Accessible Good Practice Guide


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Accessible Good Practice Guide

  1. 1. Good Practice and Innovation Shown in Learning Disability Health Services – The Self Assessment Framework 2009/10 Presented at the “Healthy Lives Showcase Event” Friday 9th July 2010
  2. 2. 2 Good Practice in the West Midlands Many examples of good practice were seen across the region. You can add useful contact information and notes to this table if you like. Two areas of good work have been selected from each district and are presented here today: 1.The Growing Old with a Learning Disability and LEAD: Birmingham Dementia (GOLDD) project – helping people who are getting older or having problems with their memory. Website: 2. Dignity Champions to help people with a learning disability get better care in local hospitals. LEAD: Coventry 1. The Grapevine Project, which includes a Buddy system, where buddies go along to health appointments with people – part of the “H Team Website: model”. 2. A wide range of accessible screening tools used in health care have been made.
  3. 3. 3 Lead: Dudley 1. A good database and register to identify people with a learning disability in Dudley 2. The Learning Disability Support Line – is run by the PALS service. They can help people to make complaints. This is an independent signposting service facilitated by volunteers. The service is for people with learning disabilities and/or their carers to get information in a format which suits their needs and/or to assist the person to make a complaint and get resolution. LEAD: Hereford 1. There is good work going on in transition services, which is when children turn into adults. Website: Herefordshire Transition Team have worked with schools to introduce a transition toolkit to assist the young person with a learning disability and their families to make plans towards adulthood which are person centred and look at the whole of life. Additionally, one school has been working with the national Getting a Life programme in Herefordshire to look at how we can make reviews in school more
  4. 4. 4 person centred to improve the pathway to employment for young adults. 2. People’s Union – which involves teaching and supporting individuals to make a complaint. The People's Union created a Bill of Rights. It is a simple and easy to understand guide which helps people with learning disabilities to know their rights and why it is important to use them. The People's Union have also carried out workshops for people with learning disabilities on how to make a complaint if they are unhappy. This work is continuing and evolving. LEAD: Staffordshire 1. The bereavement project - which helps people (North and who have lost a family member of friend. South) Website: http://www.staffordshire- Bereavement Care Project: The Learning Disability Development project in North Staffordshire - four main areas of work include: • One to one counselling • Training professional, carers, families and service
  5. 5. 5 users in and around Bereavement and Loss • Workshops for individuals with Learning disabilities • Peer mentoring group for individuals with learning disabilities 2. A training programme for doctors and midwives which is given by service users. The Mencap Staffordshire Self Advocacy Network has been working with Keele and Staffordshire Universities since 2002 to provide user led workshops / training for medical students to ensure they have an understanding of the barriers facing people with learning disabilities when accessing health services. LEAD: Richard.Young@sandwell- Sandwell 1. NHS Campus reprovision- Changing people's support and living arrangements, moving to independent Living with better access and better outcomes. 2. The Inclusion Web - a dynamic tool to check that people are socially included and have good
  6. 6. 6 lives. This links to the good work of the self- advocacy group "Changing Our Lives". LEAD: Shropshire 1. Lots of work around sexual health and parenting. This includes a sexual health clinic, learning- disability awareness training for midwives, and a parenting strategy that includes people with a learning disability 2. There is some good work going on with Learning Disability Services and the End of Life Care Team. LEAD: catherine.nolan@solihull- Solihull 1. There is good work going on to support individuals with challenging behaviour and complex needs live in their own homes. Website: http://www.easy-read- 2. Good team work with services: disability-services.aspx - Dieticians and speech therapists to help people with swallowing problems. - Learning disability services and the End of Life care team. Unfortunately Stoke are unable to showcase LEAD: and Stoke anything today.
  7. 7. 7 1. The SNAP project which helps hospital staff know if a person going into hospital has a learning disability, so more Website: can be done. 2. Better access to the dentist for people with a learning disability living in Stoke. LEAD: Telford & 1. A special worker has been employed to work with Wrekin people with a learning disability from Black and Ethnic minority backgrounds. 2. There are lots of exciting and personal ways to improve the health of people with a learning disability. LEAD: Walsall 1. Lots of work has been done to increase the number of people who are screened for Cancer. Website: This has been done as part of the Pacesetters Programme. Screening Our Ladies’ Walsall & Pacesetters • Walsall has increased the uptake to NHS cancer screening programmes by people with a learning disability as part of the Pacesetters Programme.
  8. 8. 8 • Our project aim was to increase uptake to cancer screening programmes and increase health awareness, choice, independence and empowerment by people with a learning disability. This was done by initiating health promotion groups, e.g. ‘Looking After our Bits’ for women’s health and ‘Looking after out 'Bits and Bobs ‘ for men’s health, easy read information, visual aids, pre visits to the breast screening unit, longer appointment times and easy read invitation letters. 2. The use of “Elephant kiosks” as a user friendly, touch-screen tool. It is used for gaining or giving information from people with a learning disability. Elephant kiosks are a user friendly tool for ‘gaining’ or ‘giving’ information to service users. The kiosks have touch screens which can be used with pointing devices, screen readers and text magnifiers. They have a friendly design that attracts people to use them and are great for both children and adults. They are an excellent tool for making information as accessible as possible.
  9. 9. 9 1. A role of a senior nurse in helping people with LEAD: Warwickshire learning disabilities – where they work as both an and acute facilitator and a health facilitator. Website: 2. A programme of training for GP’s and other health care staff given by service users. 1. The “Healthy Lifestyles” project, which LEAD: Wolverhampton encourages healthy eating and living. It also links to the joint work between dental services and learning disability services to improve oral health. The Healthy Lifestyles project has been running in the day centres of Wolverhampton to increase awareness among people with a learning disability about healthy choices in food and exercise. Work has been done with the dental services to improve the oral health of people with learning disabilities, including Oral Health Action Plans. 2. A supported living service has been made and started for people with a learning disability and autism so they can live safely on their own.
  10. 10. 10 LEAD: Worcester 1. A Healthy lifestyle course is run for people with a learning disability, to keep people healthy. Website: 2. Link nurses - providing support to health services, which includes looking after the GP register of people with a learning disability, staff training and advice about capacity and best interest. There is also a “Health checkers” programme – which involves people with a learning disability auditing other people’s experiences of health services.