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Comunicación, alfabetización y empoderamiento del paciente

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Presentación correspondiente a la jornada "Comunicant Salut" con motivo del número 100 de la revista "Viure en Salut", celebrada el 4 de diciembre de 2014

Published in: Health & Medicine
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  • DOWNLOAD THAT BOOKS INTO AVAILABLE FORMAT (2019 Update) ......................................................................................................................... ......................................................................................................................... Download Full PDF EBOOK here { http://bit.ly/2m6jJ5M } ......................................................................................................................... Download Full EPUB Ebook here { http://bit.ly/2m6jJ5M } ......................................................................................................................... Download Full doc Ebook here { http://bit.ly/2m6jJ5M } ......................................................................................................................... Download PDF EBOOK here { http://bit.ly/2m6jJ5M } ......................................................................................................................... Download EPUB Ebook here { http://bit.ly/2m6jJ5M } ......................................................................................................................... Download doc Ebook here { http://bit.ly/2m6jJ5M } ......................................................................................................................... ......................................................................................................................... ................................................................................................................................... eBook is an electronic version of a traditional print book that can be read by using a personal computer or by using an eBook reader. (An eBook reader can be a software application for use on a computer such as Microsoft's free Reader application, or a book-sized computer that is used solely as a reading device such as Nuvomedia's Rocket eBook.) Users can purchase an eBook on diskette or CD, but the most popular method of getting an eBook is to purchase a downloadable file of the eBook (or other reading material) from a Web site (such as Barnes and Noble) to be read from the user's computer or reading device. Generally, an eBook can be downloaded in five minutes or less ......................................................................................................................... .............. Browse by Genre Available eBooks .............................................................................................................................. Art, Biography, Business, Chick Lit, Children's, Christian, Classics, Comics, Contemporary, Cookbooks, Manga, Memoir, Music, Mystery, Non Fiction, Paranormal, Philosophy, Poetry, Psychology, Religion, Romance, Science, Science Fiction, Self Help, Suspense, Spirituality, Sports, Thriller, Travel, Young Adult, Crime, Ebooks, Fantasy, Fiction, Graphic Novels, Historical Fiction, History, Horror, Humor And Comedy, ......................................................................................................................... ......................................................................................................................... .....BEST SELLER FOR EBOOK RECOMMEND............................................................. ......................................................................................................................... Blowout: Corrupted Democracy, Rogue State Russia, and the Richest, Most Destructive Industry on Earth,-- The Ride of a Lifetime: Lessons Learned from 15 Years as CEO of the Walt Disney Company,-- Call Sign Chaos: Learning to Lead,-- StrengthsFinder 2.0,-- Stillness Is the Key,-- She Said: Breaking the Sexual Harassment Story That Helped Ignite a Movement,-- Atomic Habits: An Easy & Proven Way to Build Good Habits & Break Bad Ones,-- Everything Is Figureoutable,-- What It Takes: Lessons in the Pursuit of Excellence,-- Rich Dad Poor Dad: What the Rich Teach Their Kids About Money That the Poor and Middle Class Do Not!,-- The Total Money Makeover: Classic Edition: A Proven Plan for Financial Fitness,-- Shut Up and Listen!: Hard Business Truths that Will Help You Succeed, ......................................................................................................................... .........................................................................................................................
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Comunicación, alfabetización y empoderamiento del paciente

