Real Lives - Real Change


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Andrea Pope Smith, ADASS West Midlands Branch Chair & Director of Adult Services, Communities and Housing, Dudley MBC: Real Lives - Real Change

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Real Lives - Real Change

  1. 1. REAL LIVES – REAL CHANGE Andrea Pope Smith- ADASS West Midlands Branch ChairDirector of Adult Services, Communities and Housing. Dudley MBC
  2. 2. Context• Currently over 750,000 people in UK with dementia including 16,000 younger people• Over 11,500 people with dementia are from black and minority ethnic groups• By 2025 there will be over 1 million and two thirds are women• Two Thirds live in their own home• High levels of people in hospital and care have dementia• Only 40% of people with dementia receive a diagnosis• Current financial cost is £20bn and rising• Family carers of people with dementia save the UK over £6 billion a year
  3. 3. Policy• NICE/SCIE Guidelines – 2006 & dementia quality standards• Living Well with Dementia – a National Dementia Strategy (NDS) – launched February 2009• National Dementia Declaration – Dementia Action Alliance – Sept 2010• Call to Action – June 2011 – reducing the usage of anti- psychotic drugs• Dementia Commissioning pack – July 2011• National Design Council challenge – August 2011• Wider NHS reform, Think Local Act Personal, Making it Real
  4. 4. What Do We Need to Improve?• Ensure people with Dementia and their Carers are treated with dignity and respect and that they have real choice and control• Build public awareness and provide good and useful information• Prevention, Early Intervention and Early Diagnosis• Improve staff awareness, learning and competencies• Create excellent care pathways from early stages to end of life• Ensure resources are aligned in an adequate and appropriate way
  5. 5. To deliver this we need …..• To listen to people with Dementia and their Carers, to learn and understand what they want and need, and then Act.• We need to build communities who understand and are aware of what having dementia means and what role they can play• To create a competent and responsive workforce• To commission across care pathways in an integrated way• To provide information, guidance and support in as many venues and forums as we can and in a timely way.• To redefine dementia in ways which recognise and value the individual and do not define that person as a condition
  6. 6. Opportunities To Explore• Research and evaluation of what works – Learn the lessons• Integrated Commissioning• National Dementia Declaration: * Person Centred * Self-Directed * Choice and Control * Quality of Life * Informed * Hope for the Future * Valued Citizens• Health and Well Being Boards: Influence a whole systems approach to transform thinking and improve outcomes• Dementia Friendly - Inclusion not exclusion Communities: - Enhance community capacity• Ensure that the work we do is planned and informed by the views of people with dementia and their carers – Real Lives, Real Change
  7. 7. ADASS Perspectives• Dignity is key to all aspects of dementia care• There is significant evidence about best practice and quality in dementia care. Our challenge is to translate this to practice• There will be increasing emphasis on integrated dementia care• We need to extend choice and control with dignity to people with dementia• There will be a renewed focus on how preventative services can help people with dementia
  8. 8. Workshops• 11:15am - 12:15pm Workshop Session One The role of Technology in supporting independence in the community - by AT Dementia• Dementia Pathways - Testing out assumptions presented by Annette Darby Service Manager Dudley MBC and Anna Geyer Director of New Possibilities. "A participative workshop drawing on experiences of the Dudley Dementia Pathway to test out the assumptions we make about peoples experience of dementia services"• Dementia and the Physical Environment - Ideal Carehomes12:15pm - 1:15pm Workshop Session Two• Care fit for VIPS: Defining quality in residential and nursing care - by Equip 4 Change• Dementia and the Workforce - by Skills for Care, Nottinghamshire County Council and NHS Midlands and East• Touch Screen Research - by Worcester University• Singing for the Brain - Natural Voice Practitioners Network
  9. 9. Unconference• Everyone attending today can propose an area for improvement in dementia care at the Unconference this afternoon• Delegates will have 30 seconds to explain their subject to the audience who will indicate by a simple show of hand if they are interested in attending a session based upon the pitch. Once everyone who wishes to pitch has done so, a timetable will be drawn up and participants will have a choice of attending 3 of the sessions of their choice. This is your opportunity to design your own agenda.The sessions will follow a simple format;• Be informal, creative and engaging• Be conversational (i.e. no PowerPoint)• The session lead will facilitate the discussion after a brief introduction and encourage as many people as possible to contribute• Delegates encouraged to adopt a ‘rule of foot’ and freely move between sessions• We will capture key points and Maggie Venables- Dementia Lead for ADASS in the West Midlands will summarise key findings. This will become our regional action plan for the next twelve months.