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Caregiving by the numbers: The caregiver

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What does the average informal caregiver look like in the United States? This SlideShare, based on a 2015 report from the AARP Public Policy Institute and the National Alliance for Caregiving, gives an in-depth look at those who provide care to another adult without pay.

Published in: Health & Medicine
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Caregiving by the numbers: The caregiver

  1. 1. Caregiving by the numbers: The caregiver
  2. 2. The average caregiver 60% female 40% male 49years old 85% care for a relative SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
  3. 3. Informal caregivers spend an average of 24.4 hours per week providing care. SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
  4. 4. Number of care recipients SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving 82% care for one adult 3% care for three or more adults 22% care for two adults
  5. 5. Distance from care recipient 34%live with their care recipient 40%live less than 20 minutes away 13%live 20 minutes to 1 hour away 4%live 1 to 2 hours away 7%live more than 2 hours away * 1% are not sure of the distance SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
  6. 6. Frequency of visits 55%visit more than once a week 19%visit once a week 13%visit a few times per month 5%visit once a month 4%visit a few times per year 4%visit less than a few times per year SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
  7. 7. Types of care provided Getting in and out of beds and chairs . 43% Getting dressed . . . . . . . . . . . . . . . . . . 32% Getting to and from the toilet . . . . . . . 27% Bathing or showering . . . . . . . . . . . . . 26% Feeding . . . . . . . . . . . . . . . . . . . . . . . . 23% Dealing with incontinence or diapers . 16%SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
  8. 8. Other types of care provided Transportation . . . . . . . . . . . . . . . . . . . . . 78% Grocery or other shopping . . . . . . . . . . . 76% Housework . . . . . . . . . . . . . . . . . . . . . . . 72% Preparing meals . . . . . . . . . . . . . . . . . . . . 61% Managing finances . . . . . . . . . . . . . . . . . 54% Giving medications, pills or injections . . . 46% Arranging outside services . . . . . . . . . . . . 31% SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
  9. 9. Other key activities Monitoring health of care recipient . . . . . . . . . . . . 66% Communicating with healthcare professionals . . . 63% Advocating with providers, services, agencies . . . . 50% SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
  10. 10. Medical/nursing tasks Percentage of caregivers performing medical/nursing tasks such as giving medications, preparing food for special diets, tube feeding, wound care, monitoring blood pressure or blood sugar, helping with incontinence, or operating equipment such as hospital beds, wheelchairs, oxygen tanks, nebulizers or suctioning tubes: 57%SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
  11. 11. 14%do medical/nursing tasks with training 55%do medical/nursing tasks with no training SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
  12. 12. SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving Level of care provided 40% high burden 18% medium burden 41% low burden
  13. 13. 50% of caregivers say they had no choice in taking on their caregiving responsibilities SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
  14. 14. 22% felt their health had gotten worse as a result of caregiving SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
  15. 15. SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving Caregiver stress 19% report physical stress 38% report emotional stress 18% report financial stress
  16. 16. SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving 60% of caregivers are employed
  17. 17. SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving 60% report having to make workplace changes as a result of caregiving
  18. 18. SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving Work impacts due to caregiving Go in late, leave early, take time off . . . . . . . . . . . . 49% Leave of absence . . . . . . . . . . . . . . . . . . . . . . . . . . 15% Reduce hours/take less demanding job . . . . . . . . . 14% Receive warning about performance/attendance . . . . 7% Give up working entirely . . . . . . . . . . . . . . . . . . . . . . 6% Turn down promotion . . . . . . . . . . . . . . . . . . . . . . . . 5% Retire early . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4% Lose job benefits . . . . . . . . . . . . . . . . . . . . . . . . . . . . 3%
  19. 19. SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving 84% say they could use more information or help on caregiving topics
  20. 20. SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving Caregiving information needs Keeping care recipient safe at home . . . . . . . . . . . . . . . 42% Managing emotional/physical stress . . . . . . . . . . . . . . . 42% Making end-of-life decisions . . . . . . . . . . . . . . . . . . . . . 22% Managing care recipient’s challenging behaviors . . . . . . 12% Managing care recipient’s incontinence/toileting problems . . . . . . . . . . . . . . . . . . 11% Finding non-English language educational materials . . . . 5%
  21. 21. SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving Use of services 34%have made modifications to the care recipient’s home 28%have requested information about financial help for the recipient 23%have used transportation services 15%have used respite services
  22. 22. SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving Affordable assistance (such as delivered meals, transportation and in-home health services) 25%of caregivers have found it difficult to get affordable services in their area
  23. 23. SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving Caregiver support policies Caregivers felt the following would be helpful: Include caregiver’s name on recipient medical chart . . . . . 49% Require facilities to instruct medical/nursing tasks . . . . . . 43% Require hospitals to inform caregiver of major decisions . 41% Have respite services available . . . . . . . . . . . . . . . . . . . . . . 33%
  24. 24. SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving Most preferred financial support policies Program where caregivers are paid for some hours of care . . 30% Income tax credit . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 30% Partially paid leave from work . . . . . . . . . . . . . . . . . . . . . . . . 11%
  25. 25. Expectation of future caregiving roles Do current caregivers expect to have some responsibility for the care of an adult in the next five years? 52% yes 25% not sure 23% no SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
  26. 26. Plans for the future Does caregiver have plans in place for his/her future care, such as instructions for handling financial matters, healthcare decisions or living arrangements? SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving 58% no 42% yes
  27. 27. www.good-sam.com

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