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Social Media & Health Policy and Systems Research

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Presentation at the Introduction to Health Policy and Systems Research Short Course (UP College of Public Health and UP College of Medicine supported by @RespondNCD)

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Social Media & Health Policy and Systems Research

  1. 1. SOCIAL MEDIA & HEALTH POLICY AND SYSTEMS RESEARCH Iris Thiele Isip Tan MD, MSc Professor 3, UP College of Medicine Director, UP Manila Interactive Learning Center Chief, UP Medical Informatics Unit @endocrine_witch
  2. 2. NOTHING TO DISCLOSE I give consent for the audience to tweet this talk and give me feedback (@endocrine_witch). Feel free take pictures of my slides (though it will be on www.slideshare.net/isiptan).
  3. 3. RESEARCHERS AND SOCIAL MEDIA SOCIAL MEDIA ENGAGEMENT FOR HPSR SOCIAL MEDIA FOR RESEARCH DISSEMINATION
  4. 4. RESEARCH-PRACTICE GAP Partly due to ineffective dissemination Brownson R et al. J Public Health Manag Pract 2018;24(2):102-111
  5. 5. Brownson R et al. J Public Health Manag Pract 2018;24(2):102-111 Passive approaches to dissemination are largely ineffective because uptake does not happen spontaneously. 1
  6. 6. 485 UK-based principal investigators of publicly- funded applied & public health research 50% questionnaire completion n=243 Wilson et al. Implement Sci 2010;5:61
  7. 7. Wilson et al. Implement Sci 2010;5:61 COMMUNICATION CHANNELS USED BY RESEARCHERS Academic journal 98% Conference presentation 96% Report to funder 91% Seminar 62% Workshop 57% Web access to full report 54% Web access to summary report 50% Issued press release 48% Networking 46% Face to face meetings 40%
  8. 8. Stakeholder engagement in research and evaluation processes is likely to enhance dissemination. 2 Brownson R et al. J Public Health Manag Pract 2018;24(2):102-111
  9. 9. n=266 61% university researchers 41% CDC scientists 38% NIH scientists How do you rate your efforts to disseminate your research findings to non-research audiences? Tabak R et al. Public Health Rep 2014;129(4):361-8. 1/3 rated dissemination efforts as POOR
  10. 10. REASONS TO DISSEMINATE Obligation of researchers Importance to work/department of disseminate PERCEPTION THAT DISSEMINATION WAS EXPECTED by employers and funders WORK, TRAINING & EXPERIENCE OF RESEARCHERS Worked in a practice or policy setting Type of institution where employed Tabak R et al. Public Health Rep 2014;129(4):361-8. MULTIVARIATE LOGISTIC REGRESSION
  11. 11. Significantly related to excellent/good dissemination effort self-rating: Dissemination expected by funder Whether researcher had ever worked in a practice setting
  12. 12. https://www.altmetric.com/about-our-data/the-donut-and-score/
  13. 13. Dissemination of research to nonscientists is enhanced when messages are framed in ways that evoke emotion and interest and demonstrate usefulness. 3 Brownson R et al. J Public Health Manag Pract 2018;24(2):102-111
  14. 14. Picture credit: http://www.wadeharman.com/the-attention-economy-why-trigger-response-is-vital-marketing/ The ATTENTION ECONOMY is not growing, which means we have to grab the attention that someone else has today. - Brent Leary, CRM Essentials Co-founder
  15. 15. Average time on social media (any device) 3H 57 MIN Average time on TV (broadcast, streaming, video on demand) 3H 37 MIN 2018 Digital Report: We Are Social vs
  16. 16. We don’t have a choice whether we do social media, the question is how well we do it. - Erik Qualman, Socialnomics
  17. 17. Stories package information into a structure that is easily remembered.“ R Kosara, J Mackinlay. Computer 46 (5), 44-50
  18. 18. INFOGRAPHIC VS CRITICAL APPRAISAL FORMAT Preference for summarizing results from systematic reviews Crick K, Hartling L (2015) Preferences of Knowledge Users for Two Formats of Summarizing Results from Systematic Reviews: Infographics and Critical Appraisals. PLoS ONE 10(10): e0140029. doi:10.1371/journal.pone.0140029
