The Plymouth Laryngectomy Club (PLC) A Charitable Support Group for Plymouth Cancer Laryngectomees The Voice of PLC July - August 2011 Address: c/o 80 Warleigh Avenue, PLYMOUTH, PL2 1DH, Devon, UK Mobile: 07745819828 (text only) Email: firstname.lastname@example.org Website: http://plymouthlc.webs.com FOREWORD BY THE SECRETARY GREETINGS! Written by Geoffrey N. ReadDear Friends & Supporters! N EW Friends & Members. New Friend. Mr. Alan PEACEY has become a Friend of PLC. Alan is a British Laryngectomee living in Norway. FurtherTed, our Chair, welcomed everyone to our July 2011 Meeting details are shown on our website. Please also read theand thanked them all Members for attending. Ted then 1 2 Letters to the Editor!explained that Maggie and Julia had agreed to run our ClubMeetings until further notice and that this had been accepted New Member. We welcomed Ms. Rosemarie STEPHENSby the Committee (Ted, Geoff & Jean). who was attending her first PLC Meeting, and also her guest, Dave. Rosemarie showed some photographs relating to theUlla ROHRBECK from HEIMOMED UK was our Guest Speaker Alzheimer’s Charity that she is involved with.who gave us a Talk about the products made by herCompany. Julia thanked Ulla on behalf of us all, not just forher presentation but also for the donation of a decorativemug towards our Raffle Prizes!We should like to thank our newest member, Rosemarie, forvery kindly providing a tray of tasty pastries for oursustenance during the meeting!Further details of our meeting are explained later in this B EST Wishes to the Secretary of PLC, Geoff READ, for th his birthday on Sunday, 10 July 2011.Newsletter.Best Wishes M ANY Happy Returns to Ms. Rosmarie STEPHENS for th her Birthday on Saturday, 16 July 2011. Rosemarie is a full Member of PLC. Happy Birthday Rosemarie!Geoff And finally...12 Clinical Specialist Nurse, ENT, Derriford Hospital. Speech & language Therapist, ENT, Derriford Hospital. H APPY Anniversary to Christine th and Jim REID for Sunday, 10 July 2011. Congratulations to you both! EDITORIAL COMMENTI NTERNET Links. If you’re reading this on-line and come across words with blue lettering that are underlined,then you can click on these links and be taken directly to THE PLC JUNE 2011 MEETINGanother site for more information on that particular topic.Put your cursor over the link, hold down the Control (Ctrl) Oth UR July 2011 Meeting took place at the Mustard Tree Cancer Support Center at Derriford Hospital on Monday, 4 July 2011 at 11 a.m. There were 13 individuals inKey and click! Ed. attendance including three Friends and one Guests. The Plymouth Laryngectomy Club (PLC) is an Affiliated Member of: The National Association of Laryngectomy Clubs (NALC) In Association with Macmillan Cancer Support Registered Charity Number: 273635 Our Funder: Macmillan Cancer Support A Member of The Plymouth Third Sector Consortium (PTSC) Patrons & Medical Advisors : Mr. W.M. BRIDGER, FRCS - Consultant ENT Surgeon, Mr. Tass MALIK, BSc FRCS (Gen), FRCS (ORL H&N) - Consultant Otolaryngologist, Head & Neck / Thyroid Surgeon, Derriford Hospital, Plymouth.
C OMMITTEE Meetings. The Committee (that’s Ted, Geoff and Jean) are well overdue a meeting.Meetings are usually held fairly frequently in an attempt to R st AFFLE. Ted ran the July 2011 Raffle and the results were: 1 Prize: Ron: Tin of Biscuits.resolve matters prior to monthly Club Meetings. nd 2 Prize: Ron: But he put it back!However, Geoff has had difficulties talking lately so it’s Julia: 4-piece set of Drinking Mugs.been necessary to put things on hold for a little while. A rdmeeting will be called as soon as Geoff is able to talk! 3 Prize: Rosemarie: Heroes Chocolates th 4 Prize: Percy: Tin of Biscuits.E NTERTAINMENTS Member. Organising our meetings and social events is taking up more and more of Geoff’stime. At our June 2011 Meeting, Members agreed that the th 5 Prize: th Maggie: Jar of Coffee (which Maggie promptly donated to the Tree!). 6 Prize: Eileen: Decorative Mug (kindly donatedCommittee should have a fourth member: An Entertainments by Ulla of HEIMOMED UK).Member to organise the Club’s social diary. No volunteerswere forthcoming at the June or July 2011 Meetings so Ron will therefore provide the prize for the August Raffle!Members were asked to give this some thought!F UNDING. Geoff will be making a bid to various funds in the near future. However, before making a bid Geoff will S UPPORTING Role of the Club. After receiving advice from Maggie who explained the Confidentiality Rules, Members agreed that the onus should be on individual Clubneed to know specifically what the Club needs the funds for. Members to let the medical authorities (the Ward Staff,This might include the cost of printing our Newsletters, Maggie or Julia) know if they would like to receive a visit fromPostage, etc. Or it could be to fund a special trip perhaps, another Club Member should they have occasion to be in ansuch as our Christmas Dinner or a Pantomime? Or it might be in-patient at Derriford