On today s call: Sue Sheridan Bill Silberg JL Neptune Jenn Stone Patient Engagement Communications Senior Vice President Challenge Manager Director Director PCORI PCORI Health 2.0 Health 2.0
Agenda for Today s Meeting PCORI Overview Challenge Background The Challenge Evaluation Criteria Timeline Q & A
Patient-Centered Outcomes Research Institute (PCORI) A non-governmental organization authorized by Congress in 2010. Overseen by 21-member multi-stakeholder Board of Governors. Funds patient-centered comparative effectiveness research. Committed to continuously seeking input from patients and broad range of stakeholders to guide its work.
What PCORI Has Done To Date Key Accomplishments o Deﬁned patient-centered outcomes research. o Developed research priorities and agenda. o Issued methods standards. o Launched engagement initiatives. o Issued $30MM in Pilot Project awards. o Began funding primary research ($41MM so far). o Compiled more than $300MM to support 2013 research projects (3 funding cycles/year).
Engagement: A Path to Rigorous Research Stakeholder communities shape our work o We seek to answers questions patients/caregivers have about health care decisions they face. o We have a 21-member multi-stakeholder Board. o We require patients to be part of research teams receiving our funding. o Patients, caregivers and other stakeholders review funding applications. o We see stakeholders as partners in disseminating and using the research we support.
How We Engage Inperson and online. Small-group meetings. Roundtables and workshops. Large multi-stakeholder events. Surveys. Soliciting research questions through our web site and meetings. This challenge.
Challenge Background PCORI is committed to meaningful patient, caregiver and stakeholder engagement as a tool for rigorous research. PCORI funding announcements require patients be fully engaged throughout research process. Engagement is among the criteria PCORI uses to score applications.
The Challenge Develop a “matching” system that can connectresearchers and potential patient partners. Solution could be: o A well-articulated conceptual model. o An adaptation of existing matching protocol. o A prototype or an entirely new web-based service or app. o Some combination of these approaches, or something else entirely.
The Challenge Two ﬁrst-place awards: o Conceptual model -- $10,000 o Prototype of app -- $40,000 Winners’ work may be considered for additionalPCORI support, depending on outcome of the reviewprocess. Submission materials: slide deck (5 slides), overviewdoc (5 pgs), video demo (5 min), link to working app(optional).
Evaluation Criteria Technical feasibility, usability and scalability of theproposed conceptual model/prototype. Differences in ways patients, caregivers andresearchers understand, describe and seek answers toproblems or issues they face. Maximizing “patient-centeredness” & scientiﬁc rigor. Particular challenges of serving "hard-to-reach"audiences: ethnic & racial minorities, rural pops, theelderly, physically challenged and non-English speakers.
Timeline Submission period begins: December 14, 2012. Submission period ends: April 15, 2013. Winners notiﬁed: May 15, 2013. Winners announced: at a major national healthconference in the spring of 2013.
Questions? www.health2challenge.com Contact Jenn Stone at: firstname.lastname@example.org