EUPATI Launch Meeting - Per Spindler

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EUPATI Launch Meeting, 27 March 2012 - Per Spindler

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EUPATI Launch Meeting - Per Spindler

  1. 1. What information and training do patients and public need Per SpindlerDirector, Biopeople, University of Copenhagen, Denmark
  2. 2. WORK AHEAD !EUPATI contributes to IMI‘s goal of raisingpatients‘ awareness and participation inpharmaceutical R&D provides scientifically reliable, objective, comprehensive, user-friendly information on therapeutic innovation and pharmaceutical Research & Development reaches out to patients incl. the lay and hard to reach patient community enables a meaningful involvement and empowerment of patients and raises public awareness (lead redesign of health care innovation) facilitates appropriate patient-relevant advice to industry, academia, authorities and ethics committees
  3. 3. Audiences: advocacy leadersand the public at large EUPATI Training Programme ( experts)  Academic Modular Certificate Programme 100  Patient Ambassadors. Patient patient Journalists, Patient Trainers advocates EUPATI Educational Toolbox ( education)  Tool box with a variety of distributable formats 12.000  Paper-based patient booklets, presentations, eLearning, webinars, vi advocates deos etc. EUPATI Internet Library ( information)  Wiki” “YouTube” Social Media” Internet Sources (Editorial Board) 100.000  TV films and/or cartoons individuals
  4. 4. Content development of EUPATItargets important aspects oftherapeutic innovation1. Medicines development process from research to approval2. Personalized and predictive medicine3. Drug safety and risk/benefit assessment of medicines4. Pharmaco-economics, health economics and health technology assessment5. Design and objectives of clinical trials (& roles of stakeholders)6. Patients roles & responsibilities in innovative medicines development
  5. 5. Reflecting European diversity:7 languages 7 most frequently spoken languages: English, French, German, Spanish, Polish, Russian, Italian Serving 12 European countries: UK, Ireland, Malta, France, Luxemburg, the francophone Belgium and Switzerland, Germany, Austria, the German- speaking Part of Switzerland, Spain, Italy and Poland, plus Russian-speaking population in CEE
  6. 6. The first steps are needs assessmentand material collection followed bycontent development Strategy & methodology for Identification and review of training material available information resources to the three audiences Knowledge & attitude survey Collection of available material Analysis of information needs Adaptation, productionincl. format and style of delivery and translation of material Review & gap analysis
  7. 7. Get to know us! Web: www.patientsacademy.eu Twitter: @eupatients as well as:

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