Well Spouse AssociationVirtual Support Group     Participant Feedback       May 22, 2011
Virtual Support Group PlanFirst-ever VSG (for Well Spouse or anyone)Agenda  Introductions  Speaker (Viki Kind, bioethicist...
Virtual Support Group ResultsDurationDuration: 1 hour, 52 minutes (nearly 2x plan)   DRegistered participants: 36 (includi...
Survey Question Summary1. Presentation: how useful?         7. Other feedback?2. Presentation length OK?           8. How ...
Summary Feedback              100% said very or extremely likely               Extremely   Very   Somewhat   Not very   No...
Interested in Local Support Group?            Yes          No         Not sure                                    94% = ye...
Viki Kind’s Presentation    How useful was it?          Not at all   Somewhat   Fairly    Very   Extremely                ...
Viki Kind’s Presentation   How was the length?             Too short         Just right          Too long                 ...
Feedback for Viki KindNo, I think the presentation was good--I just wanted more small group timeSave questions for the end...
VSG Breakout Session   How helpful was it?          Not at all   Somewhat    Fairly     Very    Extremely                 ...
VSG Breakout Session   How was the length?             Too short   Just right    Too long                                 ...
Reported Technical Issues              Yes         No         Not sure                                     58% = yes or   ...
Feedback for BreakoutsGiving the participants an extra few (say 10? withmoderator delineation?) moments to get in the rhyt...
Feedback for BreakoutsWe need an experienced SG facilitator in each room tospark conversation. We need more time for peopl...
Feedback for BreakoutsContinue to tell the groups not to be shy and forindividuals to speak up. We need to almost err on t...
Participant ConclusionsHaving the video aspect added would                                                    Extremely   ...
Participant ConclusionsI think it would work better if the twoparts were held at separate times. People              Extre...
Participant ConclusionsAllow more time for the small group               Extremely     Verydiscussion; the administrator o...
Participant ConclusionsAllow more time for the small group               Extremely     Verydiscussion; the administrator o...
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Caregivers Hungry for Virtual Support Group

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The Empowered Caregiver Network (http://bit.ly/iLoVia) on May 22, 2011, hosted the first ever Virtual Support Group for members of the Well Spouse Association (http://bit.ly/jH3YUn) on May 22, 2011. This feedback from 29 caregivers clearly indicates overwhelming demand for additional support by family caregivers. With the population aging, family caregivers number an estimated 44 million in the US alone.

The Empowered Caregiver Network is sponsoring monthly Virtual Support Groups and facilitating creation of support groups at the local level.

Published in: Health & Medicine, Education
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  • Caregivers Hungry for Virtual Support Group

