Web 2.0 / Social Media


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Presentation for the Board of Directors of the National Marfan Foundation introducing the importance of social media in the overall communications strategy.

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Web 2.0 / Social Media

  1. 1. Web 2.0Making the Connection
  2. 2. Whattayatalkinabout? Define Web 2.0 Examples Benefits Implications Next Steps
  3. 3. 39 million adults say theyturn to the Internet firstfor answers to theirhealth questionsWow!--Manhattan Research Healthcare Marketing Firm
  4. 4. Recent Study:The Future of the Internet in Health Care Future trends: Consumer Health Information Services Online Support Groups for Patients and Caregivers Health Care Provider Information ServicesThe Future of the Internet in Health Care: A Five-Year ForecastMary Cain and Robert Mittman This summary appears in the report The Future of the Internet: AFive-Year Forecast, written for the California HealthCare Foundation.The full report can be found on the Foundation web site at: http://www.chcf.org/documents/intreport.pdf
  5. 5. More, Gimme MORE! Internet Before Information source Internet Today Information source Support system Community builder Advocacy tool More…People are looking to the internetto satisfy more of their needs
  6. 6. Today, NMF Website Offers Consumer Health Info Healthcare Provider Info “Ask a Question” Contact info for Chapters, Support Groups,Network Groups, and Telephone Contacts Opportunities to Donate, Join, Volunteer
  7. 7. Web 2.0The Next GenerationMaking the Connection
  8. 8. What is Web 2.0, anyway? Web 2.0 refers to a perceived secondgeneration of web-based services thatemphasize online collaboration and sharingamong users.-- O’Reilly Media, 2004
  9. 9. What is Web 2.0, anyway? It IS NOT a type of software or hardware It is a concept of how new network andservice sites are being used by people tomake connections and share information
  10. 10. Huh? Social Networking Facilitated online connections based on sharedinterests MySpace Friendster Facebook
  11. 11. Huh? Blogs Chronological online diary Blogger LiveJournal
  12. 12. Huh? Wikis A website or similar online resource which allowsusers to add and edit content collectively. “Wikiwiki” means "rapidly" in the Hawaiian language. Wikipedia Marfan Wiki
  13. 13. Huh? File Sharing Central Online location where people can sharefiles YouTube (video) Flickr (photos) Del.icio.us (social bookmarking)
  14. 14. Huh? Bulletin Boards Online information resources where individualsmay post information that is of interest to others.Virtual communities often form around bulletinboard systems (BBS). Although bulletin boardsexisted on systems that preceded the WorldWide Web, most are now Web-based.
  15. 15. Huh? Chat A virtual room where people can communicate inreal time while on the Internet AOL MSN
  16. 16. What’s in it for us? Web 2.0 connects Us to our posse Our peeps to each other Other people to us
  17. 17. In other words… Web 2.0 offers opportunities to Educate our members Facilitate peer connections Bring the public to us
  18. 18. Our vision of Web 2.0 for the NMF Create a “Teen Space” Online support groups Bulletin Boards Chat Ask a doctor Staff/Board blogs Join social networks to boost traffic to NMF site Advocacy page linking NMF members to their representatives Increased use of web for event registration Podcasts The options are endless…
  19. 19. But is it in our Strategic Plan??? Absolutely! 1 - Early and correct diagnosis 2 - Proper treatment 4 - Increase size and scope of research 5 - Improve non-medical services 6 - Stronger advocacy to government 8 - NMF is preeminent information source 10 - 50 State Network 15 - Effective technology
  20. 20. I like it. Are we ready? Yes Redesigned website Information and servicesto share People to share it with Vision No Website upgradeneeded Functionality Navigation Moolah!
  21. 21. Let’s do it! Now what?Not so fast!We need to: Ensure we are ready to make the ongoingcommitment for consistent and timely updates Create participation guidelines and policies Determine how it will be moderated