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Participatory Design, the "Making of Health", and the Future of Diabetes Technology

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We hacked the 2014 Diabetes Technology Meeting! A presentation by John Costik, Adrien de Croy, Weston Nordgren II, The Nightscout community, and Joyce Lee, MD, MPH, Doctor as Designer. John has the video; we will embed when it's available.

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Participatory Design, the "Making of Health", and the Future of Diabetes Technology

  1. 1. Participatory Design, the “Making” of Health, and the Future of Diabetes Technology John Costik, Adrien de Croy, Weston Nordgren II, The Nightscout community, Joyce Lee, MD, MPH, Doctor as Designer
  2. 2. Co-director-Mott Mobile Technology for Enhancing Health Social Media Editor, JAMA Pediatrics Healthdesignby.us
  3. 3. The promise of mobile health has yet to be realized Hard to !nd Too many Uncertain Quality Uncertain Bene!t Lack of link to provider Lack information on security/data Eng DS, Lee JM. The Promise and Peril of Mobile Health Applications for Diabetes and Endocrinology. Pediatric Diabetes 2013: 14: 231–238.
  4. 4. @joyclee
  5. 5. https://medium.com/@joyclee
  6. 6. 75% of children fail to achieve recommended blood sugar goals in Type 1 Diabetes Diabetes through the eyes of healthcare
  7. 7. But is it really their fault? Look at this series of #design #fails
  8. 8. What do those buttons mean & why are they so hard to press?
  9. 9. Why are the menus all different and confusing? A green screen? Really?
  10. 10. Why does your doctor ask you to keep a paper logbook? To practice your penmanship?
  11. 11. Hi-tech #dataviz in the clinic! Circles for highs, triangles for lows?
  12. 12. Which cord? A desktop software program? No cloud connectivity? Really?
  13. 13. #waiting
  14. 14. #waiting
  15. 15. How many different data displays are there for all the different meters/pumps?
  16. 16. Not so helpful? Not so Interactive? Not so useful?
  17. 17. Oh and the devices don’t talk to each other, so many caregivers still use paper for communication
  18. 18. Don’t forget to fax BS to your MD and wait for a rotary phone call! Kid: “Mom, what’s a fax? Is it compatible with Snapchat?”
  19. 19. “Design was at fault, not the operators” -Don Norman http://bit.ly/1xcgR4Z
  20. 20. http://bit.ly/1wIvdc6
  21. 21. 75% of health care providers/systems fail to help children achieve recommended blood sugar goals in Type 1 Diabetes Diabetes through the eyes of a designer
  22. 22. Patient problems are really design problems Joyce Lee Medical Designer
  23. 23. Fix the design, and it’s no longer the patient’s problem Joyce Lee Medical Designer
  24. 24. Let patients and caregivers design, and they will !x the problem! The Nightscout Project
  25. 25. But we have to overcome the #cultureofhealthcare which says:
  26. 26. “D!"#$r%&'(e)*+, & d-./0c!123n4567 a-5'8h9:;<p9=#>,? N@A'BaC*;Dt%”
  27. 27. “OEFG0c9=#Hf45I0h9JK8h/ iELM>t-N'Br!O;>s4PQ3l%: sRPMSd?T;0c-5U8iEV' d4JW,t9X'8eYZQ$l!VG”
  28. 28. “D!"#$t%& t%'()o*+,- i. c/012e3 B4 t50 d6'78r & c69:;n< F=> t50 p?@A$nB”
  29. 29. Have you guys heard about the Nightscout Project?
  30. 30. http://on.wsj.com/1zFbT1I
  31. 31. Patient as expert maker collaborator #thefutureofdiabetestechnology
  32. 32. Patient as expert http://bit.ly/10IUyph
  33. 33. Patient as maker
  34. 34. http://bit.ly/1qyPESH Patient as collaborator
  35. 35. John Costik Adrien de Croy Weston Nordgren II
  36. 36. John Costik Adrien de Croy Weston Nordgren II
  37. 37. #currentdiabetestechinnovation MD to Patient Passive Solitary
  38. 38. #futurediabetestechinnovation Patient to Patient Active Collaborative
  39. 39. THANK YOU John Costik Adrien de Croy Weston Nordgren II The Nightscout/#doc community David Klonoff Twitter: @NightscoutProj FB: CGM in the Cloud #wearenotwaiting

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