Hospital. Alternatively, let another ofto finance our proposed Goody Bags. No specific suggestions our Club Members know! It’s up to YOU!were forthcoming at the May, June or July 2011 Meetings.Geoff needs Members to make some suggestions at theAugust 2011 Meeting so do please give this some thought! In T REASURER’S Report. Jean reported that she was holding £48.30 and the remainder was held in our Bank Account. The accounts are open to view by any Clubthe meantime, Geoff has applied for a Setting-up Grant fromthe National Association of Laryngectomee Clubs (NALC). Member at any time on application to Jean.G OODY Bags. The Speak Easy Club in Cornwall have given us this idea and supplied us with information on what is THE PLC FORECAST OF EVENTSincluded. This topic was mentioned very briefly at the July2011 Meeting and Members agreed to it some furtherconsideration at the August 2011 Meeting and to think about C ALENDAR of Events. A copy of the Club’s Calendar of Events, including Future Entertainments for the next 12 months or so, is available on our Club’s website. Please keepthe cost. This would be a delightful project for one of our yourselves up-to-date by taking an occasional peek!Members to take on. Interested? Please contact Geoff! A st UGUST 2011 PLC Meeting. Monday, 1 August 2011: The PLC Club Meeting starts at the Mustard TreeM EMBERSHIP Status. Our current Membership Status is shown in the table below: Cancer Support Centre at 11 a.m.. There will be a Talk by our Guest Speaker, Miles WILLIAMS from Platon Medical. POSTAL EMAIL TOTAL S thConfirmed Members: 9 8 17 EPTEMBER 2011. Monday, 5 September 2011: TheProspective Members: 0 0 0 PLC Club Annual General Meeting starts at the MustardConfirmed Friends: 8 20 28 Tree Cancer Support Centre at 11 a.m. After the meetingProspective Friends 0 3 3 there’ll be a Talk by our Guest Speaker, Charles HANDLEYTOTALS: 17 31 38 from Countrywide Supplies Ltd. S th EPTEMBER 2011. Wednesday, 14 September2011:P RESCRIPTION items. Maggie explained that all medical supplies obtained from Countrywide Supplies Ltd.,Heimomed UK or elsewhere, were prescription items and as The Speak Easy Club in Cornwall has made a booking th for Wednesday, 14 September 2011 at Devoran, near Truro for a Soup & Sandwich lunch and have invited PLCsuch were budgeted for from each local GP’s purse. Patients Members to join them. Members of the Speak Easy Clubmust be registered with their local Allied Health Professional will arrange to meet anyone travelling by train or bus at(for our Club Members, this would normally be Maggie or Truro. Anyone wishing to attend should notify Geoff asJulia) before ordering anything from any company. Julia soon as possible. The last date for names will be Monday,stated that Base Plates from Platon Medical Supplies Ltd. st 1 August 2011 (the August 2011Meeting).were professionally preferred.Patients should never order a different item just to try it! Butshould always consult with Maggie or Julia prior to orderinganything different. If in doubt, always consult Maggie or Julia S EPTEMBER 2011. MINI-BUS Trip. Ted will be organising a mini-bus trip from Plymouth to Dartmeet for a Cream Tea sometime in September 2011. Rosemarie and Davefirst. said they could book a mini-bus on favourable terms which could carry up to 14 passengers. Please book your place with Ted now to avoid disappointment! Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only) or email: email@example.com, or go to PLC website at http://plymouthlc.webs.com 2
O th CTOBER 2011: Friday, 7 October 2011: Laryngectomee LETTERS TO THE EDITOR Study Day. This event is still in the planning stages andis being organised by Julia and Maggie. Please make a note Dear Geoff,of this event in your diaries as we have cancelled our normalOctober 2011 Club Meeting! I should be grateful if you would relay the following message to the Members, Friends and Supporters of PLC:N th OVEMBER 2011: Monday, 7 November 2011: John MCKENNA of Colebrook Housing Carers has kindly I’ve just joined the Plymouth Laryngectomy Club as a Friend.accepted our invitation to be our Guest Speaker. I am an ex-British serviceman living in Oslo, Norway and am now employed as a long-distance truck-driver. I had my laryngectomy in February 2010 but as I’m a young LIFTS TO THE HOSPITAL man of 50 I must continue working until I am 67 years young!B RITISH Red Cross in Plymouth. Remember what was said about possibly being able to get a lift to DerrifordHospital for an operation? I tried it and was informed that I use a Provox Prosthesis and have done since the operation. My laryngectomy was not the result of cancer so I didnt haveit’s only for out-patients and the infirm! I duly informed the radio or chemo therapy. However the full laryngectomySister on Erme Ward who seemed somewhat surprised! Oh operation was the same as for cancer patients!well! I would be very happy to hear from anyone who wishes to communicate via email.Submitted by Geoffrey N. READ Regards, Alan D PEACEY PENINSULAR CANCER NETWORK