  1. 1. Comunicación, alfabetización y empoderamiento en salud Valencia 4 diciembre 2014 Ignacio Basagoiti @jbasago
  2. 2. La sociedad, la tecnología y la medicina están sufriendo profundos cambios
  3. 3. Sociedad de la información Sociedad de la comunicación Sociedad del conocimiento Sociedad red
  4. 4. Cambios en la Medicina Tratamiento Promoción, prevención y tratamiento Gestión de la enfermedad Gestión de la vida y la salud Consentimiento informado Toma compartida de decisiones Paciente Experto Desde una medicina reactiva … … hacia una medicina proactiva
  5. 5. fundada el 7 de septiembre de 1998 por Larry Page y Sergey Brin fundado el 7 de septiembre de 1998 por Larry Page y Sergey Brin Sólo 16 años!!
  6. 6. Alfabetizacion
  7. 7. “La alfabetización en salud se basa en la alfabetización general y engloba las motivaciones, los conocimientos y las competencias de las personas para acceder, entender, evaluar y aplicar la información sobre la salud en la toma de decisiones sobre la atención y el cuidado sanitario, la prevención de enfermedades y la promoción de la salud para mantener y mejorar la calidad de vida a lo largo de ésta.” Pero.. . según el European Health Literacy Survey (HLS-EU) , una de cada 2 personas en Europa tiene una Alfabetización en Salud limitada.
  8. 8. No solo un compromiso ético y moral
  9. 9. la alfabetización en salud tiene un impacto directo y significativo sobre la salud individual y pública Llevamos tres décadas acumulando pruebas
  10. 10. La mala AES es "un predictor más fuerte de la salud de una persona que la edad, ingresos, situación laboral, nivel de estudios, o raza". Report on the Council of Scientific Affairs, Ad Hoc Committee on Health Literacy for the Council on Scientifc Affairs, American Medical Association, JAMA, Feb 10, 1999
  11. 11. Una baja AES se relaciona con : • aumento de mortalidad • peor estado de salud • aumento de hospitalizaciones • menor adherencia al tratamiento • peor uso de los servicios sanitarios • aumento de complicaciones clínicas e iatrogenia • menor impacto e implicación en actividades preventivas
  12. 12. Menos salud a mayor precio La National Academy on an Aging Society de Estados Unidos estima que una alfabetización en salud baja supone un coste adicional de 73 billones de dólares al año en los fondos que este país destina a su sistema de salud National Academy on an Aging Society/Center for Health Care Strategies Low health literacy skills increase health care expenditures by $73 billion. Center for Health Care Strategies Fact Sheet, Washington, DC. 1998
  13. 13. Situación en Europa vs España
  14. 14. Prevención Promoción Autoeficacia Optimización de recursos Conversación Autonomía Manejo Participación
  15. 15. Empoderamiento Empoderamiento
  16. 16. Empoderamiento es el proceso mediante el cual los individuos obtienen control de sus decisiones y acciones relacionadas con su salud; expresan sus necesidades y se movilizan para obtener mayor acción política, social y cultural para responder a sus necesidades, a la vez que se involucran en la toma de decisiones para el mejoramiento de su salud y la de la comunidad. (WHO. Health promotion glossary, 1998) concienciación •tomar conciencia de todos los factores que influyen sobre su salud liberación •ganar poder de decisión sobre su propio destino Paciente empoderado
  17. 17. Primer uso - Marian Sandmaier -Washington Post, 2004 Fundador movimiento Dr. Tom Ferguson ex editor de la revista Medical Self Magazine. Define e-patient como equipped enabled empowered engaged equipado (dotado para hacer su trabajo) capacitado empoderado comprometido con su salud y con las decisiones cuidado sobre su salud
  18. 18. Mediador para el intercambio de buenas prácticas. Ej. TuDiabetes o Diabetes Connect
  19. 19. Asesor y consejero. Ej. Patient Opinion en Reino Unido – asesoría y evaluación de servicios sanitarios
  20. 20. Revisor de contenidos. El paciente puede evaluar, revisar o modificar contenidos. Ej. wikis de salud o Salupedia
  21. 21. Gestor de la carpeta de salud personal. Diferentes iniciativas como Microsoft Health Vault, o Indivo permiten al paciente introducir datos y gestionar su historia de salud personal
  22. 22. Promotor de estilo de vida saludable. A través de sensores plug& play y una plataforma, se promueve un estilo de vida saludable, como en MapMyRun, Fitbit, Endomondo, etc.
  23. 23. Creador de comunidades. Los pacientes usan Internet para afianzar relaciones, creando nuevas comunidades. Ej. PatientsLikeMe
  24. 24. Proveedor de contenido. El paciente actúa como proveedor de contenido con texto, audio, video e imágenes. You Tube, Twitter, o blogs son algunos ejemplos.
  25. 25. Apoyo a las comunidades de pacientes. PatientsLikeMe es el ejemplo clásico donde una comunidad de gente con intereses comunes da apoyo a cualquier miembro a través de forums, post, blogs o simplemente compartiendo datos.
  26. 26. Plataformas de difusión de campañas para la promoción, información, recaudación, … sobre la salud y su entorno.
  27. 27. ¿Que hace el e-paciente? Mediador para el Intercambio de buenas prácticas Revisor de contenido Asesor y consejero Promotor de estilo de vida saludable Apoyo a las comunidades de pacientes Creador de comunidades Proveedor de contenido Gestor de la carpeta de salud personal Asesor y consejero Crowdfunding
  28. 28. http://www.epatientdave.com/ Imagen: http://m.cdn.blog.hu/me/mediq/postimage/epatient-dave-4_1382439768.png Dave deBronkar
  29. 29. http://diabeteshandsfoundation.org/ Manny Hernández @askmanny
  30. 30. Maria Gjerpe @ MariasMetode http://mariasmetode.no/
  31. 31. Inma Grau @Inma_Grau PhD in Sociology, expert in health communication, becomes in a ePatient, and constitutes a foundation where to launch a project to develop a mobile application to accompany patients during chemotherapy. http://www.fundacionisys.org/es/ www.enobservacion.com/
  32. 32. El epaciente es un agente de salud
  33. 33. ¿Organizaciones y profesionales, debemos quedar al margen? ¿Deben las iniciativas desarrollarse sólo en el exterior del sistema? ¿Es posible una conversación horizontal? ¿Solo caben los pacientes obedientes?
  34. 34. Van a ser necesarios algunos cambios
  35. 35. Tendencias clave o Cambio del modelo de relación y horizontalidad o Apertura de espacios para la participación o Apoyo e integración de iniciativas independientes o Conversación 2.0
  36. 36. Gracias por su atención

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