Clinical Informatics<br />Clinical Research (Registries)<br />Ms. ShaziaNazSubhani<br />Head- Registries Core Facility<br ...
Presentation Overview<br /><ul><li>About King Faisal Specialist Hospital & Research Center
Clinical Research
The Importance of Research Data
Trends in Health Research
Web-Based Registries
Geospatial Analysis (GIS)
Examples
What are we trying to achieve?
SuperView
SuperWeb</li></li></ul><li>King Faisal Specialist Hospital & Research Center <br />Riyadh, Saudi Arabia<br />KFSH&RC is a ...
Importance of Research Data<br /><ul><li>Research provides a road map for customizing, tailoring, and individualization of...
Research is essential to guide improvements in health systemsand develop new initiatives.
Improving knowledge and understanding
Spin-off research projects
Health planning
Resource allocation
Evaluation of clinical and public health programs
Cluster investigation</li></li></ul><li>Trends in Health Research – Clinical Registries<br />Web-Based Registries<br /><ul...
National Diabetes Registry
National Congenital Heart Defects Registry
National Epilepsy Registry
National Neural Tube Defects Registry
National Family Safety Registry
Pan Arab Liver Transplantation Registry</li></ul>Maps<br />Several other hospital based registries<br /><ul><li>Cleft Lip/...
Thromboembolic Disorders
Neuromuscular Diseases
Venous Thrombosis and Familial Thrombophillia</li></ul>Data Entry<br />Data Updates<br />Search Results<br />Charts<br />D...
Hospital - 1<br />Web Server<br />Hospital - 2<br />Hospital - 3<br />Database<br />Data Centralization<br /><ul><li> Data...
Search Engine
 Charts Generation
 Reports Generation</li></li></ul><li>Web-based clinical registries software offers an anytime-anywhere access to the cent...
Geospatial Analysis – Saudi National Diabetes Registry<br /><ul><li>Phase I : Riyadh region with 27 participating hospital...
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MoM2010: Clinical Informatics

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MoM2010: Clinical Informatics