firstname.lastname@example.orgP ENINSULAR Cancer Network (PCN) Allied Health Professional (AHP) Rehabilitation Group. Geoff READattended a meeting at the PCN Offices at Dartington on Editorial Note: Alan has sent us the story of his operation and this is available on our website. Ed. thThursday, 30 June 2011 as a Plymouth Patient. JuliaPOCKETT was also in attendance as an AHP. The next meeting st NEWS & CURRENT EVENTSis scheduled for Thursday, 1 December 2011. If anyoneshould wish to have further details then do please contact DISCLAIMER Please note that the views and opinions expressed in this section areGeoff. not necessarily those held by the PLC Committee nor its Members. THE HEAD & NECK CANCER GROUP OF HEREFORD & WORCESTER F UNDRAISING Chief Sian Boosts Cancer Support Team. This article was published in the Plymouth Herald on th Monday, 20 June 2011:T HIS Group has kindly sent PLC a copy of their published book entitled Soups & Puddings. Geoff is passing a copy ofthis book around to Members on a loan basis. If anyone MACMILLAN Cancer Support has named the newest member of its local team. Sian HARRIS has become the Fundraising Manager forwishes to have a copy of their own they can purchase one Plymouth, North Devon & the Tamar Valley. Leaving her postfrom for a suggested minimum donation of £2. Funds raised in Gloucestershire, Sian has moved back to the area she saidcontribute towards productions costs of the booklet and to she came to know and love while studying for a degree inthe treatment of patients at the Head & Neck Cancer Unit, social policy at the University of Plymouth.Beech Ward, Worcestershire Royal Hospital. Please contact Suzie WARREN, Area Fundraising Manager for Devon &Geoff for further information. Cornwall, said: "Sian is a valuable and welcome addition to our team, particularly during this, our double anniversary year. Macmillan Cancer Support is celebrating the centenary THE SPEAK EASY CLUB CORNWALL st of its founding and the 21 birthday of its Worlds Biggest thN EWSLETTER. Geoff has received the June 2011 st edition of their newsletter on Tuesday, 21 June 2011 Coffee Morning event on Friday, 30 September 2011."and emailed it out to those Members who are on-line.Those not on-line can ask Geoff for a hard copy. G ARDEN Concert. The Memory Conservatory welcomes you all to an Open Air Garden Concert with the City of Plymouth Concert Band at Chaplins Superstore in Plymouth rd from 2 until 5 p.m. on Saturday, 23 July 2011. The price includes a Cream Tea with Langage Farm Clotted Cream, Tea, Coffee and Soft Drinks. Bumper Raffle Tickets will be on sale The Memory Conservatory is a self-funded group at £1 each. for Alzheimers disease sufferers who meet at Please book your tickets by telephoning (01752) 344923 or Chaplins Superstore in Plympton. you can pick up tickets on the day at the gate. → They have created a garden enabling sufferers and carers to enjoy the open air, and activities such as singing old time songs and dancing. Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only) or email: email@example.com, or go to PLC website at http://plymouthlc.webs.com 3
I WONT LET Cancer Destroy My Appetite For Life: Bon viveur Danny BAKER is hauntingly candid on earningmillions and living on handouts. ACKNOWLEDGMENTThere was a two-page spreadpublished in the Daily Mail by Our grateful thanks to :Simon HATTENSTONE on Saturday, th18 June 2011:What would be the cruelest trick toplay on a man who talks for a livingand loves his food?Its nine months since Danny THE PLYMOUTH DIOCESEBAKER was diagnosed with cancer http://www.plymouth-diocese.org.uk/of the mouth and throat. His fansknew something was up... therewere replacement presenters on his for their assistancesix BBC radio slots each week for starters. But he never in reproducing copiesannounced what exactly was wrong. After all, Bakers never of this newsletter.been big on self-pity.You can read the complete article by clicking on this link. And, just for those who may not be aware... Laryngectomy is the removal of the larynx and separation of the airway from the mouth, nose and oesophagus. The Laryngectomee breaths through the neck, a stoma. It is done in the cases of laryngeal cancer. However, many laryngeal cancer cases are now treated only with radiation and chemotherapy, or other laser procedures, and Laryngectomy is performed when those treatments fail to conserve the larynx.The Plymouth Laryngectomy Club If you’re a Laryngectomee you would be most welcome to come along on your own or with (PLC) your partner and / or Carer. is a Charitable Support Group. Come join us! PLC aims to offer support and care to the laryngectomees Our Members and Friends meet on and their carers and families. the first Monday of every month. PLC also encourages understanding Do please see our website and support by the public. for further details. Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only) or email: firstname.lastname@example.org, or go to PLC website at http://plymouthlc.webs.com 4