On your Libido, Eye Colo(u)r and Broccoli Preferences: Problemswith Self-Reported (Medical) Data       Samantha Clark (@ia...
Our Interest• Started• Allows users to share genetic data, along with  (medical) information• Right now: ~120 different tr...
Regional Idiosyncrasies
Regional Idiosyncrasies
Further Problems   The Desire to be Unique
The Desire to be Unique
The Desire to be Unique
Even More Problems      Cognitive Biases
Cognitive Biases
Cognitive Biases
Not all questions are useful
Possible MitigationsDisclaimer: Not all of those have been tested by us
Questionnaires
Questionnaires
Automatic Tracking         http://dl.maclife.com/maclife_photos/0510/reviews/fitbit_full.jpg
Automatic Tracking         http://dl.maclife.com/maclife_photos/0510/reviews/fitbit_full.jpg
MagicHistogram: http://www.canon.ca/support_images/KB_Images/G0034801.jpgBeard: http://i98.photobucket.com/albums/l247/g0m...
Magic
Conclusions                                                                People dont mind answering questions about them...
On your Libido, Eye Colo(u)r and Broccoli Preferences: Problems with Self-Reported (Medical) Data
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On your Libido, Eye Colo(u)r and Broccoli Preferences: Problems with Self-Reported (Medical) Data

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Ignite talk on data curation. Given at StrataRx San Francisco 2012

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On your Libido, Eye Colo(u)r and Broccoli Preferences: Problems with Self-Reported (Medical) Data

  1. 1. On your Libido, Eye Colo(u)r and Broccoli Preferences: Problemswith Self-Reported (Medical) Data Samantha Clark (@iameltonjohn) Bastian Greshake (@gedankenstuecke)
  2. 2. Our Interest• Started• Allows users to share genetic data, along with (medical) information• Right now: ~120 different traits/phenotypes
  3. 3. Regional Idiosyncrasies
  4. 4. Regional Idiosyncrasies
  5. 5. Further Problems The Desire to be Unique
  6. 6. The Desire to be Unique
  7. 7. The Desire to be Unique
  8. 8. Even More Problems Cognitive Biases
  9. 9. Cognitive Biases
  10. 10. Cognitive Biases
  11. 11. Not all questions are useful
  12. 12. Possible MitigationsDisclaimer: Not all of those have been tested by us
  13. 13. Questionnaires
  14. 14. Questionnaires
  15. 15. Automatic Tracking http://dl.maclife.com/maclife_photos/0510/reviews/fitbit_full.jpg
  16. 16. Automatic Tracking http://dl.maclife.com/maclife_photos/0510/reviews/fitbit_full.jpg
  17. 17. MagicHistogram: http://www.canon.ca/support_images/KB_Images/G0034801.jpgBeard: http://i98.photobucket.com/albums/l247/g0machamp/014-7.jpg
  18. 18. Magic
  19. 19. Conclusions People dont mind answering questions about themselves, but they arent necessarily too good at providing unbiased answers in a unified metric. Some things that may help this in the future are standardized or automatic data collection.

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