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Health Literacy: information literacy for life - Ruth Carlyle - LILAC 2019 Keynote address

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Presented at LILAC 2019 - Keynote speaker

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Health Literacy: information literacy for life - Ruth Carlyle - LILAC 2019 Keynote address

  1. 1. Health literacy: information literacy for life April 2019 @NHS_HealthEdEng Ruth Carlyle Head of Library and Knowledge Services & Technology Enhanced Learning, Midlands and East
  2. 2. What are the issues in health and care? Workforce https://www.hee.nhs.uk/our-work/strategic-framework
  3. 3. What role(s) health information?
  4. 4. Health literacy “The personal characteristics and social resources needed for individuals and communities to access, understand, appraise and use information and services to make decisions about health” WHO 2015 Both system and personal roles to: – Access – Understand – Appraise – Use https://gateway.euro.who.int/en/themes/health-literacy/
  5. 5. 52 35 3538 40 41 44 44 46 National average 43% not understanding Text (literacy) component of health materials Slide taken from Presentation to the Health Literacy Group UK Seminar ‘Improving health information to promote health literacy’ Gill Rowlands, Professor, University of Newcastle and Aarhus University , March 2015 Scale: literacy element (16-65 years) 6Rowlands et al 2015 https://www.ncbi.nlm.nih.gov/pubmed/26009533
  6. 6. 66 55 5455 59 60 60 62 64 National average 61% not understanding Text (literacy) AND numeracy component of health materials Slide taken from Presentation to the Health Literacy Group UK Seminar ‘Improving health information to promote health literacy’ - Gill Rowlands, Professor, University of Newcastle and Aarhus University , March 2015 Scale: literacy and numeracy (16-65 years) 7Rowlands et al 2015 https://www.ncbi.nlm.nih.gov/pubmed/26009533
  7. 7. Health literacy in Germany Estimated cost of 9-15 billion Euros to the German economy each year https://www.hertie-school.org/en/gesundheitskompetenz/
  8. 8. Health literacy in United States Below basic – 14% Basic – 21% Intermediate – 53% Proficient – 12% https://health.gov/communication/literacy/issuebrief/
  9. 9. What implications? Major 2012 https://www.bmj.com/content/345/bmj.e8364.full
  10. 10. Types of health literacy • Functional – obtain and apply information • Interactive – extract relevant information and apply to changing circumstances • Critical – analyse and gain control Don Nutbeam, 2000 https://academic.oup.com/heapro/article/15/3/259/551108
  11. 11. Application of health literacy • Functional – read appointment letters, understand time, follow simple medicines guidance • Interactive - ability to balance content from different sources and to make decisions • Critical – ability to read critically and to challenge sources
  12. 12. Levels change “I’m a professor, yet the first thing I did was I put ‘breast cancer’ into Google… because you’re frightened.” Trisha Greenhalgh
  13. 13. Health literacy moment Health Literacy Moment Empowered Enabled Encouraged Skills Situation Setting Ruth Carlyle 2019
  14. 14. Personal experience
  15. 15. What does it feel like? Low health literacy
  16. 16. What does this mean?
  17. 17. Code
  18. 18. It was just… B E A D E D
  19. 19. How did it make you feel?
  20. 20. Implications • Misunderstanding • Poor decisions • Exacerbated inequalities • Inappropriate use of medication • Ineffective access to health services • Poor health outcomes
  21. 21. How can we help? Addressing health literacy
  22. 22. “How to” guide Definitions General communication Verbal communication Written communication: • Style • Design • Print • Pictures, photographs and symbols https://www.hee.nhs.uk/our-work/health-literacy
  23. 23. Spoken communication: Teach Back 1. Communicator takes responsibility 2. Tell me 3. Re-explain as needed 4. Continue until both happy with understanding
  24. 24. Spoken communication: Chunk & Check
  25. 25. Written communication • Keep sentences short, using lists where appropriate • Use active verbs • Avoid writing in the third person • Use words that are appropriate for the reader
  26. 26. Aligning skills Critical Interactive Functional • Appraisal • Assessing bias • Comprehension • Awareness • Info literacy • Digital literacy
  27. 27. Health literacy friendly services 1/2 Element Evidence Written communication  Guidance to staff on language used  User testing  Policy Spoken communication  Guidance to staff  Staff use of tools, such as teach back, to check communication  Help offered as a matter of routine Stock  Patient information materials either held in range of formats or guidance on accessing range of formats
  28. 28. Health literacy friendly services 2/2 Element Evidence Signage  Regular review of external signage to ensure service can be located  Testing with library users of signage within service Training  Training on health literacy awareness  Training appropriate to roles on health literacy skills Policy  Policies for the services reflect the health literacy needs of staff and service users  [Health literacy policy for the service]
  29. 29. Activity now: health literacy awareness
  30. 30. Next steps: Knowledge for Healthcare • First 5 years of 15 year framework • Consulting on next 5 years • Patient information and health literacy part of the developments https://kfh.libraryservices.nhs.uk/
  31. 31. The future: e-health literacy • Future depends on digital literacy and e- health literacy • Information literacy an enabler of that future https://www.hee.nhs.uk/our-work/topol-review
  32. 32. Ruth Carlyle @RuthCarlyle Ruth.Carlyle@hee.nhs.uk What questions or comments do you have?

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