Crowds Care for Cancer Challenge Webinar Slides


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Crowds Care for Cancer Challenge Webinar Slides

  1. 1. Crowds Care for Cancer:Supporting SurvivorsInformational Webinar5.06.13
  2. 2. Office of the National Coordinator forHealth Information Technology1On Today’s Call:• Adam Wong, Office of the National Coordinator for Health IT• Abdul Shaikh, National Cancer Institute• Carly Parry, National Cancer Institute• Kasia Galica, National Cancer Institute• Jean-Luc (“JL”) Neptune, Health 2.0• Graeme Ossey, Health 2.0Agenda:• Challenge Background• Overview of Challenge Details• Q&A
  3. 3. ONC and i2 GoalsOffice of the National Coordinator forHealth Information Technology2• Better Health, Better Care, Better Value through QualityImprovement– Further the mission of the Department of Health and HumanServices– Highlight programs, activities, and issues of concern• Spur Innovation and Highlight Excellence– Motivate, inspire, and lead• Community building – Development of ecosystem• Stimulate private sector investment
  4. 4. NCI: Established by congress in 1937, is the leading Federal agency and world’s largestorganization solely dedicated to cancer-related research, training, and dissemination ofinformation.DCCPS: aims to reduce the risk, incidence, and deaths from cancer as well as enhance thequality of life for cancer survivors. The Division conducts and supports an integratedprogram of the highest quality behavioral, epidemiologic, genetic, health services, andsurveillance cancer research.“Much of the suffering and death from cancer could be prevented by more systematicefforts to reduce tobacco use, improve diet and physical activity, reduce obesity,and expand the use of established screening tests. The American Cancer Societyestimates that in 2011 about 171,600 cancer deaths will be caused by tobacco usealone. In addition, approximately one-third of the 571,950 cancer deaths expected tooccur in 2011 are attributed to poor nutrition, physical inactivity, overweight, andobesity.”11. American Cancer Society. Cancer Prevention & Early Detection Facts & Figures 2011.Atlanta: American Cancer Society; 2011.
  5. 5. Source: Brad Hesse, NCI
  6. 6. NCI Priorities in Behavioral Informatics1. How do we encourage evidence-based innovationwithin the next generation of health IT applications?2. How do we use communication science to supportHealth IT “meaningful use” goals? (Improve outcomes, patientengagement, care coordination, population health, protect privacy)3. How do we improve communicationprocesses relevant to the six functionsof patient-centered communication?(Exchanging information, fostering healing relationships,managing uncertainty, responding to emotions,decision-making, and enabling patient self-management)
  7. 7. * Hesse, B., et al. (in preparation). Consumer Demand Outstrips Health System Supply: Trends in theAmerican Public’s Use of, Beliefs about, and Attitudes toward Information Technology in Healthcare.• 92 percent of American adults believe it to be “very or somewhatimportant” for their health care providers to be able to shareinformation with other providers electronically.*(63% = Very Important + 29% = Somewhat Important)• 90 percent believe it to be “very or somewhat” important that they should be able to gettheir own medical information electronically.* (Very Important = 69%; Somewhat Important = 21%)• Convened an expert roundtable to beginarticulating a research agenda (June 7, 2012)• The opportunity to empower an engaged population;• Data interpretation and decision support;• Balancing the needs of individuals and populations;• The influence of culture, incentives and regulation;• Examining the future and the present in parallelHealth IT for Patient-Centered Care6
  8. 8. Communication & Behavior Across TheCancer Control Continuum.7Multi-level peersupport,consumers/clinicians,information,monitoringDecision support, carecoordination,collaborationFollow-up anddecision support, carecoordination, patientengagementCompliance, carecoordination,collaboration,reminder systemsTransition to 1o,surveillance, healthpromotion, end-of-lifePREVENTION• Tobacco Control• Diet• Physical activity• Sun exposure• Virus exposure• Alcohol use• ChemopreventionDETECTION• Pap test• Mammography• FOBT• Sigmoidoscopy• PSADIAGNOSIS• Informeddecision-makingTREATMENT• Health services andoutcomes researchSURVIVORSHIP• Coping• Health promotionfor survivors
  9. 9. • Nearly 14 million US cancer survivors--& growing• At risk for increased physiologic and psychosocial morbidity due to lateand long-term effects of cancer and its treatment• Growing concern about how to best deliver follow-up care to addresscancer survivors’ complex, ongoing needs• IOM report, Lost in Transition, recommended use of a treatmentsummary and survivorship care plan, with consultative visitSurvivorship Care Planning:Background
  10. 10. •Accreditation bodies have called for implementation of careplanning•Lack of evidence base re:– the efficacy of care plans– how best to implement care plans– the best constructs and measures for evaluating SCPsWhere Are We?