  19. 19. INFOGRAPHIC VS CRITICAL APPRAISAL FORMAT Preference for summarizing results from systematic reviews Crick K, Hartling L (2015) Preferences of Knowledge Users for Two Formats of Summarizing Results from Systematic Reviews: Infographics and Critical Appraisals. PLoS ONE 10(10): e0140029. doi:10.1371/journal.pone.0140029 51% preferred infographic n = 59 67% (8/12) nurses 68% (15/22) physicians Rated higher for clarity Rated higher for aesthetic appeal No difference between formats for comprehensibility Most useful for patients/caregivers Most useful for professional roles
  20. 20. STRUCTURED ABSTRACT Introduction Objectives Methods Results Conclusion
  21. 21. http://www.surgeryredesign.com/resources/ #VISUALABSTRACT @andrewmibrahim Visual summary of the information contained within an abstract
  22. 22. For professionals
  23. 23. For lay
  24. 24. Dissemination approaches should be time- efficient, consistent with organizational climate, culture and resources, and aligned with the skills of staff members. 4 Brownson R et al. J Public Health Manag Pract 2018;24(2):102-111
  25. 25. APPROACHES & TOOLS FOR DISSEMINATING TO NONRESEARCH AUDIENCES • Develop a dissemination plan early in the process • Engage with stakeholders for dissemination planning • Select and use a dissemination framework • Make use of social media (Twitter, Facebook, LinkedIn) • Create and share podcasts • Describe research in personal blogs • Prepare brief summaries of research (policy briefs, issue briefs) • Seek advice from media and public relations experts Brownson R et al. J Public Health Manag Pract 2018;24(2):102-111
  26. 26. Dissemination to policy audiences needs to take into account unique characteristics of policy makers as dissemination targets. 5 Brownson R et al. J Public Health Manag Pract 2018;24(2):102-111
  27. 27. CHARACTERISTIC EXECUTIVE BRANCH, PUBLIC HEALTH PRACTITIONER LEGISLATIVE BRANCH, ELECTED OFFICIAL LEGISLATIVE BRANCH, STAFF MEMBER Time in position Longer Shorter Accountability Governor, board of health, agency head Constituents by whom they are elected, political party Elected legislator, committee member Personal connection to constituents Moderate High High to moderate Knowledge span Deeper knowledge on health issues (often more specialized in larger agencies) Less depth, wider breadth Decision-making based on external factors (aside from research) Low to moderate High Time spent on a particular issue Longer Shortest Shorter Type of evidence relied upon Science, evidence reviews, experience from the field, personal experience “Real world” stories, constituents, gatekeepers, party priorities, media, science Brownson R et al. J Public Health Manag Pract 2018;24(2):102-111
  28. 28. www.healthxph.net T1. What factors led to the initial success of the Sin Tax law? T2. How can the current Sin Tax law be further improved? T3. How can we unite policymakers towards stronger tobacco control and taxation?
  29. 29. Markers of academic impact often differ significantly from the markers of importance to practice and policy audiences. 6 Brownson R et al. J Public Health Manag Pract 2018;24(2):102-111
  30. 30. www.endocrine-witch.net As clinician educators our job is not to create knowledge obscura, trapped in ivory towers and only accessible to the enlightened; the knowledge we create and manage needs to impact our communities. - Dr. Daniel Cabrera “
  31. 31. J Grad Med Educ 2017;Vol. 9(4):421-425. JACR 2018;15(1):135-141
  32. 32. SOCIAL MEDIA FOR RESEARCH DISSEMINATION RESEARCHERS AND SOCIAL MEDIA SOCIAL MEDIA ENGAGEMENT FOR HPSR
  33. 33. Scholars may not like it, but that doesn’t change the fact that in the 21st century’s fragmented media environment, marketing and branding are key to disseminating the knowledge and tools we produce. Tom Scheinfeldt (2009) http://foundhistory.org/2009/02/brand-name-scholar/ “
  34. 34. www.endocrine-witch.net
  35. 35. www.facebook.com/EndocrineWitch
  36. 36. www.facebook.com/EndocrineWitch
