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What is patient engagement at CADTH, and how can you get involved?

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CCSN welcomed CADTH’s Patient Engagement Officer Sarah Berglas to hear more about the many aspects in which CADTH involves patients in its work.

Bill and Sarah walked through opportunities for patients and others to become involved in CADTH’s work, including:
- Providing patient input to CADTH’s pan-Canadian Oncology Drug Review (pCODR)
- Involving patients in CADTH’s assessments of medical devices, interventions, diagnostic tests, and procedures
- CADTH’s new Patient and Community Advisory Committee and
- CADTH’s newly published patient engagement framework.

There are other opportunities outside of the formal reviews, as well, and Sarah spoke further about what CADTH heard from its listening exercise with patient groups last fall.

Sarah also spoke about how patients will be involved in CADTH’s upcoming annual symposium on April 14-16 in Edmonton.

Maureen Smith also joined Bill and Sarah, sharing her experience convening public and patient members on Canadian HTA bodies to discuss our experiences, learn from experts and each other.

This is a must-see webinar for the engaged, the curious and the novice!

Published in: Healthcare
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What is patient engagement at CADTH, and how can you get involved?

  1. 1. What is patient engagement at CADTH and how can you get involved? CCSN Webinar | April 4, 2019
  2. 2. Guest Panelists Maureen Smith Secretary Canadian Organization for Rare Disorders Sarah Berglas Patient Engagement Officer CADTH 2
  3. 3. 3 Focus for today’s discussion - patient input into public health technology assessments
  4. 4. Patient input in HTA x-Canada • National processes: – For MOST meds: CADTH’s Common Drug Review (CDR) – For cancer meds: CADTH’s pan-Canadian Oncology Drug Review (pCODR) • Provincial processes: – British Columbia: “Your Voice” program – Ontario: Ontario Public Drug Programs – Quebec: l’INESSS stakeholder input • Hospitals and Private Payers: – Limited opportunities for patient input 4
  5. 5. Patient and Community Engagement SARAH BERGLAS
  6. 6. Disclosure • CADTH is funded by federal, provincial, and territorial ministries of health. • Application fees for three programs: • CADTH Common Drug Review (CDR) • CADTH pan-Canadian Oncology Drug Review (pCODR) • CADTH Scientific Advice 6
  7. 7. CADTH Products and Services
  8. 8. 8 www.cadth.ca/become-involved-cadth
  9. 9. For Individuals Who Want to Learn About Medical Devices, Procedures, and Drugs 9 Each year, CADTH produces: • 300 Rapid Responses on devices, drugs, and procedures • 60 to 70 drug assessments • 20 Horizon and Environmental Scans • 5+ Large HTA projects • All reports are available, without cost, on our website
  10. 10. CADTH Annual Symposium • Watch the proceedings at CADTH/ACMTS YouTube • Question or comment using social media #CADTHSymp or on Facebook • Submit an abstract • Join our Abstract Review Committee • Present a poster, give a presentation, or join a panel • Network at the annual Patient Community Meet and Greet 10
  11. 11. For Organizations and Individuals Wanting to Provide Feedback 11 • Stakeholder Feedback is an opportunity to comment on the clarity and usefulness of draft protocols and assessments, and proposed process changes, including any context or perspectives that might be missing
  12. 12. For Patient Groups Who Want to Contribute to Patient Input • To CDR and pCODR and the CADTH Common Drug Review and pan-Canadian Oncology Drug Review programs, and for Optimal Use projects (such as CAR T-cell therapies) • Patient, caregiver, and clinician insights build on our understanding of the trial results and how they might play out in Canada. • Individual experiences can also provide new information on outcomes and consequences not captured in the randomized controlled trials or economic models. 12
  13. 13. For individuals Who Want to Contribute to the Direction of an Assessment Individuals and/or groups work with CADTH teams for: • HTA/OU Projects (medical devices and procedures) • Horizon and Environmental Scans • Scientific Advice CADTH may also look in academic published literature for patients perspectives and experiences 13
  14. 14. For Individual Participation in an Expert Committee 14 Canadian Drug Expert Committee pCODR Expert Review Committee Health Technology Expert Review Panel
  15. 15. 15 www.cadth.ca/cadth-framework-patient-engagement-health-technology-assessment
  16. 16. 16
  17. 17. 17 www.cadth.ca/patient-and-community-engagement
  18. 18. Listening for Future Direction Greater Engagement: • Meaningful, respectful engagement • Need for greater diversity of voices • Greater interaction with expert committees and CADTH researchers • Involvement in CADTH governance • Input and engagement measured to demonstrate impact To Be Supported: • Travel awards to CADTH symposium much appreciated • Clear guidance on what is helpful or seen as biased • Awareness raising of CADTH and role for patient perspectives in assessments • Help preparing / refining patient input
  19. 19. Patient and Community Advisory Committee 19 To provide advice on issues relevant to CADTH’s mandate, from the perspectives of those using the Canadian health care system.
  20. 20. Qs & As 20
  21. 21. 21
  22. 22. 22 Canadian Cancer Survivor Network 1750 Courtwood Crescent, Suite 210 Ottawa, ON K2C 2B5 Telephone: 613-898-1871 E-mail jmanthorne@survivornet.ca or mforrest@survivornet.ca Website www.survivornet.ca Blog: http://jackiemanthornescancerblog.blogspot.com/ Twitter: @survivornetca Facebook: www.facebook.com/CanadianSurvivorNet Pinterest: http://pinterest.com/survivornetwork/

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