    1. 1. Well Spouse AssociationVirtual Support Group Participant Feedback May 22, 2011
    2. 2. Virtual Support Group PlanFirst-ever VSG (for Well Spouse or anyone)Agenda Introductions Speaker (Viki Kind, bioethicist, re denial) VSG (breakout sessions of 5 people each) ClosingScheduled duration: 1 hour
    3. 3. Virtual Support Group ResultsDurationDuration: 1 hour, 52 minutes (nearly 2x plan) DRegistered participants: 36 (including WSA)Attendees: 26 (72%!)Maximum at any one time: 22Attendees at end of call: 18 (82% WOW!)Attendees at end of call: 18 (82% WOW!)
    4. 4. Survey Question Summary1. Presentation: how useful? 7. Other feedback?2. Presentation length OK? 8. How inclined would you be to:3. Comments for speaker? 8.1.Participate again?4. Breakout usefulness? 8.2.Encourage others?5. Technical issues in breakouts? 9. Interest in LOCAL support group?6. Breakout length OK? Survey responses: n=14/26 (54%)
    5. 5. Summary Feedback 100% said very or extremely likely Extremely Very Somewhat Not very Not at allHow inclined to: Come again Recommend 0% 25% 50% 75% 100%n=13/14
    6. 6. Interested in Local Support Group? Yes No Not sure 94% = yes or 25% not sure 8% 67%n=12/14
    7. 7. Viki Kind’s Presentation How useful was it? Not at all Somewhat Fairly Very Extremely 86% said very 14% or extremely useful 43% 43%n=14/14
    8. 8. Viki Kind’s Presentation How was the length? Too short Just right Too long 8% 46% said too long 46% 46%n=13/14
    9. 9. Feedback for Viki KindNo, I think the presentation was good--I just wanted more small group timeSave questions for the end of her talk - the questions were interruptive and off-tracking.I think we need to have separate calls for Webinars and Support Group Meetings.Viki did a wonderful presentationThe reason I felt Vikis presentation was too short was because I felt she hadincredibly useful information and I would have loved to her more. She came across asa very compassionate soul- excellent presentationNeeded to be directed specifically to spousal caregivers, rather than all caregivers.
    10. 10. VSG Breakout Session How helpful was it? Not at all Somewhat Fairly Very Extremely 40% said very 10% 10% or extremely useful 30% 40% 10%n=10/14
    11. 11. VSG Breakout Session How was the length? Too short Just right Too long 100% said too short 100%n=11/14
    12. 12. Reported Technical Issues Yes No Not sure 58% = yes or 25% not sure 33% 42%n=10/14
    13. 13. Feedback for BreakoutsGiving the participants an extra few (say 10? withmoderator delineation?) moments to get in the rhythm ofhow a teleconference works would be helpful.During the "next" Virtual Support Group conference whena larger number of Well Spouses and Former Well Spousesregister and the breakout support groups thus have morepeople they will be much more useful. The idea for them isgreat.Have wss post what topics they would like in the break outrooms sometime prior to the conference call.
    14. 14. Feedback for BreakoutsWe need an experienced SG facilitator in each room tospark conversation. We need more time for people to talkthrough open microphones. WSA Support Groupsshould be limited to WSA Forum/Supporting membersonly. Guests from other caregiving areas are welcome toattend WEBINARS but the safety of well spousemembers must be protected.
    15. 15. Feedback for BreakoutsContinue to tell the groups not to be shy and forindividuals to speak up. We need to almost err on theside of talking over each other so we can get throughintroductions and move on to things of substance. Therewas no time to discuss anything of value this first timearound, but it was good to hear our voices, where wewere from, and such! Very cool! I have relatively highhopes for this, but realize that its hard to do this over thephone without having the visual cues of who wants tospeak and such.
    16. 16. Participant ConclusionsHaving the video aspect added would Extremely Veryhelp. The quality of the call was great--I could hear people well without Somewhat Not veryinterference and I got right into the Not at allconference when I called. Thanks! 70%Perhaps have a pre-announced topic.Perhaps let us linger on the issues we 52.5%find the more interesting. Ex: I neededto think about and discuss the firstpoint about delivering/receiving bad 35%dx. The topic of denial versus disbeliefwas very helpful. If we could be linked 17.5%to a keypad, we could save your time byhaving typed questions, then we givereal voice to them. Thank you for all 0%your effort in making or first a great Come again Recommendsuccess
    17. 17. Participant ConclusionsI think it would work better if the twoparts were held at separate times. People Extremely Verycould sign up for a presentation and Q&A Somewhat Not verysession with an expert, and sign up for a Not at allseparate peer support session at anothertime. This way each component would 70%have sufficient time to give us the mostvalue. Thank you for facilitating this, Jay.What a wonderful service to well spouses! 52.5%It might have been useful for attendees to 35%understand the breakdown of timeinvolved in the presentation vs. the timein breakout groups. The information 17.5%given prior did not make that clear.Having a presentation at the beginningdoes focus individuals on a group 0%discussion topic, but our group barely got Come again Recommendpast introductions before time elapsed.
    18. 18. Participant ConclusionsAllow more time for the small group Extremely Verydiscussion; the administrator of the Somewhat Not verycall should choose one person in each Not at allgroup to be the group leader, just sosomeone could keep things running 70%smoothly, rather than everyonewondering who should speak when. 52.5%I can only stress that our members 35%feel safe because we all walk the samepath. Spousal caregivers discuss thingsthat most of the general population, 17.5%including other family caregivers,might find offensive or questionableWSA SGs must remain WSA SGs 0%and not include other caregivers. Come again Recommend
    19. 19. Participant ConclusionsAllow more time for the small group Extremely Verydiscussion; the administrator of the Somewhat Not verycall should choose one person in each Not at allgroup to be the group leader, just sosomeone could keep things running 70%smoothly, rather than everyonewondering who should speak when. 52.5%I can only stress that our members 35%feel safe because we all walk the samepath. Spousal caregivers discuss thingsthat most of the general population, 17.5%including other family caregivers,might find offensive or questionableWSA SGs must remain WSA SGs 0%and not include other caregivers. Come again Recommend

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