>Other factors probably explaining the lower activity on VC </li></ul><ul><ul><li>Unfamiliar situation </li></ul></ul><ul><ul><li>Meeting structure & turn-taking </li></ul></ul><ul><ul><li>Training </li></ul></ul><ul><li>More professionals from the centre present in VC than FtF </li></ul>
  17. 17. Conclusion: VC and FtF as equal modalities <ul><li>Participants in VC are satisfied </li></ul><ul><ul><li>Actively involve local professionals </li></ul></ul><ul><li>Support & training </li></ul><ul><ul><li>Technical support </li></ul></ul><ul><ul><li>Communication skills </li></ul></ul><ul><ul><li>Educational program </li></ul></ul>
  18. 18. [email_address]

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