  37. 37. KARDASHIAN INDEX CELEBRITY [F(a)] number of Twitter followers SCIENTIFIC VALUE [F(c)] number of citations K-index = F(a)/F(c) Neil Hall Genome Biology 2014,15:424 Science Kasdashians K-index > 5
  38. 38. The Kardashian index: a measure of discrepant social media profile for scientists Neil Hall Genome Biology 2014,15:424 n =40 KARDASHIANS
  39. 39. https://blogs.scientificamerican.com/science-sushi/social-media-for-scientists-part-1-it-8217-s-our-job/ @NerdyChristie
  40. 40. Research that is translated too quickly may cause harm if its findings are incorrect Little editorial oversight of online material Eminent online individuals may develop an outsized influence on clinical practice #FOAMed
  41. 41. @NerdyChristie https://blogs.scientificamerican.com/science-sushi/social-media-for-scientists-part-2-you-do-have-time/
  42. 42. @RealScientists Rotational Twitter account where the weekly featured scientist talks about their lives and their work
  43. 43. @NerdyChristie https://blogs.scientificamerican.com/science-sushi/social-media-for-scientists-part-2-5-breaking-stereotypes/
  44. 44. n=100 Faculty members in ecology & evolutionary biology
  45. 45. Cote I & Darling E. Facets 2018
  46. 46. Credits: (Graphic) N. Desai and C. Smith/Science; (Data) I. Côté and E. Darling WHO FOLLOWS SCIENTISTS ON TWITTER?
  47. 47. @NerdyChristie https://blogs.scientificamerican.com/science-sushi/social-media-for-scientists-part-3-win-win/
  48. 48. Health services and health policy researchers primarily affiliated with an academic institution (n=215)
  49. 49. Grande et al. Health Affairs 2014;33(7)
  50. 50. Grande et al. Health Affairs 2014;33(7) EFFICACY OF DISSEMINATION METHODS BY ACADEMIC RANK
  51. 51. Grande et al. Health Affairs 2014;33(7) EFFICACY OF DISSEMINATION METHODS IN COMMUNICATING WITH POLICYMAKERS AND OTHER DECISION MAKERS
  52. 52. Grande et al. Health Affairs 2014;33(7) PARTICIPANTS’ REPORTED DISSEMINATION ACTIVITIES IN THE PREVIOUS YEAR, 2013
  53. 53. Web-based survey (n=856): demographics, current use of social media, beliefs and attitudes towards the use of social media for professional purposes Interviews with participants from Australia, India and Malaysia (n=69)
  54. 54. CATEGORIES OF PROFESSIONAL USE OF SOCIAL MEDIA Tunnecliff et al. JMIR 2015;17(5):e119
  55. 55. Tunnecliff et al. JMIR 2015;17(5):e119 OBSTACLES TO OBTAINING OR SHARING RESEARCH OR CLINICAL INFORMATION
  56. 56. SOCIAL MEDIA FOR RESEARCH DISSEMINATION RESEARCHERS AND SOCIAL MEDIA SOCIAL MEDIA ENGAGEMENT FOR HPSR
  57. 57. Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24 WHAT IS MEANINGFUL ENGAGEMENT?
  58. 58. TIME FRAME SETTING ACADEMIC PRACTICE POLICY Short-term Publication downloads Citation rates Awareness/knowledge of an evidence-based practice Awareness/ knowledge of an evidence-based policy Self-efficacy in using evidence Intentions to use evidence Medium- term Citation networks Social media networks h-index scores Altmetric scores Coverage in mass media Presence of evidence (eg. recommendations from systematic reviews) in funding announcements Use of analytic tools to inform practice Long-term Use of individual studies in systematic reviews; in tools for practitioners or policy makers Update of evidence- based interventions Termination of ineffective interventions Enactment of evidence-based policies Ongoing evaluation of enacted policies Brownson R et al. J Public Health Manag Pract 2018;24(2):102-111
  59. 59. Social media is associated with the generation of communities of practice that promote the transfer of information at scale. How social media definitively affects health policy is not clear, and evidence is scant.
  60. 60. https://medium.com/@HeathEvans/content-is-king-essay-by-bill-gates-1996-df74552f80d9
  61. 61. Smith BG & Smith SB. Engaging Health: Health Research and Policymaking in the Social Media Sphere, 2015. INTERACTION is KING and CONTENT is more appropriately the PAWN.

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