  11. 11. NCI has released two program announcements:Focus: to stimulate research evaluating the effects of care planning on survivors’physical and psychosocial health outcomes; self-management of late effects andadherence to screening and health behavior guidelines; utilization of follow-up care;organizational factors; and associated costs.“Examination of Survivorship Care Planning Efficacy & Impact”• R21 (PA-12-274)–• R01 (PA-12-275)–
  12. 12. IOM-Recommended Elementsof the Survivorship Care Plan•Treatment Summary– Cancer characteristics, treatment history– Potential complications•Care Plan– Recommendations for surveillance, prevention, healthmaintenance– Information about management of symptoms, psychosocialsequelae, community resources– Detailed plan for follow-up care
  13. 13. Why We Need InnovationTo understand:–How best to use technology to develop andimplement survivorship care plans and careplanning interventions?–Care plans as living documents–Meaningful, patient-centered use of care plans12
  14. 14. The ChallengeOffice of the National Coordinator forHealth Information Technology13The Challenge is a call for developers, researchers, and otherinnovators to create new information management tools andapplications that help cancer survivors manage their health andhealthcare after completing cancer treatment.Phase I Requirements:• Wireframes of Proposed App• PDF presentation explaining the app – 7 slides maxPhase II Requirements:• Post relevant details of app to MedStartr• Submit functioning application
  15. 15. CrowdfundingOffice of the National Coordinator forHealth Information Technology14• Crowdfunding describes the collective effort of individualswho network and pool their resources, usually via theInternet, to support efforts initiated by other people ororganizations.Reference:
  16. 16. Phase II CrowdfundingOffice of the National Coordinator forHealth Information Technology15Phase II:• Building a crowdfunding campaign posted on MedStartr– Finalists will prepare campaigns with guidance and optimizationassistance for promotion on the portal– MedStartr will support finalists in their use of social marketingstrategies for outreach to personal networks, target audiences, andgeneral publicReferences: &
  17. 17. CrowdfundingOffice of the National Coordinator forHealth Information Technology16Goals and Benefits of Crowdfunding:• Early stage consumer support and feedback benefits mayadvise future iterations• Engagement with target audiences may offer marketvalidation• Potential to uncover additional relevant audiences• Additional support for long-term innovation
  18. 18. Review Criteria• The submission is an innovative information management tool orapplication deployable on any personal computing platform widelyavailable to consumers;• Addresses the needs of cancer survivors managing their transitionfrom specialty to primary care;• Customizability and ability to adapt to evolving survivorship careneeds including primary/specialist care interactions.• Usability and design;• Evidence of co-design with, and support from users of proposedtool or application (e.g., patients, families, primary/specialtycaregivers, insurers, and/or hospital systems);• Innovation/differentiation from existing technologies and products;and,• Functionality, accuracy, integration with electronic care platforms,and use of Blue Button+ standards ( and othersources of health-related information;Office of the National Coordinator forHealth Information Technology17
  19. 19. TimelinePhase ISubmission Period: April 30, 2013 to May 28, 2013 11:59 p.m. PDTFinalists Notified: May 31, 2013Finalists Announced: Health Datapalooza, June 3, 2013Phase IISubmission Period: June 10, 2013 to July 12, 2013 11:59 p.m. PDTCrowdfunding : June 10, 2013 - July 5, 2013Announce Grand Prize Winner: July-August, 2013Office of the National Coordinator forHealth Information Technology18
  20. 20. PrizesPhase I Finalists: $5,000First Place: $25,000Not to mention: recognition, publicity, credibility and reach!Office of the National Coordinator forHealth Information Technology19
  21. 21. Questions?Office of the National Coordinator forHealth Information Technology20www.health2challenge.comContact