  1. 1. Clinical Informatics<br />Clinical Research (Registries)<br />Ms. ShaziaNazSubhani<br />Head- Registries Core Facility<br />Technical Specialist<br />Biostatistics Epidemiology & Scientific Computing Department<br />King Faisal Specialist Hospital & Research Center<br />ssubhani@kfshrc.edu.sa<br />
  2. 2. Presentation Overview<br /><ul><li>About King Faisal Specialist Hospital & Research Center
  3. 3. Clinical Research
  4. 4. The Importance of Research Data
  5. 5. Trends in Health Research
  6. 6. Web-Based Registries
  7. 7. Geospatial Analysis (GIS)
  8. 8. Examples
  9. 9. What are we trying to achieve?
  10. 10. SuperView
  11. 11. SuperWeb</li></li></ul><li>King Faisal Specialist Hospital & Research Center <br />Riyadh, Saudi Arabia<br />KFSH&RC is a multi-facility, multi-entity tertiary care hospital and one of the leading healthcare institutions in the Kingdom of Saudi Arabia. <br />The mission is to provide medical services of highly specialized nature and promote medical research and education programs, including postgraduate education training, as well as to contribute towards the prevention of various diseases.<br />http://www.kfshrc.edu.sa<br />
  12. 12. Importance of Research Data<br /><ul><li>Research provides a road map for customizing, tailoring, and individualization of opportunities.
  13. 13. Research is essential to guide improvements in health systemsand develop new initiatives.
  14. 14. Improving knowledge and understanding
  15. 15. Spin-off research projects
  16. 16. Health planning
  17. 17. Resource allocation
  18. 18. Evaluation of clinical and public health programs
  19. 19. Cluster investigation</li></li></ul><li>Trends in Health Research – Clinical Registries<br />Web-Based Registries<br /><ul><li>National Cancer Registry
  20. 20. National Diabetes Registry
  21. 21. National Congenital Heart Defects Registry
  22. 22. National Epilepsy Registry
  23. 23. National Neural Tube Defects Registry
  24. 24. National Family Safety Registry
  25. 25. Pan Arab Liver Transplantation Registry</li></ul>Maps<br />Several other hospital based registries<br /><ul><li>Cleft Lip/Palate and Craniofacial Anomalies
  26. 26. Thromboembolic Disorders
  27. 27. Neuromuscular Diseases
  28. 28. Venous Thrombosis and Familial Thrombophillia</li></ul>Data Entry<br />Data Updates<br />Search Results<br />Charts<br />Data Export<br />Statistical Reports<br />Data Auditing<br />
  29. 29. Hospital - 1<br />Web Server<br />Hospital - 2<br />Hospital - 3<br />Database<br />Data Centralization<br /><ul><li> Data Entry/Updates
  30. 30. Search Engine
  31. 31. Charts Generation
  32. 32. Reports Generation</li></li></ul><li>Web-based clinical registries software offers an anytime-anywhere access to the centralized data, removing geographical boundaries and allowing easy extension of a registry collaboration with national & international health facilities<br />
  33. 33. Geospatial Analysis – Saudi National Diabetes Registry<br /><ul><li>Phase I : Riyadh region with 27 participating hospitals.</li></ul>Patient’s Count<br />Patient’s Count<br />(Live Data)<br />
  34. 34. Single patient information<br />List of all patients in Al Kharjcity<br />Geospatial Analysis – Saudi National Diabetes Registry<br />
  35. 35. Geospatial Analysis – Saudi National Diabetes Registry<br />Designed web-interface for the Saudi National Diabetes Registry.<br />Live data projection as maps with the help of ESRI ArcIMS 9.3.1<br />
  36. 36. Retinopathy Distribution among Diabetic Patients<br />
  37. 37. Regular Insulin - Distribution among Diabetic Patients<br />
  38. 38. Geospatial Analysis – Age Distribution of Diabetic Patients <br />
  39. 39. <ul><li>Easy to query using the query tool from the “Tool Menu” or using the user defined query engine.
  40. 40. Customizable
  41. 41. Map Tools
  42. 42. Layers</li></li></ul><li>
  43. 43. Health Research data has needs of evaluation, reporting, mapping and presentation in a way that:<br /><ul><li>secures the privacy and confidentiality of data
  44. 44. assists policy and decision makers to
  45. 45. make accurate and timely decisions
  46. 46. allocate required resources
  47. 47. take necessary measurements to address health problems.</li></ul>What are we aiming to achieve?<br />
  48. 48. National Center for Health Statistics <br />Vision Statement: The National Center for Health Statistics (NCHS) will expand the availability of research data for dynamic analysis and reporting using high technology platforms. <br />Geographical distribution of data as maps along with tabulations and charting will be available with data filters for narrowing down the inquiries supporting important decisions.<br />
  49. 49. Objectives - National Center for Health Statistics <br /><ul><li>To provide a unique real time statistical platform for researchers and health administrators that will assist them in making sound decisions.
  50. 50. To provide state of the art repository of information on various disease registries and national projects.
  51. 51. To make available the non-identifiable health research data for browsing and queries.</li></li></ul><li>National Center for Health Statistics – Undergoing Project<br />
  52. 52. Our imagination is the only limit to what we can hope to have in the future.<br />~ Charles F. Kettering<br /> Ability is of little account without opportunity<br />~ Napoleon <br />
  53. 53. KFSH Register Data SuperVIEW Demo – for Public<br />
  54. 54. KFSH Register Data SuperVIEW Demo – for Public<br />
  55. 55. KFSH Register Data SuperVIEW Demo – for Public<br />
  56. 56. KFSH Register Data SuperVIEW Demo – for Public<br />
  57. 57. KFSH Register Data SuperVIEW Demo – for Public<br />
  58. 58. KFSH Register Data SuperVIEW Demo – for Public<br />
  59. 59. KFSH Register Data SuperVIEW Demo – for Public<br />
  60. 60. KFSH Register Data SuperWEB Demo – for Researchers<br />
  61. 61. KFSH Register Data SuperWEB Demo – for Researchers<br />
  62. 62. KFSH Register Data SuperWEB Demo – for Researchers<br />
  63. 63. Registries Core Facility Web-site: http://rc.kfshrc.edu.sa/rcf<br />Some useful demos of Superview: http://superstar.spacetimeresearch.com<br />
  64. 64. Conclusion<br /><ul><li>Enterprise Reporting
  65. 65. Management Automation
  66. 66. System-Wide Modifications
  67. 67. Quick Measuring of Data
  68. 68. Timely Decision Making
  69. 69. Win, win situation for all collaborators</li></li></ul><li>Thank you<br />

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