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Derick Mitchell Biomarkapd 11092013

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A JPND presentation with emphasis on the JPND Communication Guidelines

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Derick Mitchell Biomarkapd 11092013

  1. 1. EU Joint Programme - Neurodegenerative Disease Research (JPND) Coordinating approaches to research across Europe Derick Mitchell Communications Executive, JPND 13/09/2013
  2. 2. We cannot tackle neurodegenerative diseases by acting as single countries Albania Austria Belgium Canada Croatia Czech Republic Denmark Finland France Germany Greece Hungary Ireland Israel Italy Luxembourg Netherlands Norway Poland Portugal Slovakia Slovenia Spain Sweden Switzerland Turkey United Kingdom JPND is a global research initiative led by EU countries, with 27 participating EU member states Associated countries Third countries increasing coordination of national research programmes to improve impact and effectiveness
  3. 3. JPND brings together…. • Researchers (Basic, Clinical, Healthcare/Social) • National Funding Bodies • National Research Strategies and Investments • Current JPND strategy: • To increase coordinated investment in ND research aimed at finding causes of disease, developing cures, and identifying appropriate ways to care for those with neurodegenerative diseases • Immediate JPND goals: • To add value to national investments through coordinated action • To encourage the development of national research strategies in ND • To engage in partnership to reach the full potential of JPND
  4. 4. JPND currently partly-supported by FP7-JUMPAHEAD (GA. 260774) Management Board 27 countries represented Members mandated to act Chair Philippe Amouyel - France Executive Board Vice-Chair Adriana Maggi - Italy Enda Connolly - Ireland Edvard Beem - Netherlands Mogens Horder - Denmark Scientific Advisory Board 18 Members Chosen for scientific excellence, competence Organisation Steering Committee Executive Board + Rob Buckle - UK Rainer Girgenrath - Germany Melike Sevimli - Turkey
  5. 5. European Research Landscape • Greatest amount of funds are available through national government budgets: • 2011 Total ND Research Funding: 1.621 Billion • Basic research: 1.362 Billion • Clinical research: 183 Million • Healthcare/Social Research: 76 Million • JPND Research Strategy Goals • To develop new treatments and preventive strategies • To improve health and social care approaches • To raise awareness and de-stigmatise neurodegenerative disorders • To alleviate the economic and social burden of these diseases Alzheimer’s disease and other dementias (AD) Parkinson’s disease (PD) and PD-related disorders Prion disease Motor neurone diseases (MND) Huntington’s disease (HD) Spinocerebellar ataxia (SCA) Spinal muscular atrophy (SMA)
  6. 6. How can JPND reach its goals? • Alignment of research in Member Countries • Partnership with European Commission • Partnership with Industry • Partnership with other international organisations • Involvement of Patients and Public
  7. 7. JPND Actions to date • Common European Strategy • Phase I Implementation (2012-2014) • Transnational Calls • Alignment Actions • National Plans and Strategies • Communication + Dissemination
  8. 8. Alignment Actions • Action Groups have begun in priority areas: • Longitudinal Cohort Studies • Animal and Cell Models • Assisted Living Technologies • Palliative Care • Patient and Public Involvement in Research
  9. 9. The Next Challenges • To continue implementation beyond phase I • To partner with the European Commission • To partner with Industry • To ensure JPND sustainability
  10. 10. Dissemination and Communication Guidelines
  11. 11. JPND Acknowledgement • To reference JPND on any scientific report or publication as part of a JPND-supported project This is an EU Joint Programme - Neurodegenerative Disease Research (JPND) project. The project is supported through the following funding organisations under the aegis of JPND - www.jpnd.eu (list of national/regional organisations who are funding the project, by country, in alphabetical order)
  12. 12. BIOMARKAPD • Canada, Canadian Institutes of Health Research • Denmark, Danish Council for Strategic Research • Finland, Academy of Finland • France, French National Research Agency • Germany, Bundesministerium für Bildung und Forschung • Greece, Ministry of Education, Life Long Learning & Religious Affairs • Ireland, Health Research Board • Italy, Italian Ministry of Health • Luxembourg, Fonds National de la Recherche • Netherlands, The Netherlands Organisation for Health Research and Development • Norway, The Research Council of Norway • Poland, Ministry of Science and Higher Education • Portugal, Foundation for Science and Technology • Slovakia, Ministry of Education, Science, Research and Sport • Slovenia, Ministry of Higher Education, Science and Technology • Spain, Instituto de Salud Carlos III • Sweden, Swedish Research Council • Switzerland, Swiss National Science Foundation • Turkey, The Scientific & Technological Research Council of Turkey
  13. 13. Standard Text • To reference JPND and describe its work • non-scientific publications, press releases, websites • The EU Joint Programme – Neurodegenerative Disease Research (JPND) is the largest global research initiative aimed at tackling the challenge of neurodegenerative diseases. JPND aims to increase coordinated investment between participating countries in research aimed at finding causes, developing cures, and identifying appropriate ways to care for those with neurodegenerative diseases - www.jpnd.eu
  14. 14. Translated versions • Hrvatski / Croatian • Italiano / Italian • Ceský / Czech • Norske / Norwegian • Dansk / Danish • Polsk / Polish • Nederlands / Dutch • Português / Portuguese • Suomi / Finnish • Slovensky / Slovak • Français / French • Slovenski / Slovenian • Deutsch / German • Español / Spanish • ελληνικά / Greek • Svenska / Swedish • Türkçe / Turkish
  15. 15. Online Tools
  16. 16. Keep up to date • Visit the JPND website: • http://www.neurodegenerationresearch.eu • http://www.jpnd.eu • Search our Mapping Database • Sign up to the JPND News Feeds • E-mail us: secretariat@jpnd.eu dmitchell@hrb.ie • Follow us on Twitter: @JPNDEurope

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